CSHCN Administration & Programs

Provides access to hearing aids for financially eligible families. Accepts donations of used hearing aids and unused batteries.

Stephanie McVicar, Program Manager

Improve the health and quality of life for children with special needs, and their families, through early screening and detection, data integration, care coordination, education, intervention, and transition.

Services Include:

• Early Intervention for Children With Disabilities/Delays
• Audiological Evaluations
• Hearing Aids
• Case/Care Management
• Statewide ABA Provider Directory

Programs include Autism System Development, Child Health Advanced Records Management (CHARM), Children's Hearing Aid Program, Critical Congenital Heart Defect (CCHD) Screening, Cytomegalovirus (CMV) Public Health Initiative, Early Hearing Detection and Intervention (EHDI), Fostering Healthy Children Program, Integrated Services Program, Kurt Oscarson Children's Organ Transplant Fund, Newborn Bloodspot (Heelstick) Screening Program, Technology Dependent Waiver, and Utah Birth Defects Network.

Lynne Nielson, Director, Bureau of Maternal and Child Health

Provides a statewide, population-based surveillance system that has identified birth defects in children born in Utah since 1994. 

Services Include:

• Monitor the occurrence of birth defects in Utah
• Assess trends over time
• Address community concerns
• Examine clustering of birth defects
• Quantify morbidity and mortality
• Health services planning
• Referral for services
• Monitor intervention strategies
• Secondary prevention
• Consumer education and advocacy
• Health care provider education

M - F, 8 am - 5 pm

Provides legislative oversight, programs and training of professionals for newborn hearing screening in the state.

Services Include:

• Children's Hearing Aid Program (CHAP)
• Hearing Aid Recycling Program (HARP)
• Cytomegalovirus Public Health Initiative
• Utah Newborn Hearing Screening Committee
• Utah Guide to Pediatric Audiologists
• Parent-to-Parent Support
  • Contact at ehdiparents@utah.gov

Program Manager: Stephanie McVicar

Through the Autism Systems Development Program, the CSHCN Bureau provides leadership that brings together many of the agencies and advocates who influence the statewide system of services for children with autism spectrum disorder (ASD) and their families.

The program has four components: Utah Autism Initiative (UAI), Utah Registry of Autism and Developmental Disabilities (URADD), Data System Integration, and ASD Resource Management. The ASDP:
- Refers individuals with ASD to services for evaluation and treatment
- Refers to care coordination programs
- Updates ASD diagnostic providers list
- Updates ASD treatment resources list
- Expands previously conducted ASD services survey to assess service needs and identify
barriers for care across Utah
- Compiles annual report summarizing ASD needs in Utah

Colin Kingsbury, Program Manager
M - F 8 - 5
Statewide

Assists families of children and youth who have special health care needs with coordinated care planning, education and resources, in order for them to make informed decisions. This may include primary and special health care, behavioral health, developmental and educational programs, financial support resources and social services that meet their special needs from infancy through the transition to adulthood.

Services Include:

• Transition to Adulthood website provides age-specific recommendations and community resources for any Utah resident age 12-22 who requests assistance with transition preparation and readiness.
• Technology Loan Service- lends Chromebooks and hotspots to families of children with special health care needs. Available at locations in Blanding, Richfield, Vernal, Moab, Price, Ogden and Salt Lake City.

M-F 8 - 5
Eric Christensen, Program Manager
Care Coordinators