Clinical Trials Research

Provide Feedback

Observational and interventional medical research programs that are currently looking for patients with specific diseases or conditions or related health profiles who are willing to volunteer to help determine the safety, effectiveness, dosage requirements and side effects of new drugs, medical products or techniques. (AIRS LT-1530.1550)

Service Legend
Local Service
Statewide Service: Provides online resources, telehealth, or service at a satellite office.
Nationwide Service: Provides online resources, telehealth or services at a regional/national headquarters location.
Statewide Provider
5442 South 900 East
Salt Lake City, UT 84117
Phone: 385-722-2266
Statewide Provider
Address:
5442 South 900 East
Salt Lake City, UT 84117
Phone: 385-722-2266
Email: iorg.alex@gmail.com
Eligibility: Terminally ill Utah patients with household income of $75,000 or less who meet the access criteria of the legislation.
Services Provided: Provides financial assistance for terminally ill patients by purchasing lifesaving drugs still in the FDA approval process.

A bill passed in March 2015, HB 94, gives terminally ill Utahns access to experimental drugs not yet approved by the FDA.
Source: Medical Home Portal
Last Updated: 11/2/2020
650 East 4500 South Ste 100
Salt Lake City, UT 84107
Phone: 801-261-2000
Address:
650 East 4500 South Ste 100
Salt Lake City, UT 84107
Phone: 801-261-2000
Fax: 801-261-4539
Service Categories:
Email: participate@jbrutah.com
Eligibility: Varies with each study. Call for current details.
Services Provided: Jean Brown Research conducts various clinical research trials sometimes including immunizations or baby formula trials. Compensation for time and travel may be provided.

  • Clinical Trials
Source: Help Me Grow Utah via United Way 2-1-1
Last Updated: 11/25/2020
81 North Mario Capecchi Drive
Salt Lake City, UT 84113
Phone: 801-213-7701
Organization Name: Intermountain Primary Children's Hospital/ University of Utah Health
(Show others in Organization)
Address:
81 North Mario Capecchi Drive
Salt Lake City, UT 84113
Phone: 801-213-7701
Fax: 801-587-7539
Email: joshua.bonkowsky@hsc.utah.edu
Languages Spoken: German
Eligibility:

Requests for referrals should be initiated by contacting Dr. Bonkowsky (joshua.bonkowsky@hsc.utah.edu) or Emily Hardy (emily.hardy@hsc.utah.edu or 801-213-7701).

Services Provided:

Provides evaluation, diagnosis, and treatment of inherited leukodystrophies (including adrenomyeloneuropathy) for:

  • prenatal and pregnancy counseling,
  • newborns,
  • children,
  • adolescents, and
  • adults

If families are interested, they can enroll in the Western Leukodystrophy Project, one of the largest longitudinal studies of children with leukodystrophies.

The Leukodystrophy Clinic is also a Leukodystrophy Care Network Certified Center, meeting or exceeding the Criteria for LCN Center Certification.

Provider Profiles:

Josh Bonkowsky, MD, PhD

See website or contact for additional provider names and specialties. All providers may not provide all services.

Source: Medical Home Portal
Last Updated: 4/22/2022
Organization Name: Intermountain Primary Children's Hospital / University of Utah Health
(Show others in Organization)
Address:
81 North Mario Capecchi Drive
Salt Lake City, UT 84113
Email: joshua.bonkowsky@hsc.utah.edu
Services Provided:

Provides personalized genetic therapies and therapy development, including rapid genetic testing and research on whole genome sequencing.

Initial efforts are focused on providing answers to critically-ill infants in the newborn intensive care unit, and children with severe seizures and heart conditions.

Provider Profiles:

Josh Bonkowsky, MD, PhD- Director

Source: Medical Home Portal
Last Updated: 4/22/2022
Nationwide Provider
9000 Rockville Pike
Bethesda, MD 20982
Nationwide Provider
Organization Name: National Institutes of Health Common Fund
(Show others in Organization)
Address:
9000 Rockville Pike
Bethesda, MD 20982
Toll Free Phone: 844-746-4836
Email: UDN@hms.harvard.edu
Services Provided:

Undiagnosed Diseases Network (UDN) is a research study that seeks to provide answers for patients and families affected by mysterious conditions. Clinical sites located throughout the U.S.

Source: MHP-Nationwide
Last Updated: 5/7/2022
Nationwide Provider
1500 Rosecrans Avenue Ste 200
Manhattan Beach, CA 90266
Phone: 310-725-0025
Nationwide Provider
Address:
1500 Rosecrans Avenue Ste 200
Manhattan Beach, CA 90266
Phone: 310-725-0025
Toll Free Phone: 877-272-6226
Fax: 310-725-0029
Email: info@pancan.org
Services Provided: Provides research, patient support, community outreach, and government advocacy. Raises money for direct private funding of research. Supports individuals and communities all across the country in working together to raise awareness and funds to develop more effective treatment options for better patient outcomes. The programs aims to create a sense of hope and community so no one has to face pancreatic cancer alone.COVID-19 Update: following all CDC and state guidelines.

  • Clinical Trials
  • Disease/Disability Information
  • Specialized Information and Referral
Source: Nationwide Suggest Providers Queue
Last Updated: 4/7/2022
Nationwide Provider
PO Box 1806
New York, NY 10159
Nationwide Provider
Organization Name: Simons Foundation
(Show others in Organization)
Address:
PO Box 1806
New York, NY 10159
Service Categories:
Email: info@SPARKforAutism.org
Services Provided: SPARK works with research partners from all over the world to engage families and adults with autism in research studies. All of the studies are evaluated for scientific merit, and a SPARK scientific committee approves them. SPARK matches participants with research studies based on characteristics such as age, diagnosis, medical history, location and more. Some of these studies are online, and some are in person.

SPARK does not share any information with researchers until participants give their permission. Participants in SPARK are always in control.
Provider Profiles: Simons Foundation Powering Autism Research for Knowledge (SPARK)
Source: MHP-Nationwide
Last Updated: 1/6/2020
Nationwide Provider
3 Information Way
Bethesda, MD 20892-3580
Phone: 800-860-8747
Nationwide Provider
Organization Name: National Institutes of Health
(Show others in Organization)
Address:
3 Information Way
Bethesda, MD 20892-3580
Phone: 800-860-8747
TDD: 866-569-1162
Email: healthinfo@niddk.nih.gov
Eligibility: Contact for specific information.
Services Provided:

NIDDK research creates knowledge about and treatments for diseases that are among the most chronic, costly, and consequential for patients, their families, and the Nation. Offers clinical trials, financial assistance for researchers, health information, and publications.

Source: Nationwide Suggest Providers Queue
Last Updated: 9/18/2020
Cure SMA View on Map
Nationwide Provider
925 Busse Road
Elk Grove Village, IL 60007
Nationwide Provider
Address:
925 Busse Road
Elk Grove Village, IL 60007
Toll Free Phone: 800-886-1762
Email: info@curesma.org
Eligibility:

Individuals with spinal muscular atrophy (SMA)

Services Provided:

Funds and directs comprehensive research that drives breakthroughs in treatment and care, and provides families the support they need. Local and national programs.

Services Include:

  • An equipment pool loans medical equipment free of charge
  • Annual conference
  • Web-based location finder for support in your area
Source: MHP-Nationwide
Last Updated: 5/7/2022