Specialized Information Resources

Empowers the cancer community to address the unmet needs of cancer survivors. To do so, collaboration, knowledge-sharing, and partnership are encouraged. Develops evidence-based solutions to address both the common and unique problems survivors are facing around the world.

• Specialized Information and Referral

Improving the lives of women and men living with the disease of infertility by providing free support to anyone in need, advocating for increased access to all family building options, and reducing the stigma of this disease through public education.

• Specialized Information and Referral
• Infertility Support Groups

Private, nonprofit, non-residential facility that teaches independent living skills to people with disabilities. Serving Salt Lake, Summit & Tooele Counties.

COVID-19 UPDATE: Partially open to the public only for individual appointments with staff; please call to make an appointment. Face masks must be worm while meeting in the building. Beginning June 2020, some classes will be gradually opened (1 class per day). Others will continue via ZOOM meetings. Transportation is very limited and not available for all classes.

• Specialized Information and Referral
• Advocacy
• Assistive Technology Equipment Loan
• Medical Equipment/Supplies
• Centers for Independent Living
• Independent Living Skills Instruction
• Event Coordination Volunteer Opportunities
• Disability Rights Groups
• Public Awareness/Education

Assists parents, provider, and community partners by providing referrals, collaboration, early childhood education and resources to promote quality child care and information about available financial aid. People needing child care may call, email, walk into the office or do a search on the website.

COVID-19 UPDATE: Office closed and events canceled until further noticed. Emails will be answered Monday through Friday.

• Specialized Information and Referral
• Child Care Provider Referrals
• Child Care Provider Training

Mailing address CC&R: 800 West University Parkway, Orem, UT 84058-6703

• Peer to Peer Networking
• School to Adult Life Transition Services
• Specialized Information and Referral
• Nursing Home Transition Financing Programs
• Adult Out of Home Respite Care
• Orientation and Mobility Training
• Health/Disability Related Social Clubs
• Advocacy
• Assistive Technology Equipment Loan
• Independent Living Skills Instruction

Also Red Rock - Beaver County Outstation, Red Rock - Iron County Outstation, Red Rock - Sevier County Outstation.

• English as a Second Language
• Computer and Related Technology Classes
• Resume Preparation Assistance
• Wellness Programs
• Specialized Information and Referral
• Comprehensive Immigration/Naturalization Services
• Certificates/Forms Assistance
• Language Translation
• Parenting Skills Classes
• Citizenship Education
• Life Skills Education
• HIV Testing

Provides information, advocacy, support groups, transportation directions, local and national advocacy, Kids Crew, Camp Discovery, Art Program, and Walk to End Epilepsy. Free educational materials in English and Spanish.

COVID-19 UPDATE: Services provided via phone and virtual groups.

• Disease/Disability Information
• Voluntary Health Organizations
• Internet Information Resources
• Specialized Information and Referral

• Specialized Information and Referral
• Special Education
• Disability Related Parenting Programs

• Specialized Information and Referral
• Patient/Family Housing

web-based services locator

Informational website for women and children detailing tips for health, parenting, and relationships.

Online resource.

A locator tool allows cancer patients and oncology professionals to search for fertility preservation services in their area, and to submit referrals or request appointments through a secure online system.

Supporting treatment and research for familial dysautonomia. FD is a hereditary disease of the sensory and autonomic nervous systems.

Information and Referral
Library Services

Information on HIV/AIDS conferences, news and events, public policy, resources, technical assistance, treatment information and hotlines.

AKA National Minority AIDS Council

Provides information regarding options, counseling, and physical and emotional support to individuals facing unplanned pregnancies.

• Specialized Information and Referral
• Pregnancy Counseling
• Sexuality/Reproductive Health Education
• Baby Clothing
• Pregnancy Testing
• Maternity Clothing
• Fetal Ultrasound
• Postabortion Support Groups

Provides coordinated services for children and their families during the investigative process of child abuse complaints including: crisis intervention, forensic interviews in child-friendly interview rooms, trained interviewers, specialized medical exams, and advocacy services. The center and process is designed to make children feel comfortable and safe and to minimize trauma to the child

.COVID-19 UPDATE: The Weber/Morgan Children's Justice Center is available by appointment only. Appointments are made at the request of law enforcement or child protective services. Call ahead for details on donations.

• Child Abuse Reporting/Emergency Response
• Child Abuse Medical Evaluations
• Specialized Information and Referral
• Toy/Game Donation Programs

• Specialized Information and Referral
• Parenting Support Volunteer Opportunities
• Perinatal/Postpartum Depression Counseling

• Internet Information Resources
• Disease/Disability Information
• Specialized Information and Referral

• Specialized Information and Referral
• Psychiatric Resocialization

The leading voice and resource of the Fetal Alcohol Spectrum Disorders (FASD) community, and committed to the prevention of prenatal exposure to alcohol, drugs, and other substances known to harm fetal development, and to supporting individuals, families, and communities living with Fetal Alcohol Spectrum Disorders (FASDs) and other preventable intellectual/ developmental disabilities.

The Medical Home Portal is a unique source of reliable information about children and youth with special health care needs (CYSHCN), offering a "one-stop shop" for their families, physicians and Medical Home teams, other professionals and caregivers.

• Specialized Information and Referral
• Disease/Disability Information
• Internet Information Resources

• Child Guidance
• Mental Health Related Support Groups
• Volunteer Recruitment/Placement
• Specialized Information and Referral

Partners with Utah Family Coalition to provide Family Resource Facilitators.
Southern office: 320 East Center Street, Panguitch, UT 84759

General vaccine information and finder.

FAQs about vaccines, including general vaccine safety, and specific vaccines.

Find Vaccine: Locate vaccines by type and location. Call first to schedule an appointment and verify vaccine supplies.

Project of:

• Boston Children's Hospital
• Centers for Disease Control and Prevention (CDC)
• Harvard Medical School
• HealthMap

Provides the latest autism science and information, funding research into the causes, prevention, treatments and cures for autism, awareness of autism spectrum disorders, advocacy for the needs of individuals with autism and their families and an online store.

• Specialized Information and Referral
• Disease/Disability Information

Latino Behavioral Health Services is a peer-run nonprofit organization that provides prevention and recovery support through education, empowerment, facilitation of resources and services, with responsiveness to cultural, socioeconomic and linguistics characteristics. LBHS programs enhance the awareness and well-being of people with serious emotional disturbances, mental health conditions, substance use disorders, suicide-attempt survivors, and their caregivers and loved ones. LBHS programs are offered at low or no cost.

COVID-19 UPDATE: All services are available via phone. Some classes have been discontinued, while some remain in smaller groups. Offices are closed to walk-in traffic.

• Advocacy
• Mental Health Related Support Groups
• Teaching/Instruction Volunteer Opportunities
• Court Community Service Sites
• Volunteer Mobilization Events
• Mental Health Information/Education
• Specialized Information and Referral

• Specialized Information and Referral
• Advocacy
• School to Adult Life Transition Services
• Assistive Technology Equipment Loan
• Nursing Home Transition Financing Programs
• Health/Disability Related Social Clubs
• Peer to Peer Networking
• Independent Living Skills Instruction
• Orientation and Mobility Training

MaleSurvivor fosters a healing community where tens of thousands of men from more than 200 countries come together to find support, information and — most importantly — hope. Services include online forum, support groups, find a therapist, and resources for family members and loved ones of victims.

Support Groups: Find support groups, events, and reading recommendations.

Find a Therapist: Search clinics and clinicians by name or location.

For parents: Resources for parents of sexual abuse survivors.

Health information: mental health, getting help, statistics, clinical trials; outreach, research, opportunities for funding, labs at NIMH.

• New Dad Parenting Programs
• Pregnancy Testing
• Maternity Clothing
• Specialized Information and Referral
• Baby Clothing
• Postabortion Counseling
• General Expectant/New Parent Assistance

Provides a variety of programs focusing on both community well-being and community organizing to help individuals from the immigrant and refugee communities become healthy, self-reliant, and participatory members of society.

• Mobile Health Care
• Community Involvement Programs
• Specialized Information and Referral
• Diabetes Screening
• Cholesterol/Triglycerides Tests
• HIV Testing
• Food Stamps/SNAP Applications
• Disease/Disability Information
• Immigrant Benefits Assistance
• Wellness Programs
• Blood Pressure Screening
• Health/Disabilities Related Volunteer Opportunities
• Comprehensive Immigration/Naturalization Services

• General Health Insurance Information/Counseling

• Family Counseling
• Home Based Parenting Education
• Child Abuse Prevention
• Crisis Nurseries/Child Care
• Parenting Skills Classes
• Children's Out of Home Respite Care
• Specialized Information and Referral

You can apply for health insurance, tax credits, and Medicaid through the Marketplace via HealthCare.gov, myCase, or at your local DWS employment center.

If you have already applied for or are receiving medical assistance, you can sign up or log in to myCase to get information, recertify and manage your benefits.
"case" refers to case number

If you'd like to obtain free assistance applying for Medicaid/CHIP visit www.takecareutah.org or call 211.

internet-based, statewide

• Specialized Information and Referral
• Disease/Disability Information
• Internet Information Resources
• Research Funds
• Health/Disability Related Support Groups

Helps parents help their children, youth and young adults with all disabilities to live included, productive lives as members of the community. Offers a variety of services through projects and programs, providing mostly FREE information, training and peer support to families of individuals with disabilities and the professionals who serve them. 

COVID-19 Update: This office is serving customers exclusively by phone, video conferencing, and email. All in person workshops will be conducted virtually or be postponed; please visit website for latest updates.

Services Include:

• Parent Training and Information (PTI) Project
• Utah Family Voices – Family to Family Health Information Center
• School District Consultants
• Family to Family Network
• Autism Information Resources autism@utahparentcenter.org
• Volunteer Programs
• Workshops, Presentations, and Conferences

The UPC is the Utah Parent Training and Information (PTI) Center, funded by the U.S. Department of Education's Office of Special Education Programs (Ph: 844-838-8275).

• Specialized Information and Referral
• Voluntary Health Organizations
• Health Related Advocacy Groups
• Braille and Tactile Aids

NFB of Utah has 5 chapters located in St. George, Utah County, Salt Lake, Weber/Davis, and Logan; as well as 3 divisions that work specifically with students, seniors, and parents of blind children.
President Everette Bacon

• Specialized Information and Referral
• Disaster Relief/Recovery Organizations

Provides after school cultural enrichment clubs, educational summer camps, individual tutoring for elementary school students, translation services, and crisis intervention for youth and families.

• Extended Child Care
• Spanish as a Second Language
• Specialized Information and Referral

BEACON Afterschool Program 435-719-4717.

• Specialized Information and Referral
• Advocacy
• Supported Living Services for Adults With Disabilities
• Nursing Home Transition Financing Programs
• Independent Living Skills Instruction
• Peer to Peer Networking
• Aging and Disability Resource Centers
• Assistive Technology Equipment Loan
• Assistive Technology Equipment Listing Services
• Comprehensive Disability Related Employment Programs
• Disability Related Center Based Employment

• Special Education
• Specialized Information and Referral

A national patient organization dedicated to improving the diagnosis, treatment, and quality of life of persons with primary immunodeficiency diseases through advocacy, education, and research. Learn about primary immunodeficiencies, it's diagnosis, treatment; and living with PI, at different ages, getting support, finding a physician, insurance, school, etc.

IDF Physician Finder to locate a physician by location, last name, specialty and more.

• Disease/Disability Information
• Health/Disability Related Support Groups

Works to celebrate, advocate, support, and empower people in all stages of addiction recovery through connecting to resources, building community, and raising public awareness that long-term recovery is possible.

COVID-19 UPDATE: All centers statewide will continue to be closed, with no in-person group recovery meetings nor individual coaching appointments until at least after May 1st, pending further public health official notices. Online recovery resources, including temporary virtual meetings can be found online. Please call or email to be connected with a Coach.

• Drug Use Disorder Support Groups
• Alcohol Use Disorder Support Groups
• Advocacy
• Families/Friends of Individuals With an Alcohol Use Disorder Support Groups
• Specialized Information and Referral

Call for details.
Located in Salt Lake City and St. George

Empowers individuals, strengthens families, and builds communities through education and self-sufficiency programs. Programs and services include crisis intervention for housing (may include rent and/or deposit assistance depending on funding, for qualifying families with children or individuals), food, and utility assistance or assistance with utilities, homeless diversion programs and services, employment services and job finding assistance, and other services listed as separate providers (See the Community Action Agencies service term). Offers coordinated homeless services through the Homeless Resource Line.

COVID-19 Update: All walk-in and in-person appointments are suspended. For services, please call or go online. ADDITIONALLY Temporary Rental Assistance is available to those directly affected by COVID-19 and not eligible for unemployment; please call for specific information.

COVID-19 - UPDATE: As of July 31, 2020 the temporary Rental Assistance is now open to those who are receiving unemployment benefits. Additional funding has been received and eligibility requirements have changed. Those who quality can receive up to $2000 for rent and utility purposes.

• Tenant Readiness Education Programs
• Food Production/Preparation/Delivery Volunteer Opportunities
• Landlord/Tenant Dispute Resolution
• Court Community Service Sites
• Homeless Diversion Programs
• Case/Care Management
• Community Action Agencies
• Specialized Information and Referral
• Rent Payment Assistance

Provides information, advocacy, and assistance finding doctors, legal assistance, support groups and transportation reimbursement. Learn about epilepsy, types of seizures, triggers, diagnosis, treatment, etc. Offers a seizure diary app self-management tool.

Spanish-language line: 866-748-8008

• Specialized Information and Referral
• Internet Information Resources
• Health/Disability Related Support Groups

• Public Awareness/Education
• Medical Equipment/Supplies
• Advocacy
• Assistive Technology Equipment Loan
• Centers for Independent Living
• Independent Living Skills Instruction
• Disability Rights Groups
• Specialized Information and Referral
• Event Coordination Volunteer Opportunities

Also a Tooele Satellite Office

• Aging and Disability Resource Centers
• Health/Disability Related Support Groups
• Specialized Information and Referral

• Barrier Free Home Rental Listings
• Disability Related Transportation
• Protection and Advocacy for Individuals With Disabilities
• Low Vision Aids
• Centers for Independent Living
• Assistive Technology Equipment Loan
• Disability Rights Groups
• Specialized Information and Referral
• Public Awareness/Education
• Veteran Benefits Assistance
• Independent Living Skills Instruction
• Teaching/Instruction Volunteer Opportunities
• Health/Disability Related Support Groups
• Companionship Volunteer Opportunities

USOR Center for Independent Living (CIL)

Provides exceptional services, education, outreach, and advocacy so that people living with autism and other disabilities can live, learn, work and play in our communities.

Information and Referral
Library Services

• Developmental Screening
• Specialized Information and Referral
• Parenting Helplines

Barbara Leavitt, Director

Additional locations: St. George, Ogden and Salt Lake City, 2-1-1 - United Way of Salt Lake: Dial 2-1-1 and ask for Help Me Grow.

The Family to Family Network is a grassroots volunteer group composed of family members across Utah who have a relative with a disability. Local networks across Utah offer support, education, and resources to families of persons with disabilities. Funded by the Division of Services for People with Disabilities. Specializes in helping people on the waiting list for services.

• Specialized Information and Referral
• Health/Disability Related Support Groups

Leaders located across Utah- refer to website for local network information.

• Specialized Information and Referral
• Health/Disability Related Support Groups

• Life Skills Education
• Domestic Violence Hotlines
• Crime Victim Support
• Domestic Violence Volunteer Opportunities
• Legal Information Services
• Domestic Violence Shelters
• Protective/Restraining Orders
• Domestic Violence Support Groups

• Special Preschools
• Developmental Assessment
• School Districts
• Adult Education
• English as a Second Language
• GED/High School Equivalency Test Instruction
• Specialized Information and Referral

IMPACT provides a variety of educational resources and tools for understanding aspects of raising a health family.

IMPACT stands for Improving Maternal Child Health Programs and Policies so All Children Thrive. IMPACT is a project of national Family Voices.

IMPACT promotes a holistic approach to health and wellness for all families and children including those with special healthcare needs and disabilities.

IMPACT elevates and expands the capacity of family organizations – those that serve all children as well as those that serve children with special needs and disabilities  –  to educate and inform families about lifestyle strategies and choices that positively impact the long-term good health of children. 

IMPACT promotes health and wellness by developing materials and tools and sharing other resources that help families learn skills to build healthy relationships, healthy families, and healthy communities.

Provides outreach, training, support, education, information, and activities for individuals with Down syndrome, parents, families and the community.

• Specialized Information and Referral
• Health/Disability Related Support Groups
• Voluntary Health Organizations
• Health Related Advocacy Groups

The primary professional organization in this specialized area, encouraging equipment development to maximize the transportation options for persons with disabilities. To find a driver rehabilitation specialist in or near your area, please visit our website.

Driving Safety Education

• General Crisis Intervention Hotlines
• Anger Management
• Suicide Prevention Hotlines
• Case/Care Management
• Medication Information/Management
• Residential Substance Use Disorder Treatment Facilities
• General Assessment for Substance Use Disorders
• Specialized Information and Referral
• Substance Use Disorder Crisis Intervention
• Substance Use Disorder Counseling
• Substance Use Disorder Education/Prevention
• General Counseling Services
• Psychiatric Medication Services

Provides services that promote and enhance independent living for seniors and people with disabilities.

COVID-19 UPDATE: Roads to Independence is experiencing a soft closure. Open M - F 8 am - 4 pm. Loan Bank still available. All recreational activities and classes temporarily suspended.

• Youth Job Development
• Medical Equipment/Supplies
• Health/Disabilities Related Volunteer Opportunities
• Nursing Home Transition Financing Programs
• Youth Employment Programs
• Disability Rights Groups
• Home Barrier Evaluation/Removal Services
• Advocacy
• Aging and Disability Resource Centers
• Centers for Independent Living
• Recreational Activities/Sports
• Specialized Information and Referral
• Mileage Reimbursements
• Assistive Technology Equipment Loan
• Independent Living Skills Instruction

• Specialized Information and Referral

online resource