CSHCN Administration & Programs

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Programs which receive federally funds designed to create effective systems of care for children and youth with special health care needs (CYSHCN).

Service Legend
Local Service
Statewide Service: Provides online resources, telehealth, or service at a satellite office.
Nationwide Service: Provides online resources, telehealth or services at a regional/national headquarters location.
Statewide Provider
PO Box 144620
Salt Lake City, UT 84114
Phone: 801-273-6600
Statewide Provider
Organization Name: Early Hearing Detection and Intervention (EHDI), Utah Department of Health
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Address:
PO Box 144620
Salt Lake City, UT 84114
Phone: 801-273-6600
Toll Free Phone: 800-829-8200
Fax: 801-536-0492
Email: chap@utah.gov
Eligibility:

Children's Hearing Aid Program serves children 0-5 years old. Children ages 6+ may apply for the Hearing Aid Recycling Program. Qualifying children must:

  • be a resident of Utah
  • be diagnosed as having hearing loss by an audiologist
  • provide documentation from an audiologist with pediatric expertise certifying that he/she needs hearing aids
  • be ineligible to receive a hearing aid through the state’s Medicaid program
  • not have insurance coverage for hearing aids
  • meet the financial need qualification criteria established by the department for participation
Services Provided:

Provides access to hearing aids for financially eligible families. Accepts donations of used hearing aids and unused batteries.

Provider Profiles:

Stephanie McVicar, Program Manager

Source: Medical Home Portal
Last Updated: 2/7/2022
Statewide Provider
PO Box 144610
Salt Lake City, UT 84114-4610
Phone: 801-273-2800
Statewide Provider
Organization Name: Utah Department of Health
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Address:
PO Box 144610
Salt Lake City, UT 84114-4610
Phone: 801-273-2800
Toll Free Phone: 800-829-8200
Email: cshcn@utah.gov
Wheelchair Access: Complete
Services Provided:

Improve the health and quality of life for children with special needs, and their families, through early screening and detection, data integration, care coordination, education, intervention, and transition.

Services Include:


Programs include Autism System Development, Child Health Advanced Records Management (CHARM), Children's Hearing Aid Program, Critical Congenital Heart Defect (CCHD) Screening, Cytomegalovirus (CMV) Public Health Initiative, Early Hearing Detection and Intervention (EHDI), Fostering Healthy Children Program, Integrated Services Program, Kurt Oscarson Children's Organ Transplant Fund, Newborn Bloodspot (Heelstick) Screening Program, Technology Dependent Waiver, and Utah Birth Defects Network.

Provider Profiles:

Lynne Nielson, Director, Bureau of Maternal and Child Health

Source: United Way 2-1-1
Last Updated: 3/31/2022
Statewide Provider
288 North 1460 West
Salt Lake City, UT 84114
Phone: 866-818-7096
Statewide Provider
Organization Name: Utah Department of Health
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Address:
288 North 1460 West
Salt Lake City, UT 84114
Phone: 866-818-7096
Toll Free Phone: 866-818-7096
Services Provided:

Provides a statewide, population-based surveillance system that has identified birth defects in children born in Utah since 1994. 

Services Include:

  • Monitor the occurrence of birth defects in Utah
  • Assess trends over time
  • Address community concerns
  • Examine clustering of birth defects
  • Quantify morbidity and mortality
  • Health services planning
  • Referral for services
  • Monitor intervention strategies
  • Secondary prevention
  • Consumer education and advocacy
  • Health care provider education
Provider Profiles:

M - F, 8 am - 5 pm

Source: Medical Home Portal
Last Updated: 10/12/2021
Statewide Provider
PO Box 144620
Salt Lake City, UT 84114
Phone: 801-273-6600
Statewide Provider
Organization Name: Children with Special Health Care Needs, Utah Department of Health
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Address:
PO Box 144620
Salt Lake City, UT 84114
Phone: 801-273-6600
Toll Free Phone: 800-829-8200
Fax: 801-536-0492
Email: ehdi@utah.gov
Wheelchair Access: Yes
Eligibility:

Infants with possible developmental delays.

Services Provided:

Provides legislative oversight, programs and training of professionals for newborn hearing screening in the state.

Services Include:

Provider Profiles:

Program Manager: Stephanie McVicar

Source: Medical Home Portal
Last Updated: 1/5/2022
Statewide Provider
44 N. Mario Capecchi Drive
PO 144610
Salt Lake City, UT 84114-4610
Phone: 801-584-8455
Statewide Provider
Organization Name: CSHCN Bureau, Utah Department of Health
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Address:
44 N. Mario Capecchi Drive
PO 144610
Salt Lake City, UT 84114-4610
Phone: 801-584-8455
Toll Free Phone: 800-829-8200
Email: ckingsbury@utah.gov
Eligibility:

Autism, reside in Utah

Services Provided:

Through the Autism Systems Development Program, the CSHCN Bureau provides leadership that brings together many of the agencies and advocates who influence the statewide system of services for children with autism spectrum disorder (ASD) and their families.

The program has four components: Utah Autism Initiative (UAI), Utah Registry of Autism and Developmental Disabilities (URADD), Data System Integration, and ASD Resource Management. The ASDP:
- Refers individuals with ASD to services for evaluation and treatment
- Refers to care coordination programs
- Updates ASD diagnostic providers list
- Updates ASD treatment resources list
- Expands previously conducted ASD services survey to assess service needs and identify
barriers for care across Utah
- Compiles annual report summarizing ASD needs in Utah

Provider Profiles:

Colin Kingsbury, Program Manager
M - F 8 - 5
Statewide

Source: Medical Home Portal
Last Updated: 3/1/2022
Statewide Provider
3760 South Highland Drive
Salt Lake City, UT 84106
Phone: 801-273-2988
Statewide Provider
Organization Name: Bureau of Maternal and Child Health (MCH), Utah Department of Health
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Address:
3760 South Highland Drive
Salt Lake City, UT 84106
Phone: 801-273-2988
Toll Free Phone: 800-829-8200
Languages Spoken: Spanish services available.
Eligibility:

0 - 18 years of age, children and adolescents with special health care needs in Utah. No fee.

Services Provided:

Assists families of children and youth who have special health care needs with coordinated care planning, education and resources, in order for them to make informed decisions. This may include primary and special health care, behavioral health, developmental and educational programs, financial support resources and social services that meet their special needs from infancy through the transition to adulthood.

Services Include:

  • Transition to Adulthood website provides age-specific recommendations and community resources for any Utah resident age 12-22 who requests assistance with transition preparation and readiness.
  • Technology Loan Service- lends Chromebooks and hotspots to families of children with special health care needs. Available at locations in Blanding, Richfield, Vernal, Moab, Price, Ogden and Salt Lake City.
Provider Profiles:

M-F 8 - 5
Eric Christensen, Program Manager
Care Coordinators

Source: Medical Home Portal
Last Updated: 10/20/2021
Nationwide Provider
400 Hamilton Ave. Suite 340
Palo Alto, CA 94301
Phone: 650-497-8365
Nationwide Provider
Address:
400 Hamilton Ave. Suite 340
Palo Alto, CA 94301
Phone: 650-497-8365
Services Provided: Dedicated exclusively to the promotion and protection of children's health through fundraising, grantmaking and providing an informed perspective. Packard Children’s Hospital and Stanford School of Medicine supports clinical care, research, and education to improve the health of children and expectant mothers, locally and worldwide. Programs include Improving Systems of Care for Children with Special Health Care Needs and Elevating the Societal Priority of Children, providing wide-ranging, up-to-date data and research by tracking the status of California's children over time through its website, www.kidsdata.org.
Source: MHP-Nationwide
Last Updated: 1/7/2020