UPIQ is a coalition to advance quality and transform health care for children and their families. Provides education, guidance, tools, measurement, and ongoing support to help bridge the gap between knowing best practices and consistently implementing them in healthcare infrastructure and practice. 

UPIQ is a member of the National Improvement Partnership Network

Individuals with autism (including adults), biological siblings, and parents. Must live in the US; read/understand English and/or Spanish; have a “professional” diagnosis, but no ICD-10 code required.

Autism research which provides free DNA testing to participants. The study aims to understand autism, including the DNA, environment and lifestyle of individuals and their family. Participation is online and takes 30 minutes to complete. Incentives provided.

The University of Utah is an IRB-approved clinical site, May 2019.

SPARK stands for Simons Foundation Powering Autism Research. More than 30 of the nation’s leading medical schools and autism research centers have joined SPARK to help recruit individuals and families affected by autism. 

Dedicated to improving health care transition supports for youth moving into the adult health care system, offers education, resources, tools, and state policy advocacy for youth, families, providers, and states. The Six Core Elements of Health Care Transition 2.0 define the basic components of health care transition support.

See resources on http://gottransition.org

Education and Training: Offers professional development to become a Patient-Centered Medical Home Certified Content Expert. See website for comprehensive knowledge of the requirements, the application process and the documentation of the NCQA PCMH Recognition Program.

Directory of Patient Centered Medical Homes (PCMH): Search by location or specialty. Also offers accreditation and training for health care plans and clinics.