Disease/Disability Information

Provide Feedback

Programs that provide information about the causes and origins, preventive measures, symptoms, screening/diagnostic procedures, and/or methods of treatment or management including the latest research for specific illnesses or disabling conditions. (AIRS LH-2700-1700)

Service Legend
Local Service
Statewide Service: Provides online resources, telehealth, or service at a satellite office.
Nationwide Service: Provides online resources, telehealth or services at a regional/national headquarters location.
Statewide Provider
475 West 260 North
Orem, UT 84057
Phone: 801-221-9930
Statewide Provider
Address:
475 West 260 North
Orem, UT 84057
Phone: 801-221-9930
Fax: 801-221-0649
Email: kids@kotm.org
Eligibility:

Children and adolescents with disabilities and developmental delays and/or come from low-income families.

Accepts most insurance plans, self-pay, Medicaid, and clergy-assisted pay.

Services Provided: Supports the development of young children and families. All cases go through the Orem office. Consists of 6 core programs: Early Intervention, Early Head Start, Autism Center, Respite Care, and Child and Family Mental Health.

  • Early Head Start
  • Infant and Early Childhood Mental Health
  • Autism Therapy
  • General Counseling Services
  • Community Based Preschools
  • Early Intervention for Children With Disabilities/Delays
  • Parenting Materials
  • Child Care Volunteer Opportunities
  • Children's Out of Home Respite Care
  • Disease/Disability Information
  • Family Counseling
Provider Profiles:

Offers in-home ABA services throughout the Utah and Salt Lake Valley, Price, Moab, and Cedar City. Telehealth services offered statewide.

Source: United Way 2-1-1
Last Updated: 3/23/2022
Statewide Provider
5296 Commerce Drive, Suite 302
Murray, UT 84107
Phone: 801-272-1068
Statewide Provider
Organization Name: Utah Parent Center
(Show others in Organization)
Address:
5296 Commerce Drive, Suite 302
Murray, UT 84107
Phone: 801-272-1068
Toll Free Phone: 800-468-1160
Fax: 801-272-8907
Email: info@utahfamilyvoices.org
Languages Spoken: Spanish
Eligibility:

For Utah families with a child or youth with a physical, mental or developmental special need.

Services Provided:

Family Voices provides one-on-one assistance to achieve family-centered care for all children and youth with special health care needs and/or disabilities. Through a national network, provides families tools to make informed decisions, advocates for improved public and private policies, builds partnerships among professionals and families, and serves as a trusted resource on health care. COVID-19 UPDATE: Following all CDC and State guidelines.

  • Parenting Materials
Provider Profiles:

Funded in part by the Maternal and Child Health Bureau.

Source: United Way 2-1-1
Last Updated: 5/10/2021
Statewide Provider
1408 South 1100 East
Salt Lake City, UT 84105
Phone: 801-487-2323
Statewide Provider
Address:
1408 South 1100 East
Salt Lake City, UT 84105
Phone: 801-487-2323
Toll Free Phone: 800-865-5004
Fax: 801-486-3978
Email: mail@utahaids.org
Wheelchair Access: Entry and Bathroom(s)
Services Provided: Offers assistance and expertise to anyone struggling with the complex issues that surround HIV. Works with community members to form partnerships that mend health, promote compassion, and extend companionship to everyone who has been affected by HIV. Also aims to reduce new occurrences of HIV and Sexually Transmitted Infections in the community through prevention, education, and outreach services.COVID-19 UPDATE: Office is closed until further notice. Contact for more information. Following all CDC and State guidelines.

  • HIV Testing
  • Public Awareness/Education
  • Sexually Transmitted Disease Treatment
  • AIDS/HIV Prevention Counseling
  • Health Care Referrals
  • Navigator Programs
  • Food Pantries
  • Disease/Disability Information
  • Health/Disability Related Support Groups
Source: United Way 2-1-1
Last Updated: 3/24/2022
1355 Peachtree Street, Ste 600
Atlanta, GA 30309
Phone: 844-571-4357
Address:
1355 Peachtree Street, Ste 600
Atlanta, GA 30309
Phone: 844-571-4357
Email: dmartinez@arthritis.org
Services Provided: As a voluntary health organization, offers information and tools to help people live a better life with arthritis through advocacy, health care referrals, chronic disease self management programs, and disease/disability information.COVID-19 UPDATE: All support groups and conferences are now virtual.

  • Health Care Referrals
  • Disease/Disability Information
  • Voluntary Health Organizations
  • Advocacy
  • Chronic Disease Self Management Programs
Source: United Way 2-1-1
Last Updated: 4/22/2022
Statewide Provider
375 East 100 South, Fl 1
Salt Lake City, UT 84111
Phone: 801-493-4700
Statewide Provider
Address:
375 East 100 South, Fl 1
Salt Lake City, UT 84111
Phone: 801-493-4700
Toll Free Phone: 800-227-2345
Email: cidne.christensen@cancer.org
Wheelchair Access: Complete
Eligibility:

Individuals with a cancer diagnosis, their family and friends.

Services Provided: A voluntary health organization and nationwide agency which provides advocacy and information services to find a cure for, and prevent cancer. Provides information, support, support groups, and connects access to care, smoking cessation programs, and non-emergency medical transportation. Related volunteer opportunities available.COVID-19 UPDATE: Transportation currently not being offered. Office is by appointment only. Some services are temporarily suspended or provided virtually. Contact for more information. Following all CDC and State guidelines.

  • Health/Disability Related Support Groups
  • Disease/Disability Information
  • Voluntary Health Organizations
  • Non-Emergency Medical Transportation
  • Court Ordered Community Service Sites
  • Health/Disabilities Related Volunteer Opportunities
  • Smoking/Vaping Cessation
Source: United Way 2-1-1
Last Updated: 3/30/2022
81 North Mario Capecchi Drive
Primary Children's Hospital
Salt Lake City, UT 84113
Phone: 801-213-3599
Organization Name: Intermountain Primary Children's Hospital/ University of Utah Health
(Show others in Organization)
Address:
81 North Mario Capecchi Drive
Primary Children's Hospital
Salt Lake City, UT 84113
Phone: 801-213-3599
Fax: 801-587-7539
Wheelchair Access: Complete
Eligibility: Young patients with Cystic Fibrosis or presumed diagnosis desiring confirmation. Accepts private insurance, Medicaid, and private pay. Contact for current information.
Services Provided:

A multidisciplinary center that specializes in the coordinated care and treatment of cystic fibrosis. Supports patients and families in the hospital and in outpatient clinic from the time of diagnosis through transitioning to adult care.

Provider Profiles:

For appointments or referrals, call 801-213-3599 and choose option #1, then ask to speak with the Referral Team. This will give you the most comprehensive and coordinated experience.

Source: Medical Home Portal
Last Updated: 12/8/2020
772 East 3300 South, Suite 210
Salt Lake City, UT 84106
Phone: 801-484-0325
Address:
772 East 3300 South, Suite 210
Salt Lake City, UT 84106
Phone: 801-484-0325
Toll Free Phone: 877-463-6893
Fax: 801-746-2488
Services Provided:

Provides education, advocacy, outreach, and networking for people with bleeding disorders. These services empower individuals with bleeding disorders and their families to lead healthier and more self-sufficient lives.

Source: Medical Home Portal
Last Updated: 8/26/2020
3920 South 1100 East Ste 240
Salt Lake City, UT 84124
Phone: 801-484-4456
Address:
3920 South 1100 East Ste 240
Salt Lake City, UT 84124
Phone: 801-484-4456
Toll Free Phone: 800-586-4872
Fax: 801-484-5461
Email: utinfo@lungs.org
Wheelchair Access: Not At All
Services Provided: Offers practical help to people living with asthma, emphysema, COPD and other lung diseases. Confronts lung disease at the root level by educating children about the dangers of smoking, pushing for more smoke-free workplaces, and working to reduce air pollution. Related volunteer opportunities are available.COVID-19 UPDATE: Following all CDC and state guidelines.

  • Therapeutic Camps
  • Court Ordered Community Service Sites
  • Smoking/Vaping Cessation
  • Health/Disabilities Related Volunteer Opportunities
  • Automobile Donation Programs
  • Disease/Disability Information
Source: United Way 2-1-1
Last Updated: 3/29/2022
Statewide Provider
1338 South Foothill Drive Ste 240
Salt Lake City, UT 84108
Phone: 801-709-1420
Statewide Provider
Address:
1338 South Foothill Drive Ste 240
Salt Lake City, UT 84108
Phone: 801-709-1420
Toll Free Phone: 800-281-8442
Fax: 801-716-4995
Email: info@biau.org
Wheelchair Access: Complete
Languages Spoken: Spanish
Services Provided: Provides education through facilitation of resources for the issues of prevention and recovery of those affected by a brain injury, support to those transitioning back into everyday life such as work, school, and family relationships after a traumatic brain injury and low-cost helmets for infants to adults.COVID-19 Update: Following all CDC and state guidelines.

  • Disease/Disability Information
  • Voluntary Health Organizations
  • Health/Disability Related Support Groups
  • Health Related Advocacy Groups
  • Stroke Rehabilitation
Source: United Way 2-1-1
Last Updated: 3/29/2022
59 South 1100 East
Salt Lake City, UT 84102
Phone: 801-236-2294
Address:
59 South 1100 East
Salt Lake City, UT 84102
Phone: 801-236-2294
Fax: 385-235-6763
Email: helpdesk@survivorwellness.org
Wheelchair Access: Entry and Bathroom(s)
Eligibility:

Children ages 6-12, teens, and adults, cancer

Services Provided: Programs focus on three areas: Emotional and spiritual support, mind and body wellness, and social and community leadership. Disease/disability information, bereavement support groups, and health/disability related support groups available at no-cost, and are facilitated by a professional, all volunteer, wellness team. The home-like setting offers a warm and comforting space to retreat from the burden of cancer and improve quality of life. Health disability related volunteer opportunities are also available.COVID-19 UPDATE: Following CDC Guidelines.

  • Health/Disability Related Support Groups
  • Health/Disabilities Related Volunteer Opportunities
  • Disease/Disability Information
  • Bereavement Support Groups
Source: United Way 2-1-1
Last Updated: 3/28/2022
Statewide Provider
288 North 1460 West
PO Box 142104
Salt Lake City, UT 84114
Phone: 801-538-6191
Statewide Provider
Organization Name: Utah Department of Health - Bureau of Epidemiology
(Show others in Organization)
Address:
288 North 1460 West
PO Box 142104
Salt Lake City, UT 84114
Phone: 801-538-6191
Toll Free Phone: 888-EPI-UTAH
Fax: 801-538-9913
Email: epi@utah.gov
Eligibility:

Individuals living with HIV disease and family members who have no insurance, are underinsured or are not eligible for a State program, assets not over $10,000 (does not include a home or one car), low income.

Services Provided:

1. Supportive Services Program - ambulatory care, dental care, transportation services, case management, mental health services, substance abuse services, outreach services, and home health care.
2. ADAP (AIDS Drug Assistance Program) - helps eligible individuals pay for all or part of their HIV medications.
3. Health Insurance Continuation Program (COBRA) - can pay for COBRA payments for eligible individuals.

Source: Medical Home Portal
Last Updated: 4/29/2022
Statewide Provider
310 East 4500 South, Suite 240
Murray, UT 84107
Phone: 801-281-6618
Statewide Provider
Address:
310 East 4500 South, Suite 240
Murray, UT 84107
Phone: 801-281-6618
Toll Free Phone: 877-243-8908
Fax: 801-281-6659
Email: infocenter@lls.org
Wheelchair Access: Complete
Eligibility:

Patients, survivors, their families, and individuals and organizations affected by all blood cancers.

Services Provided: Works to cure leukemia, lymphoma, Hodgkin's disease, and myeloma, and improve the quality of life of patients and their families through disease/disability informatino, support groups, and related volunteer opportunities. Service includes all known blood cancer diagnoses.COVID-19 UPDATE: All office are closed. Support groups and conferences are virtual. Donations must be mailed to the regional processing center or the local address.

  • Disease/Disability Information
  • Public Relations Volunteer Opportunities
  • Health/Disability Related Support Groups
Source: United Way 2-1-1
Last Updated: 3/30/2022
1424 East Foremaster Drive, Suite 120
St. George, UT 84790
Phone: 435-251-2888
Organization Name: Intermountain Healthcare
(Show others in Organization)
Address:
1424 East Foremaster Drive, Suite 120
St. George, UT 84790
Phone: 435-251-2888
Eligibility: Fee for group and individual instruction. Some insurance plans will cover diabetes education.
Services Provided: Offers diabetes education program to help participants learn to manage their condition.
Source: Medical Home Portal
Last Updated: 3/27/2020
Crisis Line: 800-273-8255
474 West 200 North
St. George, UT 84770
Phone: 435-634-5600
Organization Name: Southwest Behavioral Health Center
(Show others in Organization)
Crisis Line: 800-273-8255
Address:
474 West 200 North
St. George, UT 84770
Phone: 435-634-5600
Toll Free Phone: 800-574-6763
Fax: 435-986-8700
Email: info@sbhcutah.org
Eligibility:

Children/youth 0 - 18 years of age and adults with severe and persistent mental illness and addiction. Patients with Medicaid, unfunded, or private insurance. Does not accept PCN, CHIP. Children are seen 0-18 years of age.

Services Provided:

Southwest Behavioral Health Center assists clients, families, and communities in preventing and recovering from severe and persistent mental illness and addiction.

  • Mental Health Crisis Lines
  • Suicide Prevention Hotlines
  • General Assessment for Substance Use Disorders
  • Psychiatric Case Management
  • General Crisis Intervention Hotlines
  • Mental Health Evaluation
  • Comprehensive Outpatient Substance Use Disorder Treatment
  • Suicide Prevention Programs
  • Residential Substance Use Disorder Treatment Facilities
  • General Mental Health Information/Education
  • Substance Use Disorder Counseling
  • General Counseling Services
Provider Profiles:

Craig Roberts, LCSW
Outpatient individual mental health therapy
Outpatient family therapy
Outpatient group therapy

Issues Treated:
Fear, worry & anxiety; obsession/compulsions
Sadness, hopelessness, & depression
Rule breaking, defiance, & "acting out"
Severe mood swings & bursts of rage
Autism & related disorders
Mental health problems with co-existing chronic medical conditions attachment and relational disorders

Source: United Way 2-1-1
Last Updated: 6/13/2022
652 South Medical Center Drive
St. George, UT 84790
Phone: 435-251-1000
Organization Name: Intermountain Healthcare
(Show others in Organization)
Address:
652 South Medical Center Drive
St. George, UT 84790
Phone: 435-251-1000
Fax: 435-251-2255
Services Provided:

Facility offers rehabilitation services, sports medicine and Acceleration sports training programs, outpatient surgeries, the Neurosciences Institute, and much more.

Provider Profiles:

Spirometry testing ages 5 and older 435 251-1650, asthma education 435 251-1653

Source: Medical Home Portal
Last Updated: 6/22/2021
161 Center Street
Clearfield, UT 84015
Phone: 801-773-6781
Address:
161 Center Street
Clearfield, UT 84015
Phone: 801-773-6781
Services Provided:

Provides support, training, counseling and education for parents, families, and the community involved with persons who have Down syndrome

Source: Medical Home Portal
Last Updated: 4/15/2022
Statewide Provider
780 Guardsman Way
The Carmen B Pingree Center
Salt Lake City, UT 84108
Statewide Provider
Address:
780 Guardsman Way
The Carmen B Pingree Center
Salt Lake City, UT 84108
Email: autismcouncilofutah@gmail.com
Services Provided: An independent council working for individuals of all ages who have, or are affected by autism, or related conditions. Services include specialized information/ referral, disease/ disability information, and advocacy groups.COVID-19 Update: Website remains available 24/7, with updates on virtual opportunities, and a list of pandemic related resources are available for those who have or are affected by autism.

  • Disease/Disability Information
  • Health Related Advocacy Groups
  • Specialized Information and Referral
Source: United Way 2-1-1
Last Updated: 3/31/2022
1750 West Research Way (2770 South) Ste 102
West Valley City, UT 84119
Phone: 801-487-4143
Address:
1750 West Research Way (2770 South) Ste 102
West Valley City, UT 84119
Phone: 801-487-4143
Fax: 801-487-4145
Email: info@cuutah.org
Wheelchair Access: Complete
Eligibility:

Serves the underrepresented Latino population

Services Provided: Provides a blood pressure/ diabetes screening, disease/ disability information, food stamps/SNAP applications, immigrant benefits assistance, comprehensive immigration/naturalization services, community involvement programs, and wellness programs. These services focus on both community well-being and community organizing to help individuals from the LatinX communities become healthy, self-reliant, and participatory members of society.COVID-19 UPDATE: No walk-ins at this time. Please call for information and appointment.

  • Cholesterol/Triglycerides Tests
  • HIV Testing
  • Disease/Disability Information
  • Health/Disabilities Related Volunteer Opportunities
  • Blood Pressure Screening
  • Diabetes Screening
  • Immigrant Benefits Assistance
  • Food Stamps/SNAP Applications
  • Wellness Programs
  • Comprehensive Immigration/Naturalization Services
  • Community Involvement Programs
  • Mobile Health Care
Source: United Way 2-1-1
Last Updated: 3/28/2022
Statewide Provider
2652 East Nottingham Way
Salt Lake City, UT 84108
Statewide Provider
Address:
2652 East Nottingham Way
Salt Lake City, UT 84108
Services Provided:

Provides families and professionals with newsletters; conference information; local event information; local services listings; links to support groups for youth, teens, siblings, grandparents and more; and links to other organizations. 

Provider Profiles:

Lisa Thornton (Legal Issues - President, Utah PWSA)

Source: Medical Home Portal
Last Updated: 11/11/2020
1950 Circle of Hope Drive (100 South)
Salt Lake City, UT 84112
Phone: 801-587-7000
Address:
1950 Circle of Hope Drive (100 South)
Salt Lake City, UT 84112
Phone: 801-587-7000
Toll Free Phone: 888-424-2100
Email: cancerinfo@hci.utah.edu
Languages Spoken: Spanish
Services Provided:

The Huntsman Cancer Institute and Hospital are part of the University of Utah Health Care system. Serves thousands of cancer patients throughout the Intermountain West every year and provides academic and clinical training for future physicians and researchers.

COVID-19 UPDATE: Many services are now available through virtual care. Visit website, call provider, or call the Covid-19 additional information line noted. 

  • Health/Disability Related Support Groups
  • Disease/Disability Information
  • Medical Information Services
  • Hospitals
Source: United Way 2-1-1
Last Updated: 4/7/2022
5280 South Commerce Drive Ste E-140
Salt Lake City, UT 84107
Phone: 801-265-1111
Address:
5280 South Commerce Drive Ste E-140
Salt Lake City, UT 84107
Phone: 801-265-1111
Fax: 801-262-2837
Email: info@alliance-community.org
Eligibility:

Walk in or call for information. Visite en persona o Llame para informacion

Services Provided: A consulting organization that provides diversity services, citizenship education, information, training, focus groups, support groups related to health/ disability, immigrant visa application assistance, language interpretation, networking/ relationship building support, and check status on COVID-19 rent/utility relief applications.Una organización de consultoría que brinda servicios de diversidad, educación ciudadana, información, capacitación, grupos focales, grupos de apoyo relacionados con la salud / discapacidad, asistencia para la solicitud de visa de inmigrante, interpretación de idiomas, apoyo para la creación de redes / relaciones y asistencia para certificados / formularios relacionados con COVID-19. alquiler / alivio de servicios públicos.COVID-19 UPDATE: Following all CDC and State guidelines. Many in-person activities and meetings are only being held via Zoom and WhatsApp.ACTUALIZACIÓN DE COVID-19: Siguiendo todas las pautas estatales y de los CDC. Muchas actividades y reuniones en persona solo se llevan a cabo a través de Zoom y WhatsApp.

  • Nutrition Education
  • Chronic Disease Self Management Programs
  • Ethnic Advocacy Groups
  • Language Translation
  • Language Interpretation
  • Leadership Development
  • Diabetes Management Clinics
  • Disease/Disability Information
  • Citizenship Education
  • Focus Group Facilitation
  • Immigrant Visa Application Filing Assistance
  • Diversity Awareness Training
  • Workplace Safety Education
  • Health/Disability Related Support Groups
  • Networking/Relationship Building Support
  • Certificates/Forms Assistance
Source: United Way 2-1-1
Last Updated: 3/31/2022
455 East 500 South Ste 308
Salt Lake City, UT 84111
Phone: 801-532-2335
Address:
455 East 500 South Ste 308
Salt Lake City, UT 84111
Phone: 801-532-2335
Fax: 801-364-0237
Email: utah@cff.org
Services Provided: Funds research, and supports the development of new drugs to fight Cystic Fibrosis to improve the quality of life for those with this condition to ultimately find a cure. Provides disease/disability information, and related volunteer opportunities.COVID-19 UPDATE: Following all CDC and State guidelines.

  • Disease/Disability Information
  • Health/Disabilities Related Volunteer Opportunities
  • Voluntary Health Organizations
Source: United Way 2-1-1
Last Updated: 3/29/2022
90 East 200 North
Logan, UT 84321
Phone: 435-787-4165
Organization Name: NAMI Utah
(Show others in Organization)
Address:
90 East 200 North
Logan, UT 84321
Phone: 435-787-4165
Email: 1namicachevalley@gmail.com
Eligibility: No cost. Individuals living with mental illness and their families.
Services Provided:

Offers free support groups and education for anyone impacted by mental health conditions throughout Utah – including those with mental health conditions and their family members or loved ones. 

Source: United Way 2-1-1
Last Updated: 9/22/2020
Statewide Provider
288 North 1460 West
PO Box 142107
Salt Lake City, UT 84114-2107
Phone: 801-538-6894
Statewide Provider
Organization Name: Utah Department of Health
(Show others in Organization)
Address:
288 North 1460 West
PO Box 142107
Salt Lake City, UT 84114-2107
Phone: 801-538-6894
Fax: 801-538-9495
Email: asthma@utah.gov
Wheelchair Access: Complete
Languages Spoken: Spanish
Eligibility:

Eligibility varies by program, free to those who qualify.

Services Provided:

Provides comprehensive asthma care by ensuring availability of and access to guidelines-based medical management and pharmacotherapy for all Utahns with asthma, and to link those with poorly controlled asthma to individualized services. 

Services Include:

Provider Profiles:

Nichole Shepard, MPH - Program Manager
Kellie Baxter - Health Program Specialist
Holly Uphold, PhD - Epidemiologist
Savannah Smith, MPH - Program Coordinator

Source: Medical Home Portal
Last Updated: 1/19/2022
Statewide Provider
250 East 200 South, Suite 1375
Salt Lake City, UT 84108
Phone: 801-581-8407
Statewide Provider
Organization Name: University of Utah
(Show others in Organization)
Address:
250 East 200 South, Suite 1375
Salt Lake City, UT 84108
Phone: 801-581-8407
Fax: 801-581-4560
Email: ucr.info@hsc.utah.edu
Services Provided: Promotes public and population health in Utah by collecting and managing cancer incidence and mortality data for the state. The registry disseminates information to support cancer prevention and control, facilitates cancer research, and monitors cancer trends.
Source: Medical Home Portal
Last Updated: 5/12/2020
PO Box 2265
St. George, UT 84771
Phone: 541-331-6979
Organization Name: NAMI Utah
(Show others in Organization)
Address:
PO Box 2265
St. George, UT 84771
Phone: 541-331-6979
Email: waconnors@gmail.com
Eligibility:

People with mental illnesses as well as family members, no cost. Washington, Iron Counties.

Services Provided:

Offers free support groups and education for anyone impacted by mental health conditions throughout Utah – including those with mental health conditions and their family members or loved ones. 

Source: Medical Home Portal
Last Updated: 7/29/2022
Salt Lake City, UT
Address:
Salt Lake City, UT
Eligibility:

Graduate level training, five states include Utah, Idaho, Montana, Wyoming and North Dakota.

Services Provided:

Utah Regional LEND is a training program that covers five states and uses state-of-the-art technology to connect groups of trainees across partner states. Professionals are trained to move beyond discipline boundaries to provide optimal services to child and adolescents with special health care needs. Because families are essential to well-being, this program emphasizes the role of family-centered care in all we do.

Provider Profiles:

Five states include Utah, Idaho, Montana, Wyoming and North Dakota.

Source: Medical Home Portal
Last Updated: 3/1/2022
1121 East 3900 South Ste C230
Salt Lake City, UT 84106
Phone: 801-262-9494
Address:
1121 East 3900 South Ste C230
Salt Lake City, UT 84106
Phone: 801-262-9494
Email: info@utahcancer.com
Eligibility:

Cancer patients

Services Provided: Provides information, education, advocacy and support to cancer patients and their families during diagnosis, treatment, and recovery to enhance their quality of life throughout the stages of the cancer experience.COVID-19 Update: Facemasks are required at all times at all UCS facilities/clinics. Visitors and guests may be limited. Call ahead of time for specific clinic and location requirements. Following all CDC and state guidelines.

  • Disease/Disability Information
  • Health/Disability Related Support Groups
Source: United Way 2-1-1
Last Updated: 3/30/2022
Lineagen View on Map
2677 East Parleys Way
Salt Lake City, UT 84109
Phone: 801-931-6200
Address:
2677 East Parleys Way
Salt Lake City, UT 84109
Phone: 801-931-6200
Fax: 801-931-6201
Eligibility:

Individuals with autism spectrum disorder or other childhood developmental disorders. Any age.

Services Provided:

Offers customized genetic testing service for individuals with autism spectrum disorder (ASD) and other disorders of childhood development plus ASD, multiple sclerosis (MS), and chronic obstructive pulmonary disease (COPD).

Provider Profiles:

Lineagen, Inc. is a privately held personal genomics and biotechnology company based in Salt Lake City.

Source: Help Me Grow Utah via United Way 2-1-1
Last Updated: 6/10/2022
Statewide Provider
132 South 600 East Ste 100
Salt Lake City, UT 84102
Phone: 801-530-0660
Statewide Provider
Address:
132 South 600 East Ste 100
Salt Lake City, UT 84102
Phone: 801-530-0660
Toll Free Phone: 800-533-2873
Fax: 801-530-0670
Email: info@jdrf.org
Services Provided:

The leading global organization focused on Type 1 Diabetes (T1D) research. Driven by grassroots volunteers connected to children, adolescents, and adults with this condition. JDRF is the largest charitable supporter of T1D research.

  • Disease/Disability Information
  • Research Funds
  • Internet Information Resources
Source: United Way 2-1-1
Last Updated: 3/30/2022
Salt Lake City, UT
Phone: 801-360-4666
Address:
Salt Lake City, UT
Phone: 801-360-4666
Email: liftinghearts2011@gmail.com
Services Provided: Provides support groups and retreats aimed at helping breast cancer survivors and their families heal.COVID-19 UPDATE: Offering online support.

  • Health/Disability Related Support Groups
  • Specialized Information and Referral
  • Retreat Centers
  • Disease/Disability Information
Source: United Way 2-1-1
Last Updated: 3/29/2022
471 Heritage Park Boulevard, Suite 4
Layton, UT 84041
Phone: 801-784-7429
Organization Name: GiGi's Playhouse - Down Syndrome Achievment Centers
(Show others in Organization)
Address:
471 Heritage Park Boulevard, Suite 4
Layton, UT 84041
Phone: 801-784-7429
Email: layton@gigisplayhouse.org
Eligibility:

Free

Services Provided:

GiGi’s Playhouse Layton provides resources, specialized teaching, and support to individuals with Down syndrome, their families and the community. All of our programs are free to our families and are therapeutic in nature. Each of them are designed to work on specific skill development in several areas including speech and language, social development, and fine and gross motor skills.

Provider Profiles:

Over 30 locations across the United States and Mexico and 200 inquiries to start new locations all over the world.

Source: Medical Home Portal
Last Updated: 3/1/2022
1380 East Medical Center Drive
St. George, UT 84790
Phone: 435-251-1000
Organization Name: Intermountain Healthcare
(Show others in Organization)
Address:
1380 East Medical Center Drive
St. George, UT 84790
Phone: 435-251-1000
Services Provided: Provides inpatient, outpatient, and emergency medical care.

  • Chronic Disease Self Management Programs
  • Emergency Room Care
  • Pregnancy/Childbirth Support Groups
  • Hospitals
  • Disease/Disability Information
  • Safe Havens for Abandoned Newborns
  • Psychiatric Inpatient Units
  • Health/Disability Related Support Groups
Provider Profiles:

Bryce L. Ferguson, MD (Pulmonary Clinic, Meds/Peds)

Source: United Way 2-1-1
Last Updated: 3/31/2022
Statewide Provider
Salt Lake City, UT
Statewide Provider
Organization Name: Utah Department of Health
(Show others in Organization)
Address:
Salt Lake City, UT
Services Provided:

Health education programs, self-management workshops in the areas of asthma, alzheimer's and dementia, diabetes, fall prevention, arthritis and exercise, pain management, prediabetes, health screenings, and way to quit (tobacco).

Source: Medical Home Portal
Last Updated: 4/29/2022
Statewide Provider
2460 West 26th Avenue, Suite 500-C
Denver, CO 80211
Phone: 720-855-1102
Statewide Provider
Address:
2460 West 26th Avenue, Suite 500-C
Denver, CO 80211
Phone: 720-855-1102
Toll Free Phone: 800-342-2383
Email: adarockymtn@diabetes.org
Services Provided: Works to prevent and cure diabetes and improve the lives of all people affected by the disease. Services available include advocacy, voluntary health organizations, information, and volunteer opportunities.

  • Disease/Disability Information
  • Health/Disability Related Support Groups
  • Health Related Advocacy Groups
  • Voluntary Health Organizations
  • Health/Disabilities Related Volunteer Opportunities
  • Court Ordered Community Service Sites
Provider Profiles:

Region includes Colorado, Montana, Utah and Wyoming.

Source: United Way 2-1-1
Last Updated: 3/30/2022
4516 South 700 East Ste 160
Murray, UT 84107
Phone: 801-883-9669
Address:
4516 South 700 East Ste 160
Murray, UT 84107
Phone: 801-883-9669
Toll Free Phone: 800-332-1000
Fax: 301-459-1569
Email: utah@efa.org
Services Provided:

Provides information, advocacy, support groups, transportation directions, local and national advocacy, Kids Crew, Camp Discovery, Art Program, and Walk to End Epilepsy. Free educational materials in English and Spanish.

COVID-19 UPDATE: Services provided via phone and virtual groups.

  • Disease/Disability Information
  • Voluntary Health Organizations
  • Internet Information Resources
  • Specialized Information and Referral
Source: United Way 2-1-1
Last Updated: 4/7/2022
250 East 200 South Suite 1425
Salt Lake City, UT 84111
Phone: 801-585-3090
Organization Name: University of Utah Health
(Show others in Organization)
Address:
250 East 200 South Suite 1425
Salt Lake City, UT 84111
Phone: 801-585-3090
Email: project.echo@hsc.utah.euu
Eligibility:

Providers and care professionals. No cost. Continuing Medical Education (CME) credits available.

Services Provided:

Telementoring, a guided practice model where the participating clinician retains responsibility for managing the patient. Training community providers through HIPPA-compliant, technology-enabled collaborative learning to address specialty care-level health concerns in the primary care setting. Multi-disciplinary specialist teams use videoconferencing technology to conduct weekly or bi-weekly sessions with community providers to discuss specialized health care topics. Community providers present patient cases to determine the best treatment options.
Topics include pediatrics, behavioral health, burn and soft tissue injury, GI and liver care, hepatitis C virus, pregnancy care.

Provider Profiles:

AKA TeleECHO

Source: Medical Home Portal
Last Updated: 6/10/2022
295 Chipeta Way 2S1010
Division of General Pediatrics, Department of Pediatrics
Salt Lake City, UT 84108
Address:
295 Chipeta Way 2S1010
Division of General Pediatrics, Department of Pediatrics
Salt Lake City, UT 84108
Email: info@medicalhomeportal.org
Eligibility:

Physicians and parents who care for children and youth with special health care needs.

Services Provided: A unique source of reliable information about children and youth with special health care needs (CYSHCN), offering a "one-stop shop" for their families, physicians and Medical Home teams, other professionals and caregivers. Services include disease/ disability information, internet information resources, and specialized information and referral.COVID-19 UPDATE: Everyone entering the physical location must wear a face mask including patients, visitors, staff, and students. Access to information on the website remains available 24/7.

  • Disease/Disability Information
  • Internet Information Resources
  • Specialized Information and Referral
Source: United Way 2-1-1
Last Updated: 3/30/2022
352 South Denver Street Ste 101
Salt Lake City, UT 84111
Phone: 801-364-0366
Address:
352 South Denver Street Ste 101
Salt Lake City, UT 84111
Phone: 801-364-0366
Toll Free Phone: 800-657-6398
Email: info@utahlupus.org
Eligibility:

No restrictions

Services Provided:

Improves the quality of life for all people affected by lupus through programs of research, education, support, and advocacy.

  • Disease/Disability Information
  • Prescription Expense Assistance
  • Health/Disability Related Support Groups
  • Voluntary Health Organizations
Source: Medical Home Portal
Last Updated: 3/1/2022
729 South Arapeen Drive
Salt Lake City, UT 84108
Phone: 801-585-2354
Address:
729 South Arapeen Drive
Salt Lake City, UT 84108
Phone: 801-585-2354
Email: rebecca.starks@hsc.utah.edu
Eligibility:

People with Parkinson's disease, family, and caregivers.

Services Provided:

Initiative by the University of Utah to help people impacted by Parkinson's disease through wellness, education, outreach, and community impact.

COVID-19 UPDATE: Following all CDC and state guidelines.

  • Disease/Disability Information
  • Health/Disability Related Support Groups
Source: United Way 2-1-1
Last Updated: 5/18/2021
6337 South Highland Drive Ste 336
Mountain America Credit Union Bldg
Holladay, UT 84121
Phone: 801-254-5524
Address:
6337 South Highland Drive Ste 336
Mountain America Credit Union Bldg
Holladay, UT 84121
Phone: 801-254-5524
Fax: 801-733-4857
Email: info@komenutah.org
Eligibility:

No restrictions, breast cancer

Services Provided: Saves lives by meeting the most critical needs of communities and investing in breakthrough research to prevent and cure breast cancer. The Helpline provides information about breast health, breast cancer, local and national resources and information about clinical trials. The Treatment Assistance Program is available to help eligible individuals undergoing breast cancer treatment at any stage or living with metastatic (Stage IV) breast cancer with related expenses.COVID-19 Update: following all CDC and state guidelines.

  • Medical Care Expense Assistance
  • Specialized Information and Referral
  • Disease/Disability Information
Source: United Way 2-1-1
Last Updated: 4/7/2022
PO Box 744
Farmington, NM 87499
Phone: 505-226-3073
Address:
PO Box 744
Farmington, NM 87499
Phone: 505-226-3073
Email: info@navajofamilies.org
Languages Spoken: English, Navajo
Eligibility:

Families of children and youth with special needs on the Navajo Nation

Services Provided:

Provides one-on-one help to families with children and youth with special health care needs and/or disabilities on the Navajo Nation. Builds partnerships among families, providers, schools, non-profits, and Diné extended families. ​​Provide direct services connecting families with resources and can help with legal information.

Provider Profiles:

Staffed by family and traditional mentors, a Diné wellness coordinator, and a legal practitioner.

Source: Medical Home Portal
Last Updated: 2/14/2022
PO Box 199
Lehi, UT 84043
Phone: 801-341-8024
Address:
PO Box 199
Lehi, UT 84043
Phone: 801-341-8024
Email: info@epilepsyut.org
Services Provided: Provides awareness, education, support groups, support services, volunteer opportunities and advocacy for and in behalf of all those dealing with the many challenges of epilepsy/seizure disorders.COVID-19 Update: following all CDC and state guidelines.

  • Health/Disability Related Support Groups
  • Non-Emergency Medical Transportation
  • Voluntary Health Organizations
  • Therapeutic Camps
  • Health Related Advocacy Groups
  • Prescription Drugs for Specific Health Conditions
  • Disease/Disability Information
  • Independent Living Skills Instruction
  • Health/Disabilities Related Volunteer Opportunities
Source: United Way 2-1-1
Last Updated: 4/22/2022
Nationwide Provider
141 Northwest Point Blvd
Elk Grove Village, IL 60007-1098
Phone: 847-434-4000
Nationwide Provider
Address:
141 Northwest Point Blvd
Elk Grove Village, IL 60007-1098
Phone: 847-434-4000
Fax: 847-434-8000
Services Provided: Professional association dedicated to the health, safety, and well-being of all infants, children, adolescents, and young adults.
Source: MHP-Nationwide
Last Updated: 1/10/2020
Nationwide Provider
31 Center Dr., MSC 2320
Bethesda, MD 20892
Phone: 800-241-1044
Nationwide Provider
Organization Name: National Institutes of Health
(Show others in Organization)
Address:
31 Center Dr., MSC 2320
Bethesda, MD 20892
Phone: 800-241-1044
TDD: 800-241-1055
Eligibility: communication disorders
Services Provided:

Information specialists provide callers with fact sheets, resources and referrals to other organizations and agencies. Topics include hearing, balance, smell and taste, voice, speech, and language disorders.

Source: MHP-Nationwide
Last Updated: 9/18/2020
Nationwide Provider
42-40 Bell Boulevard, Suite 205
Bayside, NY 11361-2820
Phone: 718-224-2999
Nationwide Provider
Address:
42-40 Bell Boulevard, Suite 205
Bayside, NY 11361-2820
Phone: 718-224-2999
Toll Free Phone: 888-486-8738
Fax: 718-279-9596
Email: support@tourette.org
Services Provided:

Serves children, individuals and families affected by Tourette Syndrome (TS) and other tic disorders. Provides comprehensive online information including six online CME/CNE programs, programs on Recognition, Diagnosis & Treatment, and training for Allied Professionals and Educators. The website also contains resources for patients and families.

Find a Provider: Directory of experts in Tourette Syndrome that can be filtered by age group, clinical expertise (specialty), and location.

Tourette Syndrome Centers of Excellence: List of Centers of Excellence in the care of Tourette Association, recognized by the Tourette Association of America as promoting the highest level of care, research, education & training, and advocacy & awareness for these conditions.

Source: MHP-Nationwide
Last Updated: 9/14/2022
Nationwide Provider
55 East Jackson Blvd., Suite 490
Chicago, IL 60604
Phone: 800-826-3632
Nationwide Provider
Address:
55 East Jackson Blvd., Suite 490
Chicago, IL 60604
Phone: 800-826-3632
Toll Free Phone: 800-826-3632
Fax: 312-642-7243
Eligibility: Contact for specific information.
Services Provided: Educates patients, professionals, and the public concerning the nature of depressive, bipolar disorder (also known as manic depression) or mood disorder. Maintains over 1000 support groups around the country.
Provider Profiles: National
Source: MHP-Nationwide
Last Updated: 1/17/2020
Nationwide Provider
555 E. Wells Street, Suite 1100
Milwaukee, WI 53202
Phone: 414-918-3014
Nationwide Provider
Address:
555 E. Wells Street, Suite 1100
Milwaukee, WI 53202
Phone: 414-918-3014
Fax: 414-276-2146
Email: info@aacpdm.org
Services Provided:

A multidisciplinary scientific society devoted to the study of cerebral palsy and other childhood onset disabilities, to promoting professional education for the treatment and management of these conditions, and to improving the quality of life for people with these disabilities.

AACPDM Medical Professional Directory offers patients and families the option to search for members by locations, specialty and/or patient type.

The website also offers continuing education for professionals and educational resources for individuals and families.

Source: MHP-Nationwide
Last Updated: 6/8/2020
Nationwide Provider
1963 McCraren Rd.
Highland Park, IL 60035
Nationwide Provider
Address:
1963 McCraren Rd.
Highland Park, IL 60035
Toll Free Phone: 877-720-2192
Email: paf@pafoundation.com
Services Provided:

Mission: Propionic Acidemia Foundation is dedicated to finding improved treatments and a cure for Propionic Acidemia by funding research and providing information and support to families and medical professionals.

Organization offers educational resources for families and patients, a patient registry, conferences and trainings, online support groups, and more.

Source: MHP-Nationwide
Last Updated: 6/8/2020
Nationwide Provider
4550 Montgomery Avenue, Suite 1100 N
Bethesda, MD 20814
Phone: 301-951-4422
Nationwide Provider
Address:
4550 Montgomery Avenue, Suite 1100 N
Bethesda, MD 20814
Phone: 301-951-4422
Toll Free Phone: 800-344-4823
Fax: 301-951-6378
Services Provided: The mission of the Cystic Fibrosis (CF) Foundation is to cure cystic fibrosis and provie all people with CF the opportunity to lead long, fulfilling lives.

The CF Foundation funds research and drug development and provides CF-related resources for families and medical providers.

[https://www.cff.org/Assistance-Services/About-Compass/What-Is-Compass/ Compass] is a personalized one-on-one service to help with the insurance, financial, legal, and other issues faced by people living with CF, their families, and their care teams.

The [https://www.cff.org/ccd/ CF Care Center] finder is a web-based location finder for cystic fibrosis accredited care centers nationwide. The Cystic Fibrosis Foundation provides funding for and accredits more than 110 cystic fibrosis care centers and 55 affiliate programs nationwide, including 96 programs for treating adults with CF.
Source: MHP-Nationwide
Last Updated: 2/7/2020
Nationwide Provider
5420 S. Quebec Street, Suite 135
Greenwood Village, CO 80111
Phone: 303-794-1182
Nationwide Provider
Address:
5420 S. Quebec Street, Suite 135
Greenwood Village, CO 80111
Phone: 303-794-1182
Fax: 303-322-5550
Services Provided:

The SPD Foundation offers online courses, resources, advocacy, and support groups for professionals, parents, and others interested in helping individuals with Sensory Processing Disorder.

Source: MHP-Nationwide
Last Updated: 6/8/2020
Nationwide Provider
Haworth Hall, Room 313
1200 Sunnyside Avenue
Lawrence, KS 66045-7534
Phone: 785-864-7600
Nationwide Provider
Organization Name: University of Kansas
(Show others in Organization)
Address:
Haworth Hall, Room 313
1200 Sunnyside Avenue
Lawrence, KS 66045-7534
Phone: 785-864-7600
Fax: 785-864-7605
Services Provided: The Beach Center on Disability is a multidisciplinary research and training center committed to making a significant and sustainable positive difference in the quality of life of individuals and families affected by disability and the professionals who support them. Internationally-recognized leaders in research on and interventions to promote the self-determination of children, youth, and adults with (and without) disabilities.
Provider Profiles: Based at the University of Kansas.
Source: MHP-Nationwide
Last Updated: 1/6/2020
Nationwide Provider
108 NE 2nd St
PO Box 510
Concordia, MO 64020
Phone: 660-463-1355
Nationwide Provider
Address:
108 NE 2nd St
PO Box 510
Concordia, MO 64020
Phone: 660-463-1355
Toll Free Phone: 866-303-2279
Email: info@fabry.org
Services Provided: Information about Fabry disease, support group, discussion page, information about research, links to resources, and more.
Source: MHP-Nationwide
Last Updated: 1/31/2020
Nationwide Provider
7240 Parkway Drive, Suite 180
Hanover, MD 21076
Phone: 410-528-1555
Nationwide Provider
Address:
7240 Parkway Drive, Suite 180
Hanover, MD 21076
Phone: 410-528-1555
Toll Free Phone: 800-421-8453
Fax: 410-528-1495
Email: admin@sicklecelldisease.org
Services Provided:

Supports research, public health education, professional health education, patient services, community services, and global organizations. National nonprofit with chapters in multiple states. 

Provider Profiles:

Advocates for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.

Source: MHP-Nationwide
Last Updated: 8/29/2022
Nationwide Provider
Campus Box 8180
Chapel Hill, NC 27599-8180
Phone: 919-966-2622
Nationwide Provider
Organization Name: University of North Carolina at Chapel Hill
(Show others in Organization)
Address:
Campus Box 8180
Chapel Hill, NC 27599-8180
Phone: 919-966-2622
Services Provided:

Offers support to children and families through interdisciplinary research, technical assistance, professional development, and implementation science. FPG is one of the nation's oldest and largest multidisciplinary centers devoted to the study of young children and their families.

Source: MHP-Nationwide
Last Updated: 9/1/2021
Nationwide Provider
6728 Old McClean Village Dr
Mclean, VA 22101
Phone: 703-718-6038
Nationwide Provider
Address:
6728 Old McClean Village Dr
Mclean, VA 22101
Phone: 703-718-6038
Email: info@pedsendo.org
Services Provided:

Online Resources Include:

  • A variety of clinical and patient resources
  • Educational events for clinicians
  • Find a Pediatric Endocrinologist: Search the Pediatric Endocrine Society membership list.
  • Upcoming Camps: Directory of specialty camps for kids, including Diabetes Camps, Turner Syndrome Camps, and Transgender Youth and Teen Camps. Not run or endorsed by the Pediatric Endocrine Society.
Source: MHP-Nationwide
Last Updated: 5/9/2022
Nationwide Provider
8301 Professional Place West, Ste 230
Hyattsville, MD 20785
Phone: 301-459-3700
Nationwide Provider
Address:
8301 Professional Place West, Ste 230
Hyattsville, MD 20785
Phone: 301-459-3700
Toll Free Phone: 800-332-1000
Email: ContactUs@efa.org
Wheelchair Access: Full Wheelchair Access
Eligibility:

Individuals with epilepsy, their families and friends.

Services Provided:

Provides information, advocacy, and assistance finding doctors, legal assistance, support groups and transportation reimbursement. Learn about epilepsy, types of seizures, triggers, diagnosis, treatment, etc. Offers a seizure diary app self-management tool.  Offers support groups for people with epilepsy.

Spanish-language line: 866-748-8008

Source: Nationwide Suggest Providers Queue
Last Updated: 6/17/2021
Nationwide Provider
PO Box 41514
Minneapolis, MN 55441
Phone: 800-328-8602
Nationwide Provider
Address:
PO Box 41514
Minneapolis, MN 55441
Phone: 800-328-8602
Toll Free Phone: 866-354-3254
Fax: 952-828-6900
Email: info@starkeyfoundation.org
Eligibility:

Based on income and assets

Services Provided:

Provides training and education on hearing, hearing loss, and hearing aids.

Source: Nationwide Suggest Providers Queue
Last Updated: 8/30/2022
Nationwide Provider
110 West Road Ste 300
Towson, MD 21204
Phone: 800-296-4433
Nationwide Provider
Address:
110 West Road Ste 300
Towson, MD 21204
Phone: 800-296-4433
Fax: 410-321-9165
Email: frontdesk@primaryimmune.org
Services Provided: A national patient organization dedicated to improving the diagnosis, treatment, and quality of life of persons with primary immunodeficiency diseases through advocacy, education, support groups, research, and information sharing.COVID-19 HOURS: Following all CDC and State guidelines.

  • Disease/Disability Information
  • Health/Disability Related Support Groups
Source: MHP-Nationwide
Last Updated: 4/7/2022
Nationwide Provider
24 South 1100 East, Suite 205
Salt Lake City, UT 84102
Phone: 801-359-7400
Nationwide Provider
Address:
24 South 1100 East, Suite 205
Salt Lake City, UT 84102
Phone: 801-359-7400
Fax: 801-359-7404
Email: support@batemanhornecenter.org
Wheelchair Access: Complete
Eligibility: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), Fibromyalgia (FM), and other related illnesses. Must have a primary care provider and complete an application.
Services Provided: Leading the way in the medical advancement and treatment of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and Fibromyalgia. Formerly the Fatigue Consultation Clinic (FCC) and the Organization for Fatigue & Fibromyalgia Education & Research (OFFER), BHC been committed to the education of medical providers for more than 25 years.

Engages in research and provides treatment. Educational Resources available for providers and patients.

Contact Information:
Clinic Phone: (801) 359-7400
Research Phone: (801) 532-8311
Research Fax: (801) 364-3528
Clinic Fax: (801) 359-7404
Source: Nationwide Suggest Providers Queue
Last Updated: 4/17/2020
Nationwide Provider
1600 Clifton Road
Atlanta, GA 30329-4027
Phone: 800-232-4636
Nationwide Provider
Address:
1600 Clifton Road
Atlanta, GA 30329-4027
Phone: 800-232-4636
TDD: 888-232-6348
Eligibility:

No restrictions

Services Provided: Protects America from health, safety, and security threats, both foreign and within the U.S. Conducts critical science and provides vital information that protects the nation against dangerous health threats, and responds to emergencies when they arise. Visit website for the most up to the minute information on COVID-19.COVID-19 UPDATE: The Vaccine Finder website is a free, online service where users can search for locations that offer vaccinations. The Website was developed by CDC and partners such as clinics, pharmacies, and health departments to provide accurate and up-to-date information about vaccination service. There is now a texting option and Hotline number in both English and Spanish for finding a vaccine. The Hotline number is in place to ensure that people who aren't online (as well as people who don't speak English or Spanish) have access to all the information they need.The CDC announced on August 3, 2021 a limited eviction moratorium, for renters living in communities experiencing substantial or high transmission of COVID-19, covering an estimated 80% of all US counties, and 90% of all renters through October 3, 2021.

  • Communicable Disease Control
  • Vaccine Information
Source: MHP-Nationwide
Last Updated: 4/7/2022
Nationwide Provider
9609 Medical Center Drive
Rockville, MD 20850
Phone: 800-422-6237
Nationwide Provider
Address:
9609 Medical Center Drive
Rockville, MD 20850
Phone: 800-422-6237
Email: nciinfo@nuh.gov
Wheelchair Access: Complete
Eligibility:

None

Services Provided: A free public service providing easy to understand, accurate, up-to-date, and reliable medical information services to answer cancer-related questions to patients, friends and family, healthcare providers, or researchers. Includes disease/disability information and answers clinical trial questions, internet information resources on how to find treatment, specialized information and referral, risk factors, symptoms, diagnostics, and treatments. Leads, conducts, and supports cancer research across the nation to help all people live longer, healthier lives.COVID-19 UPDATE: Following all CDC and State guidelines.

  • Internet Information Resources
  • Disease/Disability Information
  • Specialized Information and Referral
  • Medical Information Services
Source: Nationwide Suggest Providers Queue
Last Updated: 4/7/2022
Nationwide Provider
3104 E Boundary Ct
Midlothian, VA 23112
Phone: 800-366-7741
Nationwide Provider
Address:
3104 E Boundary Ct
Midlothian, VA 23112
Phone: 800-366-7741
Toll Free Phone: 800-366-7741
Fax: 804-744-9388
Email: psiops@uneedpsi.org
Eligibility:

Financial assistance for insured and uninsured patients with chronic illnesses.

Services Provided: Provides online disease and treatment information as well as financial assistance for patients with chronic illnesses who are struggling to keep up with expensive premiums and co-payments. Financial support and guidance available for qualified patients with specific, rare, chronic diseases.COVID-19 UPDATE: Following all CDC and State guidelines.

  • Specialized Information and Referral
  • Medical Care Expense Assistance
Source: MHP-Nationwide
Last Updated: 4/7/2022
Nationwide Provider
3 Information Way
Bethesda, MD 20892-3580
Phone: 800-860-8747
Nationwide Provider
Organization Name: National Institutes of Health
(Show others in Organization)
Address:
3 Information Way
Bethesda, MD 20892-3580
Phone: 800-860-8747
TDD: 866-569-1162
Email: healthinfo@niddk.nih.gov
Eligibility: Contact for specific information.
Services Provided:

NIDDK research creates knowledge about and treatments for diseases that are among the most chronic, costly, and consequential for patients, their families, and the Nation. Offers clinical trials, financial assistance for researchers, health information, and publications.

Source: Nationwide Suggest Providers Queue
Last Updated: 9/18/2020
Nationwide Provider
2121 K Street NW Ste 200
Washington, DC 20037
Phone: 202-349-1155
Nationwide Provider
Address:
2121 K Street NW Ste 200
Washington, DC 20037
Phone: 202-349-1155
Toll Free Phone: 800-657-6398
Fax: 202-349-1156
Email: info@lupus.org
Services Provided:

Improves the quality of life for all people affected by lupus through programs of research, education, support, and advocacy.

  • Health/Disability Related Support Groups
  • Disease/Disability Information
  • Voluntary Health Organizations

Chapter Finder: Find support and connection in your community.

Source: MHP-Nationwide
Last Updated: 4/22/2022
Nationwide Provider
7272 Greenville Avenue
Dallas, TX 75231
Phone: 214-373-6300
Nationwide Provider
Address:
7272 Greenville Avenue
Dallas, TX 75231
Phone: 214-373-6300
Toll Free Phone: 888-242-2453
Services Provided: Information for individuals, families, and professionals regarding heart-related concerns. Includes general health information, information regarding specific conditions, and information about CPR and First Aid training.

The [https://www.heart.org/en/ American Stroke Association] is a division of the American Heart Association focused on stroke prevention and treatment.
Source: Nationwide Suggest Providers Queue
Last Updated: 2/7/2020
Nationwide Provider
6520 North Andrews Avenue
Fort Lauderdale, FL 33309-2132
Nationwide Provider
Address:
6520 North Andrews Avenue
Fort Lauderdale, FL 33309-2132
Toll Free Phone: 800-225-6495
Wheelchair Access: Ramps
Services Provided:

Works to ensure the best quality of life for those coping with MS by providing comprehensive support and educational programs.

Disease/Disability Information
Information and Referral
Specialized Information and Referral

Source: Nationwide Suggest Providers Queue
Last Updated: 9/10/2022
Nationwide Provider
250 Williams Street NW
PO Box 22478 | Oklahoma City | OK 73123
Atlanta, GA 30303
Phone: 800-227-2345
Nationwide Provider
Address:
250 Williams Street NW
PO Box 22478 | Oklahoma City | OK 73123
Atlanta, GA 30303
Phone: 800-227-2345
Toll Free Phone: 800-227-2345
Services Provided:

Nationwide community-based voluntary organization dedicated to eliminating cancer as a major health risk through research, education, advocacy.

Source: Nationwide Suggest Providers Queue
Last Updated: 4/7/2022
Nationwide Provider
6110 Executive Boulevard, Suite 305
Rockville, MD 20852
Phone: 301-657-0881
Nationwide Provider
Address:
6110 Executive Boulevard, Suite 305
Rockville, MD 20852
Phone: 301-657-0881
Toll Free Phone: 800-328-8476
Email: info@autism-society.org
Services Provided:

Provides advocacy, education, information and referral, support for the Autism community at national, state and local levels through a nationwide network of Affiliates.

Source: Nationwide Suggest Providers Queue
Last Updated: 4/14/2022
Nationwide Provider
375 Kings Highway North
Cherry Hill, NJ 08034
Nationwide Provider
Address:
375 Kings Highway North
Cherry Hill, NJ 08034
Toll Free Phone: 800-532-7667
Fax: 856-661-9797
Email: msaa@mymsaa.org
Services Provided:

Provides ongoing support and direct services to individuals with multiple sclerosis.

Services Include:

  • Individual Advocacy
  • Information and Referral
  • Equipment Distribution Program by application
Source: Nationwide Suggest Providers Queue
Last Updated: 4/25/2022
Nationwide Provider
PO Box 659
Paoli, PA 19301
Phone: 888-999-9428
Nationwide Provider
Address:
PO Box 659
Paoli, PA 19301
Phone: 888-999-9428
Email: info@genetic.org
Services Provided: Information about chromosome variation for for parents and parents-to-be, individuals, and medical professionals.

Services include:
-Helpline: 888-999-9428 or helpline@genetic.org
-Support meetings, conferences, and webinars
-Information about chromosome variations
-[https://genetic.org/professional-directory-info/ Professional Directory]
-[https://genetic.org/im-adult-looking-answers/clinics/ AXYS Clinic and Research Consortium] clinic list
-[https://genetic.org/im-adult-looking-answers/support-groups/ Support Groups]
Source: Nationwide Suggest Providers Queue
Last Updated: 2/7/2020
Nationwide Provider
1805 Moriah Woods Blvd, Suite 3
Memphis, TN 38117
Phone: 901-761-0343
Nationwide Provider
Address:
1805 Moriah Woods Blvd, Suite 3
Memphis, TN 38117
Phone: 901-761-0343
Toll Free Phone: 800-992-9392
Fax: 901-761-0484
Email: jwarner@tn.stutteringhelp.org
Wheelchair Access: Not Applicable
Services Provided:

The Stuttering Foundation provides resources, services and support to those who stutter and their families as well as support for research into the causes of stuttering.

Free packets of informative brochures, referral lists for fluency specialists and a catalog of resources are available.

The Foundation publishes 30 books, 41 DVD videos and 26 brochures on stuttering. Over 800,000 publications are distributed each year to those who stutter, their families, speech language pathologists, pediatricians, family physicians, clinics, day care centers, libraries and others concerned with the problem of stuttering.

Source: Nationwide Suggest Providers Queue
Last Updated: 9/30/2020
JDRF View on Map
Nationwide Provider
200 Vesey Street, 28th Floor
New York, NY 10281
Nationwide Provider
Address:
200 Vesey Street, 28th Floor
New York, NY 10281
Toll Free Phone: 800-533-2873
Email: info@jdrf.org
Services Provided:

Provides support and funding for type 1 diabetes research. Local JDRF chapter serves as the hub of JDRF information and events.

Services Include:

  • Informational Guides
  • Virtual community
  • Local chapters
  • Fundraising and social events
Source: Nationwide Suggest Providers Queue
Last Updated: 6/30/2022
Nationwide Provider
31 Center Dr, MSC 2510
Bethesda, MD 20892-2510
Phone: 301-496-5248
Nationwide Provider
Organization Name: National Institutes of Health
(Show others in Organization)
Address:
31 Center Dr, MSC 2510
Bethesda, MD 20892-2510
Phone: 301-496-5248
Email: 2020@nei.nih.gov
Services Provided:

National Eye Institute is the principal agency for conducting and supporting vision research aimed at improving the prevention, diagnosis, treatment and rehabilitation of diseases that affect the eye and vision

Source: Nationwide Suggest Providers Queue
Last Updated: 9/18/2020
Nationwide Provider
Delaware, OH 43065
Phone: 740-972-5619
Nationwide Provider
Address:
Delaware, OH 43065
Phone: 740-972-5619
Eligibility:

Any persons with interest in MSUD

Services Provided:

The MSUD Family Support Group membership includes families and professionals worldwide.

Services Include:

  • Providing opportunities for support and personal contact for those with MSUD and their families.
  • Distributing information and raising public awareness of MS
  • Strengthening the liaison between families and professionals.
  • Encouraging newborn screening programs and research for MSUD.
Source: Nationwide Suggest Providers Queue
Last Updated: 9/1/2021
Nationwide Provider
PO Box 7762
Wilmington, DE 19803
Nationwide Provider
Address:
PO Box 7762
Wilmington, DE 19803
Services Provided:

The Childhood RND Educational Foundation is a 501(c)(3) non-profit organization dedicated to educating health professionals and families who deal with amplified musculoskeletal pain syndromes (AMPS) such as fibromyalgia, complex regional pain syndrome (CRPS), RSD, RND, neuropathic pain and myofascial pain. Services include:
-Educational materials about a variety of pain issues
-[https://stopchildhoodpain.org/faqs/what-hospitals-offer-this-treatment-program/ Directory of pediatric AMPS treatment programs.]

Source: MHP-Nationwide
Last Updated: 10/28/2020
Nationwide Provider
108 West 39th Street, Suite 805
New York, NY 10018
Phone: 212-417-9700
Nationwide Provider
Address:
108 West 39th Street, Suite 805
New York, NY 10018
Phone: 212-417-9700
Toll Free Phone: 888-762-8475
Email: customerservices@additudemag.com
Services Provided:

Provides online resources and information related to Attention Deficit Hyperactive Disorder (ADD and ADHD) for children, adults, parents, schools, and more.

Source: Nationwide Suggest Providers Queue
Last Updated: 5/9/2022
Nationwide Provider
Nationwide Provider
Address:
Services Provided:

Provides resources for individuals with thinking and learning differences, including ADHD, dyslexia, and dyscalculia. Information for parents, educators, and young adults. Also offers a workplace program for individuals in the workplace.

Offerings include articles and online resources, information about how to get assistance, and an online community.

Source: Nationwide Suggest Providers Queue
Last Updated: 5/9/2022
Nationwide Provider
39252 Winchester Road, #107-135
Murrieta, CA 92563
Phone: 918-490-3055
Nationwide Provider
Address:
39252 Winchester Road, #107-135
Murrieta, CA 92563
Phone: 918-490-3055
Services Provided:

Connecting Families UCD Foundation provides resources, information, and support groups for families and individuals with Urea cycle disorders (UCDs).

UCD Family Camps: Connecting Families UCD Foundation hosts annual camps for families affected by a Urea Cycle Disorder. UCD Family Camps are held in different locations across the US so that all families around the country may have an opportunity to attend. Camps are 100% free of charge to UCD families and siblings (any age). All costs of foods (low-pro), lodging, and shuttling to and from airport to camp site is provided as well.

Source: MHP-Nationwide
Last Updated: 8/19/2020
Nationwide Provider
PO Box 54
Okemos, MI 48805-0054
Phone: 517-381-1940
Nationwide Provider
Address:
PO Box 54
Okemos, MI 48805-0054
Phone: 517-381-1940
Fax: 866-290-5206
Services Provided:

Support group for Fatty Oxidation Disorders. Raises funds for Educational and Networking Services and Programs. Medical information, including information about newborn screening, and support resources.

Source: MHP-Nationwide
Last Updated: 8/19/2020
Nationwide Provider
15 South Mallory Avenue
Batavia, IL 60510
Phone: 630-360-2087
Nationwide Provider
Address:
15 South Mallory Avenue
Batavia, IL 60510
Phone: 630-360-2087
Email: info@hcunetworkamerica.org
Services Provided:

Resources, information, research information, and support for HCU.

Source: MHP-Nationwide
Last Updated: 8/19/2020
Nationwide Provider
Nationwide Provider
Address:
Services Provided:

Information about PKU, research, advocacy, and resources.

Find a Clinic by state, zip code, or map.

Source: MHP-Nationwide
Last Updated: 8/19/2020
Nationwide Provider
75 South Grand Avenue
Pasadena, CA 91105
Phone: 626-578-0833
Nationwide Provider
Address:
75 South Grand Avenue
Pasadena, CA 91105
Phone: 626-578-0833
Toll Free Phone: 800-386-8233
Fax: 626-578-0823
Email: info@nucdf.org
Services Provided:

The goals of the National Urea Cycle Disorders Foundation (NUCDF) are:

  • To provide guidance and information to families and others affected by urea cycle disorders.    
  • To create a caring community, networking families together for support.    
  • To educate healthcare professionals on the identification, diagnosis and treatment of UCD.      
  • To stimulate and support research which leads to improved quality of life for today and a CURE for tomorrow.    
  • To increase public awareness on the existence of UCDs so that no child or adult ever goes undiagnosed.    
  • To educate legislators on the needs of children, adults and families affected by these rare disorders.
Source: MHP-Nationwide
Last Updated: 8/19/2020
Nationwide Provider
P.O. Box 4780
Rockville, MD 20849-6303
Phone: 800-448-0440
Nationwide Provider
Organization Name: National Institutes of Health
(Show others in Organization)
Address:
P.O. Box 4780
Rockville, MD 20849-6303
Phone: 800-448-0440
TDD: 888-480-3739
Fax: 301-315-2818
Eligibility:

HIV/AIDS patients, their families and friends, health care providers and researchers.

Services Provided:

AIDS info is a U.S. Department of Health and Human Services (DHHS) project providing information on HIV/AIDS clinical trials and treatment. It is the result of merging two previous DHHS projects: The AIDS Clinical Trials Information Service (ACTIS) and the HIV/AIDS Treatment Information Service (ATIS).

AIDS info is a central resource for current information on federally and privately funded clinical trials for AIDS patients and others infected with HIV. AIDS clinical trials evaluate experimental drugs and other therapies for adults and children at all stages of HIV infection -- from patients who are HIV positive with no symptoms to those with various symptoms of AIDS.

Source: Nationwide Suggest Providers Queue
Last Updated: 11/4/2021
Nationwide Provider
P.O. Box 424049
Washington, DC 20042-4049
Phone: 800-634-8978
Nationwide Provider
Address:
P.O. Box 424049
Washington, DC 20042-4049
Phone: 800-634-8978
Toll Free Phone: 800-634-8978
Eligibility:

People with tinnitus, their families and health care professionals, and the public.

Services Provided:

Provides awareness, prevention, and treatment. Under its guiding principles - Education, Advocacy, Research, and Support - the ATA offers prevention programs in schools, urges governmental and private organizations to support hearing conservation, funds the nations brightest researchers, and facilitates self-help groups around the country.

Source: Nationwide Suggest Providers Queue
Last Updated: 8/30/2022
Nationwide Provider
P.O. Box 961029
Boston, MA 02196
Phone: 617-973-5801
Nationwide Provider
Address:
P.O. Box 961029
Boston, MA 02196
Phone: 617-973-5801
Services Provided:

The Foundation aims to improve outcomes for individuals with OCD and related disorders by:

  • Providing resources and support for those affected by OCD, including individuals with OCD and related disorders, their family members, friends, and loved ones.
  • Promoting awareness about OCD and related disorders to the OCD community and the general public.
  • Increasing access to effective treatment through:
    • Educating mental health professionals about evidence-based treatments.
    • Providing a forum for professional collaboration and networking.
    • Supporting research into the causes of and treatments for OCD and related disorders.

Visit https://iocdf.org/find-help/ for help finding providers for patients with OCD,

Source: MHP-Nationwide
Last Updated: 4/22/2022
Nationwide Provider
Organization Name: Center for Disease Control and Prevention
(Show others in Organization)
Address:
1600 Clifton Road
Atlanta, GA 30329
Toll Free Phone: 800-232-4636
Services Provided:

Provides education for families in identifying development milestones in children from birth to 5 years old. Provides resources and supports (WIC, Early Childhood Intervention, Home-visiting, and Education Materials) for families who may have concerns and how to reach out to a local healthcare provider.

Source: Nationwide Suggest Providers Queue
Last Updated: 9/8/2022
Nationwide Provider
Nationwide Provider
Address:
Email: info@rubinetwork.org
Services Provided:

Involved in the research and development of evidence-based behavioral interventions and measurement tools designed to improve care for families and children with autism spectrum disorder (ASD). Also provides the RUBI Autism Network Parent Training program.

Source: MHP-Nationwide
Last Updated: 12/15/2021
Nationwide Provider
408 W Sussex Avenue
Missoula, MT 59801
Phone: 406-546-7380
Nationwide Provider
Address:
408 W Sussex Avenue
Missoula, MT 59801
Phone: 406-546-7380
Email: info@posture24-7.org
Services Provided:

Raises awareness of 24 hour posture care management, as a non-invasive, caregiver and family empowering approach improving the quality of life for persons with neuromuscular impairments affecting their motor control and posture. 

Provider Profiles:

Tamara Kittelson, MS, OTR/L, ATP/SMS
Executive and Project Director

Source: Nationwide Suggest Providers Queue
Last Updated: 9/25/2022