Adolescent Health Transition Programs

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Programs that help adolescents with chronic diseases or disabilities make a successful transition to adult health care providers. There is usually a period of co-management during which a child is seen by pediatric specialists and adult providers; and an adult care plan is generally developed by the team to document current diagnoses and therapies, and lay out guidelines for the frequency of medical visits to specialists and primary care providers, the role of each adult provider in the overall care plan, and the frequency of lab studies and other clinical evaluations. (AIRS LH-6300.0230)

Service Legend
Local Service
Statewide Service: Provides online resources, telehealth, or service at a satellite office.
Nationwide Service: Provides online resources, telehealth or services at a regional/national headquarters location.
150 North 1950 West
Utah Refugee Center
Salt Lake City, UT 84116
Phone: 801-901-2072
Organization Name: Utah Department of Workforce Services
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Address:
150 North 1950 West
Utah Refugee Center
Salt Lake City, UT 84116
Phone: 801-901-2072
Fax: 801-536-7056
Email: lnguyen@utah.gov
Wheelchair Access: yes
Services Provided:

Mental health support to help refugees become aware of the emotional, psychological and physical trauma as a result of their treacherous journey, and to seek mental health services to overcome them.

We provide:
Clinical mental health assessments for Temporary Assistance for Needy Families (TANF) eligible customers.
Substance abuse, domestic violence, mental health and physical health referrals.
Education, workshops and resources to assist refugees with emotional, psychological and physical healing needs.
Training to staff, communities and partners about refugee experiences to increase understanding, support and integration of refugees in our communities.

Provider Profiles:

Lam Nguyen, LCSW

Source: Medical Home Portal
Last Updated: 4/19/2022
Statewide Provider
3760 South Highland Drive
Salt Lake City, UT 84106
Phone: 801-273-2988
Statewide Provider
Organization Name: Bureau of Maternal and Child Health (MCH), Utah Department of Health
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Address:
3760 South Highland Drive
Salt Lake City, UT 84106
Phone: 801-273-2988
Toll Free Phone: 800-829-8200
Languages Spoken: Spanish services available.
Eligibility:

0 - 18 years of age, children and adolescents with special health care needs in Utah. No fee.

Services Provided:

Assists families of children and youth who have special health care needs with coordinated care planning, education and resources, in order for them to make informed decisions. This may include primary and special health care, behavioral health, developmental and educational programs, financial support resources and social services that meet their special needs from infancy through the transition to adulthood.

Services Include:

  • Transition to Adulthood website provides age-specific recommendations and community resources for any Utah resident age 12-22 who requests assistance with transition preparation and readiness.
  • Technology Loan Service- lends Chromebooks and hotspots to families of children with special health care needs. Available at locations in Blanding, Richfield, Vernal, Moab, Price, Ogden and Salt Lake City.
Provider Profiles:

M-F 8 - 5
Eric Christensen, Program Manager
Care Coordinators

Source: Medical Home Portal
Last Updated: 10/20/2021
81 North Mario Capecchi Drive
Salt Lake City, UT
Phone: 801-507-8831
Organization Name: Intermountain Healthcare
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Address:
81 North Mario Capecchi Drive
Salt Lake City, UT
Phone: 801-507-8831
Email: GRADprogram@imail.org
Eligibility: Teens
Services Provided:

Offers resources and tools to help prepare teens to successfully manage your own health and make a successful transition to adult care. 

Provider Profiles:

Shelby Kirby, BS - GRAD, Research and Transition Guide
Stephanie Sund, Care Coordinator


Source: Medical Home Portal
Last Updated: 8/19/2020
50 North Medical Drive
Salt Lake City, UT 84132
Phone: 801-585-7676
Organization Name: University of Utah Health
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Address:
50 North Medical Drive
Salt Lake City, UT 84132
Phone: 801-585-7676
Services Provided:

Provides care to those born with congenital/structural heart conditions who survive into adulthood.

Conditions Treated:

  • Obstructive defects
    • Aortic valve stenosis (AS)
    • Pulmonary valve stenosis (PS)
    • Bicuspid aortic valve
    • Tricuspid valve stenosis/dysplasia
    • Mitral valve stenosis
    • Interrupted aortic arch
    • Subaortic stenosis
    • Coarctation of the aorta (coarct)
  • Septal defects
  • Cyanotic defects
    • Total anomalous pulmonary venous return (TAPVR)
    • Partial anomalous pulmonary venous return (PAPVR)
    • Truncus arteriosus
  • Patent ductus arteriosus
  • Tetralogy of fallot
  • Ebstein’s anomaly
  • D-transposition of the great arteries (D-TGA)
  • Congenitally corrected transposition of the great arteries (L-TGA)
  • Aortopathy/Connective tissue disorders
    • Marfan syndrome
    • Loeys-Dietz syndrome
    • SMAD3
    • Familial aortopathies
    • Ehlers-Danlos Syndrome (vascular type, classic type, hypermobility, if known aortic dilation or mitral valve prolapse)

Single ventricle conditions including the following:

  • Tricuspid atresia
  • Double-inlet left ventricle
  • Heterotaxy syndromes
  • Hypoplastic left heart syndrome
  • Pulmonary atresia
  • Unbalanced AV septal defects
  • s/p Fontan procedure
Source: Medical Home Portal
Last Updated: 10/19/2022
Nationwide Provider
1615 M Street NW, Suite 290
Washington, DC 20036
Phone: 202-223-1500
Nationwide Provider
Address:
1615 M Street NW, Suite 290
Washington, DC 20036
Phone: 202-223-1500
Email: info@GotTransition.org
Services Provided: Dedicated to improving health care transition supports for youth moving into the adult health care system, offers education, resources, tools, and state policy advocacy for youth, families, providers, and states. The Six Core Elements of Health Care Transition 2.0 define the basic components of health care transition support.
Provider Profiles: See resources on http://gottransition.org
Source: MHP-Nationwide
Last Updated: 1/7/2020
Nationwide Provider
2134 G Street NW
Washington, DC 20052
Phone: 202-454-1220
Nationwide Provider
Address:
2134 G Street NW
Washington, DC 20052
Phone: 202-454-1220
Email: askheath@gwu.edu
Services Provided:

A national web-based clearinghouse on post-secondary education for individuals with disabilities. Provides national conferences, training sessions, and workshops, develops training modules, publishes resource papers, fact sheets, directories, and website information, and fosters a network of professionals.

Source: Nationwide Suggest Providers Queue
Last Updated: 4/14/2022