Education About Disabilities/Diagnoses

Description: Programs that offer workshops, discussion groups, activities and other types of training that sensitize participants to people with disabilities, visible differences, and mental health and mental illness. Includes information for individuals and families with these conditions, as well as information to help others experience what it is like to have a disability, and share techniques for positive communication and interaction with people who have disabilities. (Adapted from AIRS PH-6200.1850 Disability Awareness Programs )

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Disclaimer...
Note: Service listings do not represent a recommendation or endorsement by the Medical Home Portal staff or its sponsoring organizations; nor do they reflect any assessment of the quality or value of a listed Service.

UT

Statewide

Address: 465 South 400 East Ste 110
Salt Lake City, UT 84111
Phone: 801-702-4420
Toll Free Phone: 800-242-8721
Fax: 801-532-2101
Eligibility: Open to everyone.
Wheelchair Accessible: Complete
Services Provided: Advances groundbreaking medical research, spreads lifesaving knowledge, and reaches out to people of all ages about cardiovascular disease and stroke.
Original Source: United Way 2-1-1
Last Updated: 7/9/2019
Address: 5280 South Commerce Drive Ste E-190
Murray, UT 84107
Phone: 801-716-4993
Toll Free Phone: 800-281-8442
Fax: 801-716-4995
Eligibility: Open to those who have had a brain injury. Bring a yoga mat.
Wheelchair Accessible: Complete
Services Provided: Provides education and support through facilitation of resources for the issues of prevention and recovery of brain injury (TBI) in the state of Utah. Annual Family & Professionals Conference. Teen/young adult Post Concussion Syndrome (PCS) Support Group, webinars for people with traumatic brain injury, family caregivers and professionals in the field.
Original Source: United Way 2-1-1
Last Updated: 7/9/2019
Organization Name: Utah Department of Health
Address: UT
Services Provided: Health education programs, self-management workshops in the areas of asthma, alzheimer's and dementia, diabetes, fall prevention, arthritis and exercise, pain management, prediabetes, health screenings, and way to quit (tobacco).
Original Source: MedHome Portal
Last Updated: 10/23/2018
Organization Name: Utah Department of Health
Address: 288 North 1460 West
UT 84114
Phone: 801-538-6096
Fax: 801-538-9913
Eligibility: Individuals living with HIV disease and family members who have no insurance, are underinsured or are not eligible for a State program, assets not over $10,000 (does not include a home or one car), low income.
Services Provided: 1. Supportive Services Program - ambulatory care, dental care, transportation services, case management, mental health services, substance abuse services, outreach services, and home health care.
2. ADAP (AIDS Drug Assistance Program) - helps eligible individuals pay for all or part of their HIV medications.
3. Health Insurance Continuation Program (COBRA) - can pay for COBRA payments for eligible individuals.
Original Source: MedHome Portal
Last Updated: 2/14/2018
Address: 1408 South 1100 East
Salt Lake City, UT 84105
Phone: 801-487-2323
Toll Free Phone: 800-FON-AIDS
Fax: 801-486-3978
Email: stan.penfold@utahaids.org
Eligibility: Case managers will refer clients to statewide locations of HIV testing, resource referrals to physicians, attorneys, dentists, mental health professionals, and medical services; limited crisis intervention; mailings of AIDS-related materials.
Wheelchair Accessible: Entry and Bathroom(s)
Services Provided: Offers assistance and expertise to anyone struggling with the complex issues that surround HIV. Works with community members to form partnerships that mend health, promote compassion, and extend companionship to everyone who has been affected by HIV. Also aims to reduce new occurrences of HIV and Sexually Transmitted Infections in the community through prevention, education, and outreach services.
Original Source: United Way 2-1-1
Last Updated: 7/9/2019
Organization Name: Utah Department of Health, Bureau of Health Promotion
Address: 288 North 1460 West
PO Box 142107
UT 84114-2107
Phone: 801-538-6894
Fax: 801-538-9495
Languages Spoken: Spanish
Eligibility: No charge, no health insurance required
Wheelchair Accessible: Complete
Services Provided: Provides comprehensive asthma care by ensuring availability of and access to guidelines-based medical management and pharmacotherapy for all Utahns with asthma, and to link those with poorly controlled asthma to individualized services.
Utah Asthma Home Visiting Program for individuals with asthma living in Salt Lake and Utah Counties.
Prescription Assistance Program for Patients with Asthma http://health.utah.gov/asthma/basics/rxassist.html
Provider Profiles: Brittany Guerra, MPH, Health Program Specialist III
Kellie Baxter, Health Program Specialist
Original Source: MedHome Portal
Last Updated: 8/16/2018
PO Box 142107
Salt Lake City, UT 84114-2107
Phone: 888-222-2542
Organization Name: Utah Department of Health
Address: PO Box 142107
Salt Lake City, UT 84114-2107
Phone: 888-222-2542
Eligibility: For the NDPP, individuals must be 18 years or older and have a BMI equal or greater than 24.
Services Provided: Ensure that people with or at high risk of diabetes have access to community resources and support to prevent, delay or manage chronic conditions once they occur. Classes include Living Well with Diabetes and National Diabetes Prevention Program (NDPP).
Provider Profiles: Register on website.
Original Source: United Way 2-1-1
Last Updated: 9/4/2018
Address: UT
Eligibility: Graduate level training, five states include Utah, Idaho, Montana, Wyoming and North Dakota.
Services Provided: URLEND is part of a Maternal Child Health Bureau Grant, one of 43 unique LEND programs in 37 states. Utah Regional LEND is a long-term graduate training program covering five states: Utah, Idaho, Montana, Wyoming and North Dakota. This program uses state-of-the-art technology to connect groups of trainees. As future leaders, URLEND participants are trained to move beyond discipline boundaries to provide optimal treatment to children and adolescents with special health care needs. Because families are essential to wellbeing, this program emphasizes the role of family-centered care.
Provider Profiles: Five states include Utah, Idaho, Montana, Wyoming and North Dakota.
Original Source: MedHome Portal
Last Updated: 6/14/2018

American Fork, UT

Address: 895 North 900 East
American Fork, UT 84003
Phone: 801-763-4008
Fax: 801-763-4214
Eligibility: Anyone interested in the welfare of individuals and families of all ages who deal with mental disabilities and/or developmental disabilities
Services Provided: 1. Establish and coordinate volunteer activities
2. Furnish information, referral, education, newsletters, conferences
3. Promote people-first concepts
4. Help families with guardianship information forms
Original Source: MedHome Portal
Last Updated: 3/17/2015

Clearfield, UT

161 Center Street
Clearfield, UT 84015
Phone: 801-773-6781
Address: 161 Center Street
Clearfield, UT 84015
Phone: 801-773-6781
Services Provided: Provides support, training, counseling and education for parents, families, and the community involved with persons who have Down syndrome
Original Source: MedHome Portal
Last Updated: 4/23/2019

Logan, UT

Organization Name: NAMI Utah
Address: 90 East 200 North
Logan, UT 84321
Phone: 435-787-4165
Eligibility: No cost. Individuals living with mental illness and their families.
Services Provided: Serves as Utah's voice on mental illness by ensuring the dignity and improving the lives of those who live with mental illness and their families through support, education, and advocacy. Credentialed Family Resource Facilitators provide assistance to families and youth in accessing appropriate mental health services within their communities.
Original Source: United Way 2-1-1
Last Updated: 7/8/2019

Midvale, UT

8449 South 150 West
Jordan Family Education Center
Midvale, UT 84047
Phone: 801-565-7442
Address: 8449 South 150 West
Jordan Family Education Center
Midvale, UT 84047
Phone: 801-565-7442
Wheelchair Accessible: Entry and Bathroom(s)
Services Provided: A class on causes and treatment of ADHD in children, offered quarterly (September, January, April). Class is not offered every quarter.
Call for schedule or for similar class.
Original Source: MedHome Portal
Last Updated: 10/5/2015

Mt. Pleasant, UT

Organization Name: NAMI Utah
Address: 125 S State Street, Rm 2
Mt. Pleasant, UT
Phone: 435-851-0220
Email: vsanderson@gmail.com
Eligibility: Varies by program. Programs are available for families with children 0-18 years of age with a mental illness, families with adults with a mental illness, and individuals with mental illness. Most services are free.
Services Provided: The National Alliance on Mental Illness (NAMI) Utah’s mission is to improve the lives of those who live with mental illness and their families through support, education and advocacy. Provides free educational classes and support groups for individuals with mental illness and their family members.
Provider Profiles: Registration for Peer to Peer class: (435) 660-6055 NAMI asks that individuals who sign up for classes be committed to attending for the duration of the class.
Original Source: MedHome Portal
Last Updated: 4/4/2019

Ogden, UT

Organization Name: Midtown Community Health Centers
Address: 2240 Adams Avenue
Ogden, UT 84403
Phone: 801-393-5355
Fax: 801-394-4609
Eligibility: Open to all
Wheelchair Accessible: Complete
Services Provided: Health care coordination, case management, and prescription assistance for uninsured children, families, and adults including health education and specialty care coordination available at every Midtown Community Health Clinic location from Salt Lake City to Logan. Enrollment Specialist also available by appointment to help with navigation of Medicaid, CHIP, PCN, UPP, and Marketplace plans (ObamaCare).
Original Source: MedHome Portal
Last Updated: 11/8/2017
237 26th Street
Ogden, UT 84401
Phone: 801-625-3714
Organization Name: NAMI Utah
Address: 237 26th Street
Ogden, UT 84401
Phone: 801-625-3714
Toll Free Phone: 877-230-6264
Eligibility: Those with mental illness or brain disorders and their family members. Groups offered in Weber and Davis Counties.
Services Provided: NAMI Weber Affiliate offers free education programs and support groups for people with mental illness or brain disorders and support groups and classes for their family members. Suicide prevention trainings and information also provided.
Original Source: United Way 2-1-1
Last Updated: 9/11/2018
727 24th Street Ste 2A
Ogden, UT 84401
Phone: 801-393-4153
Address: 727 24th Street Ste 2A
Ogden, UT 84401
Phone: 801-393-4153
Fax: 801-393-5004
Eligibility: Seniors and disabled individuals in Davis and Weber who are underserved, vulnerable, isolated, and/or non-English speaking; Medicare and Medicaid beneficiaries and caregivers.
Services Provided: Works to enhance awareness of healthy lifestyles, provide resources, and support individuals in protecting themselves from communicable diseases. Offers sexually transmitted infections educational presentations, youth workshops (prevention, self-respect & self-worth, public speaking, etc) classes (relationships, condom negotiation skills, responsibility to communicate, etc.), distributes educational materials, youth tobacco workshops, and senior medicare fraud and identity fraud presentations, and maintains over 20 condom drop-sites.
Provider Profiles: Presentation is available to any facility or organization wishing to learn more about Medicare.
Original Source: United Way 2-1-1
Last Updated: 7/9/2019

Provo, UT

Address: 1124 West 500 North
Provo, UT 84603
Phone: 801-377-4629
Eligibility: Unrestricted
Services Provided: 1. Presentations about HIV/AIDS.
2. Assistance with meals to persons with HIV/AIDS.
3. Advocacy on behalf of persons with HIV/AIDS.
4. Referral to support groups.
Original Source: MedHome Portal
Last Updated: 12/15/2014
Organization Name: NAMI Utah
Address: 750 Freedom Boulevard Suite L
Provo, UT 84604
Phone: 385-208-1796
Toll Free Phone: 800-950-6264
Fax: 801-373-0639
Eligibility: families with children 0-18 years of age with a mental illness, families with adults with a mental illness, and individuals with mental illness, no cost
Services Provided: The National Alliance on Mental Illness (NAMI) serves as Utah's voice on mental illness by ensuring the dignity and improving the lives of those who live with mental illness and their families through support, education, and advocacy. Provides free educational classes and support groups for individuals with mental illness and their family members. Credentialed Family Resource Facilitators provide assistance to families and youth in accessing appropriate mental health services within their communities.
Provider Profiles: NAMI asks that individuals who sign up for classes be committed to attending for the duration of the classes.
Original Source: MedHome Portal
Last Updated: 7/11/2019

Salt Lake City, UT

729 Arapeen Drive, U of U Imaging and Neurosciences Ctr
Salt Lake City, UT 84108
Phone: 877-740-4372
Address: 729 Arapeen Drive, U of U Imaging and Neurosciences Ctr
Salt Lake City, UT 84108
Phone: 877-740-4372
Eligibility: People who suffer Huntington’s Disease or a relative
Services Provided: Disseminate information about Huntington's Disease to patients, caregivers, physicians, nursing homes etc, to provide support to people concerned with Huntington's Disease.
Original Source: United Way 2-1-1
Last Updated: 6/11/2019
Organization Name: NAMI Utah
Address: 3471 South West Temple
Salt Lake City, UT 84115
Phone: 801-935-4447
Eligibility: Minimum age 16. No violent offenders.
Services Provided: Latino Behavioral Health Services is a peer, community based nonprofit that provides support and educational programs at no cost. Enhances the awareness and well-being of people with mental illness, their caregivers and loved ones through support, education, empowerment, facilitation of resources and services with responsiveness to cultural, socioeconomic and linguistics characteristics.
Original Source: United Way 2-1-1
Last Updated: 9/11/2018
Organization Name: NAMI Utah
Address: Salt Lake City, UT
Phone: 801-201-4532
Languages Spoken: Spanish services available
Services Provided: Classes and support for individuals living with mental illness and their families, some in Spanish. Volunteer-led, peer-to-peer mentoring, for adolescent and for suicide survivors. Family Resource Facilitators provide support as well.
Spanish speaking support groups.
Provider Profiles: Gayle Hollingsworth 801 631-5003
Original Source: MedHome Portal
Last Updated: 10/25/2018
288 North 1460 West
PO Box 142107
Salt Lake City, UT 84114-2107
Phone: 385-468-5250
Organization Name: Utah Department of Health
Address: 288 North 1460 West
PO Box 142107
Salt Lake City, UT 84114-2107
Phone: 385-468-5250
Email: kabaxter@utah.gov
Languages Spoken: Spanish
Eligibility: For individuals with uncontrolled asthma living in Salt Lake and Utah Counties. No cost, no health insurance required.
Services Provided: The Utah Asthma Home Visiting Program will help families of children who have uncontrolled asthma. The program includes three visits and two phone calls and provides asthma self-management education, home trigger education and assessment, and trigger remediation referral. Providers can provide qualifying patients to the service, and patients desiring additional resources can self-refer as well.

In Salt Lake County, call: 385-468-4085
In Utah County, call: 801-851-7509
Provider Profiles: Rebecca Ludlam, Utah County Health Dept 801 851-7509
Salt Lake County Health Dept 385 468-4085
Kellie Baxter, Program Officer
Original Source: MedHome Portal
Last Updated: 10/18/2018
Address: 772 East 3300 South Ste 210
Salt Lake City, UT 84106
Phone: 877-463-6893
Fax: 801-746-2488
Services Provided: Provides education, advocacy, outreach, and networking for people with bleeding disorders. These services empower individuals with bleeding disorders and their families to lead healthier and more self-sufficient lives.
Original Source: MedHome Portal
Last Updated: 2/9/2016

St. George, UT

Dixie Reional Medical Center
St. George, UT 84770
Phone: 435-688-5085
Address: Dixie Reional Medical Center
St. George, UT 84770
Phone: 435-688-5085
Original Source: MedHome Portal
Last Updated: 2/3/2014
Call for information
St. George, UT 84770
Phone: 435-674-3533
Address: Call for information
St. George, UT 84770
Phone: 435-674-3533
Services Provided:
Original Source: MedHome Portal
Last Updated: 10/25/2013
88 West 100 South
Southwest Behavioral Health Center
St. George, UT 84770
Phone: 801-369-9119
Organization Name: NAMI Utah
Address: 88 West 100 South
Southwest Behavioral Health Center
St. George, UT 84770
Phone: 801-369-9119
Eligibility: People with mental illnesses as well as family members, no cost
Services Provided: Serves as Utah's voice on mental illness by ensuring the dignity and improving the lives of those who live with mental illness and their families through support, education, and advocacy. Trained Family Resource Facilitators provide assistance to families and youth in accessing appropriate mental health services within their communities.
Original Source: United Way 2-1-1
Last Updated: 7/8/2019

West Valley City, UT

Organization Name: NAMI Utah
Address: 1600 West 2200 South Suite 202
West Valley City, UT 84119
Phone: 801-869-2874
Languages Spoken: Spanish
Eligibility: Gratuitos
Services Provided: Lo que encontraras en NAMI:
• Amistades que se preocupan y que entiendan acerca de la depresión, ansiedad y más.
• Educación gratuita, apoyo, y guía
• Ideas que te ayudaran a cuidar de ti mismo y a tu familia
• La oportunidad de compartir tus experiencias y aprender de los demás
• Información sobre trastornos emocionales, tratamiento y servicios
NAMI affiliate
Original Source: MedHome Portal
Last Updated: 5/10/2016

Nationwide

555 E. Wells Street, Ste 1100
Milwaukee, WI 53202
Phone: 414-918-3014
Address: 555 E. Wells Street, Ste 1100
Milwaukee, WI 53202
Phone: 414-918-3014
Fax: 414-276-2146
Services Provided: A multidisciplinary scientific society devoted to the study of cerebral palsy and other childhood onset disabilities, to promoting professional education for the treatment and management of these conditions, and to improving the quality of life for people with these disabilities.
Original Source: MedHome Portal
Last Updated: 3/22/2018
4340 East-West Highway Suite 350
Bethesda, MD 20814
Phone: 301-657-0881
Address: 4340 East-West Highway Suite 350
Bethesda, MD 20814
Phone: 301-657-0881
Toll Free Phone: 800-328-8476
Email: info@autism-society.org
Services Provided: We provide advocacy, education, information and referral, support, and community at national, state and local levels through our strong nationwide network of Affiliates.

Disability Awareness Programs
Specialized Information and Referral
Original Source: Nationwide Suggest Providers Queue
Last Updated: 8/7/2019
Haworth Hall, Room 313
1200 Sunnyside Avenue
Lawrence, KS 66045-7534
Phone: 785-864-7600
Organization Name: University of Kansas
Address: Haworth Hall, Room 313
1200 Sunnyside Avenue
Lawrence, KS 66045-7534
Phone: 785-864-7600
Fax: 785-864-7605
Services Provided: The Beach Center on Disability is a multidisciplinary research and training center committed to making a significant and sustainable positive difference in the quality of life of individuals and families affected by disability and the professionals who support them. Internationally-recognized leaders in research on and interventions to promote the self-determination of children, youth, and adults with (and without) disabilities.
Provider Profiles: Based at the University of Kansas.
Original Source: MedHome Portal
Last Updated: 1/10/2019
730 N Franklin St, Suite 501
Chicago, IL 60654-7225
Phone: 800-826-3632
Address: 730 N Franklin St, Suite 501
Chicago, IL 60654-7225
Phone: 800-826-3632
Eligibility: Contact for specific information.
Services Provided: Educates patients, professionals, and the public concerning the nature of depressive, bipolar disorder (also known as manic depression) or mood disorder. Maintains over 1000 support groups around the country.
Provider Profiles: National
Original Source: MedHome Portal
Last Updated: 12/18/2017
8301 Professional Place East Ste 230
Landover, MD 20785-2356
Phone: 301-459-3700
Address: 8301 Professional Place East Ste 230
Landover, MD 20785-2356
Phone: 301-459-3700
Toll Free Phone: 800-332-1000
Fax: 301-577-2684
Email: ContactUs@efa.org
Eligibility: Individuals with epilepsy, their families and friends.
Services Provided: Provides information, advocacy, and assistance finding doctors, legal assistance, support groups and transportation reimbursement. Learn about epilepsy, types of seizures, triggers, diagnosis, treatment, etc. Offers a seizure diary app self-management tool.
Provider Profiles: Spanish Speakers Phone number: 866-748-8008
Original Source: Nationwide Suggest Providers Queue
Last Updated: 8/6/2019
CB 8180
Chapel Hill, NC 27599-8180
Phone: 919-966-2622
Organization Name: University of North Carolina at Chapel Hill
Address: CB 8180
Chapel Hill, NC 27599-8180
Phone: 919-966-2622
Services Provided: Enhances the lives of children and families through interdisciplinary research, technical assistance, professional development, and implementation science. FPG is one of the nation's oldest and largest multidisciplinary centers devoted to the study of young children and their families. About 275 researchers, implementation and technical assistance specialists, staff, and students work on more than 75 projects related to developmental disabilities; early care and education; physical and social health; professional development, technical assistance, and implementation science; public policy and evaluation; and racial, ethnic, linguistic, cultural, and socioeconomic diversity.
Original Source: MedHome Portal
Last Updated: 1/10/2019
Address: 110 West Road Ste 300
Towson, MD 21204
Phone: 800-296-4433
Fax: 410-321-9165
Email: frontdesk@primaryimmune.org
Eligibility: Individuals with primary immunodeficiency diseases and their families
Services Provided: A national patient organization dedicated to improving the diagnosis, treatment, and quality of life of persons with primary immunodeficiency diseases through advocacy, education, and research. Learn about primary immunodeficiencies, it's diagnosis, treatment; and living with PI, at different ages, getting support, finding a physician, insurance, school, etc.

IDF Physician Finder to locate a physician by location, last name, specialty and more.
Original Source: MHP-Nationwide
Last Updated: 7/11/2019
806 West Adams Boulevard
Los Angeles, CA 90007
Phone: 213-748-5481
Address: 806 West Adams Boulevard
Los Angeles, CA 90007
Phone: 213-748-5481
Fax: 213-749-1651
Eligibility: Infants and preschool children with hearing loss.
Services Provided: A leading diagnostic and education center for young children with hearing loss. It provides free, parent-centered services. The Clinic offers worldwide family services, local family services, professional education, preschool, and hearing testing. The Clinic has over 60 years of expertise in the spoken language option, called "oralism," serving 25,000 families each year.

Hearing Screening
Parent Support Groups
Preschools
Online courses
Original Source: Nationwide Suggest Providers Queue
Last Updated: 8/7/2019
Address: 2121 K Street NW, Suite 200
Washington, DC 20037
Phone: 202-349-1155
Toll Free Phone: 800-558-0121
Fax: 202-349-1156
Email: info@lupus.org
Services Provided: Provides education and support services to people affected by lupus. We collaborate with experts to provide clear, easy-to-use information, programs and resources to help you navigate every step of your journey with lupus. An online community, an expert series, a resource database, a nurse and certified health educator call line.
Original Source: MHP-Nationwide
Last Updated: 8/6/2019
24 South 1100 East, Suite 205
Salt Lake City, UT 84102
Phone: 801-328-8080
Organization Name: Bateman Horne Center of Excellance
Address: 24 South 1100 East, Suite 205
Salt Lake City, UT 84102
Phone: 801-328-8080
Fax: 1-866-555-1122
Email: support@batemanhornecenter.org
Eligibility: None
Wheelchair Accessible: Complete
Services Provided: Leading the way in the medical advancement and treatment of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and Fibromyalgia. Formerly the Fatigue Consultation Clinic (FCC) and the Organization for Fatigue & Fibromyalgia Education & Research (OFFER), BHC been committed to the education of medical providers for more than 25 years.
Provider Profiles: Lucinda Bateman M.D.
Original Source: Nationwide Suggest Providers Queue
Last Updated: 3/21/2019
Address: 375 Kings Highway North
Cherry Hill, NJ 08034
Toll Free Phone: 800-532-7667
Fax: 856-661-9797
Email: MSquestions@mymsaa.org
Eligibility: Individuals with MS
Services Provided: Ongoing support and direct services.

Individual Advocacy
Information and Referral
Equipment Distribution Program by application
Original Source: Nationwide Suggest Providers Queue
Last Updated: 8/8/2019
6520 North Andrews Avenue
Fort Lauderdale, FL 33309-2132
Address: 6520 North Andrews Avenue
Fort Lauderdale, FL 33309-2132
Toll Free Phone: 800-225-6495
Wheelchair Accessible: Ramps
Services Provided: Nonprofit organization, our primary mission is to ensure the best quality of life for those coping with MS by providing comprehensive support and educational programs.

Disease/Disability Information
Information Lines
Information and Referral
Medical Information Lines
Specialized Information and Referral
Original Source: Nationwide Suggest Providers Queue
Last Updated: 8/7/2019
9609 Medical Center Drive
Bethesda, MD 20892-9760
Phone: 800-422-6237
Address: 9609 Medical Center Drive
Bethesda, MD 20892-9760
Phone: 800-422-6237
Fax: (719) 776-3132
Email: cancergovstaff@mail.nih.gov
Eligibility: None
Wheelchair Accessible: Complete
Services Provided: A free public service of the National Cancer Institute providing the latest most accurate cancer information for patients, their families, the general public, and health professionals in a personalized confidential manner.
Original Source: Nationwide Suggest Providers Queue
Last Updated: 7/2/2019
Address: 3 Information Way
Bethesda, MD 20892-3580
Phone: 800-860-8747
TDD: 866-569-1162
Email: healthinfo@niddk.nih.gov
Eligibility: Contact for specific information.
Services Provided: NIDDK research creates knowledge about and treatments for diseases that are among the most chronic, costly, and consequential for patients, their families, and the Nation. Offers clinical trials, financial assistance for researchers, health information, and publications.
Original Source: Nationwide Suggest Providers Queue
Last Updated: 7/30/2019
Address: 31 Center Dr., MSC 2320
Bethesda, MD 20892
Phone: 800-241-1044
TDD: 800-241-1055
Eligibility: communication disorders
Services Provided: Information specialists provide callers with fact sheets, resources and referrals to other organizations and agencies. Topics include hearing, balance, smell and taste, voice, speech, and language disorders.
Original Source: MedHome Portal
Last Updated: 7/23/2019
Address: 55 Kenosia Avenue
PO Box 1968
Danbury, CT 06810
Phone: 203-744-0100
Toll Free Phone: 800-634-7207
Fax: 203-263-9938
Eligibility: Persons with a rare disease.
Services Provided: NORD is a unique federation of voluntary health organizations dedicated to helping people with rare "orphan" diseases and assisting the organizations that serve them. NORD is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service. Co-pay Assistance Program.
Patient Assistance Program, RareCare: helps patients obtain life-saving or life-sustaining medication they could not otherwise afford. These programs provide medication, financial assistance with insurance premiums and co-pays, diagnostic testing assistance, and travel assistance for clinical trials or consultation with disease specialists.
Original Source: MedHome Portal
Last Updated: 8/6/2019
401 Hackensack Avenue, 9th Floor
Hackensack, NJ 07601
Phone: 201-250-8440
Address: 401 Hackensack Avenue, 9th Floor
Hackensack, NJ 07601
Phone: 201-250-8440
Toll Free Phone: 800-714-5437
Fax: 201-250-8435
Email: info@parentprojectmd.org
Services Provided: Information about Duchenne Muscular Dystrophy for families, including responding to a new diagnosis, finding care, and genetic testing. PPMD’s Decode Duchenne genetic testing program provides free genetic testing and counseling to people in the Duchenne or Becker muscular dystrophy community who otherwise could not afford genetic testing.

Runs Certified Duchenne Care Center Program, which supports standardized comprehensive care for people with Duchenne. Also promotes research and organizes advocacy initiatives.
Original Source: MHP-Nationwide
Last Updated: 5/9/2019
Address: PO Box 5930
Midlothian, VA 23112
Phone: 800-366-7741
Toll Free Phone: 800-366-7741
Fax: 804-744-9388
Email: psiops@uneedpsi.org
Eligibility: Financial assistance for insured and uninsured patients with chronic illnesses. Assistance is focused on a limited number of around 20 diseases, and the list always changes.
Services Provided: Provides online disease and treatment information as well as limited financial assistance for patients with chronic illnesses who are struggling to keep up with expensive premiums and copayments. Available programs and specific illnesses are regularly updated. Financial assistance includes: subsidizing the cost of health insurance premiums; providing pharmacy and treatment copayment assistance; assisting with Medicare Part D co-insurance; providing travel assistance for transportation reimbursement.
Provider Profiles: Online resources
Original Source: MHP-Nationwide
Last Updated: 7/11/2019
42-40 Bell Blvd Suite 205
Bayside, NY 11361-2820
Phone: 718-224-2999
Address: 42-40 Bell Blvd Suite 205
Bayside, NY 11361-2820
Phone: 718-224-2999
Toll Free Phone: 888-486-8738
Fax: 718-279-9596
Email: support@tourette.org
Services Provided: A national organization serving children, individuals and families affected by Tourette Syndrome (TS.) Comprehensive online information includes six online CME/CNE programs, programs on Recognition, Diagnosis & Treatment, and training for Allied Professionals and Educators. The website also contains resources for patients and families.
Original Source: MedHome Portal
Last Updated: 8/6/2019