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Specialized Information Resources

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Description: Programs that maintain information about community resources that are appropriate for a specific target group or human services sector (for example, youth programs or addiction services) and which link individuals who are in need of specialized services with appropriate resources and/or which provide information about community agencies and organizations that offer specialized services. (AIRS TJ-3000.8000)

If you know of a Service that should be listed but isn't, please Suggest a New Provider. If you find errors in a listing, please let us know by using the "Suggest an Edit" form on the provider's detail page.
Disclaimer...
Note: Service listings do not represent a recommendation or endorsement by the Medical Home Portal staff or its sponsoring organizations; nor do they reflect any assessment of the quality or value of a listed Service.

UT (77)


Statewide (27)


Cedar City (1)


Cottonwood Heights (1)


Delta (1)


Draper (1)


Dugway (1)


Ephraim (1)


Lindon (1)


Logan (1)


Moab (1)


Mount Pleasant (1)


Murray (1)


Ogden (3)


Orem (3)


Price (1)


Provo (3)


Richfield (1)


Riverton (1)


Salt Lake City (20)


South Jordan (1)


South Salt Lake (1)


Spanish Fork (1)


St. George (2)


Taylorsville (1)


West Valley City (1)


Nationwide (117)


CO (1)


Denver (1)


MD (1)


Rockville (1)


VA (1)


Mc Lean (1)


UT

Statewide

Autism Council of Utah (ACU)
780 Guardsman Way
c/o Utah Parent Center, Pingree School
Salt Lake City, UT 84108
 Phone: 801-272-1051
Service Categories:
Community Advocacy Agencies
Disability Awareness Programs
Specialized Information Resources
Address: 780 Guardsman Way
c/o Utah Parent Center, Pingree School
Salt Lake City, UT 84108
Phone: 801-272-1051
Service Categories:
Community Advocacy Agencies
Disability Awareness Programs
Specialized Information Resources
Email: autismcouncilofutah@gmail.com
URL: http://www.autismcouncilofutah.org
Eligibility: Open to all.
Services Provided: An independent council working to foster collaboration, communication, and learning among families and agencies, aiming to promote access to resources and responsible information for individuals of all ages who have, or are affected by autism, or related conditions.
Provider Profiles: Internet resources, use search to find local resources.

Supporting International Meeting for Autism Research (IMFAR)
Original Source: United Way 2-1-1
Last Updated: 7/9/2019
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Baby Your Baby Hotline, Utah Department of Health
PO Box 142106
Salt Lake City, UT 84114-2106
 Phone: 800-826-9662
Service Categories:
Crisis Helplines/Hotlines
Pregnancy-related, Other
Specialized Information Resources
Organization Name: Utah Department of Health
Address: PO Box 142106
Salt Lake City, UT 84114-2106
Phone: 800-826-9662
Fax: 801-538-9448
Service Categories:
Crisis Helplines/Hotlines
Pregnancy-related, Other
Specialized Information Resources
URL: http://www.babyyourbaby.org
Eligibility: Utah. Financial help is available on a temporary basis to Utah women who are pregnant and do not have the money to pay for prenatal care. Income restrictions apply. US Citizens or Green Card holders for the last 5 years may apply
Wheelchair Accessible: Completely
Services Provided: Provides temporary Medicaid insurance coverage for low income pregnant women who have no insurance or inadequate prenatal insurance. Other services include helpful information, from referrals to financial help to preparing for pregnancy, for parents and their children statewide.
Original Source: United Way 2-1-1
Last Updated: 6/11/2019
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Care About Childcare - Cedar City, Five County Association of Governments
585 North Main
Cedar City, UT 84721
 Phone: 435-586-8722
Service Categories:
Childcare, Special Needs
Resources for Childcare Providers
Specialized Information Resources
Organization Name: Five County Association of Governments
Address: 585 North Main
Cedar City, UT 84721
Phone: 435-586-8722
Toll Free Phone: 800-543-7527
Fax: 435-865-6902
Service Categories:
Childcare, Special Needs
Resources for Childcare Providers
Specialized Information Resources
Email: carrie@childcarehelp.org
URL: https://careaboutchildcare.utah.gov/
Eligibility: No restrictions
Services Provided: Care About Child Care provides a list of child care providers for parents, information about what constitutes quality child care, information about childhood development, and information about available financial aid.
Original Source: MedHome Portal
Last Updated: 7/15/2019
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Disability Law Center (DLC)
205 North 400 West
Community Legal Center
Salt Lake City, UT 84103
 Phone: 801-363-1347
Service Categories:
Legal Services, General
Specialized Information Resources
Address: 205 North 400 West
Community Legal Center
Salt Lake City, UT 84103
Phone: 801-363-1347
TDD: 800-550-4182
Toll Free Phone: 800-662-9080
Fax: 801-363-1437
Service Categories:
Legal Services, General
Specialized Information Resources
URL: http://www.disabilitylawcenter.org
Eligibility: Must have a disability, in Utah.
Wheelchair Accessible: Complete
Services Provided: The Disability Law Center (DLC) is a private and nonprofit organization working to enforce and strengthen laws that protect the opportunities, choices and legal rights of Utahns with disabilities. The focus is disability discrimination, and areas related to disability where it provides information. Does not provide assistance with filing for disability benefits, personal injury, family law, guardianship, or evictions.
Original Source: United Way 2-1-1
Last Updated: 6/27/2019
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FoodPantries.org Utah
UT
Service Categories:
Food Banks
Specialized Information Resources
Address: UT
Service Categories:
Food Banks
Specialized Information Resources
URL: https://www.foodpantries.org/st/utah
Services Provided: Statewide database of food pantries listed by city.
Original Source: MedHome Portal
Last Updated: 8/7/2019
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GermWatch, Intermountain Healthcare
UT
Service Categories:
Public Health Services
Specialized Information Resources
Organization Name: Intermountain Healthcare
Address: UT
Service Categories:
Public Health Services
Specialized Information Resources
URL: https://intermountainhealthcare.org/health-information/germwatch/
Services Provided: A web-based source for up-to-date information about infectious diseases currently affecting Utah communities.
Original Source: MedHome Portal
Last Updated: 12/10/2018
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Help Me Grow Utah, United Way of Utah County (UWUC)
148 North 100 West
PO Box 135
Provo, UT 84601
 Phone: 801-691-5322
Service Categories:
Developmental Assessment
Early Intervention for Children with Disabilities/Delays
Specialized Information Resources
Organization Name: United Way of Utah County (UWUC)
Address: 148 North 100 West
PO Box 135
Provo, UT 84601
Phone: 801-691-5322
Toll Free Phone: 2-1-1
Fax: 801-374-2591
Service Categories:
Developmental Assessment
Early Intervention for Children with Disabilities/Delays
Specialized Information Resources
Email: helpmegrow@unitedwayuc.org
URL: https://www.helpmegrowutah.org/
Eligibility: Prenatal parents and families with children through age 8 throughout the state.
Services Provided: An information and referral helpline available at no cost that provides parents, physicians and providers with the knowledge and resources they need to make a difference in the lives of children.
Services include:
Personal Care Coordination
Free Child Development and Perinatal screenings
Answers to pregnancy, parenting and child development questions
Connection to community resources
Provider Profiles: Barbara Leavitt, Director

Additional locations: St. George, Ogden and Salt Lake City, 2-1-1 - United Way of Salt Lake: Dial 2-1-1 and ask for Help Me Grow.
Original Source: United Way 2-1-1
Last Updated: 7/2/2019
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Lifting Hearts
UT
 Phone: 801-360-4666
Service Categories:
Local Support Groups, Disability/Diag
Specialized Information Resources
Address: UT
Phone: 801-360-4666
Service Categories:
Local Support Groups, Disability/Diag
Specialized Information Resources
Email: kara.liftinghearts@gmail.com
URL: http://www.lifting-hearts.com/
Eligibility: Women affected by breast cancer.
Services Provided: Breast cancer: provides one-on-one mentoring, monthly support meetings, retreats, service opportunities, and family activities all aimed at helping breast cancer survivors and their families heal.
Original Source: United Way 2-1-1
Last Updated: 6/27/2019
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Nicotine Anonymous of Utah, Nicotine Anonymous World Services
Ogden, UT 75214
 Phone: 877-879-6422
Service Categories:
Local Support Groups, Addiction
Specialized Information Resources
Organization Name: Nicotine Anonymous World Services
Address: Ogden, UT 75214
Phone: 877-879-6422
Fax: 888-390-5873
Service Categories:
Local Support Groups, Addiction
Specialized Information Resources
URL: http://www.nicotine-anonymous.org
Eligibility: A desire to stop using nicotine.
Services Provided: A fellowship of men and women helping each other to live lives free of nicotine. Participants share experience, strength, and hope with each other so that they may be free from nicotine's powerful addiction. A locator webpage for face to face, phone or internet support groups.
Original Source: MedHome Portal
Last Updated: 8/14/2018
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Open Legal Services
1537 South Main Street Suite 9
Salt Lake City, UT 84115
 Phone: 801-433-9915
Service Categories:
Financial Assistance, Other
Legal Services, General
Specialized Information Resources
Address: 1537 South Main Street Suite 9
Salt Lake City, UT 84115
Phone: 801-433-9915
Fax: 801-416-9937
Service Categories:
Financial Assistance, Other
Legal Services, General
Specialized Information Resources
URL: http://openlegalservices.org
Eligibility: Clients who earn too much to qualify for free (pro-bono) legal services, but also earn too little to afford a traditional private firm.
Services Provided: A nonprofit online referral for family, criminal, landlord/tenant law, immigration, small claims, contract disputes, collections, employment law, victims of domestic violence and violent crimes, human trafficking, DACA, citizenship, divorce, estate planning, paternity, adoption, custody, child support, mediation, and wills/trusts, dedicated to serving Utah's low and moderate income residents, by online referrals.
Original Source: MedHome Portal
Last Updated: 4/4/2019
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Power Your Life, Utah Department of Health
UT
Service Categories:
Specialized Information Resources
Organization Name: Utah Department of Health
Address: UT
Service Categories:
Specialized Information Resources
URL: http://poweryourlife.org
Services Provided: Informational website for women and children detailing tips for health, parenting, and relationships.
Provider Profiles: Online resource.
Original Source: MedHome Portal
Last Updated: 10/23/2018
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Single Parent Resource List, 2-1-1 Utah
UT
Service Categories:
Specialized Information Resources
Organization Name: 2-1-1 Utah
Address: UT
Service Categories:
Specialized Information Resources
URL: http://www.uw.org/211/find-help/resources-by-need/single-parent-resource-list.pdf
Eligibility: Salt Lake County area
Services Provided: A 2-page list of resources in Salt Lake County area for single parents
Original Source: MedHome Portal
Last Updated: 5/9/2016
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Special Needs Resource Project (SNRP)
UT
Service Categories:
Specialized Information Resources
Address: UT
Service Categories:
Specialized Information Resources
URL: http://www.snrproject.com/
Services Provided: A website of helpful information and resources, Special Needs Resource Project (SNRP) provides a basic guide for parents of children with chronic health issues, disabilities and special needs.
Original Source: MedHome Portal
Last Updated: 9/20/2013
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Trauma Informed Care Network of Utah (TICN)
UT
Service Categories:
Crisis Intervention Mental Health
Outpatient Community Mental Health Agencies
Specialized Information Resources
Address: UT
Service Categories:
Crisis Intervention Mental Health
Outpatient Community Mental Health Agencies
Specialized Information Resources
URL: http://www.ticn.org/
Eligibility: A variety of insurances are accepted by different providers, including Medicaid and Medicare.
Services Provided: Trauma-trained and trauma-informed mental health, medical, and complementary providers experienced in the impact of trauma on the physical health and emotional well being of clients and patients in Utah.

The Trauma Informed Care Network (TICN) webpage has a growing list of 30+ providers.
Original Source: MedHome Portal
Last Updated: 7/28/2016
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United Way 2-1-1 Utah, United Way of Salt Lake
257 East 200 South Ste 300
Salt Lake City, UT 84111
 Phone: 2-1-1
Service Categories:
Crisis Helplines/Hotlines
Information & Referral Resources
Specialized Information Resources
Organization Name: United Way of Salt Lake
Address: 257 East 200 South Ste 300
Salt Lake City, UT 84111
Phone: 2-1-1
Toll Free Phone: 888-826-9790
Fax: 801-736-7800
Service Categories:
Crisis Helplines/Hotlines
Information & Referral Resources
Specialized Information Resources
Email: 211ut@uw.org
URL: http://www.211utah.org
Wheelchair Accessible: Complete
Services Provided: A statewide service of United Way of Salt Lake, 2-1-1 is an easy-to-remember information and referral telephone number that people dial to get connected and get answers, providing information on issues relating to people with disabilities, including events, services, and products. Also assists in guiding uninsured Utahns into health insurance exchanges via "navigators" to comply with the Affordable Care Act, and with tax filing.
Original Source: United Way 2-1-1
Last Updated: 9/13/2018
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Utah Afterschool Network
254 South 600 East, Suite 200
Salt Lake City, UT 84102
 Phone: 801-359-2722
Service Categories:
After School Programs
Specialized Information Resources
Address: 254 South 600 East, Suite 200
Salt Lake City, UT 84102
Phone: 801-359-2722
Service Categories:
After School Programs
Specialized Information Resources
URL: http://childcare.jobs.utah.gov/
Services Provided: Use locator to search for afterschool programs in Utah by county, city, schools.
Original Source: MedHome Portal
Last Updated: 5/29/2018
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Utah Disability Benefits and Assistance Programs
UT
Service Categories:
Disability Related Transportation
Services for People with Disabilities
Specialized Information Resources
Address: UT
Service Categories:
Disability Related Transportation
Services for People with Disabilities
Specialized Information Resources
URL: http://www.needhelppayingbills.com/html/utah_disability_benefit_progra.html
Eligibility: People with disabilities
Services Provided: A webpage listing benefits and assistance programs for people with disabilities.
Provider Profiles: NeedHelpPayingBills.com
Original Source: MedHome Portal
Last Updated: 6/12/2018
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Utah Drug Card
UT
Service Categories:
Prescription Drug Patient Assistance Programs
Specialized Information Resources
Address: UT
Service Categories:
Prescription Drug Patient Assistance Programs
Specialized Information Resources
URL: https://www.utahdrugcard.com/
Eligibility: Utah residents
Services Provided: Access to a Prescription Assistance Program in which residents can print free discount prescription coupons up to 75 percent in savings at more than 68,000 pharmacies. Simply follow the link and print your free coupon now to start saving on your prescription drugs.
Provider Profiles: website
Original Source: MedHome Portal
Last Updated: 6/4/2018
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Utah Early Childhood Professional Development Connections, Utah Head Start-State Collaboration Office
PO Box 142001
Salt Lake City, UT 84114-2001
 Phone: 801-538-9312
Service Categories:
Child Care Providers
Specialized Information Resources
Organization Name: Utah Head Start-State Collaboration Office
Address: PO Box 142001
Salt Lake City, UT 84114-2001
Phone: 801-538-9312
Fax: 801-538-6505
Service Categories:
Child Care Providers
Specialized Information Resources
URL: http://earlychildhoodconnections.weber.edu/
Services Provided: Information about early childhood services and providers in Utah. Links to early childhood organizations in Utah. Information about early childhood jobs, degrees, financial aid, training, and conferences in Utah. Links to early childhood standards, guidelines, and projects.
Original Source: MedHome Portal
Last Updated: 6/13/2019
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Utah Medicaid Program, Utah Department of Health
288 North 1460 West
Cannon Health Building
Salt Lake City, UT 84116
 Phone: 801-538-6003
Service Categories:
Medicaid
Specialized Information Resources
Organization Name: Utah Department of Health
Address: 288 North 1460 West
Cannon Health Building
Salt Lake City, UT 84116
Phone: 801-538-6003
Service Categories:
Medicaid
Specialized Information Resources
URL: https://medicaid.utah.gov/
Languages Spoken: Spanish Services Available
Eligibility: Low income pregnant women, children, elderly, disabilities, parents and women with breast or cervical cancer.
Services Provided: A comprehensive website for Utah's Medicaid Program, with Spanish language option. A state/federal program that pays for medical services for low-income pregnant women, children, individuals who are elderly or have a disability, parents and women with breast or cervical cancer. To qualify, these individuals must meet income and other eligibility requirements. Medicaid assures coverage ONLY when the provider is enrolled as a Utah Medicaid Provider AND agrees to accept the Medicaid payment as payment in full.
Provider Profiles: Mailing Address: Utah Department of Health
P.O. Box 141010
Salt Lake City, UT 84114-1010
Original Source: MedHome Portal
Last Updated: 10/23/2018
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Utah Office of Health Disparities, Utah Department of Health
PO Box 141000
Cannon Health Building
Salt Lake City, UT 84114-1000
 Phone: 801-538-6777
Service Categories:
Departments of Health, State
Health Insurance Counseling and Advocacy
Information & Referral Resources
Specialized Information Resources
Organization Name: Utah Department of Health
Address: PO Box 141000
Cannon Health Building
Salt Lake City, UT 84114-1000
Phone: 801-538-6777
Fax: 801-536-0970
Service Categories:
Departments of Health, State
Health Insurance Counseling and Advocacy
Information & Referral Resources
Specialized Information Resources
URL: http://health.utah.gov/disparities
Wheelchair Accessible: Complete
Services Provided: Provides an online multilingual health library, training materials for health care professionals, and other health information resources to reduce health disparities and improve health outcomes for vulnerable populations.
Provider Profiles: online resource
Original Source: United Way 2-1-1
Last Updated: 9/4/2018
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Utah Psychological Association
2040 East Murray Holladay Road Suite 112
Holladay, UT 84117
 Phone: 801-274-2700
Service Categories:
Community Advocacy Agencies
Specialized Information Resources
Address: 2040 East Murray Holladay Road Suite 112
Holladay, UT 84117
Phone: 801-274-2700
Fax: 801-274-2707
Service Categories:
Community Advocacy Agencies
Specialized Information Resources
Email: upa@softsolutions.com
URL: http://www.utahpsych.org
Eligibility: No restrictions
Wheelchair Accessible: Not At All
Services Provided: Professional organization for Utah psychologists. Operates a referral service and speaker's bureau.
Original Source: MedHome Portal
Last Updated: 2/5/2019
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Utah Support Advocates for Recovery Awareness (USARA)
180 East 2100 South Ste 100
Salt Lake City, UT 84115
 Phone: 385-210-0320
Service Categories:
Local Support Groups, Addiction
Specialized Information Resources
Address: 180 East 2100 South Ste 100
Salt Lake City, UT 84115
Phone: 385-210-0320
Toll Free Phone: 855-698-7272
Fax: 801-590-6556
Service Categories:
Local Support Groups, Addiction
Specialized Information Resources
Email: info@myusara.com
URL: http://www.myusara.com/support/
Eligibility: St. George and Salt Lake, Telephone Recovery Services throughout Utah
Services Provided: Recovery Support Services are provided by people who share their lived-experience of addiction and recovery. Offer clients a network for building strong and mutually supportive relationships with informal supports and formal systems in their communities. Free Naloxone (Narcan) rescue kits for support group members. Telephone Recovery Support, weekly check-in calls.
Provider Profiles: Call for details.
Located in Salt Lake City and St. George
Original Source: MedHome Portal
Last Updated: 2/27/2019
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Violence and Injury Prevention Program, Utah Department of Health
PO Box 142106
Salt Lake City, UT 84114-2106
 Phone: 801-538-6864
Service Categories:
Public Health Services
Specialized Information Resources
Substance Use Disorder Treatment
Organization Name: Utah Department of Health
Address: PO Box 142106
Salt Lake City, UT 84114-2106
Phone: 801-538-6864
Fax: 801-538-9134
Service Categories:
Public Health Services
Specialized Information Resources
Substance Use Disorder Treatment
Email: saerts@utah.gov
URL: http://www.health.utah.gov/vipp/
Services Provided: The Violence and Injury Prevention Program strives to eliminate needless suffering and death from injuries and violence. Provides information and referrals for the issues of prevention and recovery of brain injury (TBI) in the state of Utah. VIPP administers the Naxalone (Narcan) treatment program for the reversal of opioid drugs and heroin.
Original Source: United Way 2-1-1
Last Updated: 6/11/2019
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Work Ability Utah, Utah Department of Health
1595 West 500 South
Salt Lake City, UT 84104
 Phone: 877-246-9675
Service Categories:
Disability Related Employment Programs
Specialized Information Resources
Vocational Education
Organization Name: Utah Department of Health
Address: 1595 West 500 South
Salt Lake City, UT 84104
Phone: 877-246-9675
Toll Free Phone: 877-246-9675
Service Categories:
Disability Related Employment Programs
Specialized Information Resources
Vocational Education
URL: http://www.workabilityutah.org/
Services Provided: Works to increase the employment and health care outcomes for people with disabilities in Utah. Work Ability Utah strives to link employers in the business community with the qualified workforce of people with disabilities.
Provider Profiles: The Medicaid Infrastructure Grant is funded under the TIcket to Work and Work Incentives Act.
Original Source: MedHome Portal
Last Updated: 4/8/2019
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Young Survivor Sisters
UT
 Phone: 801-628-8091
Service Categories:
Local Support Groups, Disability/Diag
Specialized Information Resources
Address: UT
Phone: 801-628-8091
Service Categories:
Local Support Groups, Disability/Diag
Specialized Information Resources
URL: http://www.facebook.com/groups/yssutah/
Eligibility: Breast cancer survivors and patients, ages 20-49, living in Utah.
Services Provided: A free, online, non-denominational breast cancer support group for women living in Utah. We've been supporting each other like sisters since 2003 and welcome your participation.
Original Source: MedHome Portal
Last Updated: 1/3/2019
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myCase Utah
UT
Service Categories:
Health Insurance Counseling and Advocacy
Medicaid
Specialized Information Resources
Address: UT
Service Categories:
Health Insurance Counseling and Advocacy
Medicaid
Specialized Information Resources
URL: https://jobs.utah.gov/mycase/es_ES/home
Services Provided: You can apply for health insurance, tax credits, and Medicaid through the Marketplace via HealthCare.gov, myCase, or at your local DWS employment center.
If you have already applied for or are receiving medical assistance, you can sign up or log in to myCase to get information, recertify and manage your benefits.
"case" refers to case number
Provider Profiles: If you'd like to obtain free assistance applying for Medicaid/CHIP visit www.takecareutah.org or call 211.

internet-based, statewide
Original Source: MedHome Portal
Last Updated: 10/10/2018
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Cedar City, UT

RRCI: Empowering People with Disabilities - Cedar City, Red Rock Center For Independence - St George
427 South Main Ste 305
Cedar City, UT 84720
 Phone: 435-704-4798
Service Categories:
Assistive Technology Equipment
Independent Living
Services for People with Disabilities
Specialized Information Resources
Vision Screening
Organization Name: Red Rock Center For Independence - St George
Address: 427 South Main Ste 305
Cedar City, UT 84720
Phone: 435-704-4798
Fax: 435-586-2285
Service Categories:
Assistive Technology Equipment
Independent Living
Services for People with Disabilities
Specialized Information Resources
Vision Screening
URL: http://www.rrci.org
Eligibility: For those with disabilities. May also assist those who have had emergency surgery and are in need of a temporary wheelchair, crutches, or other device.
Services Provided: Provides support and education to those with disabilities to live independently through education, personalized services, and technology.
Original Source: United Way 2-1-1
Last Updated: 9/10/2018
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Cottonwood Heights, UT

Principle Voices
3332 Fort Union Boulevard
Cottonwood Heights, UT 84121
 Phone: 801-943-5651
Service Categories:
Crisis Helplines/Hotlines
Specialized Information Resources
Address: 3332 Fort Union Boulevard
Cottonwood Heights, UT 84121
Phone: 801-943-5651
Service Categories:
Crisis Helplines/Hotlines
Specialized Information Resources
URL: http://www.principlevoices.org
Wheelchair Accessible: Complete
Services Provided: Principle Voices is an education and advocacy organization with a purpose to educate others about polygamous families and their culture, to encourage empowerment of individuals and families from the polygamous culture, and to provide crisis referrals and response to those in the culture.
Original Source: MedHome Portal
Last Updated: 3/29/2018
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Delta, UT

Red Rock Center for Independence - Delta, Red Rock Center For Independence - St George
58 East Main Street Ste 2
Delta, UT 84624
 Phone: 435-253-2084
Service Categories:
Adaptive Sports and Recreation
Assistive Technology Equipment
Independent Living
Specialized Information Resources
Vision Screening
Organization Name: Red Rock Center For Independence - St George
Address: 58 East Main Street Ste 2
Delta, UT 84624
Phone: 435-253-2084
Fax: 435-864-3740
Service Categories:
Adaptive Sports and Recreation
Assistive Technology Equipment
Independent Living
Specialized Information Resources
Vision Screening
URL: http://www.rrci.org
Eligibility: Individuals with disabilities and their families.
Services Provided: Provides support and education to those with disabilities to live independently through education, personalized services, and technology.
Original Source: MedHome Portal
Last Updated: 7/31/2017
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Draper, UT

Holding Out Help
138 East 12300 South, Ste C#193
Draper, UT 84020
 Phone: 801-548-3492
Service Categories:
Ethnic, Religious, Cultural Support
Specialized Information Resources
Address: 138 East 12300 South, Ste C#193
Draper, UT 84020
Phone: 801-548-3492
Service Categories:
Ethnic, Religious, Cultural Support
Specialized Information Resources
URL: http://www.holdingouthelp.org
Eligibility: Must be or have been involved in polygamous lifestyle
Wheelchair Accessible: Complete
Services Provided: Providing polygamists the resources needed to transition from isolation to independence. Holding Out HELP provides access to housing, food, clothing, counseling, mentoring, education and referral services. Services are strictly confidential.
Original Source: United Way 2-1-1
Last Updated: 6/5/2019
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Dugway, UT

Army Community Service
Building 5124 Community Services
Dugway, UT 84022-5003
 Phone: 435-831-2260
Service Categories:
Career Counseling
Domestic Violence Intervention Programs
Financial Counseling
Specialized Information Resources
Address: Building 5124 Community Services
Dugway, UT 84022-5003
Phone: 435-831-2260
Service Categories:
Career Counseling
Domestic Violence Intervention Programs
Financial Counseling
Specialized Information Resources
URL: http://www.dugway.army.mil/CommunityServices.aspx
Eligibility: Active duty, retirees and their families, civil employees and their families, National Guard, Reserve when active.
Wheelchair Accessible: Yes
Services Provided: Provides information, referral and follow-up for Army programs and outside resources; intake interviews and assessment; classes for Army family members; volunteer opportunities on Dugway; annual Army Family Action Plan Conference.
Original Source: MedHome Portal
Last Updated: 2/7/2017
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Ephraim, UT

Ability 1st - Ephraim, Ability 1st Utah
85 West 100 North
Ephraim, UT 84627
 Phone: 435-283-4949
Service Categories:
Adult/Child Mentoring Programs
Assistive Technology Equipment
Independent Living
Specialized Information Resources
Vocational Education
Organization Name: Ability 1st Utah
Address: 85 West 100 North
Ephraim, UT 84627
Phone: 435-283-4949
Fax: 435-283-4949
Service Categories:
Adult/Child Mentoring Programs
Assistive Technology Equipment
Independent Living
Specialized Information Resources
Vocational Education
URL: http://www.Ability1stUtah.org
Eligibility: Individiuals with a mental, physical, cognitive or sensory disability are eligible to apply
Services Provided: Ability 1st Utah’s satellite office provides advocacy, peer support, independent living skills training, community integration, nursing home/institution transition, recreational activities, assistive technology, loan bank services and transportation services (to and from center).
Original Source: MedHome Portal
Last Updated: 6/20/2018
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Lindon, UT

Utah Parent Center at Alpine School District, Utah Parent Center
350 North State Street
Lindon, UT 84042
 Phone: 801-318-1959
Service Categories:
Parent/Family Education
Special Needs Schools, Other
Specialized Information Resources
Organization Name: Utah Parent Center
Address: 350 North State Street
Lindon, UT 84042
Phone: 801-318-1959
Service Categories:
Parent/Family Education
Special Needs Schools, Other
Specialized Information Resources
Email: maria@utahparentcenter.org
URL: http://www.utahparentcenter.org
Eligibility: Parents in the Alpine School District who have children and young adults with special needs.
Services Provided: Helps parents help children, youth, and young adults with all disabilities to live included, productive lives as members of the community. Provides information, empathetic peer support, training and advocacy based on the concept of parents helping other parents.
Original Source: United Way 2-1-1
Last Updated: 5/29/2019
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Logan, UT

Center for Persons with Disabilities, Utah State University
6800 Old Main Hill
Logan, UT 84322-6800
 Phone: 435-797-1981
Service Categories:
Assistive Technology Equipment
Early Intervention for Children with Disabilities/Delays
Educational Advocacy
Independent Living
Neuropsychological Assessment
Specialized Information Resources
State Institutions for Individuals with Disabilities
Vocational Education
Organization Name: Utah State University
Address: 6800 Old Main Hill
Logan, UT 84322-6800
Phone: 435-797-1981
Toll Free Phone: 866-284-2821
Fax: 435-797-3944
Service Categories:
Assistive Technology Equipment
Early Intervention for Children with Disabilities/Delays
Educational Advocacy
Independent Living
Neuropsychological Assessment
Specialized Information Resources
State Institutions for Individuals with Disabilities
Vocational Education
URL: https://www.cpd.usu.edu/
Eligibility: All ages, need based.
Services Provided: The CPD is Utah's dynamic collection of projects, guided by a goal to improve the lives of people with disabilities and their families. This is done through research, education, demonstration services and technical assistance.
Services include:
Early intervention -- with families of children aged birth to three who have developmental disabilities or are at risk for disability (Up to Three)
Rehabilitation and education in life skills -- for adults with significant disabilities
Clinical diagnostic and evaluation services ADOS $1800
Medical services
Family supports directed to link individuals from diverse cultures to community-based services
Provider Profiles: Judith Holt, Director Interdisciplinary Training
Sue Olsen, Director Division of Exemplary Services, Up to Three

Association of University Centers on Disabiities
Original Source: MedHome Portal
Last Updated: 5/22/2019
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Moab, UT

Interact Clubhouse, Four Corners Community Behavioral Health - Administration
59 North 200 East
Moab, UT 84532
 Phone: 435-259-7340
Service Categories:
Outpatient Community Mental Health Agencies
Specialized Information Resources
Vocational Education
Organization Name: Four Corners Community Behavioral Health - Administration
Address: 59 North 200 East
Moab, UT 84532
Phone: 435-259-7340
Fax: 435-719-4016
Service Categories:
Outpatient Community Mental Health Agencies
Specialized Information Resources
Vocational Education
URL: http://www.fourcorners.ws/index.html
Eligibility: Adults, youth and children with history of mental illness in need of information about community resources
Wheelchair Accessible: Complete
Services Provided: Provide rehabilitation to adults with mental illness, promote empowerment through meaningful work opportunities. Psychosocial rehabilitation program.
Original Source: United Way 2-1-1
Last Updated: 6/10/2019
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Mount Pleasant, UT

Sanpete CARES
Mount Pleasant, UT 84647
 Phone: 435-851-5206
Service Categories:
Mental Health, Other Services
Specialized Information Resources
Address: Mount Pleasant, UT 84647
Phone: 435-851-5206
Service Categories:
Mental Health, Other Services
Specialized Information Resources
Email: sanpetecares@gmail.com
URL: http://www.sanpetecares.org
Eligibility: No restrictions.
Services Provided: Strives to link community members to mental health resources.
Original Source: United Way 2-1-1
Last Updated: 6/26/2019
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Murray, UT

Epilepsy Foundation - Utah
4516 South 700 East Ste 160
Murray, UT 84107
 Phone: 801-883-9669
Service Categories:
Disability Awareness Programs
Specialized Information Resources
Address: 4516 South 700 East Ste 160
Murray, UT 84107
Phone: 801-883-9669
Toll Free Phone: 800-332-1000
Fax: 301-459-1569
Service Categories:
Disability Awareness Programs
Specialized Information Resources
Email: ContactUs@efa.org
URL: http://www.epilepsy.com
Eligibility: Individuals with epilepsy, their families and friends.
Services Provided: Provides information, advocacy, and assistance finding doctors, legal assistance, support groups, and transportation reimbursement. Free educational material in English and Spanish.
Original Source: United Way 2-1-1
Last Updated: 7/10/2019
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Ogden, UT

McKay-Dee Community Live Well Library, Intermountain Healthcare
4401 Harrison Boulevard Ste 1410
Ogden, UT 84403
 Phone: 801-387-7800
Service Categories:
Parent/Family Education
Specialized Information Resources
Organization Name: Intermountain Healthcare
Address: 4401 Harrison Boulevard Ste 1410
Ogden, UT 84403
Phone: 801-387-7800
Fax: 801-387-7805
Service Categories:
Parent/Family Education
Specialized Information Resources
URL: http://mckaydee.org/classes
Eligibility: Public
Wheelchair Accessible: Complete
Services Provided: Provides health education information to the community including CPR classes, free car seat safety checks, and health-related speakers, as well as books, models, and pamphlets for teachers and the community to check out.
Original Source: United Way 2-1-1
Last Updated: 5/30/2019
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Roads to Independence Disability Service Center
3355 Washington Boulevard
Ogden, UT 84401
 Phone: 801-612-3215
Service Categories:
Disability Related Employment Programs
Disability Related Transportation
Services for People with Disabilities
Specialized Information Resources
Address: 3355 Washington Boulevard
Ogden, UT 84401
Phone: 801-612-3215
TDD: 801-612-3215
Toll Free Phone: 866-734-5678
Fax: 801-612-3732
Service Categories:
Disability Related Employment Programs
Disability Related Transportation
Services for People with Disabilities
Specialized Information Resources
URL: http://roadstoindependence.org
Eligibility: People with physical, cognitive, visual, or other disabilities; all ages.
Wheelchair Accessible: Complete
Services Provided: Provides services that promote and enhance independent living for all people with disabilities, including advocacy for individuals and for systematic changes; assistance obtaining and maintaining assistive technology equipment; independent living skills training; and information and referral for people with disabilities.
Original Source: United Way 2-1-1
Last Updated: 5/30/2019
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Weber-Morgan Children's Justice Center
2408 Van Buren Avenue
Ogden, UT 84401
 Phone: 801-778-6261
Service Categories:
Child Abuse Counseling
Specialized Information Resources
Address: 2408 Van Buren Avenue
Ogden, UT 84401
Phone: 801-778-6261
Fax: 801-393-6128
Service Categories:
Child Abuse Counseling
Specialized Information Resources
URL: http://cjcogden.org
Eligibility: Children 17 and younger who are victims of sexual or physical abuse, domestic violence, drug endangerment, and internet exploitation.
Wheelchair Accessible: Complete
Services Provided: Provides coordinated services for children and their families during the investigative process of child abuse complaints including: crisis intervention, forensic interviews in child friendly interview rooms, trained interviewers, specialized medical exams, and advocacy services.
Original Source: United Way 2-1-1
Last Updated: 7/10/2019
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Orem, UT

Care About Childcare - Utah Valley University, Utah Valley University (UVU)
500 West 1200 South
Orem, UT 84058
 Phone: 801-863-8631
Service Categories:
Resources for Childcare Providers
Specialized Information Resources
Organization Name: Utah Valley University (UVU)
Address: 500 West 1200 South
Orem, UT 84058
Phone: 801-863-8631
Toll Free Phone: 800-952-8220
Fax: 801-863-7904
Service Categories:
Resources for Childcare Providers
Specialized Information Resources
URL: http://www.uvu.edu/cac/
Eligibility: Utah, Juab, Summit and Wasatch Counties. Any parent requiring child care assistance.
Wheelchair Accessible: Complete
Services Provided: Care About Child Care provides for parents a list of child care providers, information about what constitutes quality child care, information about childhood development, and information about available financial aid. Parents can call, email, or walk in the office to request a child care referral or other child care information. Child care providers can also call for information about training and licensing.
Provider Profiles: Mailing address CC&R: 800 West University Parkway, Orem, UT 84058-6703
Original Source: United Way 2-1-1
Last Updated: 7/1/2019
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Gathering Place
251 East 1200 South
Orem, UT 84058
 Phone: 801-226-2255
Service Categories:
Crisis Intervention Mental Health
Outpatient Private Therapy Practices
Specialized Information Resources
Substance Use Disorder Education and Prevention
Address: 251 East 1200 South
Orem, UT 84058
Phone: 801-226-2255
Fax: (801) 226-2578
Service Categories:
Crisis Intervention Mental Health
Outpatient Private Therapy Practices
Specialized Information Resources
Substance Use Disorder Education and Prevention
URL: http://www.gatheringplace.org
Services Provided: Outpatient treatment that includes individual, group, family and recreational therapy, emergency interventions and talk-downs, extensive community outreach program, referral to other community agencies, women and children program.
Original Source: MedHome Portal
Last Updated: 3/22/2017
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UVU Accessibility Services Department
800 West University Parkway, LC 312
Orem, UT 84058
 Phone: 801-863-8747
Service Categories:
College Disability Centers
Educational Advocacy
Specialized Information Resources
Address: 800 West University Parkway, LC 312
Orem, UT 84058
Phone: 801-863-8747
Service Categories:
College Disability Centers
Educational Advocacy
Specialized Information Resources
URL: http://www.uvu.edu/asd/
Services Provided: Provides a variety of services, software and equipment for students with a wide range of disabilities.
Provider Profiles:
Original Source: United Way 2-1-1
Last Updated: 12/20/2013
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Price, UT

Utah State University College of Eastern Utah Disability Resource Center
451 East 400 North SAC 118
Price, UT 84501
 Phone: 435-613-5337
Service Categories:
College Disability Centers
Educational Advocacy
Specialized Information Resources
Address: 451 East 400 North SAC 118
Price, UT 84501
Phone: 435-613-5337
Fax: 435-613-5112
Service Categories:
College Disability Centers
Educational Advocacy
Specialized Information Resources
URL: http://www.ceu.edu
Services Provided: Providing services and accommodations, in accordance with the ADA Laws and Regulations, to traditional, as well as non-traditional students seeking services and educational opportunities at USU Eastern.
Original Source: United Way 2-1-1
Last Updated: 12/20/2013
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Provo, UT

Ability First Utah - Provo
491 North Freedom Boulevard
Provo, UT 84601
 Phone: 801-373-5044
Service Categories:
Assistive Technology Equipment
Independent Living
Services for People with Disabilities
Specialized Information Resources
Vocational Education
Address: 491 North Freedom Boulevard
Provo, UT 84601
Phone: 801-373-5044
Toll Free Phone: 877-421-4500
Fax: 801-373-5094
Service Categories:
Assistive Technology Equipment
Independent Living
Services for People with Disabilities
Specialized Information Resources
Vocational Education
URL: https://ability1stutah.org/
Eligibility: Individuals with a mental, physical, cognitive or sensory disability.
Services Provided: Ability 1st Utah provides services to individuals with disabilities including advocacy, assistive technology equipment services, independent living skills training, youth program, community integration, nursing home/institution transition, recreational activities, Ticket to Work program.
Provider Profiles: Also an Ability First-Ephraim Satellite office
Original Source: MedHome Portal
Last Updated: 12/11/2018
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Centro Hispanico
817 South Freedom Boulevard
Provo, UT 84601
 Phone: 801-655-0657
Service Categories:
Departments of Health, Local
Home Repair / Modification Programs
Independent Living
Parent/Family Education
Specialized Information Resources
Vocational Education
Address: 817 South Freedom Boulevard
Provo, UT 84601
Phone: 801-655-0657
Fax: 801-691-5299
Service Categories:
Departments of Health, Local
Home Repair / Modification Programs
Independent Living
Parent/Family Education
Specialized Information Resources
Vocational Education
URL: https://www.idealist.org/en/nonprofit/0063da4774d44669a6f58e60e5caf878-centro-hispano-utah-provo
Languages Spoken: Spanish
Eligibility: Utah County, immigrant families
Services Provided: Centro Hispano offers free educational classes, legal assessments, walk-in consultation, volunteer opportunities, a Low-Income Taxpayer Clinic, a community festival and health fairs throughout the year. Working together with other community organizations, Centro Hispano provides direct service in Spanish to immigrant families.
Original Source: MedHome Portal
Last Updated: 8/8/2019
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Centro Hispano Low-Income Taxpayer Clinic, Centro Hispano
817 South Freedom Boulevard
Provo, UT 84601
 Phone: 801-655-0258
Service Categories:
Financial Counseling
Specialized Information Resources
Organization Name: Centro Hispano
Address: 817 South Freedom Boulevard
Provo, UT 84601
Phone: 801-655-0258
Fax: 801-691-5204
Service Categories:
Financial Counseling
Specialized Information Resources
Eligibility: Prospective clients must make less than 250% of the federal poverty income.
Services Provided: Provides free IRS resolution assistance for low-income individuals and families. Does not do current year taxes. Provides assistance at other locations throughout the state by appointment including Ogden, Logan, Salt Lake, and Saint George.
Original Source: United Way 2-1-1
Last Updated: 8/5/2019
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Richfield, UT

RRCI: Empowering People with Disabilities - Richfield, Red Rock Center For Independence - St George
635 North Main Street Ste 685
Richfield, UT 84701
 Phone: 435-979-6416
Service Categories:
Assistive Technology Equipment
Independent Living
Services for People with Disabilities
Specialized Information Resources
Vision Screening
Organization Name: Red Rock Center For Independence - St George
Address: 635 North Main Street Ste 685
Richfield, UT 84701
Phone: 435-979-6416
Fax: 435-896-4473
Service Categories:
Assistive Technology Equipment
Independent Living
Services for People with Disabilities
Specialized Information Resources
Vision Screening
URL: http://www.rrci.org
Eligibility: Individuals with disabilities and their families.
Services Provided: Provides support and education to those with disabilities to live independently through education, personalized services, and technology.
Original Source: United Way 2-1-1
Last Updated: 9/10/2018
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Riverton, UT

Jordan School District Health Services, Jordan School District
2827 West 13400 South
Riverton, UT 84065
 Phone: 801-567-8515
Service Categories:
Health Insurance Counseling and Advocacy
Specialized Information Resources
Organization Name: Jordan School District
Address: 2827 West 13400 South
Riverton, UT 84065
Phone: 801-567-8515
Fax: 801-567-8521
Service Categories:
Health Insurance Counseling and Advocacy
Specialized Information Resources
URL: http://healthservices.jordandistrict.org
Eligibility: Primary focus is on families of Jordan School District, but will assist anyone in need.
Services Provided: Increases awareness of the need for health insurance for all students and assists with applications for Medicaid, CHIP, SSI, HEAT Program, DWS Eligibility and the Health Insurance Marketplace.
Provider Profiles: ACA Certified Application Counselor/Navigator 801-567-8508
Original Source: United Way 2-1-1
Last Updated: 9/5/2018
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Salt Lake City, UT

Care About Childcare @ Children's Service Society
124 South 400 East, Suite 400
Salt Lake City, UT 84111
 Phone: 801-355-4847
Service Categories:
Childcare, Special Needs
Specialized Information Resources
Address: 124 South 400 East, Suite 400
Salt Lake City, UT 84111
Phone: 801-355-4847
Toll Free Phone: 866-438-4847
Fax: 801-355-7453
Service Categories:
Childcare, Special Needs
Specialized Information Resources
URL: http://www.cssutah.org/services/care-about-childcare-families
Services Provided: Care About Childcare is an online system designed to help parents locate licensed providers in their area, in partnership with the State Office of Child Care/ Department of Workforce Services. CCR&R

The Child Care Licensing Program regulates child care providers and can make available to the public the provider's complaint history and compliance records if requested.
Original Source: MedHome Portal
Last Updated: 3/3/2016
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Empowerment Services
352 South Denver Street (440 E) Ste 202
Salt Lake City, UT 84111
 Phone: 801-359-2797
Service Categories:
Local Support Groups, Addiction
Local Support Groups, Disability/Diag
Specialized Information Resources
Address: 352 South Denver Street (440 E) Ste 202
Salt Lake City, UT 84111
Phone: 801-359-2797
Service Categories:
Local Support Groups, Addiction
Local Support Groups, Disability/Diag
Specialized Information Resources
Eligibility: Adults 18 years of age or older with an experience of a mental health diagnosis or addiction problem.
Services Provided: A peer operated organization promoting health, wellness, recovery, and resiliency through peer leadership and peer learning opportunities.
Original Source: MedHome Portal
Last Updated: 3/6/2018
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Huntsman Cancer Institute
1950 Circle of Hope Drive (100 South)
Salt Lake City, UT 84112
 Phone: 801-587-7000
Service Categories:
Hospitals
Local Support Groups, Disability/Diag
Specialized Information Resources
Address: 1950 Circle of Hope Drive (100 South)
Salt Lake City, UT 84112
Phone: 801-587-7000
Toll Free Phone: 800-824-2073
Fax: 801-587-9235
Service Categories:
Hospitals
Local Support Groups, Disability/Diag
Specialized Information Resources
URL: http://www.huntsmancancer.org
Eligibility: Cancer patients.
Services Provided: The Huntsman Cancer Institute at the University of Utah Hospital serves thousands of cancer patients throughout the intermountain west every year and provides academic and clinical training for future physicians and researchers.
Original Source: United Way 2-1-1
Last Updated: 6/6/2019
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Latino Behavioral Health Services, NAMI Utah
3471 South West Temple
Salt Lake City, UT 84115
 Phone: 801-935-4447
Service Categories:
Education About Disabilities/Diagnoses
Local Support Groups, Disability/Diag
Specialized Information Resources
Organization Name: NAMI Utah
Address: 3471 South West Temple
Salt Lake City, UT 84115
Phone: 801-935-4447
Service Categories:
Education About Disabilities/Diagnoses
Local Support Groups, Disability/Diag
Specialized Information Resources
URL: http://www.latinobehavioral.org/
Eligibility: Minimum age 16. No violent offenders.
Services Provided: Latino Behavioral Health Services is a peer, community based nonprofit that provides support and educational programs at no cost. Enhances the awareness and well-being of people with mental illness, their caregivers and loved ones through support, education, empowerment, facilitation of resources and services with responsiveness to cultural, socioeconomic and linguistics characteristics.
Original Source: United Way 2-1-1
Last Updated: 9/11/2018
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Mothers of Preschool Children - Salt Lake Groups, Mothers of Preschoolers International
1010 East 700 South
Salt Lake City, UT 84102-3930
Service Categories:
Local Support Groups, General
Specialized Information Resources
Organization Name: Mothers of Preschoolers International
Address: 1010 East 700 South
Salt Lake City, UT 84102-3930
Toll Free Phone: 888-910-6677
Fax: 303-733-5770
Service Categories:
Local Support Groups, General
Specialized Information Resources
URL: http://www.mops.org/groupsearch/index.php?h_method=find&zip=84109
Services Provided: Dedicated to meeting the needs of mothers of preschoolers. Groups usually meet once or twice a month, and often provide childcare through the MOPPETS program.
Original Source: United Way 2-1-1
Last Updated: 7/13/2016
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Recovery Help Utah
1414 East 4500 South Ste 4G
Salt Lake City, UT 84117
Service Categories:
Specialized Information Resources
Substance Use Disorder Treatment
Address: 1414 East 4500 South Ste 4G
Salt Lake City, UT 84117
Toll Free Phone: 800-705-5850
Fax: 888-595-6665
Service Categories:
Specialized Information Resources
Substance Use Disorder Treatment
URL: http://recoveryhelp.com
Services Provided: Online and in-person video sessions for substance abuse recovery.
Original Source: MedHome Portal
Last Updated: 7/11/2017
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SLCC Disability Resource Center, Salt Lake Community College, Taylorsville Redwood Campus
4600 South Redwood Road (1700 W)
Salt Lake City, UT 84123
 Phone: 801-957-7522
Service Categories:
College Disability Centers
Educational Advocacy
Specialized Information Resources
Organization Name: Salt Lake Community College, Taylorsville Redwood Campus
Address: 4600 South Redwood Road (1700 W)
Salt Lake City, UT 84123
Phone: 801-957-7522
Service Categories:
College Disability Centers
Educational Advocacy
Specialized Information Resources
URL: http://www.slcc.edu/drc/index.asp
Eligibility: Documentation of a disability
Services Provided: Disability Resource Center (DRC) is to foster student inclusion into the SLCC Community through teaching independence, self-advocacy, and responsibility while maintaining an environment that promotes personal, educational and social growth.
Original Source: United Way 2-1-1
Last Updated: 5/29/2019
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Special Needs Alliance - Utah
1135 East South Temple
Salt Lake City, UT 84102
Service Categories:
Estate & Future Planning
Guardianship
Specialized Information Resources
Address: 1135 East South Temple
Salt Lake City, UT 84102
Toll Free Phone: 877-572-8472
Service Categories:
Estate & Future Planning
Guardianship
Specialized Information Resources
URL: http://www.specialneedsalliance.org/
Services Provided: The Special Needs Alliance member attorneys work regularly with public benefits, guardianships/ conservatorships, planning for disabilities and special education issues, much on a volunteer basis.
SNA Practice Areas and Services: Special Needs Trusts and Wills; Medicaid, SSI and Entitlement Program Eligibility; Estate, Trust and Tax Planning for Individuals with Disabilities and their Families. Financial Planning and Legal Assistance for Individuals with Disabilities: Guardianships and Conservatorships; Assistance with Personal Injury/Medical Malpractice Settlements; Trust and Estate Distributions and Fiduciary Accountings; Estate and Trust Administration; Health Care Decisions and Advance Directives.
Provider Profiles: See educational resources on website.
See Locate an Attorney page to search for legal expertise by state.
In Utah:
Calvin C. Curtis, CELA, Attorney at Law, PLLC
calvin@curtiselderlaw.com
http://www.curtiselderlaw.com/
1135 East South Temple
Salt Lake City, UT 84102
Tel: (801)534-4430
Fax: (801)534-4431
Original Source: MedHome Portal
Last Updated: 8/1/2018
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University Healthcare Alcohol and Drug Abuse Clinic
30 North 1900 East SOM 1R52
Salt Lake City, UT 84132
 Phone: 801-581-6228
Service Categories:
Specialized Information Resources
Substance Use Disorder Education and Prevention
Substance Use Disorder Treatment
Address: 30 North 1900 East SOM 1R52
Salt Lake City, UT 84132
Phone: 801-581-6228
Toll Free Phone: 800-824-2073
Fax: 801-585-6702
Service Categories:
Specialized Information Resources
Substance Use Disorder Education and Prevention
Substance Use Disorder Treatment
URL: http://www.healthcare.utah.edu/pmr/contact/alcohol
Eligibility: Adult patients must be clean and sober for five days prior to intake.
Wheelchair Accessible: Complete
Services Provided: Outpatient evaluation and treatment for alcohol and drug abuse for adults.
Original Source: MedHome Portal
Last Updated: 3/29/2018
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Utah Affordable Housing Database, Utah Division of Housing and Community Development
1385 South State Street, 4th floor
Salt Lake City, UT 84115
 Phone: 801-468-0091
Service Categories:
Housing, Other
Specialized Information Resources
Organization Name: Utah Division of Housing and Community Development
Address: 1385 South State Street, 4th floor
Salt Lake City, UT 84115
Phone: 801-468-0091
Service Categories:
Housing, Other
Specialized Information Resources
URL: http://jobs.utah.gov/jsp/housing/
Eligibility: Some rental properties have "set-aside" units specifically for low income; seniors over age of 62; persons with physical and mental disabilities; persons who are HIV positive; homeless individuals and families.
Services Provided: Online database of available and affordable apartments for rent in Utah. Search for housing units that match specific needs, income, and location. Units listed generally serve populations at 80% or below the area median income (AMI).Go to the database online. Do NOT call the number unless the website is down or if they cannot access the website.
Original Source: United Way 2-1-1
Last Updated: 5/30/2019
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Utah Council of the Blind
250 North 1950 West Rm 246 Ste B
Salt Lake City, UT 84116
 Phone: 801-292-1156
Service Categories:
Assistive Technology Equipment
Disability Awareness Programs
Scholarships
Specialized Information Resources
Address: 250 North 1950 West Rm 246 Ste B
Salt Lake City, UT 84116
Phone: 801-292-1156
Toll Free Phone: 800-273-4569
Fax: 801-292-6046
Service Categories:
Assistive Technology Equipment
Disability Awareness Programs
Scholarships
Specialized Information Resources
Email: info@utahcounciloftheblind.org
URL: http://www.utahcounciloftheblind.org
Eligibility: Must be legally blind. Membership required for some programs.
Wheelchair Accessible: Complete
Services Provided: Programs to address the challenges faced by Utah's blind and visually impaired.
Here are some of the services and programs we offer:
Personal Braille Program
Ceramic Arts Class
Teacher/Training in home independent living Program
Adaptive Technology and Assistive Technology Training
Reader Program to read important papers, mail and other items
Travel Program to provide assistance and discounted cab fares for members
Presentation Committee for live speaking engagements and assemblies
Orientation and Mobility provided by Teacher/Trainer Teams
Braille: Grade One, Grade Two
Employment Training for Blind Patrons and Resume Building
Original Source: United Way 2-1-1
Last Updated: 6/13/2019
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Utah Down Syndrome Foundation (UDSF)
PO Box 675
Salt Lake City, UT 84110
 Phone: 801-446-1994
Service Categories:
Disability Awareness Programs
Local Support Groups, Disability/Diag
Specialized Information Resources
Address: PO Box 675
Salt Lake City, UT 84110
Phone: 801-446-1994
Service Categories:
Disability Awareness Programs
Local Support Groups, Disability/Diag
Specialized Information Resources
Email: info@udsf.org
URL: http://www.udsf.org
Services Provided: Provides outreach, training, support, education, information, and activities for individuals with Down syndrome, their parents and families, and the community.
Provides administrative support and funding to various Community Groups throughout the state of Utah: Cache/Box Elder, D.A.D.S., Davis, Salt Lake/Tooele, Southern Utah, Teen/Adult groups, Utah County, Wasatch/Summit, Weber/Morgan.
Original Source: United Way 2-1-1
Last Updated: 6/26/2019
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Utah Food Allergy Network
PO Box 521222
Salt Lake City, UT 84152
 Phone: 801-949-0092
Service Categories:
Nutrition Assessment Services
Specialized Information Resources
Address: PO Box 521222
Salt Lake City, UT 84152
Phone: 801-949-0092
Service Categories:
Nutrition Assessment Services
Specialized Information Resources
Email: support@utahfoodallergy.org
URL: https://sites.google.com/site/utahfoodallergynetwork/home
Eligibility: Teens, and all ages
Services Provided: Provides a forum for on-line community support for Utahns who have a food allergy or eosinophilic disorder.
Includes information about food allergies, anaphylaxis, organization meetings, initiatives, and news.
Original Source: MedHome Portal
Last Updated: 5/23/2019
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Utah Governor's Committee on Employment of People with Disabilities
1595 West 500 South
Salt Lake City, UT 84104
 Phone: 801-887-9392
Service Categories:
Disability Awareness Programs
Disability Related Employment Programs
Specialized Information Resources
State Advocacy Agencies
State Institutions for Individuals with Disabilities
Address: 1595 West 500 South
Salt Lake City, UT 84104
Phone: 801-887-9392
TDD: 801-538-7530
Fax: 801-887-9389
Service Categories:
Disability Awareness Programs
Disability Related Employment Programs
Specialized Information Resources
State Advocacy Agencies
State Institutions for Individuals with Disabilities
URL: http://www.goodworkutah.org/
Eligibility: Businesses that want information on employing persons with disabilities
Wheelchair Accessible: Complete
Services Provided: Committee dedicated to assist and encourage the hiring of people with disabilities
Original Source: MedHome Portal
Last Updated: 3/29/2018
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Utah Housing Coalition
230 South 500 West Ste 216
Salt Lake City, UT 84101
 Phone: 801-364-0077
Service Categories:
Housing, Other
Specialized Information Resources
Address: 230 South 500 West Ste 216
Salt Lake City, UT 84101
Phone: 801-364-0077
Fax: 801-596-2011
Service Categories:
Housing, Other
Specialized Information Resources
URL: http://www.utahhousing.org
Eligibility: Open to the public
Services Provided: Utah Housing Coalition is a nonprofit education and advocacy organization that provides support and services to professionals in the housing industry. Utah Housing Coalition does not provide direct services to the public, but can make referrals to other housing resources in most cases.
Original Source: United Way 2-1-1
Last Updated: 3/6/2018
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Utah Independent Living Center - Salt Lake
3445 South Main Street
Salt Lake City, UT 84115-4418
 Phone: 801-466-5565
Service Categories:
Assistive Technology Equipment
Durable Medical Equipment
Independent Living
Services for People with Disabilities
Specialized Information Resources
Address: 3445 South Main Street
Salt Lake City, UT 84115-4418
Phone: 801-466-5565
Toll Free Phone: 800-355-2195
Fax: 801-466-2363
Service Categories:
Assistive Technology Equipment
Durable Medical Equipment
Independent Living
Services for People with Disabilities
Specialized Information Resources
URL: http://www.uilc.org
Eligibility: Persons 18+ years old, Salt Lake, Summit and Tooele counties. Client must have a disability that impairs activities of daily living and an expectation that services will be beneficial.
Wheelchair Accessible: Complete
Services Provided: Private, nonprofit, non–residential facility that teaches independent living skills to people with disabilities. Grant funding for assistive technology.
Provider Profiles: Also a Tooele Satellite Office
Original Source: United Way 2-1-1
Last Updated: 7/9/2019
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Utah Infertility Resource Center
1565 East 3300 South
Located inside Meet Me on 33rd
Salt Lake City, UT 84106
 Phone: 385-313-0990
Service Categories:
Local Support Groups, General
Specialized Information Resources
Address: 1565 East 3300 South
Located inside Meet Me on 33rd
Salt Lake City, UT 84106
Phone: 385-313-0990
Service Categories:
Local Support Groups, General
Specialized Information Resources
URL: http://www.utahinfertilityresourcecenter.org
Eligibility: Those experiencing infertility
Services Provided: Provides education and support to those struggling with infertility. Counseling, educational consultation, support groups, group therapy, special topic seminars. A nonprofit.
Original Source: United Way 2-1-1
Last Updated: 5/29/2019
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Utah State Law Library
450 South State Street Rm W13
Salt Lake City, UT 84114
 Phone: 801-238-7990
Service Categories:
Public & Other Libraries
Specialized Information Resources
Address: 450 South State Street Rm W13
Salt Lake City, UT 84114
Phone: 801-238-7990
Service Categories:
Public & Other Libraries
Specialized Information Resources
Email: library@utcourts.gov
URL: https://www.utcourts.gov/lawlibrary/
Wheelchair Accessible: Complete
Services Provided: Serves the legal information needs of Utah's courts, executive agencies, legislature, attorneys, and the public. While the library's collection is located in Salt Lake City, library services are available to everyone.
Original Source: MedHome Portal
Last Updated: 7/8/2019
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Utah State Legislature, State of Utah
350 North State Street
Salt Lake City, UT 84114
Service Categories:
Specialized Information Resources
State Advocacy Agencies
Organization Name: State of Utah
Address: 350 North State Street
Salt Lake City, UT 84114
Service Categories:
Specialized Information Resources
State Advocacy Agencies
URL: https://le.utah.gov/
Services Provided: The site has all state representatives and senators and their contact information, committees, bills and info on current sessions.
Original Source: MedHome Portal
Last Updated: 11/13/2018
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Vitality Medical Supply
7910 South 3500 East, Suite C
Salt Lake City, UT 84121
Service Categories:
Home Health, In-home Services
Specialized Information Resources
Address: 7910 South 3500 East, Suite C
Salt Lake City, UT 84121
Toll Free Phone: 800-733-5797
Service Categories:
Home Health, In-home Services
Specialized Information Resources
URL: http://www.vitalitymedical.com
Services Provided: Vitality Medical is an online medical supply company specializing in discounted medical products and supplies for homecare, nursing homes and clinics. Educational articles about choosing diapers, underpads, etc., selecting the best for the person.
Original Source: MedHome Portal
Last Updated: 3/2/2017
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South Jordan, UT

Children First Utah
PO Box 951083
South Jordan, UT 84095
 Phone: 801-363-0946
Service Categories:
Scholarships
Specialized Information Resources
Address: PO Box 951083
South Jordan, UT 84095
Phone: 801-363-0946
Service Categories:
Scholarships
Specialized Information Resources
URL: http://www.childrenfirstutah.org
Eligibility: Means based. Income guidelines tailored after the Federal Free and Reduced Lunch Program. See agency web site for current guidelines.
Wheelchair Accessible: Complete
Services Provided: Offers tuition assistance to low-income families in Utah, empowering concerned parents with educational options for their children, grades K - 8.
Original Source: United Way 2-1-1
Last Updated: 8/1/2016
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South Salt Lake, UT

Hser Ner Moo Community and Welcome Center
479 East 2250 South
South Salt Lake, UT 84115
 Phone: 801-466-3238
Service Categories:
Independent Living
Parent/Family Education
Specialized Information Resources
Tutoring Services
Address: 479 East 2250 South
South Salt Lake, UT 84115
Phone: 801-466-3238
Service Categories:
Independent Living
Parent/Family Education
Specialized Information Resources
Tutoring Services
URL: http://www.southsaltlakecity.com/uploads/documents/Hser_Ner_Moo_opt.pdf
Services Provided: Empowers refugees and immigrants through the process of successful integration by facilitating access to resources, expanding networks, creating opportunities for leadership and providing relevant services and support.The Community Center welcomes families from all over the world: Burma, Thailand, Nepal, Congo, Sudan, Somalia, Ethiopia, South and Central America, Syria and the United States.
Original Source: MedHome Portal
Last Updated: 11/8/2017
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Spanish Fork, UT

Utah Parent Center at Nebo School District, Utah Parent Center
2701 East Canyon Crest Drive
Spanish Oaks Elementary School
Spanish Fork, UT 84660
 Phone: 801-228-8144
Service Categories:
Local Support Groups, Disability/Diag
Parent/Family Education
Special Needs Schools, Other
Specialized Information Resources
Organization Name: Utah Parent Center
Address: 2701 East Canyon Crest Drive
Spanish Oaks Elementary School
Spanish Fork, UT 84660
Phone: 801-228-8144
Service Categories:
Local Support Groups, Disability/Diag
Parent/Family Education
Special Needs Schools, Other
Specialized Information Resources
Email: heidi@utahparentcenter.org
URL: http://www.utahparentcenter.org
Eligibility: Parents in the Nebo School District who have children and young adults with special needs.
Services Provided: Helps parents help their children, youth, and young adults with all disabilities to live included, productive lives as members of the community. Provides information, empathetic peer support, training and advocacy based on the concept of parents helping other parents.
Original Source: United Way 2-1-1
Last Updated: 5/29/2019
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St. George, UT

Care About Childcare - St George, Five County Association of Governments
1070 West 1600 South Bldg B
St. George, UT 84770
 Phone: 800-543-7527
Service Categories:
Childcare, Special Needs
Resources for Childcare Providers
Specialized Information Resources
Organization Name: Five County Association of Governments
Address: 1070 West 1600 South Bldg B
St. George, UT 84770
Phone: 800-543-7527
Fax: 435-673-3540
Service Categories:
Childcare, Special Needs
Resources for Childcare Providers
Specialized Information Resources
Email: carrie@childcarehelp.org
URL: http://careaboutchildcare.utah.gov
Eligibility: Licenced child care providers and those that want to become child care providers.
Services Provided: Care About Child Care provides a list of child care providers for parents, information about what constitutes quality child care, information about childhood development, and information about available financial aid.
Original Source: MedHome Portal
Last Updated: 2/28/2019
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Dixie Regional Community Health and Performance Center, Intermountain Healthcare
652 South Medical Center Drive
St. George, UT 84790
 Phone: 435-652-3890
Service Categories:
Emergency Medical Care
Hospitals
Local Support Groups, Disability/Diag
Pediatric Physical Medicine & Rehabilitation
Specialized Information Resources
Organization Name: Intermountain Healthcare
Address: 652 South Medical Center Drive
St. George, UT 84790
Phone: 435-652-3890
Fax: 435-251-2255
Service Categories:
Emergency Medical Care
Hospitals
Local Support Groups, Disability/Diag
Pediatric Physical Medicine & Rehabilitation
Specialized Information Resources
URL: http://intermountainhealthcare.org
Services Provided: Dixie Regional Medical Center (DRMC) full-service regional referral center serving the medical needs of Washington County and the tri-state area.

Health & Performance Center

###5 County###
Provider Profiles: Spirometry testing ages 5 and older 435 251-1650, asthma education 435 251-1653
Original Source: MedHome Portal
Last Updated: 10/12/2017
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Taylorsville, UT

Robert G. Sanderson Community Center of the Deaf and Hard of Hearing, Utah State Division of Rehabilitation Services - Administration
5709 South 1500 West
Taylorsville, UT 84123-5217
 Phone: 801-657-5200
Service Categories:
Assistive Technology Equipment
Disability Related Employment Programs
Rehabilitation / Habilitation Services
Special Needs Schools, Other
Specialized Information Resources
Organization Name: Utah State Division of Rehabilitation Services - Administration
Address: 5709 South 1500 West
Taylorsville, UT 84123-5217
Phone: 801-657-5200
Text: 385-414-5677
TDD: 801-263-4862
Fax: 801-263-4865
Service Categories:
Assistive Technology Equipment
Disability Related Employment Programs
Rehabilitation / Habilitation Services
Special Needs Schools, Other
Specialized Information Resources
Email: jrhill@utah.gov
URL: http://jobs.utah.gov/usor
Eligibility: Deaf or hard of hearing is the primary eligibility requirement for services.
Wheelchair Accessible: Complete
Services Provided: Provides services for people with hearing loss (both Deaf and Hard of Hearing), such as community education, counseling, case management, vocational rehabilitation, independent living programs, Hard of Hearing adjustment training, interpreter training and certification, technology demonstration/installation/repair, Disabled Deaf programs, and a bookstore run by the Utah Association for the Deaf.
A VITA site for traditional and online preparation.
Provider Profiles: AKA Robert G Sanderson Center
Original Source: United Way 2-1-1
Last Updated: 7/8/2019
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West Valley City, UT

Comunidades Unidas /Communities United
1750 West Research Way (2770 South) Suite 102
West Valley City, UT 84119
 Phone: 801-487-4143
Service Categories:
Ethnic, Religious, Cultural Support
Specialized Information Resources
Address: 1750 West Research Way (2770 South) Suite 102
West Valley City, UT 84119
Phone: 801-487-4143
Toll Free Phone: 801-487-4145
Fax: 801-487-4145
Service Categories:
Ethnic, Religious, Cultural Support
Specialized Information Resources
URL: http://www.cuutah.org
Eligibility: Serves the underrepresented Latino population
Wheelchair Accessible: Complete
Services Provided: Provides a variety of programs focusing on both community well-being and community organizing to help individuals from the immigrant and refugee communities become healthy, self-reliant, and participatory members of society.
Original Source: United Way 2-1-1
Last Updated: 7/2/2019
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Nationwide

AHEAD: Association of Higher Education and Disability
107 Commerce Centre Drive, Suite 204
Huntersville, NC 28078
 Phone: 704-947-7779
Service Categories:
College Disability Centers
Educational Advocacy
Specialized Information Resources
Address: 107 Commerce Centre Drive, Suite 204
Huntersville, NC 28078
Phone: 704-947-7779
Fax: 704-948-7779
Service Categories:
College Disability Centers
Educational Advocacy
Specialized Information Resources
URL: https://www.ahead.org
Services Provided: Committed to full participation of persons with disabilities in post-secondary education. Website resources include civil rights, legal resources, DSS professionals.
Provider Profiles: Affiliate programs Utah AHEAD, New Mexico AHEAD
Original Source: MedHome Portal
Last Updated: 8/20/2018
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ARCH National Respite Network and Resource Center, National Respite Locator Service
800 Eastown Drive, Suite 105
Chapel Hill, NC 27514
 Phone: 706-256-2084
Service Categories:
Camps for Children with Special Needs
Respite Care
Specialized Information Resources
Organization Name: National Respite Locator Service
Address: 800 Eastown Drive, Suite 105
Chapel Hill, NC 27514
Phone: 706-256-2084
Service Categories:
Camps for Children with Special Needs
Respite Care
Specialized Information Resources
URL: https://archrespite.org/respitelocator
Services Provided: The ARCH National Respite Network includes the National Respite Locator, a service to help caregivers and professionals locate respite services in their community, the National Respite Coalition, a service that advocates for preserving and promoting respite in policy and programs at the national, state, and local levels, and the Lifespan Respite Technical Assistance Center.
Provider Profiles: The ARCH National Respite Network includes summer camps for both children and adults with special needs.

A cooperative agreement with the US Administration for Community Living/ Administration on Aging
Original Source: MedHome Portal
Last Updated: 8/6/2019
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Academy for Eating Disorders
11130 Sunrise Valley Drive Ste 350
Reston, VA 20191
 Phone: 703-234-4079
Service Categories:
Disability Awareness Programs
Specialized Information Resources
Address: 11130 Sunrise Valley Drive Ste 350
Reston, VA 20191
Phone: 703-234-4079
Fax: 703-435-4390
Service Categories:
Disability Awareness Programs
Specialized Information Resources
Email: info@aedweb.org
URL: http://www.aedweb.org
Eligibility: Open to the public.
Services Provided: Provides research, educational forums, publications, subject matter experts and current information on treatment and prevention of eating disorders.
Original Source: Nationwide Suggest Providers Queue
Last Updated: 7/2/2019
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Alliance for Fertility Preservation
Phone: 925-290-8950
Service Categories:
Medical Care Expense Assistance
Specialized Information Resources
Address:
Phone: 925-290-8950
Service Categories:
Medical Care Expense Assistance
Specialized Information Resources
URL: http://www.allianceforfertilitypreservation.org/
Eligibility: Cancer patients in search of fertility preservation
Services Provided: A locator tool allows cancer patients and oncology professionals to search for fertility preservation services in their area, and to submit referrals or request appointments through a secure online system.
Original Source: MedHome Portal
Last Updated: 1/29/2019
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American Cancer Society
250 Williams Street NW
Atlanta, GA 30303
Service Categories:
Specialized Information Resources
Address: 250 Williams Street NW
Atlanta, GA 30303
TDD: 866-228-4327
Toll Free Phone: 800-227-2345
Service Categories:
Specialized Information Resources
URL: https://www.cancer.org
Wheelchair Accessible: Full Wheelchair Access
Services Provided: Dedicated to eliminating cancer as a major health problem by preventing cancer, saving lives and diminishing suffering from cancer, through research, education, advocacy and service.
Original Source: Nationwide Suggest Providers Queue
Last Updated: 8/14/2019
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American Cleft Palate Craniofacial Association, Cleft Palate Foundation
1504 East Franklin Street
Chapel Hill, NC 27514
 Phone: 919-933-9044
Service Categories:
Craniofacial/Cleft Palate Clinics
Scholarships
Specialized Information Resources
Organization Name: Cleft Palate Foundation
Address: 1504 East Franklin Street
Chapel Hill, NC 27514
Phone: 919-933-9044
Toll Free Phone: 800-242-5338
Fax: 919-933-9604
Service Categories:
Craniofacial/Cleft Palate Clinics
Scholarships
Specialized Information Resources
Email: info@acpa-cpf.org
URL: https://cleftline.org/
Eligibility: Open to all.
Services Provided: Connects individuals and families affected by cleft lip/palate and other craniofacial to team care, providing education, and offerings personal support. Awards college scholarships, research grants, and silent auction. Provides patient/family Connections Conferences and 24 hour Cleftline.
Find an ACPA Approved Team or View International Team Listings.
Cleft Palate Teams (CPT) and Craniofacial Teams (CFT) are composed of healthcare providers working together to address a variety of needs throughout a person’s life. Teams from the US and Canada can apply for recognition as an ACPA Approved Team. This distinction is for teams that demonstrate they meet the Standards for Approval of Cleft Palate and Craniofacial Teams.
Original Source: MHP-Nationwide
Last Updated: 8/6/2019
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American Diabetes Association
2451 Crystal Drive, Suite 900
Arlington, VA 22202
Service Categories:
Disability Awareness Programs
Specialized Information Resources
Address: 2451 Crystal Drive, Suite 900
Arlington, VA 22202
Toll Free Phone: 800-342-2383
Service Categories:
Disability Awareness Programs
Specialized Information Resources
URL: http://www.diabetes.org/
Services Provided: We lead the fight against the deadly consequences of diabetes and fight for those affected by diabetes. We fund research to prevent, cure and manage diabetes. We deliver services to hundreds of communities. We provide objective and credible information. We give voice to those denied their rights because of diabetes.

Website offers education, legal rights, health insurance, tips for caregivers, etc.
Original Source: MedHome Portal
Last Updated: 7/30/2019
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American Heart Association
7272 Greenville Avenue
Dallas, TX 75231
 Phone: 214-373-6300
Service Categories:
Specialized Information Resources
Address: 7272 Greenville Avenue
Dallas, TX 75231
Phone: 214-373-6300
Toll Free Phone: 888-242-2453
Service Categories:
Specialized Information Resources
URL: https://www.heart.org/en/
Eligibility: Contact for information.
Services Provided: Provides latest research information; Emergency Cardiovascular Care & CPR; Advocacy, Donations, Volunteering, Programs available and Fundraising Events in the area.
Original Source: Nationwide Suggest Providers Queue
Last Updated: 8/8/2019
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American Kidney Fund
11921 Rockville Pike Ste 300
Rockville, MD 20852
 Phone: 301-881-3052
Service Categories:
Disability Awareness Programs
Medical Care Expense Assistance
Specialized Information Resources
Address: 11921 Rockville Pike Ste 300
Rockville, MD 20852
Phone: 301-881-3052
Toll Free Phone: 800-638-8299
Fax: 301-881-3311
Service Categories:
Disability Awareness Programs
Medical Care Expense Assistance
Specialized Information Resources
Email: aandors@kidneyfund.org
URL: http://www.kidneyfund.org
Eligibility: Kidney patients and health care professionals.
Services Provided: Provides health information, education, financial assistance, advocacy and resource referrals for patients and health care professionals. Programs for children include summer enrichment activities and the annual Calendar Kids Art Contest. Financial assistance includes:
Health Insurance Premium Program (HIPP)
Safety Net grants
Disaster relief grants
Grants for children
Prescription drug resources
Medical Expense Assistance
Provider Profiles: Internet Information Resource
Original Source: Nationwide Suggest Providers Queue
Last Updated: 8/12/2019
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American Liver Foundation
39 Broadway, Suite 2700
New York, NY 10006
Service Categories:
Specialized Information Resources
Address: 39 Broadway, Suite 2700
New York, NY 10006
Toll Free Phone: 1-800-465-4837
Service Categories:
Specialized Information Resources
URL: https://liverfoundation.org/
Services Provided: The mission of American Foundation ALF is to facilitate, advocate and promote education, support and research for the prevention, treatment and cure of liver disease. The Desert Southwest Division serves Arizona, New Mexico, Texas and Utah.

Specialized Information and Referral
Original Source: Nationwide Suggest Providers Queue
Last Updated: 8/7/2019
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Amyotrophic Lateral Sclerosis Association (ALSA) NATIONAL OFFICE
1275 K Street NW Suite 250
Washington, DC 20005
 Phone: 202-407-8580
Service Categories:
Assistive Technology Equipment
National Support Services, Disab/Diag
Specialized Information Resources
Address: 1275 K Street NW Suite 250
Washington, DC 20005
Phone: 202-407-8580
Toll Free Phone: 800-782-4747
Fax: 202-289-6801
Service Categories:
Assistive Technology Equipment
National Support Services, Disab/Diag
Specialized Information Resources
URL: http://www.alsa.org
Services Provided: Leading the way in global research, providing assistance for people with ALS through a nationwide network of chapters, coordinating multidisciplinary care through certified clinical care centers, and fostering government partnerships,

Assistive Technology Equipment
Disease/Disability Information
Information and Referral
Medical Equipment/Assistive Technology Donation Programs
Support Groups
Original Source: Nationwide Suggest Providers Queue
Last Updated: 8/7/2019
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Annualcreditreport.com
PO Box 105283
Atlanta, GA 30348
 Phone: 877-322-8228
Service Categories:
Financial Counseling
Specialized Information Resources
Address: PO Box 105283
Atlanta, GA 30348
Phone: 877-322-8228
Service Categories:
Financial Counseling
Specialized Information Resources
URL: http://www.annualcreditreport.com
Eligibility: Free credit reports available to everyone yearly.
Services Provided: Federal law requires each of the three nationwide consumer credit reporting companies, Equifax, Experian, and TransUnion, provide consumers a free credit report every 12 months if interested. This website allows users to request a credit report from any or all of the companies annually.
Original Source: Nationwide Suggest Providers Queue
Last Updated: 3/21/2019
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Appeal A Decision, Social Security Administration
Baltimore, MD
Service Categories:
SSI, Supplemental Security Income
Specialized Information Resources
Organization Name: Social Security Administration
Address: Baltimore, MD
TDD: 800-325-0778
Service Categories:
SSI, Supplemental Security Income
Specialized Information Resources
URL: https://www.ssa.gov/disabilityssi/appeal.html
Eligibility: SSI denied for medical reasons
Services Provided: For recent applications for Social Security disability benefits or Supplemental Security Income (SSI) that were denied for medical reasons,
request an appeal online and provide documents to support appeal electronically. Individuals may also continue an appeal already started.
Provider Profiles: Internet resource
TDD Phone for Salt Lake City area 800 325 0778
Original Source: MedHome Portal
Last Updated: 6/13/2019
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Arc of the United States: for People with Intellectual and Developmental Disabilities
1825 K Street NW, Suite 1200
Washington, DC 20006
 Phone: 301-565-3842
Service Categories:
Disability Awareness Programs
National Support Services, Disab/Diag
Specialized Information Resources
Address: 1825 K Street NW, Suite 1200
Washington, DC 20006
Phone: 301-565-3842
Toll Free Phone: 800-433-5255
Fax: 301-565-3843
Service Categories:
Disability Awareness Programs
National Support Services, Disab/Diag
Specialized Information Resources
URL: https://thearc.org/
Eligibility: developmental disabilities
Services Provided: A national organization of and for people with developmental disabilities and their families. Website provides information about public policy; insurance products information; publications; discussion groups; employment registry; and links to local chapters and related organizations.
Original Source: MedHome Portal
Last Updated: 8/6/2019
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Association for Driver Rehabilitation (ADED)
200 First Ave NW Suite 505
Hickory, NC 28601
 Phone: 828-855-1623
Service Categories:
Specialized Information Resources
Address: 200 First Ave NW Suite 505
Hickory, NC 28601
Phone: 828-855-1623
Toll Free Phone: 866-672-9466
Fax: 828-855-1672
Service Categories:
Specialized Information Resources
Email: elizabeth.green@driver-ed.org
URL: https://www.aded.net/default.aspx
Services Provided: The primary professional organization in this specialized area, encouraging equipment development to maximize the transportation options for persons with disabilities. To find a driver rehabilitation specialist in or near your area, please visit our website.

Driving Safety Education
Original Source: Nationwide Suggest Providers Queue
Last Updated: 8/12/2019
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Attention Deficit Disorder Association
PO Box 103
Denver, PA 17517
 Phone: 800-939-1019
Service Categories:
National Support Services, Disab/Diag
Specialized Information Resources
Address: PO Box 103
Denver, PA 17517
Phone: 800-939-1019
Service Categories:
National Support Services, Disab/Diag
Specialized Information Resources
Email: info@add.org
URL: http://www.add.org/
Eligibility: Individuals with ADHD and their families
Services Provided: An international nonprofit organization founded to help adults with Attention Deficit/ Hyperactivity Disorder (ADHD) lead better lives. This volunteer-run organization provides information and resources exclusively for and about adult ADHD.
Original Source: Nationwide Suggest Providers Queue
Last Updated: 3/21/2019
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Autism Speaks
1 East 33rd Street, 2nd Floor
New York, NY 10016
 Phone: 888-772-9050
Service Categories:
Disability Awareness Programs
National Support Services, Disab/Diag
Specialized Information Resources
Address: 1 East 33rd Street, 2nd Floor
New York, NY 10016
Phone: 888-772-9050
Toll Free Phone: 888-288-4762
Service Categories:
Disability Awareness Programs
National Support Services, Disab/Diag
Specialized Information Resources
Email: familyservices@autismspeaks.org
URL: https://www.autismspeaks.org/
Eligibility: People with autism, their families and caregivers.
Services Provided: Provides the latest autism science and information; funding research into the causes, prevention, treatments and a cure for autism; awareness of autism spectrum disorders; and advocating for the needs of individuals with autism and their families.
Original Source: Nationwide Suggest Providers Queue
Last Updated: 8/6/2019
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Autism Spectrum Connection
PO Box 524
Crown Point, IN 46308
 Phone: 219-789-9874
Service Categories:
Information & Referral Resources
Local Support Groups, Disability/Diag
Specialized Information Resources
Address: PO Box 524
Crown Point, IN 46308
Phone: 219-789-9874
Toll Free Phone: 800-328-8476
Service Categories:
Information & Referral Resources
Local Support Groups, Disability/Diag
Specialized Information Resources
Email: info@aspergersyndrome.org
URL: http://www.aspergersyndrome.org
Eligibility: Open to all.
Services Provided: An online resource for families, individuals, and medical professionals who deal with the challenges of Autism and Autism Spectrum Disorders.
Original Source: Nationwide Suggest Providers Queue
Last Updated: 4/18/2019
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Autism Wandering Awareness Alerts Response and Education (AWAARE), National Autism Association
Service Categories:
Adaptive Sports and Recreation
Disability Awareness Programs
Specialized Information Resources
Organization Name: National Autism Association
Address:
Service Categories:
Adaptive Sports and Recreation
Disability Awareness Programs
Specialized Information Resources
Email: naa@nationalautism.org
URL: http://awaare.nationalautismassociation.org
Eligibility: Open to all.
Services Provided: An online resource of six national nonprofit autism organizations whose mission is to reduce autism-related wandering incidents and deaths. Provides an online Family Wandering Emergency Plan, Big Red Safety Box program, and Toolkits for caregivers, first-responders and teachers.
Includes "Where to find swimming lessons."
Original Source: Nationwide Suggest Providers Queue
Last Updated: 3/21/2019
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BEGINNINGS for Parents of Children Who are Deaf or Hard of Hearing, Inc.
302 Jefferson Street, Ste. 110
PO Box 17646
Raleigh, NC 27605
 Phone: 919-715-4092
Service Categories:
National Support Services, Disab/Diag
Specialized Information Resources
Address: 302 Jefferson Street, Ste. 110
PO Box 17646
Raleigh, NC 27605
Phone: 919-715-4092
TDD: 919-715-4092
Fax: 919-715-4093
Service Categories:
National Support Services, Disab/Diag
Specialized Information Resources
URL: http://www.ncbegin.org
Eligibility: Parents of children who are deaf or hard of hearing
Services Provided: Information on communication options, placement, and educational programs for parents of children who are deaf or hard-of-hearing.
Original Source: MedHome Portal
Last Updated: 12/18/2017
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Birth Defect Research for Children Inc.
976 Lake Baldwin Lane, Suite 104
Orlando, FL 32814
 Phone: 407-895-0802
Service Categories:
Specialized Information Resources
Address: 976 Lake Baldwin Lane, Suite 104
Orlando, FL 32814
Phone: 407-895-0802
Service Categories:
Specialized Information Resources
URL: https://www.birthdefects.org/
Services Provided: Provides parents and expectant parents with information about birth defects and support services for their children; a parent-matching program that links families who have children with similar birth defects; sponsors the National Birth Defect Registry, a research project that studies associations between birth defects and exposures to radiation, medication, alcohol, smoking, chemicals, pesticides, lead, mercury, dioxin and other environmental toxins.

Phone: 407 566-8304, 9-5 EST, Mon-Fri or mail by writing to BDRC, 800 Celebration Ave, Suite 225, Celebration FL 34747

Information and Referral
Parent Support Groups
Supported Living Services for Adults with Disabilities
Original Source: Nationwide Suggest Providers Queue
Last Updated: 8/12/2019
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Blindness Information Hotline, American Council of the Blind
1703 North Beauregard Street Suite 420
Alexandria, VA 22311
 Phone: 202-467-5081
Service Categories:
Information & Referral Resources
Scholarships
Specialized Information Resources
Organization Name: American Council of the Blind
Address: 1703 North Beauregard Street Suite 420
Alexandria, VA 22311
Phone: 202-467-5081
Fax: 703-465-5085
Service Categories:
Information & Referral Resources
Scholarships
Specialized Information Resources
Email: info@acb.org
URL: http://www.acb.org
Eligibility: Those who are blind or visually impaired, their families, friends, doctors, caregivers, and anyone who works with blind or visually impaired people
Wheelchair Accessible: Yes
Services Provided: Non-medical information on blindness, and referrals to various sources of help, state services for the blind, and state libraries for the blind.

Provides college scholarships for blind students.
Original Source: Nationwide Suggest Providers Queue
Last Updated: 6/6/2019
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Care.com
201 Jones Road, Suite 500
Waltham, MA 02451
Service Categories:
Childcare, Special Needs
Specialized Information Resources
Address: 201 Jones Road, Suite 500
Waltham, MA 02451
Service Categories:
Childcare, Special Needs
Specialized Information Resources
URL: http://www.care.com/
Services Provided: A commercial web-based resource to find private childcare, special needs care, tutors, and other types of care providers. Create an account in order to browse.
Original Source: MedHome Portal
Last Updated: 8/6/2018
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Caregiver Action Network
10400 Connecticut Ave Ste 500
Kensington, MD 20895-3944
 Phone: 800-896-3650
Service Categories:
Specialized Information Resources
Address: 10400 Connecticut Ave Ste 500
Kensington, MD 20895-3944
Phone: 800-896-3650
Service Categories:
Specialized Information Resources
URL: http://www.caregiveraction.org/
Services Provided: A nonprofit providing resources and information to assist caregivers.
Original Source: Nationwide Suggest Providers Queue
Last Updated: 3/21/2019
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Center for Health Care Transition Improvement
1615 M Street NW, Suite 290
Washington, DC 20036
 Phone: 202-223-1500
Service Categories:
Adolescent Health Transition Programs
Medical Quality Improvement Organizations
Specialized Information Resources
Address: 1615 M Street NW, Suite 290
Washington, DC 20036
Phone: 202-223-1500
Service Categories:
Adolescent Health Transition Programs
Medical Quality Improvement Organizations
Specialized Information Resources
Email: info@GotTransition.org
URL: http://gottransition.org
Services Provided: Dedicated to improving health care transition supports for youth moving into the adult health care system, offers education, resources, tools, and state policy advocacy for youth, families, providers, and states. The Six Core Elements of Health Care Transition 2.0 define the basic components of health care transition support.
Provider Profiles: See resources on http://gottransition.org
Original Source: MedHome Portal
Last Updated: 5/22/2018
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Child Care Aware-National-Child Care Resources/Information/Consumer Education, Child Care Aware of America
1515 North Courthouse Road, 2nd Floor
Arlington, VA 22201
 Phone: 703-341-4100
Service Categories:
Child Care Providers
Day Care Assistance
Specialized Information Resources
Organization Name: Child Care Aware of America
Address: 1515 North Courthouse Road, 2nd Floor
Arlington, VA 22201
Phone: 703-341-4100
TDD: 866-278-9428
Fax: 703-341-4101
Service Categories:
Child Care Providers
Day Care Assistance
Specialized Information Resources
URL: http://childcareaware.org/
Eligibility: All children and families.
Services Provided: Operates a toll-free referral line and national website where parents and child care providers can receive information about finding, choosing, and paying for child care, and referrals to local child care resource and referral agencies to receive individualized assistance.
Original Source: MedHome Portal
Last Updated: 6/10/2019
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Child Neurology Foundation
201 Chicago Avenue, Unit 200
Minneapolis, MN 55415
Service Categories:
Family Support Centers/Outreach
National Support Services, Disab/Diag
Specialized Information Resources
Address: 201 Chicago Avenue, Unit 200
Minneapolis, MN 55415
Service Categories:
Family Support Centers/Outreach
National Support Services, Disab/Diag
Specialized Information Resources
URL: http://www.childneurologyfoundation.org/
Eligibility: For patients or caregivers, advocacy groups, health care providers, and supporters.
Services Provided: CNF Family Support and Empowerment Program (FSEP) offers families a direct connection with an experienced, compassionate Peer Support Specialist to help navigate the journey of disease diagnosis, treatment, and management for a child living with a neurologic condition. Includes: Transition of Care, Infantile Spasms Awareness, Respite Care, Sudden Unexpected Death in Epilepsy, Grants and Scholarships, Webinars
Provider Profiles: National, web-based locator for services
Original Source: MHP-Nationwide
Last Updated: 4/8/2019
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Christopher and Dana Reeve Foundation Paralysis Resource Center
636 Morris Turnpike, Ste 3A
Short Hills, NJ 07078
 Phone: 973-379-2690
Service Categories:
Specialized Information Resources
Address: 636 Morris Turnpike, Ste 3A
Short Hills, NJ 07078
Phone: 973-379-2690
Toll Free Phone: 800-539-7309
Service Categories:
Specialized Information Resources
Email: beisenbud@christopherreeve.org
URL: http://christopherreeve.org
Eligibility: No restrictions
Services Provided: Nonprofit foundation which promotes the health and wellbeing of people living with a spinal cord injury, mobility impairment, and paralysis. The Paralysis Resource Center (PRC) is staffed with information specialists who can provide individualized support via phone/email on any topic related to paralysis, such as what to expect in rehab, the best equipment exchange programs, peer mentoring, educational materials, etc.
Original Source: Nationwide Suggest Providers Queue
Last Updated: 5/30/2019
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Craigslist
Service Categories:
Durable Medical Equipment
Specialized Information Resources
Address:
Service Categories:
Durable Medical Equipment
Specialized Information Resources
URL: http://www.craigslist.org/about/sites/
Services Provided: A commercial on-line resource for resale items including medical equipment, strollers and wheelchairs, and wheelchair-accessible vehicles. Search by city.
Provider Profiles: On-line resource
Original Source: MedHome Portal
Last Updated: 5/23/2018
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Crohn's & Colitis Foundation of America
733 Third Ave Ste 510
New York, NY 10017
 Phone: 800-932-2423
Service Categories:
Disability Awareness Programs
National Support Services, Disab/Diag
Specialized Information Resources
Address: 733 Third Ave Ste 510
New York, NY 10017
Phone: 800-932-2423
Service Categories:
Disability Awareness Programs
National Support Services, Disab/Diag
Specialized Information Resources
Email: info@ccfa.org
URL: http://www.ccfa.org
Eligibility: Crohn's and Colitis patients, their families and medical professionals.
Services Provided: Funds research studies at major medical institutions, nurtures investigators at the early stages of their careers, finances underdeveloped areas of research, and provides educational workshops and programs related to Crohn's Disease and colitis. Provides online and telephone access to disease educational materials, support groups, physician referrals and other resources.
Original Source: Nationwide Suggest Providers Queue
Last Updated: 3/21/2019
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Cystic Fibrosis Foundation Care Centers, Cystic Fibrosis Foundation
4550 Montgomery Avenue, Suite 1100 N
Bethesda, MD 20814
 Phone: 301-951-4422
Service Categories:
Cystic Fibrosis Clinics
National Support Services, Disab/Diag
Specialized Information Resources
Sweat Testing
Organization Name: Cystic Fibrosis Foundation
Address: 4550 Montgomery Avenue, Suite 1100 N
Bethesda, MD 20814
Phone: 301-951-4422
Toll Free Phone: 800-344-4823
Fax: 301-951-6378
Service Categories:
Cystic Fibrosis Clinics
National Support Services, Disab/Diag
Specialized Information Resources
Sweat Testing
URL: https://www.cff.org/ccd/
Eligibility: Pediatric and Adult specialized care centers
Services Provided: A web-based location finder for cystic fibrosis accredited care centers nationwide. The Cystic Fibrosis Foundation provides funding for and accredits more than 110 cystic fibrosis care centers and 55 affiliate programs nationwide, including 96 programs for treating adults with CF.
Provider Profiles: The high quality of specialized care located at teaching and community hospitals across the country, these care centers offer the best care, treatments, and support for those with CF.
Original Source: MedHome Portal
Last Updated: 8/6/2019
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Dysautonomia Foundation
315 West 39th Street Suite 701
New York, NY 10018
 Phone: 212-279-1066
Service Categories:
Specialized Information Resources
Address: 315 West 39th Street Suite 701
New York, NY 10018
Phone: 212-279-1066
Service Categories:
Specialized Information Resources
URL: https://familialdysautonomia.org/
Services Provided: Supporting treatment and research for familial dysautonomia. FD is a hereditary disease of the sensory and autonomic nervous systems.

Information and Referral
Library Services
Original Source: Nationwide Suggest Providers Queue
Last Updated: 8/12/2019
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Easter Seals, Inc.
141 West Jackson Boulevard, Suite 1400A
Chicago, IL 60604
 Phone: 800-221-6827
Service Categories:
Specialized Information Resources
Address: 141 West Jackson Boulevard, Suite 1400A
Chicago, IL 60604
Phone: 800-221-6827
Toll Free Phone: 800-221-6827
Fax: 312-726-1494
Service Categories:
Specialized Information Resources
URL: https://www.easterseals.com/
Eligibility: Autism and other disabilities
Services Provided: Provides exceptional services, education, outreach, and advocacy so that people living with autism and other disabilities can live, learn, work and play in our communities.

Information and Referral
Library Services
Original Source: Nationwide Suggest Providers Queue
Last Updated: 8/12/2019
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Epilepsy Foundation of America
8301 Professional Place East Ste 230
Landover, MD 20785-2356
 Phone: 301-459-3700
Service Categories:
Disability Awareness Programs
Education About Disabilities/Diagnoses
Specialized Information Resources
Address: 8301 Professional Place East Ste 230
Landover, MD 20785-2356
Phone: 301-459-3700
Toll Free Phone: 800-332-1000
Fax: 301-577-2684
Service Categories:
Disability Awareness Programs
Education About Disabilities/Diagnoses
Specialized Information Resources
Email: ContactUs@efa.org
URL: https://www.epilepsy.com/
Eligibility: Individuals with epilepsy, their families and friends.
Services Provided: Provides information, advocacy, and assistance finding doctors, legal assistance, support groups and transportation reimbursement. Learn about epilepsy, types of seizures, triggers, diagnosis, treatment, etc. Offers a seizure diary app self-management tool.
Provider Profiles: Spanish Speakers Phone number: 866-748-8008
Original Source: Nationwide Suggest Providers Queue
Last Updated: 8/6/2019
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Exceptional Parent Magazine
270 Sparta Ave. Suite 104
Sparta, NJ 07871
 Phone: 973-726-6218
Service Categories:
Parent/Family Education
Specialized Information Resources
Address: 270 Sparta Ave. Suite 104
Sparta, NJ 07871
Phone: 973-726-6218
Toll Free Phone: 800-372-7368 x234
Service Categories:
Parent/Family Education
Specialized Information Resources
URL: http://www.ep-magazine.com
Services Provided: Award winning publication provides practical advice, emotional support and the most up-to-date educational information for families of children and adults with disabilities and special healthcare needs as well as to the physicians, allied health care professionals, and educational professionals. The eMagazine is available for free, the monthly print publication is available as a paid subscription.
Content:
Diet & Nutrition
EP Voices: Monthly Columnists
Financial Planning
Schools, Camps & Residences
Provider Profiles: Internet-based and print
Original Source: MedHome Portal
Last Updated: 7/25/2018
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FAIR Health Consumer
NY
 Phone: 855-566-5871
Service Categories:
Health Insurance Counseling and Advocacy
Specialized Information Resources
Address: NY
Phone: 855-566-5871
Service Categories:
Health Insurance Counseling and Advocacy
Specialized Information Resources
URL: https://www.fairhealthconsumer.org/
Services Provided: Get essential information on costs for thousands of procedures and learn insurance basics. A national independent, nonprofit corporation whose mission is to bring transparency to healthcare costs and health insurance information through comprehensive data products and consumer resources. Search for medical and dental costs.
Provider Profiles: Internet-based service
Original Source: MHP-Nationwide
Last Updated: 3/6/2019
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Family Caregiver Alliance, National Center on Caregiving
101 Montgomery Street, Suite 72150
San Francisco, CA 94104
 Phone: 415-434-3388 xl
Service Categories:
Community Advocacy Agencies
National Support Services, General
Respite Care
Specialized Information Resources
Organization Name: National Center on Caregiving
Address: 101 Montgomery Street, Suite 72150
San Francisco, CA 94104
Phone: 415-434-3388 xl
Toll Free Phone: 800-445-8106
Service Categories:
Community Advocacy Agencies
National Support Services, General
Respite Care
Specialized Information Resources
URL: https://www.caregiver.org/
Services Provided: Caregiver services, policy and research. Search for state-based resources using the Family Care Navigator.
Provider Profiles: Internet Information Resource
Original Source: MHP-Nationwide
Last Updated: 3/6/2019
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Find a Therapist, Psychology Today.com
Service Categories:
National Support Services, Disab/Diag
Outpatient Private Therapy Practices
Specialized Information Resources
Organization Name: Psychology Today.com
Address:
Service Categories:
National Support Services, Disab/Diag
Outpatient Private Therapy Practices
Specialized Information Resources
URL: https://www.psychologytoday.com/us/therapists
Services Provided: National state-based database of mental health professionals. Detailed professional listings for Psychologists, Psychiatrists, Therapists, Counselors, Group Therapy and Treatment Centers in the United States and Canada.

Search by city, insurance, issues, sexuality, gender, age, language, faith, types of therapy, online therapy, psychiatrists, treatment centers, and support groups.
Provider Profiles: Internet information resource, services locator
Original Source: MedHome Portal
Last Updated: 8/8/2018
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First Candle/Sids Alliance
49-51 Locust Ave Suite 104, Suite 200
New Canaan, CT 06840
 Phone: 203-966-1300
Service Categories:
Specialized Information Resources
Address: 49-51 Locust Ave Suite 104, Suite 200
New Canaan, CT 06840
Phone: 203-966-1300
Toll Free Phone: 800-221-7437
Service Categories:
Specialized Information Resources
URL: https://firstcandle.org/
Wheelchair Accessible: Not Applicable
Services Provided: First Candle is one of the nations leading nonprofit organizations dedicated to safe pregnancies and the survival of babies through the first years of life. Our current priority is to eliminate Stillbirth, Sudden Infant Death Syndrome SIDS and other Sudden Unexpected Infant Deaths SUID with programs of research, education and advocacy.

Information and Referral
Original Source: Nationwide Suggest Providers Queue
Last Updated: 8/12/2019
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GoodRx.com
Service Categories:
Prescription Drug Patient Assistance Programs
Specialized Information Resources
Address:
Service Categories:
Prescription Drug Patient Assistance Programs
Specialized Information Resources
URL: http://www.goodrx.com
Services Provided: A website to search for lowest price prescription drugs based on location. Offers coupons, will send refill reminders and alerts when prices change.
Original Source: MedHome Portal
Last Updated: 4/25/2018
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Govbenefits.com
DC
Service Categories:
CHIP, State Children's Health Insur Prog
Medicaid
Medicare Special Needs Plan
SSI, Supplemental Security Income
Specialized Information Resources
Address: DC
Service Categories:
CHIP, State Children's Health Insur Prog
Medicaid
Medicare Special Needs Plan
SSI, Supplemental Security Income
Specialized Information Resources
URL: http://www.benefits.gov/
Services Provided: Govbenefits.com is a free confidential prescreening tool for state and federal government programs. Search for benefits you may be able to receive.
Provider Profiles: Internet resource, State and Federal resources
Partners with USA.gov
Original Source: MedHome Portal
Last Updated: 5/22/2018
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HEATH Resource Center at the National Youth Transitions Center
2134 G Street, NW
Washington, DC 200520001
 Phone: 202-454-1220
Service Categories:
Adolescent Health Transition Programs
Medical Quality Improvement Organizations
Specialized Information Resources
Address: 2134 G Street, NW
Washington, DC 200520001
Phone: 202-454-1220
Service Categories:
Adolescent Health Transition Programs
Medical Quality Improvement Organizations
Specialized Information Resources
Email: askheath@gwu.edu
URL: https://www.heath.gwu.edu/
Services Provided: A national clearinghouse on post-secondary education for individuals with disabilities, managed by The George Washington University Graduate School of Education and Human Development.

HEATH participates in national conferences, training sessions, and workshops, develops training modules, publishes resource papers, fact sheets, directories, and website information, and fosters a network of professionals. askheath@gwu.edu.

Assistive Technology Equipment
Information and Referral
Library Services
Original Source: Nationwide Suggest Providers Queue
Last Updated: 8/7/2019
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Health Insurance Marketplace, Centers for Medicare and Medicaid Services
465 Industrial Boulevard
London, KY 40750-0001
 Phone: 800-318-2596
Service Categories:
Health Insurance Counseling and Advocacy
Specialized Information Resources
Organization Name: Centers for Medicare and Medicaid Services
Address: 465 Industrial Boulevard
London, KY 40750-0001
Phone: 800-318-2596
TDD: 855-889-4325
Toll Free Phone: 800-318-2596
Service Categories:
Health Insurance Counseling and Advocacy
Specialized Information Resources
URL: http://www.healthcare.gov
Eligibility: Anyone looking for health insurance under the Affordable Care Act (ACA).
Services Provided: The Marketplace is an internet-based means of finding health coverage that fits your budget and meets your needs. With one application, you can see all your options and enroll.
Original Source: Nationwide Suggest Providers Queue
Last Updated: 3/21/2019
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Healthy and Ready to Work (HRTW) National Resource Center
ME
Service Categories:
Adolescent Health Transition Programs
Specialized Information Resources
Address: ME
Service Categories:
Adolescent Health Transition Programs
Specialized Information Resources
Email: info@hrtw.org
URL: http://www.nasuad.org/node/51111
Services Provided: Desired outcome is for all youth with special health care needs (YSHCN) to receive the services necessary to transition to all aspects of adulthood, including adult health care, employment and independence.
Provider Profiles: The HRTW Center is headquartered at the Maine State Title V CSHN Program.
Original Source: MedHome Portal
Last Updated: 12/12/2018
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Huntington's Disease Society of America
505 Eighth Avenue, Suite 902
New York, NY 10018
 Phone: 212-242-1968
Service Categories:
Specialized Information Resources
Address: 505 Eighth Avenue, Suite 902
New York, NY 10018
Phone: 212-242-1968
Toll Free Phone: 800-345-4372
Fax: 212-239-3430
Service Categories:
Specialized Information Resources
Email: dbrown@hdsa.org
URL: https://hdsa.org/
Services Provided: Dedicated to improving the lives of everyone affected by Huntington's disease. From community services and education to advocacy and research.

Information and Referral
Library Services
Peer Counseling
Original Source: Nationwide Suggest Providers Queue
Last Updated: 8/12/2019
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IMPACT Project, Family Voices
3701 San Mateo Blvd. NE, Suite 103
Albuquerque, NM 87110
 Phone: 505-872-4774
Service Categories:
Family Support Centers/Outreach
Specialized Information Resources
Organization Name: Family Voices
Address: 3701 San Mateo Blvd. NE, Suite 103
Albuquerque, NM 87110
Phone: 505-872-4774
Toll Free Phone: 888-835-5669
Fax: 505-872-4780
Service Categories:
Family Support Centers/Outreach
Specialized Information Resources
URL: http://www.fv-impact.org/
Services Provided: Promotes a holistic, culturally relevant approach to health and wellness for all families and children including those with special healthcare needs and disabilities, with resources for children and families. IMPACT is a project of national Family Voices.
Original Source: MedHome Portal
Last Updated: 2/1/2018
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Immune Deficiency Foundation
110 West Road Ste 300
Towson, MD 21204
 Phone: 800-296-4433
Service Categories:
Education About Disabilities/Diagnoses
National Support Services, Disab/Diag
Specialized Information Resources
Address: 110 West Road Ste 300
Towson, MD 21204
Phone: 800-296-4433
Fax: 410-321-9165
Service Categories:
Education About Disabilities/Diagnoses
National Support Services, Disab/Diag
Specialized Information Resources
Email: frontdesk@primaryimmune.org
URL: http://www.primaryimmune.org
Eligibility: Individuals with primary immunodeficiency diseases and their families
Services Provided: A national patient organization dedicated to improving the diagnosis, treatment, and quality of life of persons with primary immunodeficiency diseases through advocacy, education, and research. Learn about primary immunodeficiencies, it's diagnosis, treatment; and living with PI, at different ages, getting support, finding a physician, insurance, school, etc.

IDF Physician Finder to locate a physician by location, last name, specialty and more.
Original Source: MHP-Nationwide
Last Updated: 7/11/2019
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International Lactation Consultant Association
110 Horizon Drive Ste 210
Raleigh, NC 27615
 Phone: 919-861-5577
Service Categories:
Breastfeeding Support Programs
Specialized Information Resources
Address: 110 Horizon Drive Ste 210
Raleigh, NC 27615
Phone: 919-861-5577
Toll Free Phone: 888-452-2478
Service Categories:
Breastfeeding Support Programs
Specialized Information Resources
Email: info@ilca.org
URL: http://www.ilca.org/why-ibclc/falc
Eligibility: Women seeking breastfeeding assistance
Services Provided: Provides breastfeeding information and a list of local lactation consultants through a web locator.. Sign in required to access.
Original Source: Help Me Grow Utah via United Way 2-1-1
Last Updated: 6/17/2019
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Joe's House
505 East 79th Street Suite 17E
New York, NY 10075
 Phone: 877-563-7468
Service Categories:
Housing, Other
Specialized Information Resources
Address: 505 East 79th Street Suite 17E
New York, NY 10075
Phone: 877-563-7468
Service Categories:
Housing, Other
Specialized Information Resources
Email: info@joeshouse.org
URL: http://www.joeshouse.org/
Eligibility: Cancer patients and their loved ones.
Services Provided: Website lists thousands of places to stay across the country near hospitals and treatment centers that offer a discount for traveling cancer patients and their loved ones.
Provider Profiles: web-based services locator
Original Source: Nationwide Suggest Providers Queue
Last Updated: 6/5/2019
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La Leche League International
957 N Plum Grove Road
Schaumburg, IL 60173
 Phone: 919-459-2167
Service Categories:
Breastfeeding Support Programs
Specialized Information Resources
Address: 957 N Plum Grove Road
Schaumburg, IL 60173
Phone: 919-459-2167
Toll Free Phone: 800-525-3243
Fax: 847-969-0460
Service Categories:
Breastfeeding Support Programs
Specialized Information Resources
Email: info@llli.org
URL: https://www.llli.org/
Eligibility: Breastfeeding & pregnant women
Services Provided: Helping mothers worldwide to breastfeed through mother-to-mother support, encouragement, information, and education, and to promote a better understanding of breastfeeding as an important element in the healthy development of the baby and mother.
Original Source: MedHome Portal
Last Updated: 7/23/2019
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Lance Armstrong Foundation
2201 E. Sixth Street
Austin, TX 78702
 Phone: 877-236-8820
Service Categories:
National Support Services, Disab/Diag
Specialized Information Resources
Address: 2201 E. Sixth Street
Austin, TX 78702
Phone: 877-236-8820
Service Categories:
National Support Services, Disab/Diag
Specialized Information Resources
URL: http://www.livestrong.org/
Eligibility: Cancer patients
Services Provided: Empowers the cancer community to address the unmet needs of cancer survivors. To do so, we encourage collaboration, knowledge-sharing and partnership. Develops evidence-based solutions to address both the common and unique problems survivors are facing around the world.
Original Source: Nationwide Suggest Providers Queue
Last Updated: 7/2/2019
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Laurent Clerc National Deaf Education Center, Gallaudet University
KDES PAS-6, 800 Florida Ave, NE
Washington, DC 20002-3695
 Phone: 202-651-5051
Service Categories:
Crisis Helplines/Hotlines
Disability Awareness Programs
Specialized Information Resources
Organization Name: Gallaudet University
Address: KDES PAS-6, 800 Florida Ave, NE
Washington, DC 20002-3695
Phone: 202-651-5051
TDD: 202-651-5052
Fax: 202-651-5054
Service Categories:
Crisis Helplines/Hotlines
Disability Awareness Programs
Specialized Information Resources
URL: http://clerccenter.gallaudet.edu/
Services Provided: Responds to inquiries about a diverse range of topics related to deaf and hard-of-hearing children from infancy to age 21.
Original Source: MedHome Portal
Last Updated: 7/16/2018
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Learning Disabilities Association of America
4156 Library Road
Pittsburgh, PA 15234-1349
 Phone: 412-341-1515
Service Categories:
National Support Services, Disab/Diag
Specialized Information Resources
Address: 4156 Library Road
Pittsburgh, PA 15234-1349
Phone: 412-341-1515
Fax: 412-344-0224
Service Categories:
National Support Services, Disab/Diag
Specialized Information Resources
Email: info@LDAAmerica.org
URL: https://ldaamerica.org/
Eligibility: People with disabilities, their parents, teachers, and other professionals
Services Provided: LDA provides support to people with learning disabilities, their parents, teachers and other professionals with cutting edge information on learning disabilities, practical solutions, and a comprehensive network of resources.
Original Source: MHP-Nationwide
Last Updated: 8/8/2019
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Listening and Spoken Language Knowledge Center, A.G. Bell
3714 Volta Place NW
Washington, DC 20007
 Phone: 202-337-5220
Service Categories:
Assistive Technology Equipment
Financial Assistance, Other
National Support Services, Disab/Diag
Specialized Information Resources
Organization Name: A.G. Bell
Address: 3714 Volta Place NW
Washington, DC 20007
Phone: 202-337-5220
TDD: 202-337-5221
Service Categories:
Assistive Technology Equipment
Financial Assistance, Other
National Support Services, Disab/Diag
Specialized Information Resources
Email: info@agbell.org
URL: https://www.agbell.org/Connect#financial-aid
Languages Spoken: Spanish
Services Provided: AAG Bell Financial Aid programs. Also information about language development, early intervention, and hearing technology to help you ensure your child has the opportunity to develop language on par with children who have no hearing loss.
Provider Profiles: A.G. Bell, Association for the Deaf and Heard of Hearing
Original Source: MedHome Portal
Last Updated: 7/26/2018
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Local Recreation Programs and Activities, ActivityReg
Service Categories:
Social & Recreational Opportunities
Specialized Information Resources
Organization Name: ActivityReg
Address:
Service Categories:
Social & Recreational Opportunities
Specialized Information Resources
URL: http://www.activityreg.com/
Services Provided: A website with state listings of recreation programs for youth and adults. Register online for activities, programs at your local recreation center.
Provider Profiles: web-based locator
Intended for the members or participants of recreation facilities using SportsMan SQL to be able to register for classes or activities online, without the facility needing a website. Created by Peak Software Systems, Inc
Original Source: MedHome Portal
Last Updated: 8/1/2018
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Lucile Packard Foundation for Children's Health
400 Hamilton Ave. Suite 340
Palo Alto, CA 94301
 Phone: 650-497-8365
Service Categories:
CSHCN Administration & Programs
Disability Awareness Programs
Specialized Information Resources
Address: 400 Hamilton Ave. Suite 340
Palo Alto, CA 94301
Phone: 650-497-8365
Service Categories:
CSHCN Administration & Programs
Disability Awareness Programs
Specialized Information Resources
URL: http://www.lpfch.org/
Services Provided: Dedicated exclusively to the promotion and protection of children's health through fundraising, grantmaking and providing an informed perspective. Packard Children’s Hospital and Stanford School of Medicine supports clinical care, research, and education to improve the health of children and expectant mothers, locally and worldwide. Programs include Improving Systems of Care for Children with Special Health Care Needs and Elevating the Societal Priority of Children, providing wide-ranging, up-to-date data and research by tracking the status of California's children over time through its website, www.kidsdata.org.
Original Source: MedHome Portal
Last Updated: 2/21/2018
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Lupus Foundation of America
2121 K Street NW, Suite 200
Washington, DC 20037
 Phone: 202-349-1155
Service Categories:
Education About Disabilities/Diagnoses
National Support Services, Disab/Diag
Specialized Information Resources
Address: 2121 K Street NW, Suite 200
Washington, DC 20037
Phone: 202-349-1155
Toll Free Phone: 800-558-0121
Fax: 202-349-1156
Service Categories:
Education About Disabilities/Diagnoses
National Support Services, Disab/Diag
Specialized Information Resources
Email: info@lupus.org
URL: https://www.lupus.org/about-us
Services Provided: Provides education and support services to people affected by lupus. We collaborate with experts to provide clear, easy-to-use information, programs and resources to help you navigate every step of your journey with lupus. An online community, an expert series, a resource database, a nurse and certified health educator call line.
Original Source: MHP-Nationwide
Last Updated: 8/6/2019
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March of Dimes Birth Defects Foundation
1275 Mamaroneck Avenue
White Plains, NY 10605
 Phone: 914-428-7100
Service Categories:
Specialized Information Resources
Address: 1275 Mamaroneck Avenue
White Plains, NY 10605
Phone: 914-428-7100
Fax: 914-428-8203
Service Categories:
Specialized Information Resources
URL: https://www.marchofdimes.org/
Services Provided: Seeks to improve the health of babies by preventing birth defects and reducing infant mortality. Campaigns for Healthier Babies, which includes programs of research, community service, education and advocacy.

Information and Referral
Library Services
Original Source: Nationwide Suggest Providers Queue
Last Updated: 8/12/2019
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MedLinePlus, US National Library of Medicine
8600 Rockville Pike
Bethesda, MD 20894
 Phone: 301-594-5983
Service Categories:
Specialized Information Resources
Organization Name: US National Library of Medicine
Address: 8600 Rockville Pike
Bethesda, MD 20894
Phone: 301-594-5983
Fax: 301-402-1384
Service Categories:
Specialized Information Resources
Email: custserv@nlm.nih.gov
URL: https://medlineplus.gov/
Services Provided: Online medical information resource directs to information to help answer health questions. Information on drugs displays an illustrated medical encyclopedia, interactive patient tutorials, and latest health news.
Original Source: Nationwide Suggest Providers Queue
Last Updated: 7/30/2019
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Medicare Extra Help
Service Categories:
Medicare Special Needs Plan
Prescription Drug Patient Assistance Programs
Specialized Information Resources
Address:
Service Categories:
Medicare Special Needs Plan
Prescription Drug Patient Assistance Programs
Specialized Information Resources
URL: https://www.cms.gov/Medicare/Eligibility-and-Enrollment/LowIncSubMedicarePresCov/EligibilityforLowIncomeSubsidy.html
Services Provided: Medicare beneficiaries can qualify for Extra Help with their Medicare prescription drug plan costs. The Extra Help is estimated to be worth about $4,000 per year. Use the website to investigate and apply.
Original Source: MedHome Portal
Last Updated: 8/1/2018
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MetLife's MetDesk, Metropolitan Life Insurance Company
200 Park Avenue
New York, NY 10166
Service Categories:
Estate & Future Planning
Specialized Information Resources
Organization Name: Metropolitan Life Insurance Company
Address: 200 Park Avenue
New York, NY 10166
Toll Free Phone: 800-638-5433
Service Categories:
Estate & Future Planning
Specialized Information Resources
URL: https://blog.metlife.com/money/special-needs-families/01-11-2016
Services Provided: MetDESK helps families who have children and other dependents with special needs through the maze of legal and financial complexities surrounding planning for the future: how to protect eligibility for important government benefits such as Supplemental Security Income (SSI) and Medicaid; and ways in which special needs trust can provide lifetime care while still preserving government benefit eligibility. Trusts, guardianship, financial planning, selecting appropriate funding vehicles to fund special needs trusts, including life insurance; and choosing a trustee, guardian or conservator.
Original Source: MedHome Portal
Last Updated: 8/1/2018
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Minority Health Resource Center
1101 Wootton Parkway, Suite 600
Rockville, MD 20852
 Phone: 800-444-6472
Service Categories:
Specialized Information Resources
Address: 1101 Wootton Parkway, Suite 600
Rockville, MD 20852
Phone: 800-444-6472
Toll Free Phone: 800-444-6472
Fax: 301-251-2160
Service Categories:
Specialized Information Resources
URL: https://minorityhealth.hhs.gov/
Languages Spoken: Spanish
Eligibility: Contact for specific information. No cost.
Services Provided: The Office of Minority Health Resource Center is the largest resource and referral service on minority health in the nation. Established in 1987, OMH-RC facilitates the exchange of information available at the Federal, State, and local levels on a wide variety of health topics. OMH-RC offers customized database searches, publications, mailing lists, and referrals that address the needs of American Indian and Alaska Native, African American, Asian American and Pacific Islander and Hispanic populations.
Original Source: Nationwide Suggest Providers Queue
Last Updated: 8/6/2019
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Muscular Dystrophy Association, National
222 S Riverside Plaza, Suite 1500
Chicago, IL 60606
 Phone: 800-572-1717
Service Categories:
Camps for Children with Special Needs
Disability Awareness Programs
National Support Services, Disab/Diag
Neuromuscular Clinics
Specialized Information Resources
Address: 222 S Riverside Plaza, Suite 1500
Chicago, IL 60606
Phone: 800-572-1717
Service Categories:
Camps for Children with Special Needs
Disability Awareness Programs
National Support Services, Disab/Diag
Neuromuscular Clinics
Specialized Information Resources
Email: ResourceCenter@mdausa.org
URL: https://www.mda.org/
Services Provided: Support services, resources, transitional services, information resources for all aspects of living with muscular dystrophy/neuromuscular disease . A web-based locator to find local services and summer camps in many states. Located at more than 150 of the top health care institutions across the United States, [https://www.mda.org/care/mda-care-centers MDA Care Centers and Affiliates] serve as the nexus for expert clinical care and medical research.
Original Source: MHP-Nationwide
Last Updated: 5/22/2019
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Myasthenia Gravis Foundation of America (MGFA)
355 Lexington Avenue, 15th Floor
New York, NY 10017
Service Categories:
National Support Services, Disab/Diag
Specialized Information Resources
Address: 355 Lexington Avenue, 15th Floor
New York, NY 10017
Toll Free Phone: 800-541-5454
Fax: 212-297-2159
Service Categories:
National Support Services, Disab/Diag
Specialized Information Resources
Email: mgfa@myasthenia.org
URL: https://myasthenia.org/
Services Provided: The only national volunteer health agency dedicated solely to the fight against myasthenia gravis, with over 30 chapters serving patients and their families and caregivers through support groups and programs. .

Charities/Grantmaking Organizations
Disease/Disability Information
Health/Disability Related Support Groups
Information and Referral
Specialized Information and Referral
Original Source: Nationwide Suggest Providers Queue
Last Updated: 8/7/2019
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Myotonic Dystrophy Foundation
1004 A O'Reilly Avenue
San Francisco, CA 94129
 Phone: 415-800-7777
Service Categories:
National Support Services, Disab/Diag
Specialized Information Resources
Address: 1004 A O'Reilly Avenue
San Francisco, CA 94129
Phone: 415-800-7777
Toll Free Phone: 866-968-6642
Service Categories:
National Support Services, Disab/Diag
Specialized Information Resources
Email: info@myotonic.org
URL: http://www.myotonic.org
Services Provided: Delivering comprehensive support resources, and driving research to accelerate the discovery of DM therapies. A digital library of educational videos. Find a doctor nationwide locator. Find a support group, including a virtual group. Anesthesia guidelines. Founded by families with DM seeking to help one another.
Original Source: MedHome Portal
Last Updated: 8/23/2018
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NADD: An association for persons with developmental disabilities and mental health needs
132 Fair Street
Kingston, NY 12401
 Phone: 845-331-4336
Service Categories:
Mental Health, Other Services
Specialized Information Resources
Address: 132 Fair Street
Kingston, NY 12401
Phone: 845-331-4336
Service Categories:
Mental Health, Other Services
Specialized Information Resources
Email: jfarr@thenadd.org
URL: http://www.thenadd.org/index.shtml
Eligibility: For persons with developmental disabilities and mental health needs
Services Provided: The mission of NADD is to advance mental wellness for persons with developmental disabilities through the promotion of excellence in mental health care.

Family Support Centers/Outreach
Information and Referral
Library Services
System Advocacy
Original Source: Nationwide Suggest Providers Queue
Last Updated: 8/8/2019
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NICHCY Resources, Center for Parent Information and Resources (CPIR)
35 Halsey Street, 4th floor
c/o SPAN
Newark, NJ 97102
 Phone: 973-642-8100
Service Categories:
National Support Services, Disab/Diag
Services for People with Disabilities
Specialized Information Resources
Organization Name: Center for Parent Information and Resources (CPIR)
Address: 35 Halsey Street, 4th floor
c/o SPAN
Newark, NJ 97102
Phone: 973-642-8100
Service Categories:
National Support Services, Disab/Diag
Services for People with Disabilities
Specialized Information Resources
Email: malizo@spanadvocacy.org
URL: https://www.parentcenterhub.org/resourcelibrary/
Eligibility: Disability-related issues for birth to 22
Services Provided: Information and referral center providing information on disabilities and disability-related issues for families, educators, and other professionals.
Provider Profiles: Internet information resources
Original Source: MHP-Nationwide
Last Updated: 4/23/2019
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NIH Neurological Institute
6001 Executive Boulevard Suite 3309
Bethesda, MD 20892
 Phone: 301-496-5751
Service Categories:
Specialized Information Resources
Address: 6001 Executive Boulevard Suite 3309
Bethesda, MD 20892
Phone: 301-496-5751
Service Categories:
Specialized Information Resources
Email: sofrankm@mail.nih.gov
URL: https://www.ninds.nih.gov/
Services Provided: Conducts, fosters, coordinates, and guides research on the causes, prevention, diagnosis, and treatment of neurological disorders and stroke, and supports basic research in related scientific areas. Collects and disseminates research information related to neurological disorders.

Information and Referral
Library Services
Original Source: Nationwide Suggest Providers Queue
Last Updated: 8/12/2019
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NMAC - National Minority AIDS Council
1000 Vermont Avenue, NW, Suite 200
Washington, DC 20005
 Phone: 202-815-3129
Service Categories:
Specialized Information Resources
Address: 1000 Vermont Avenue, NW, Suite 200
Washington, DC 20005
Phone: 202-815-3129
Service Categories:
Specialized Information Resources
Email: communications@nmac.org
URL: http://www.nmac.org
Eligibility: Contact for specific information.
Services Provided: Information on HIV/AIDS conferences, news and events, public policy, resources, technical assistance, treatment information and hotlines.

AKA National Minority AIDS Council
Original Source: Nationwide Suggest Providers Queue
Last Updated: 8/6/2019
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National Association of Anorexia Nervosa and Associated Disorders (ANAD)
220 North Green Street
Chicago, IL 60607
 Phone: 630-557-1330
Service Categories:
Disability Awareness Programs
National Support Services, Disab/Diag
Specialized Information Resources
Address: 220 North Green Street
Chicago, IL 60607
Phone: 630-557-1330
Service Categories:
Disability Awareness Programs
National Support Services, Disab/Diag
Specialized Information Resources
Email: hello@anad.org
URL: https://anad.org/
Eligibility: Eating disorders
Services Provided: Provides online research, educational forums, support groups, professional resources and current information on treatment and prevention of eating disorders. Services include ANAD recovery mentorship, ANAD support groups, ANAD annual conference, and ANAD YouTube recovery channel.
Original Source: Nationwide Suggest Providers Queue
Last Updated: 8/6/2019
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National Association of the Deaf
8630 Fenton St, Suite 820
Silver Spring, MD 20910-3819
 Phone: 301-587-1788
Service Categories:
Camps for Children with Special Needs
Disability Awareness Programs
Specialized Information Resources
Address: 8630 Fenton St, Suite 820
Silver Spring, MD 20910-3819
Phone: 301-587-1788
TDD: 301-587-1789
Fax: 301-587-1791
Service Categories:
Camps for Children with Special Needs
Disability Awareness Programs
Specialized Information Resources
URL: https://www.nad.org/
Eligibility: deaf and hard of hearing
Services Provided: Safeguards the civil rights of deaf and hard of hearing Americans. As a national federation of state associations, individual members, and organizational and corporate affiliates, the advocacy work includes accessibility, education, employment, healthcare, mental health, rehabilitation, technology, telecommunications, and transportation. Website features advocacy information and resources.
Provider Profiles: NAD Youth Leadership Camp (YLC) is a four-week intensive educational program for high school students. Camp Taloali, Stayton, Oregon.
Original Source: MedHome Portal
Last Updated: 8/6/2019
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National Ataxia Foundation
2600 Fernbrook Lane Suite 119
Minneapolis, MN 554474752
 Phone: 763-553-0020
Service Categories:
Specialized Information Resources
Address: 2600 Fernbrook Lane Suite 119
Minneapolis, MN 554474752
Phone: 763-553-0020
Fax: 763-553-0167
Service Categories:
Specialized Information Resources
Email: Susan@ataxia.org
URL: http://www.ataxia.org/
Wheelchair Accessible: Access w/o Special Facilities
Services Provided: The National Ataxia Foundation facilitates support groups for those with hereditary and sporadic ataxia. The Foundation also provides information about ataxia, current research activities and
a listing of neurologists in the United States who see patients with ataxia.

Family Support Centers/Outreach
Information and Referral
Support Groups
Original Source: Nationwide Suggest Providers Queue
Last Updated: 8/12/2019
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National Brain Tumor Society
55 Chapel Street, Ste 200
Newton, MA 02458
 Phone: 617-924-9997
Service Categories:
Disability Awareness Programs
Specialized Information Resources
Address: 55 Chapel Street, Ste 200
Newton, MA 02458
Phone: 617-924-9997
Fax: 617-924-9998
Service Categories:
Disability Awareness Programs
Specialized Information Resources
URL: http://www.braintumor.org
Eligibility: Anyone interested in brain tumor research, treatment or funding opportunities.
Services Provided: Finding better treatments, and ultimately a cure, for people living with a brain tumor today and anyone who will be diagnosed tomorrow.
Original Source: Nationwide Suggest Providers Queue
Last Updated: 7/1/2019
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National Cancer Institute
9609 Medical Center Drive
Bethesda, MD 20892-9760
 Phone: 800-422-6237
Service Categories:
Education About Disabilities/Diagnoses
Specialized Information Resources
Address: 9609 Medical Center Drive
Bethesda, MD 20892-9760
Phone: 800-422-6237
Fax: (719) 776-3132
Service Categories:
Education About Disabilities/Diagnoses
Specialized Information Resources
Email: cancergovstaff@mail.nih.gov
URL: http://www.cancer.gov
Eligibility: None
Wheelchair Accessible: Complete
Services Provided: A free public service of the National Cancer Institute providing the latest most accurate cancer information for patients, their families, the general public, and health professionals in a personalized confidential manner.
Original Source: Nationwide Suggest Providers Queue
Last Updated: 7/2/2019
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National Caregivers Library
901 Moorefield Park Drive, Suite 100
Richmond, VA 23236
 Phone: 804-327-1111
Service Categories:
National Support Services, General
Specialized Information Resources
Address: 901 Moorefield Park Drive, Suite 100
Richmond, VA 23236
Phone: 804-327-1111
Service Categories:
National Support Services, General
Specialized Information Resources
Email: info@caregiverslibrary.com
URL: http://www.caregiverslibrary.org
Eligibility: Caregivers, seniors and employers
Services Provided: The National Caregivers Library contains online information and resources to assist caregivers and seniors with useful forms, checklists, and topic-specific external resources. The resources are made available at no cost through alliances with professionals, businesses and other agencies serving seniors and their caregivers with a variety of services.
Provider Profiles: Internet resource
Original Source: Nationwide Suggest Providers Queue
Last Updated: 3/21/2019
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National Center On Shaken Baby Syndrome
1433 N 1075 West, Suite 110
Farmilngton, UT 84025
 Phone: 801-447-9360
Service Categories:
Child Abuse Prevention
Specialized Information Resources
Address: 1433 N 1075 West, Suite 110
Farmilngton, UT 84025
Phone: 801-447-9360
Fax: 801-447-9364
Service Categories:
Child Abuse Prevention
Specialized Information Resources
Email: mail@dontshake.org
URL: http://www.dontshake.org
Wheelchair Accessible: Complete
Services Provided: A nonprofit 501(c)3 public charity with a mission to “Prevent shaken baby syndrome and promote the well-being of infants generally through the development and implementation of programs, policy and research; and to support and educate families, caregivers and professionals.”
Original Source: MedHome Portal
Last Updated: 11/13/2018
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National Center for Cultural Competence, Georgetown University Center for Child & Human Development
3300 Whitehaven St., NW, Suite 3300
Washington, DC 20007
Service Categories:
National Support Services, Disab/Diag
Specialized Information Resources
Organization Name: Georgetown University Center for Child & Human Development
Address: 3300 Whitehaven St., NW, Suite 3300
Washington, DC 20007
Service Categories:
National Support Services, Disab/Diag
Specialized Information Resources
URL: https://nccc.georgetown.edu/index.php
Eligibility: Developmental disabilities (DD)
Services Provided: The goal of the Community of Practice on Cultural and Linguistic Competence in Developmental Disabilities (CoP) is to increase the number, diversity, and capacity of formal and informal leaders to transform their state/territorial developmental disabilities (DD) systems by: (1) advancing and sustaining cultural and linguistic competence (CLC) systemically through changes in values, policy, structures, and practices; and (2) responding effectively to the growing cultural and linguistic diversity among people with DD and their families who reside in states, territories, and tribal nations.

Resources includes papers on developmental disabilities.
Provider Profiles: In April 2017, the NCCC, in collaboration with AIDD, selected the following states and jurisdiction for membership in the CoP: Arizona, California, Colorado, District of Columbia, Indiana, Michigan, New York, Utah, Vermont, Wisconsin
Original Source: MedHome Portal
Last Updated: 8/1/2018
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National Center for Learning Disabilities
32 Laight Street, Second Floor
New York, NY 10013
 Phone: 212-545-7510
Service Categories:
National Support Services, Disab/Diag
Scholarships
Specialized Information Resources
Address: 32 Laight Street, Second Floor
New York, NY 10013
Phone: 212-545-7510
Toll Free Phone: 888-575-7373
Service Categories:
National Support Services, Disab/Diag
Scholarships
Specialized Information Resources
URL: https://www.ncld.org/
Eligibility: Individuals with learning disabilities
Services Provided: Aims to ensure success for all individuals with learning disabilities in school, at work and in life. We:1) connect parents and others with resources, guidance and support so they can advocate effectively for their children; 2) deliver evidence-based tools, resources and professional development to educators to improve student outcomes, and 3) develop policies and engage advocates to strengthen educational rights and opportunities.

Information and Referral
Library Services
Special Education Assessment
Speech and Language Evaluations
System Advocacy
Scholarships for two graduating high school seniors with documented learning disabilities and/or ADHD who are pursuing post-secondary education.
Original Source: Nationwide Suggest Providers Queue
Last Updated: 8/8/2019
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National Center for Parents with Disabilities, Through the Looking Glass
3075 Adeline Street Ste 120
Berkeley, CA 94703
 Phone: 510-848-1112
Service Categories:
Assistive Technology Equipment
Specialized Information Resources
Organization Name: Through the Looking Glass
Address: 3075 Adeline Street Ste 120
Berkeley, CA 94703
Phone: 510-848-1112
TDD: 800-848-1005
Toll Free Phone: 800-644-2666
Fax: 510-848-4445
Service Categories:
Assistive Technology Equipment
Specialized Information Resources
URL: https://www.lookingglass.org/national-services/national-center
Eligibility: Parents with disabilities who have younger children
Wheelchair Accessible: Full Wheelchair Access
Services Provided: Services include 1. Adaptive Babycare Equipment Consultations--Gives parents with disabilities ideas on how to care for their infants and toddlers more easily with the help of equipment that has been adapted to their disability 2. Information & Referral--Connects parents with resources in their community.

Assistive Technology Training
Disease/Disability Information
Information and Referral
Original Source: Nationwide Suggest Providers Queue
Last Updated: 8/7/2019
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National Center on Health, Physical Activity and Disability (NCHPAD)
4000 Ridgeway Drive
Birmingham, AL 35209
Service Categories:
Specialized Information Resources
Address: 4000 Ridgeway Drive
Birmingham, AL 35209
TDD: 800-900-8086
Toll Free Phone: 800-900-8086
Fax: 205-313-7474
Service Categories:
Specialized Information Resources
Email: email@nchpad.org
URL: https://www.nchpad.org/
Services Provided: Indoor or outdoor, recreational or competitive, solo or team, easy or intensive, NCHPAD has the resources, contacts, and assistance you need. Look through our site. Let us know what we can do to help YOU become more active.

Leisure Activities/Recreation
Recreational Activities/Sports
Recreational Facilities
Reference/Information
Original Source: Nationwide Suggest Providers Queue
Last Updated: 8/7/2019
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National Child Traumatic Stress Network (NCTSN), Substance Abuse and Mental Health Services Administration (SAMHSA)
5600 Fishers Lane, Parklawn Building, Room 17C-26
Rockville, MD 20857
Service Categories:
Child Abuse Prevention
Child Advocacy
Specialized Information Resources
Organization Name: Substance Abuse and Mental Health Services Administration (SAMHSA)
Address: 5600 Fishers Lane, Parklawn Building, Room 17C-26
Rockville, MD 20857
Service Categories:
Child Abuse Prevention
Child Advocacy
Specialized Information Resources
URL: http://www.nctsn.org/resources/audiences/parents-caregivers
Services Provided: Website-based resources for parents and caregivers who play an essential role in helping children and teenagers recover from traumatic events.
Provider Profiles: Internet-based resource
Original Source: MedHome Portal
Last Updated: 4/18/2019
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National Down Syndrome Congress
300 Mansell Court Suite 108
Roswell, GA 30076
 Phone: 770-604-9500
Service Categories:
Specialized Information Resources
Address: 300 Mansell Court Suite 108
Roswell, GA 30076
Phone: 770-604-9500
Toll Free Phone: 800-232-6372
Fax: 770-604-9898
Service Categories:
Specialized Information Resources
URL: http://www.ndsccenter.org/
Services Provided: The oldest national organization for people with Down syndrome, their families, and the professionals who work with them. We provide information, advocacy and support concerning all aspects of life for individuals with Down syndrome, and work to create a national climate in which all people will recognize and embrace the value and dignity of people with Down syndrome.

Information and Referral
Original Source: Nationwide Suggest Providers Queue
Last Updated: 8/12/2019
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National Eating Disorders Helpline, National Eating Disorders Association
1500 Broadway Suite 1101
New York, NY 10036
 Phone: 800-931-2237
Service Categories:
Crisis Helplines/Hotlines
Specialized Information Resources
Organization Name: National Eating Disorders Association
Address: 1500 Broadway Suite 1101
New York, NY 10036
Phone: 800-931-2237
Toll Free Phone: 800-931-2237
Fax: 212-575-1650
Service Categories:
Crisis Helplines/Hotlines
Specialized Information Resources
Email: info@NationalEatingDisorders.org
URL: https://www.nationaleatingdisorders.org
Eligibility: Individuals and families affected by eating disorders.
Wheelchair Accessible: Yes
Services Provided: Provides information and treatment options for eating disorders.
Original Source: Nationwide Suggest Providers Queue
Last Updated: 6/6/2019
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National Hemophilia Foundation
7 Penn Plaza, Suite 1204
New York, NY 10001
 Phone: 212-328-3700
Service Categories:
Specialized Information Resources
Address: 7 Penn Plaza, Suite 1204
New York, NY 10001
Phone: 212-328-3700
Fax: 212-328-3777
Service Categories:
Specialized Information Resources
Email: egoody@hemophilia.org
URL: https://www.hemophilia.org/
Wheelchair Accessible: Not Applicable
Services Provided: Information about preventing the complications of these disorders through education, advocacy and research.

Information and Referral
Peer Counseling
Supported Living Services for Adults with Disabilities
Original Source: Nationwide Suggest Providers Queue
Last Updated: 8/8/2019
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National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS)
National Institute of Health
1 AMS Circle
Bethesda, MD 208923675
 Phone: 301-495-4484
Service Categories:
Specialized Information Resources
Address: National Institute of Health
1 AMS Circle
Bethesda, MD 208923675
Phone: 301-495-4484
TDD: 301-565-2966
Toll Free Phone: 877-226-4267
Fax: 301-718-6366
Service Categories:
Specialized Information Resources
URL: https://www.niams.nih.gov/
Wheelchair Accessible: No Access
Services Provided: Support research into the causes, treatment, and prevention of arthritis and musculoskeletal and skin diseases, the training of basic and clinical scientists to carry out this research, and the dissemination of information on research progress in these diseases

Information and Referral
Original Source: Nationwide Suggest Providers Queue
Last Updated: 8/12/2019
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National Institute of Diabetes and Digestive and Kidney Diseases
3 Information Way
Bethesda, MD 20892-3580
 Phone: 800-860-8747
Service Categories:
Clinical Trials Research
Education About Disabilities/Diagnoses
Specialized Information Resources
Address: 3 Information Way
Bethesda, MD 20892-3580
Phone: 800-860-8747
TDD: 866-569-1162
Service Categories:
Clinical Trials Research
Education About Disabilities/Diagnoses
Specialized Information Resources
Email: healthinfo@niddk.nih.gov
URL: https://www.niddk.nih.gov/
Eligibility: Contact for specific information.
Services Provided: NIDDK research creates knowledge about and treatments for diseases that are among the most chronic, costly, and consequential for patients, their families, and the Nation. Offers clinical trials, financial assistance for researchers, health information, and publications.
Original Source: Nationwide Suggest Providers Queue
Last Updated: 7/30/2019
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National Institute of Mental Health Resource Center
6001 Executive Boulevard, Room 6200, MSC 9663
Bethesda, MD 20892-9663
 Phone: 800-421-4211
Service Categories:
National Support Services, Disab/Diag
Specialized Information Resources
Address: 6001 Executive Boulevard, Room 6200, MSC 9663
Bethesda, MD 20892-9663
Phone: 800-421-4211
TDD: 301-443-8431
Toll Free Phone: 866-615-6464
Fax: 301-443-4279
Service Categories:
National Support Services, Disab/Diag
Specialized Information Resources
URL: https://www.nimh.nih.gov/index.shtml
Services Provided: Health information: mental health, getting help, statistics, clinical trials; outreach, research, opportunities for funding, labs at NIMH.
Original Source: MedHome Portal
Last Updated: 8/6/2019
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National Kidney Foundation
30 East 33rd Street
New York, NY 10016
 Phone: 800-622-9010
Service Categories:
Disability Awareness Programs
National Support Services, Disab/Diag
Specialized Information Resources
Address: 30 East 33rd Street
New York, NY 10016
Phone: 800-622-9010
Toll Free Phone: 800-622-9010
Service Categories:
Disability Awareness Programs
National Support Services, Disab/Diag
Specialized Information Resources
URL: https://www.kidney.org/
Services Provided: The National Kidney Foundation is the leading organization in the U.S. dedicated to the awareness, prevention and treatment of kidney disease. Information about kidney disease. A peer mentor support program. Self management app for food choices.
Original Source: MHP-Nationwide
Last Updated: 8/13/2019
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National MPS Society
PO Box 14686
Durham, NC 27709-4686
 Phone: 919-806-0101
Service Categories:
Specialized Information Resources
Address: PO Box 14686
Durham, NC 27709-4686
Phone: 919-806-0101
Toll Free Phone: 877-MPS-1001
Service Categories:
Specialized Information Resources
URL: https://mpssociety.org/
Services Provided: The National MPS Society has a three-part mission: to support research through funding, conferences, and collaboration; to support families through education, fundraising assistance for medical expense assistance, resource guides, and advocacy; and to increase public and professional awareness through publicity, and national and international advocacy.
Original Source: Nationwide Suggest Providers Queue
Last Updated: 6/5/2019
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National Mental Health Information Center, Substance Abuse and Mental Health Services Administration (SAMHSA)
1 Choke Cherry Road
Rockville, MD 20857
 Phone: 800-662-4357
Service Categories:
Disability Awareness Programs
National Support Services, Addiction
Specialized Information Resources
Organization Name: Substance Abuse and Mental Health Services Administration (SAMHSA)
Address: 1 Choke Cherry Road
Rockville, MD 20857
Phone: 800-662-4357
Service Categories:
Disability Awareness Programs
National Support Services, Addiction
Specialized Information Resources
URL: https://findtreatment.samhsa.gov/locator?sType=mh
Eligibility: For users of mental health services and their families, the general public, policy makers, providers, and the media.
Services Provided: The Center for Mental Health Services, within SAMHSA, leads Federal efforts to improve prevention and mental health treatment services for all Americans.
Information Center staff members are skilled at listening and responding to questions from the public and professionals. The staff quickly directs callers to Federal, State, and local organizations dedicated to treating and preventing mental illness. The Information Center also has extensive online and print publications, and information on Federal grants, conferences, and other events.
Provider Profiles: Use the locator website to filter your search: adolescent, substance, payment/insurance accepted, emergency, etc.
Original Source: MedHome Portal
Last Updated: 7/30/2019
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National Organization on Fetal Alcohol Syndrome
1200 Eton Court, NW, Third Floor
Washington, DC 20007
 Phone: 202-785-4585
Service Categories:
National Support Services, Disab/Diag
Specialized Information Resources
Address: 1200 Eton Court, NW, Third Floor
Washington, DC 20007
Phone: 202-785-4585
Toll Free Phone: 800-666-6327
Service Categories:
National Support Services, Disab/Diag
Specialized Information Resources
URL: https://www.nofas.org/
Services Provided: The leading voice and resource of the Fetal Alcohol Spectrum Disorders (FASD) community, and committed to the prevention of prenatal exposure to alcohol, drugs, and other substances known to harm fetal development, and to supporting individuals, families, and communities living with Fetal Alcohol Spectrum Disorders (FASDs) and other preventable intellectual/ developmental disabilities.
Original Source: MedHome Portal
Last Updated: 8/6/2019
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National Paralysis Resource Center, Christopher and Dana Reeve Foundation
636 Morris Turnpike Suite 3A
Short Hills, NJ 07078
 Phone: 973-467-8270
Service Categories:
Specialized Information Resources
Organization Name: Christopher and Dana Reeve Foundation
Address: 636 Morris Turnpike Suite 3A
Short Hills, NJ 07078
Phone: 973-467-8270
Toll Free Phone: 800-225-0292
Fax: 973-912-9433
Service Categories:
Specialized Information Resources
Email: infospecialist@christopherreeve.org
URL: https://www.christopherreeve.org/
Services Provided: Provides information on paralysis related questions and referrals.
Original Source: Nationwide Suggest Providers Queue
Last Updated: 8/6/2019
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National Resource Center on ADHD, CHADD
4601 Presidents Drive Ste 300
Lanham, MD 20706
 Phone: 301-306-7070
Service Categories:
Local Support Groups, Disability/Diag
Specialized Information Resources
Organization Name: CHADD
Address: 4601 Presidents Drive Ste 300
Lanham, MD 20706
Phone: 301-306-7070
Fax: 301-306-7090
Service Categories:
Local Support Groups, Disability/Diag
Specialized Information Resources
Email: Affiliate_Services@chadd.org
URL: http://www.help4adhd.org/
Eligibility: Open to the public, children and adults with attention-deficit/hyperactivity disorder, ADHD.
Services Provided: Provides an online clearinghouse for the latest evidence-based information and resources on ADHD. The National Resource Center on ADHD is a program of CHADD, Children and Adults with Attention-Deficit/Hyperactivity Disorder.
Provider Profiles: Internet based resource
Original Source: Nationwide Suggest Providers Queue
Last Updated: 8/8/2019
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Nestle HealthCare Nutrition Patient Assistance Program, Nestle HealthCare Nutrition, Inc.
12 Vreeland Road, 2nd Floor
Florham Park, NJ 07932
 Phone: 800-422-2752
Service Categories:
Food Assistance
Specialized Information Resources
Organization Name: Nestle HealthCare Nutrition, Inc.
Address: 12 Vreeland Road, 2nd Floor
Florham Park, NJ 07932
Phone: 800-422-2752
Toll Free Phone: 800-422-2752
Service Categories:
Food Assistance
Specialized Information Resources
URL: http://www.needymeds.org/company_list.taf?_function=name&program_id=7ffd85d93a3e4de5c490d304ccd9f864
Services Provided: Funding for nutrition products available, including for people who require a tube feeding to meet 100% of daily nutritional requirements. Must telephone for current application. Outdated applications not accepted.
Original Source: Nationwide Suggest Providers Queue
Last Updated: 3/21/2019
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Office of Women's Health, Department of Health and Human Services
200 Independence Avenue, SW
Washington, DC 20201
 Phone: 800-994-9662
Service Categories:
Breastfeeding Support Programs
Specialized Information Resources
Organization Name: Department of Health and Human Services
Address: 200 Independence Avenue, SW
Washington, DC 20201
Phone: 800-994-9662
Toll Free Phone: 800-994-9662
Fax: 303-844-2019
Service Categories:
Breastfeeding Support Programs
Specialized Information Resources
Email: susana.calderon@hhs.gov
URL: http://www.womenshealth.gov
Eligibility: Anyone seeking health information or referral.
Services Provided: Provides national breastfeeding and women’s health hotlines and works to improve the health and sense of wellbeing of all U.S. women and girls.
Website resources A-Z Health Topics. Supporting nursing mothers at work.
Original Source: Nationwide Suggest Providers Queue
Last Updated: 6/17/2019
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PACER Center: Parents Helping Parents
8161 Normandale Blvd.
Bloomington, MN 55437
 Phone: 952-838-9000
Service Categories:
Assistive Technology Equipment
Disability Awareness Programs
Family Support Centers/Outreach
National Support Services, Disab/Diag
Specialized Information Resources
Address: 8161 Normandale Blvd.
Bloomington, MN 55437
Phone: 952-838-9000
Toll Free Phone: 800-537-2237
Service Categories:
Assistive Technology Equipment
Disability Awareness Programs
Family Support Centers/Outreach
National Support Services, Disab/Diag
Specialized Information Resources
URL: http://www.pacer.org
Services Provided: Champions for children with disabilities, Parent Advocacy Coalition for Educational Rights, PACER Center expands opportunities and enhances the quality of life of children and young adults with disabilities and their families. PACER is staffed primarily by parents of children with disabilities and works in coalition with 18 disability organizations. A significant Learning Center, Resources, and specifically for Students and Young Adults.
Original Source: MedHome Portal
Last Updated: 8/2/2018
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Pancreatic Cancer Action Network
1500 Rosecrans Avenue, Suite 200
Manhattan Beach, CA 90266
 Phone: 310-725-0025
Service Categories:
Clinical Trials Research
Disability Awareness Programs
Specialized Information Resources
Address: 1500 Rosecrans Avenue, Suite 200
Manhattan Beach, CA 90266
Phone: 310-725-0025
Toll Free Phone: 877-573-9971
Fax: 310-725-0029
Service Categories:
Clinical Trials Research
Disability Awareness Programs
Specialized Information Resources
Email: info@pancan.org
URL: http://www.pancan.org
Eligibility: Cancer patients, survivors, and their families
Services Provided: Provides research, patient support, community outreach and government advocacy. Raises money for direct private funding of research. Supports individuals and communities all across the country in working together to raise awareness and funds to develop more effective treatment options for better patient outcomes. We create a sense of hope and community so no one has to face pancreatic cancer alone.
Original Source: Nationwide Suggest Providers Queue
Last Updated: 7/23/2019
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Patient Prescription Drug Assistance Programs Listing, National Alliance for the Mentally Ill (NAMI)
3803 N Fairfax Dr., Ste. 100
Arlington, VA 22203
 Phone: 703-524-7600
Service Categories:
Prescription Drug Patient Assistance Programs
Specialized Information Resources
Organization Name: National Alliance for the Mentally Ill (NAMI)
Address: 3803 N Fairfax Dr., Ste. 100
Arlington, VA 22203
Phone: 703-524-7600
Fax: 703-524-9094
Service Categories:
Prescription Drug Patient Assistance Programs
Specialized Information Resources
URL: https://www.nami.org/Find-Support/Living-with-a-Mental-Health-Condition/Getting-Help-Paying-for-Medications
Eligibility: Differs by specific pharmaceutical company.
Services Provided: Provides a list of pharmaceutical companies that offer medications through medication assistance programs to low-income individuals and families.
Provider Profiles: Internet-based resource
Original Source: MedHome Portal
Last Updated: 8/20/2018
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Patient Services Inc (PSI)
PO Box 5930
Midlothian, VA 23112
 Phone: 800-366-7741
Service Categories:
Education About Disabilities/Diagnoses
Medical Care Expense Assistance
Prescription Drug Patient Assistance Programs
Specialized Information Resources
Transportation Expense Assistance
Address: PO Box 5930
Midlothian, VA 23112
Phone: 800-366-7741
Toll Free Phone: 800-366-7741
Fax: 804-744-9388
Service Categories:
Education About Disabilities/Diagnoses
Medical Care Expense Assistance
Prescription Drug Patient Assistance Programs
Specialized Information Resources
Transportation Expense Assistance
Email: psiops@uneedpsi.org
URL: https://www.patientservicesinc.org/
Eligibility: Financial assistance for insured and uninsured patients with chronic illnesses. Assistance is focused on a limited number of around 20 diseases, and the list always changes.
Services Provided: Provides online disease and treatment information as well as limited financial assistance for patients with chronic illnesses who are struggling to keep up with expensive premiums and copayments. Available programs and specific illnesses are regularly updated. Financial assistance includes: subsidizing the cost of health insurance premiums; providing pharmacy and treatment copayment assistance; assisting with Medicare Part D co-insurance; providing travel assistance for transportation reimbursement.
Provider Profiles: Online resources
Original Source: MHP-Nationwide
Last Updated: 7/11/2019
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Patients Like Me.com
155 Second Street
Cambridge, MA 02141
Service Categories:
National Support Services, Disab/Diag
Specialized Information Resources
Address: 155 Second Street
Cambridge, MA 02141
Service Categories:
National Support Services, Disab/Diag
Specialized Information Resources
Email: support@patientslikeme.com
URL: http://www.patientslikeme.com
Services Provided: Patients Like Me is a free health information sharing website for patients. Participants have the opportunity to share both personal stories and health data about their conditions; a network of 500,000 patients.
Original Source: Nationwide Suggest Providers Queue
Last Updated: 3/21/2019
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Rethinkfirst.com
NY 10010
 Phone: 877-988-8871
Service Categories:
Behavioral Learning Therapy
Specialized Information Resources
Address: NY 10010
Phone: 877-988-8871
Fax: 646-257-2926
Service Categories:
Behavioral Learning Therapy
Specialized Information Resources
URL: https://www.rethinkfirst.com/Home/Parents
Eligibility: Special Education students
Services Provided: Online curriculum includes goal builders, lesson plans, and materials to teach Community, Home, Employment, Leisure and Social Skills to support special ed students. step-by-step ABA-based video lessons.
Provider Profiles: $59 to $114 / month, Free trial

web-based resource
Original Source: MedHome Portal
Last Updated: 7/10/2018
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Retinitis Pigmentosa International
PO Box 900
Woodland Hills, CA 91365
 Phone: 818-992-0500
Service Categories:
Specialized Information Resources
Address: PO Box 900
Woodland Hills, CA 91365
Phone: 818-992-0500
Fax: 818-992-3265
Service Categories:
Specialized Information Resources
Email: info@rpinternational.org
URL: http://www.rpinternational.org/
Services Provided: RP International seeks to fund and develop the Institute for Degenerative Eye Disease, for the funding and coordination of global research into degenerative blindness, and collection, evaluation and dissemination of information regarding its caused, treatment and availability of services.

Co-Parenting Workshops
Family Counseling
Information and Referral
Parent Support Groups
Peer Counseling
Original Source: Nationwide Suggest Providers Queue
Last Updated: 8/8/2019
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Rettsyndrome.org
4600 Devitt Drive
Cincinnati, OH 45246
 Phone: 800-818-7388
Service Categories:
Disability Awareness Programs
National Support Services, Disab/Diag
Specialized Information Resources
Address: 4600 Devitt Drive
Cincinnati, OH 45246
Phone: 800-818-7388
Toll Free Phone: 800-818-7388
Service Categories:
Disability Awareness Programs
National Support Services, Disab/Diag
Specialized Information Resources
Email: admin@rettsyndrome.org
URL: http://www.rettsyndrome.org
Services Provided: An organization comprised of parents and friends of those diagnosed with Rett syndrome, providing the latest medical information, aggressively funding the most promising research, offering meaningful support, raising public awareness and advocating for all living with Rett syndrome. Lists resources and clinics by state, national resources, and clinical trials. Resources include: Care Guides, Communication, Adaptive Equipment and Funding, School and Day Programs, Adolescence, Planning for the Future.
Original Source: MedHome Portal
Last Updated: 8/6/2019
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SMART Recovery
7304 Mentor Avenue Ste F
Mentor, OH 44060
 Phone: 440-951-5357
Service Categories:
Local Support Groups, Addiction
National Support Services, Addiction
Specialized Information Resources
Address: 7304 Mentor Avenue Ste F
Mentor, OH 44060
Phone: 440-951-5357
Toll Free Phone: 866-951-5357
Fax: 440-951-5358
Service Categories:
Local Support Groups, Addiction
National Support Services, Addiction
Specialized Information Resources
URL: https://www.smartrecovery.org/
Eligibility: Individuals and their families desiring recovery from substance abuse issues.
Services Provided: Self-Management and Recover Training (SMART) sponsors face-to-face and daily online addiction recovery meetings for all ages. Online message boards and 24/7 chat rooms are excellent forums to learn about SMART Recovery and obtain addiction recovery support. Registration at messageboard is required for online meetings. A web-based locator for local and on-line support groups.
Original Source: MHP-Nationwide
Last Updated: 7/2/2019
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Safe Kids Worldwide
1301 Pennsylvania Ave NW, Suite 1000
Washington, DC 20004
 Phone: 202-662-0600
Service Categories:
Specialized Information Resources
Address: 1301 Pennsylvania Ave NW, Suite 1000
Washington, DC 20004
Phone: 202-662-0600
Fax: 202-393-2072
Service Categories:
Specialized Information Resources
URL: https://www.safekids.org/
Services Provided: Safe Kids Worldwide provides general information on child safety and injury prevention. Education materials are available on such topics as car seats inspections, seat belt safety and helmet safety for bicyclists.
Original Source: Nationwide Suggest Providers Queue
Last Updated: 8/8/2019
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Select Mutism Association
Service Categories:
National Support Services, Disab/Diag
Specialized Information Resources
Address:
Service Categories:
National Support Services, Disab/Diag
Specialized Information Resources
Email: info@selectivemutism.org
URL: https://www.selectivemutism.org/
Eligibility: A child or adolescent with an anxiety disorder of selective mutism
Services Provided: SMG, is a nonprofit organization dedicated to providing information, resources and support to those impacted by a child or adolescent with the anxiety disorder known as Selective Mutism, characterized by a child or adolescent’s inability to speak in one or more social settings.
Original Source: MedHome Portal
Last Updated: 5/23/2018
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Service Dog Central
Service Categories:
Service Animals
Specialized Information Resources
Address:
Service Categories:
Service Animals
Specialized Information Resources
URL: http://www.servicedogcentral.org/content/
Services Provided: A website resource center for education and location of services related to service dogs.
Original Source: MedHome Portal
Last Updated: 5/24/2018
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Sickle Cell Disease National Resource Directory (CDC), Sickle Cell Disease Association of America, Inc.
231 East Baltimore Street, Suite 800
Baltimore, MD 21202
Service Categories:
National Support Services, Disab/Diag
Sickle Cell Disease Centers
Specialized Information Resources
Organization Name: Sickle Cell Disease Association of America, Inc.
Address: 231 East Baltimore Street, Suite 800
Baltimore, MD 21202
Toll Free Phone: 800-232-4636
Service Categories:
National Support Services, Disab/Diag
Sickle Cell Disease Centers
Specialized Information Resources
Email: cdcinfo@cdc.gov
URL: https://www.cdc.gov/ncbddd/sicklecell/map/map-nationalresourcedirectory.html
Services Provided: The Sickle Cell Disease National Resource Directory is a listing of national agencies, specialty care centers, and community-based organizations that provide services and resources for people affected by sickle cell disease (SCD). The goal of this directory is to help people find SCD services and resources. This directory is sorted by national and state resources and listed in A-Z order. Within each state, the resources are listed by type: Providers/Sickle Cell Centers, Nonprofits/Associations/Foundations, and Support Groups. In many cases, organizations offer both clinical and non-clinical resources and services. When making contact, ask about other services that may be offered such as support groups and social services.
Provider Profiles: National organization, http://www.sicklecelldisease.org/
Internet resource
Original Source: MedHome Portal
Last Updated: 1/10/2019
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Solve ME/CFS Initiative
5455 Wilshire Blvd, Suite 1903
Los Angeles, CA 90036-0007
 Phone: 704-364-0016
Service Categories:
Specialized Information Resources
Address: 5455 Wilshire Blvd, Suite 1903
Los Angeles, CA 90036-0007
Phone: 704-364-0016
Service Categories:
Specialized Information Resources
URL: https://solvecfs.org/
Services Provided: Dedicated to myalgic encephalomyelitis ME/Chronic Fatigue Syndrome CFS also known as chronic fatigue and immune dysfunction syndrome CFIDS. Our mission is to make ME/CFS widely understood, diagnosable, and treatable. We will do this by stimulating participatory, patient centered research aimed at the early detection, objective diagnosis and effective treatment of ME/CFS through expanded public, private and commercial investment.

Specialized Information and Referral
Original Source: Nationwide Suggest Providers Queue
Last Updated: 8/8/2019
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Stuttering Foundation of America
1805 Moriah Woods Blvd Suite 3
Memphis, TN 381177119
 Phone: 901-761-0343
Service Categories:
Specialized Information Resources
Address: 1805 Moriah Woods Blvd Suite 3
Memphis, TN 381177119
Phone: 901-761-0343
Toll Free Phone: 800-992-9392
Fax: 901-761-0484
Service Categories:
Specialized Information Resources
Email: jwarner@tn.stutteringhelp.org
URL: https://www.stutteringhelp.org/
Wheelchair Accessible: Not Applicable
Services Provided: Provides resources, services, and support to those who stutter and their families, as well as support for research into the causes of stuttering.

Information and Referral
Library Services
Original Source: Nationwide Suggest Providers Queue
Last Updated: 8/12/2019
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The Bazelon Center for Mental Health Law
1101 15th Street NW, Suite 1212
Washington, DC 20005
 Phone: 202-467-5730
Service Categories:
Legal Services, General
Specialized Information Resources
Address: 1101 15th Street NW, Suite 1212
Washington, DC 20005
Phone: 202-467-5730
Toll Free Phone: 202-467-4232
Fax: 202-223-0409
Service Categories:
Legal Services, General
Specialized Information Resources
URL: http://www.bazelon.org
Services Provided: The mission of the Judge David L. Bazelon Center for Mental Health Law is to protect and advance the rights of adults and children who have mental disabilities. The Bazelon Center envisions an America where people who have mental illnesses or developmental disabilities exercise their own life choices and have access to the resources that enable them to participate fully in their communities.

Information and Referral
Library Services
Original Source: Nationwide Suggest Providers Queue
Last Updated: 8/7/2019
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The National Fragile X Foundation
1861 International Drive Suite 200
McLean, VA 22102
 Phone: 202-747-6210
Service Categories:
Specialized Information Resources
Address: 1861 International Drive Suite 200
McLean, VA 22102
Phone: 202-747-6210
Toll Free Phone: 800-688-8765
Fax: 202-747-6208
Service Categories:
Specialized Information Resources
URL: https://fragilex.org/
Services Provided: The National Fragile X Foundation unites the Fragile X community to Enrich lives through educational and emotional support Promote public and professional awareness Advance research toward improved treatments and a cure for Fragile X.

Disease/Disability Information
Information and Referral
Specialized Information and Referral
Original Source: Nationwide Suggest Providers Queue
Last Updated: 8/7/2019
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Ticket to Work, Social Security Administration
Office of Public Inquiries, Windsor Park Building
6401 Security Blvd.
Baltimore, MD 21235
Service Categories:
Disability Related Employment Programs
Specialized Information Resources
Organization Name: Social Security Administration
Address: Office of Public Inquiries, Windsor Park Building
6401 Security Blvd.
Baltimore, MD 21235
TDD: 800-325-0778
Toll Free Phone: 800-772-1213
Service Categories:
Disability Related Employment Programs
Specialized Information Resources
URL: http://www.ssa.gov/work/
Services Provided: This site provides information for people with disabilities who are SSI or SSDI recipients and want to work.
Provider Profiles: (SSI)
Original Source: MedHome Portal
Last Updated: 3/22/2018
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United Network for Organ Sharing (UNOS)
700 North 4th Street
Richmond, VA 23219
 Phone: 888-894-6361
Service Categories:
Specialized Information Resources
Address: 700 North 4th Street
Richmond, VA 23219
Phone: 888-894-6361
Toll Free Phone: 888-894-6361
Fax: 804-782-4817
Service Categories:
Specialized Information Resources
URL: http://www.unos.org/
Eligibility: Contact for specific information.
Services Provided: National patient hotline for organ transplantation information. Donor cards, booklets, brochures and lists of transplant centers are available. Patient information packets on specific organs are available.
Original Source: Nationwide Suggest Providers Queue
Last Updated: 8/6/2019
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Vanderbilt Kennedy Center
110 Magnolia Circle
Nashville, TN 37203
 Phone: 615-322-8240
Service Categories:
Specialized Information Resources
Address: 110 Magnolia Circle
Nashville, TN 37203
Phone: 615-322-8240
Service Categories:
Specialized Information Resources
URL: http://vkc.mc.vanderbilt.edu/vkc/resources/
Eligibility: Individuals with disabilities
Services Provided: Resources for individuals with disabilities: Topical List, Printable Resources, Web Resources, Tip Sheets, Video Resources and Toolkit for IDD at www.vkc.mc.vanderbilt.edu/etoolkit/ with Health Watch Tables.
Original Source: MedHome Portal
Last Updated: 5/9/2018
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Virtual VRI
PO Box 25268
Colorado Springs, CO 80936
 Phone: 719-344-2274
Service Categories:
Interpreters
Specialized Information Resources
Address: PO Box 25268
Colorado Springs, CO 80936
Phone: 719-344-2274
Toll Free Phone: 866-440-9140 xe
Service Categories:
Interpreters
Specialized Information Resources
URL: http://www.virtualvri.com
Eligibility: Deaf and hard of hearing individuals
Services Provided: Video Remote Interpreting is a cutting edge “green” way of providing Sign Language interpreting. All that is required is a computer/webcam, access to high speed internet and to download free webconferencing software. The hearing employer, doctor, counselor, school etc., pays for the service to be in compliance with the Americans with Disabilities Act.
Provider Profiles: computer/webcam based service
Original Source: MedHome Portal
Last Updated: 8/1/2018
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When We Travel--Accessibility
Service Categories:
Accessible Travel Information
Specialized Information Resources
Address:
Service Categories:
Accessible Travel Information
Specialized Information Resources
Email: reservations@wctravel.com
URL: http://www.whenwetravel.com/travel_destination_hotel/wheelchair_accessible_hotels.jsp
Wheelchair Accessible: Yes
Services Provided: Accessibility services including tourist attractions, hotels, restaurants, bed & breakfasts, RV Parks. Searchable listing of wheelchair accessible hotels worldwide. Online services only.
Provider Profiles: Email addresses are as follows: to cancel or modify a reservation contact customerservice@wctravel.com; for group rates contact group@whenwetravel.com; for problems registering, submitting content or a broken page contact support@whenwetravel.com.
Original Source: MedHome Portal
Last Updated: 8/1/2018
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CO

Denver, CO

Mountain States Genetics Foundation (MOST), Colorado Department of Public Health and Environment
430 Cherry Drive
Denver, CO 80222-1530
 Phone: 602-870-4752
Service Categories:
Genetics Laboratories
Local Support Groups, Disability/Diag
Pediatric Genetics
Prenatal Genetic Counseling/Diagnosis
Specialized Information Resources
Organization Name: Colorado Department of Public Health and Environment
Address: 430 Cherry Drive
Denver, CO 80222-1530
Phone: 602-870-4752
Service Categories:
Genetics Laboratories
Local Support Groups, Disability/Diag
Pediatric Genetics
Prenatal Genetic Counseling/Diagnosis
Specialized Information Resources
URL: https://rarediseases.org/organizations/mountain-states-genetics-foundation/
Eligibility: AZ, CO, MT, NM, NV, TX, UT, WY
Services Provided: Listing of genetics-related resources available in the region (AZ, CO, MT, NM, NV, TX, UT, WY) including clinical genetics, consumer support, newborn screening, prenatal genetics, genetics laboratories, and specialty clinics. Established in 1993 to provide private alternatives to support public programs for genetics and maternal health services and education. One of several Regional Genetic Services Directory
Provider Profiles: Regional area served, regional resource
Original Source: MedHome Portal
Last Updated: 6/25/2018
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MD

Rockville, MD

Model Me Kids
PO Box 1901
Rockville, MD 20849
 Phone: 301-755-9485
Service Categories:
Social Skills Training
Specialized Information Resources
Address: PO Box 1901
Rockville, MD 20849
Phone: 301-755-9485
Toll Free Phone: 888-938-3240
Fax: 888-172-1425
Service Categories:
Social Skills Training
Specialized Information Resources
Email: info@modelmekids.com
URL: http://www.modelmekids.com/index.html
Eligibility: Open to the public, Nationwide.
Services Provided: Videos for modeling social skills. Teaching tools for children, adolescents, and teenagers with Autism, Asperger Syndrome, and developmental delays. The videos are used by teachers, parents, and therapists.
Original Source: United Way 2-1-1
Last Updated: 6/6/2019
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VA

Mc Lean, VA

Resolve of Utah - Logan and Brigham City, Resolve: The National Infertility Association
7918 Jones Branch Dr Ste 300
Mc Lean, VA 22102
 Phone: 703-556-7172
Service Categories:
Local Support Groups, Disability/Diag
Specialized Information Resources
Organization Name: Resolve: The National Infertility Association
Address: 7918 Jones Branch Dr Ste 300
Mc Lean, VA 22102
Phone: 703-556-7172
Toll Free Phone: 866-668-2566
Fax: 703-506-3266
Service Categories:
Local Support Groups, Disability/Diag
Specialized Information Resources
Email: info@resolve.org
URL: http://www.resolve.org/
Eligibility: Box Elder and Cache Counties. Open to persons struggling with infertility or seeking information on infertility.
Services Provided: Improving the lives of women and men living with the disease of infertility by providing free support to anyone in need; advocating for increased access to all family building options; and reducing the stigma of this disease through public education.
Original Source: United Way 2-1-1
Last Updated: 6/3/2019
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