Disability Awareness Programs

Description: Voluntary health organizations committed to empowering and enhancing the lives of individuals with disability/diagnosis-specific conditions and their families through support and public awareness. Programs that offer workshops, discussion groups, activities and other types of training that sensitize participants to people with disabilities, help them experience what it is like to have a disability, and share techniques for positive communication and interaction with people who have disabilities. (AIRS PH-6200.1850)

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Disclaimer...
Note: Service listings do not represent a recommendation or endorsement by the Medical Home Portal staff or its sponsoring organizations; nor do they reflect any assessment of the quality or value of a listed Service.

UT

Statewide

Address: 986 West Atherton Drive Ste 220
Taylorsville, UT 84123
Phone: 801-363-3024
Toll Free Phone: 888-342-2383
Fax: 801-261-3005
Eligibility: Diabetes. Minimum age 16 alone, 12 to 16 with adult chaperone; no theft, violent or sexual offenses. Must speak some English.
Wheelchair Accessible: Complete
Services Provided: Educating the public about how to stop diabetes and support those living with the disease.
Provider Profiles: Camp ICANDO, Olympus High School, Salt Lake City, 1 week in summer
Contact Beverly Bartel for more information at bbartel@diabetes.org or 801-363-3024 ext. 7072
Original Source:
Last Updated: 6/26/2018
Address: 465 South 400 East Ste 110
Salt Lake City, UT 84111
Phone: 801-702-4420
Toll Free Phone: 800-242-8721
Fax: 801-532-2101
Eligibility: Open to everyone.
Wheelchair Accessible: Complete
Services Provided: Advances groundbreaking medical research, spreads lifesaving knowledge, and reaches out to people of all ages about cardiovascular disease and stroke.
Original Source:
Last Updated: 4/25/2018
780 Guardsman Way
Utah Parent Center, Pingree School
Salt Lake City, UT 84108
Phone: 801-272-1051
Address: 780 Guardsman Way
Utah Parent Center, Pingree School
Salt Lake City, UT 84108
Phone: 801-272-1051
Eligibility: Open to all.
Services Provided: Provides advocacy, maintains and improves services and resources for people with autism throughout Utah. Website provides referrals to various related resources statewide.
Provider Profiles: Internet resources, use search to find local resources.

Supporting International Meeting for Autism Research (IMFAR) May 2015
Original Source:
Last Updated: 4/30/2018
Organization Name: CSHCN Bureau, Utah Department of Health
Address: 44 N. Mario Capecchi Drive
PO 144610
UT 84114-4610
Phone: 801-584-8455
Email: ckingsbury@utah.gov
Eligibility: Autism, reside in Utah
Services Provided: Through the Autism Systems Development Program, the CSHCN Bureau provides leadership that brings together many of the agencies and advocates who influence the statewide system of services for children with autism spectrum disorder (ASD) and their families.

The program has four components: Utah Autism Initiative (UAI), Utah Registry of Autism and Developmental Disabilities (URADD), Data System Integration, and ASD Resource Management. The ASDP:
- Refers individuals with ASD to services for evaluation and treatment
- Refers to care coordination programs
- Updates ASD diagnostic providers list
- Updates ASD treatment resources list
- Expands previously conducted ASD services survey to assess service needs and identify
barriers for care across Utah
- Compiles annual report summarizing ASD needs in Utah
Provider Profiles: Colin Kingsbury, Program Manager
M - F 8 - 5
Statewide
Original Source:
Last Updated: 10/23/2018
Address: 5280 South Commerce Drive Ste E-190
Murray, UT 84107
Phone: 801-716-4993
Toll Free Phone: 800-281-8442
Fax: 801-716-4995
Eligibility: Open to those who have had a brain injury. Bring a yoga mat.
Wheelchair Accessible: Complete
Services Provided: Provides education and support through facilitation of resources for the issues of prevention and recovery of brain injury (TBI) in the state of Utah. Annual Family & Professionals Conference. Teen/young adult Post Concussion Syndrome (PCS) Support Group, webinars for people with traumatic brain injury, family caregivers and professionals in the field.
Original Source:
Last Updated: 4/25/2018
205 North 400 West
Community Legal Center
UT 84103
Phone: 801-363-1347
Address: 205 North 400 West
Community Legal Center
UT 84103
Phone: 801-363-1347
TDD: 800-550-4182
Toll Free Phone: 800-662-9080
Fax: 801-363-1437
Eligibility: Must have a disability, in Utah.
Wheelchair Accessible: Complete
Services Provided: The Disability Law Center (DLC) is a private and nonprofit organization working to enforce and strengthen laws that protect the opportunities, choices and legal rights of Utahns with disabilities. The focus is disability discrimination, and areas related to disability where it provides information. Does not provide assistance with filing for disability benefits, personal injury, family law, guardianship, or evictions.
Original Source:
Last Updated: 11/7/2018
352 South Denver Street Ste 101
Salt Lake City, UT 84111
Phone: 801-364-0366
Address: 352 South Denver Street Ste 101
Salt Lake City, UT 84111
Phone: 801-364-0366
Toll Free Phone: 800-657-6398
Fax: 801-364-0368
Email: info@utahlupus.org
Eligibility: Open to the public.
Wheelchair Accessible: Complete
Services Provided: The Lupus Foundation of America is leading efforts to find the cure for lupus and help people who are affected by the disease.
Original Source:
Last Updated: 2/5/2018
Address: 250 North 1950 West
Salt Lake City, UT 84116
Phone: 801-463-6632
Toll Free Phone: 888-292-3007
Fax: 801-294-6000
Email: nfbofutah@gmail.com
Eligibility: Children in Pre-kindergarten and elementary school who need Braille instruction.
Wheelchair Accessible: Complete
Services Provided: Provides educational information, literature, community outreach, advocacy and referral services to the blind, parents of blind children, and newly blind persons.
Since 1957, the Federation’s purpose is to help blind people achieve self-confidence, self-respect, and self-determination. Monthly gatherings. Transition age program, Project STRIVE.
Provider Profiles: NFB of Utah has 5 chapters located in St. George, Utah County, Salt Lake, Weber/Davis, and Logan; as well as 3 divisions that work specifically with students, seniors, and parents of blind children.
President Everette Bacon
Original Source:
Last Updated: 9/18/2018
3707 North Canyon Road, Ste. 1D
Provo, UT 84604
Phone: 801-226-5111
Address: 3707 North Canyon Road, Ste. 1D
Provo, UT 84604
Phone: 801-226-5111
Toll Free Phone: 800-869-5277
Fax: 801-226-8278
Eligibility: Patient programs restricted to kidney patients and their families, otherwise, no restrictions.
Wheelchair Accessible: Complete
Services Provided: Works to prevent kidney and urinary tract diseases, improve the health and wellbeing of individuals and families affected by these diseases, and increase the availability of all organs for transplantation.
Camp Kostopulos summer camp, Salt Lake City, for children and teens who have undergone heart, liver, lung, or kidney transplants.
Aspen Grove Family Kidney Kamp at the base of Mount Timpanogos.
Original Source:
Last Updated: 8/27/2018
Address: 1408 South 1100 East
Salt Lake City, UT 84105
Phone: 801-487-2323
Toll Free Phone: 800-FON-AIDS
Fax: 801-486-3978
Email: stan.penfold@utahaids.org
Eligibility: Case managers will refer clients to statewide locations of HIV testing, resource referrals to physicians, attorneys, dentists, mental health professionals, and medical services; limited crisis intervention; mailings of AIDS-related materials.
Wheelchair Accessible: Entry and Bathroom(s)
Services Provided: Offers assistance and expertise to anyone struggling with the complex issues that surround HIV. Works with community members to form partnerships that mend health, promote compassion, and extend companionship to everyone who has been affected by HIV.
Original Source:
Last Updated: 10/23/2018
Organization Name: Utah Department of Health, Bureau of Health Promotion
Address: 288 North 1460 West
PO Box 142107
UT 84114-2107
Phone: 801-538-6894
Fax: 801-538-9495
Languages Spoken: Spanish
Eligibility: No charge, no health insurance required
Wheelchair Accessible: Complete
Services Provided: Provides comprehensive asthma care by ensuring availability of and access to guidelines-based medical management and pharmacotherapy for all Utahns with asthma, and to link those with poorly controlled asthma to individualized services.
Utah Asthma Home Visiting Program for individuals with asthma living in Salt Lake and Utah Counties.
Prescription Assistance Program for Patients with Asthma http://health.utah.gov/asthma/basics/rxassist.html
Provider Profiles: Brittany Guerra, MPH, Health Program Specialist III
Kellie Baxter, Health Program Specialist
Original Source:
Last Updated: 8/16/2018
Organization Name: Autism Council of Utah; CSHCN, Utah Department of Health
Address: 44 N Mario Capecchi Drive
PO Box 144610
Salt Lake City, UT 84113-4610
Email: utahautismcoalition@gmail.com
Services Provided: The Utah Autism Initiative (UAI) committee is a state inter-agency advisory panel of experts in the field of ASD-related research and treatment. UAI is formed solely to benefit the citizens of Utah affected by or having an interest in ASD. The UAI maintains no commercial interests whatsoever in any party outside the membership of the UAI.
Provider Profiles: For questions, please contact Colin Kingsbury, Autism Systems Coordinator
with the Bureau of Children with Special Health Care Needs.

Meetings are quarterly.
Original Source:
Last Updated: 10/23/2018
288 North 1460 West
Salt Lake City, UT 84116
Phone: 888-222-2542
Organization Name: Utah Department of Health
Address: 288 North 1460 West
Salt Lake City, UT 84116
Phone: 888-222-2542
Eligibility: Ages 18 and older
Wheelchair Accessible: Complete
Services Provided: Increases participation in programs proven to help people with arthritis and other chronic conditions. Programs include Arthritis Foundation Exercise Program, EnhanceFitness, Walk With Ease, Living Well with Chronic Conditions, and Living Well with Diabetes.
Original Source:
Last Updated: 9/4/2018
230 West 200 South Ste 1101
PO Box 144610
Salt Lake City, UT 84101
Phone: 844-838-8275
Address: 230 West 200 South Ste 1101
PO Box 144610
Salt Lake City, UT 84101
Phone: 844-838-8275
Toll Free Phone: 800-468-1160
Fax: 801-272-8907
Email: info@utahfamilyvoices.org
Eligibility: For Utah families with a child or youth with a physical, mental or developmental special need. Anyone can access the materials on the website.
Services Provided: Family Voices provides one-on-one help to achieve family-centered care for all children and youth with special health care needs and/or disabilities. Through their national network, they provide families tools to make informed decisions, advocate for improved public and private policies, build partnerships among professionals and families and serve as a trusted resource on health care.
Provider Profiles: 1-844-838-8275
The Family to Family network (FtoFN) is a statewide parent support network run by volunteers.
Funded in part by the Maternal and Child Health Bureau.
Original Source:
Last Updated: 10/18/2018
Address: UT
Eligibility: Graduate level training, five states include Utah, Idaho, Montana, Wyoming and North Dakota.
Services Provided: URLEND is part of a Maternal Child Health Bureau Grant, one of 43 unique LEND programs in 37 states. Utah Regional LEND is a long-term graduate training program covering five states: Utah, Idaho, Montana, Wyoming and North Dakota. This program uses state-of-the-art technology to connect groups of trainees. As future leaders, URLEND participants are trained to move beyond discipline boundaries to provide optimal treatment to children and adolescents with special health care needs. Because families are essential to wellbeing, this program emphasizes the role of family-centered care.
Provider Profiles: Five states include Utah, Idaho, Montana, Wyoming and North Dakota.
Original Source:
Last Updated: 6/14/2018
Organization Name: Utah State Office of Rehabilitation (USOR)
Address: UT
Eligibility: Utah, disability
Services Provided: Utah SILC is a nonprofit planning and advocacy council, working with USOR and ILCs to develop the state plan for Independent Living Centers (ILCs). ILCs are non-residential, community-based, and cross-disability.
Funding for assistive technology may be available to help with assistive technology, ramps, modifications, etc. for eligible individuals. Money is appropriated every July. Due to the volume of requests, families and individuals may be put on a waiting list until additional funding is allocated.
Provider Profiles: ILCs in Utah: Ability 1st (First) (1), Active Re-Entry (5), Options for Independence (2), Red Rock Center for Independence (1), Roads to Independence (1), Utah Independent Living Center (1)
Original Source:
Last Updated: 2/14/2018
PO Box 142106
Salt Lake City, UT 84114-2106
Phone: 877-220-3466
Organization Name: Utah Department of Health
Address: PO Box 142106
Salt Lake City, UT 84114-2106
Phone: 877-220-3466
TDD: 877-777-6534
Toll Free Phone: 800-784-8669
Fax: 801-538-9303
Eligibility: None
Wheelchair Accessible: Complete
Services Provided: Programs to help tobacco users quit, prevent youth from starting to use tobacco, protect Utahns and visitors to the state from secondhand smoke, and to eliminate tobacco-related disparities.
Original Source:
Last Updated: 9/4/2018

American Fork, UT

Address: 895 North 900 East
American Fork, UT 84003
Phone: 801-763-4008
Fax: 801-763-4214
Eligibility: Anyone interested in the welfare of individuals and families of all ages who deal with mental disabilities and/or developmental disabilities
Services Provided: 1. Establish and coordinate volunteer activities
2. Furnish information, referral, education, newsletters, conferences
3. Promote people-first concepts
4. Help families with guardianship information forms
Original Source:
Last Updated: 3/17/2015

Clearfield, UT

22 South State Street
Clearfield, UT 84015
Phone: 801-525-5200
Address: 22 South State Street
Clearfield, UT 84015
Phone: 801-525-5200
Fax: 801-451-3242
Services Provided: Provides services regarding Communicable Disease and Epidemiology (STD/HIV Testing and Resources, TB Control), Family Health and Senior Services.
Original Source:
Last Updated: 5/13/2014

Layton, UT

471 Heritage Park Boulevard, Suite 4
Layton, UT 84041
Phone: 801-784-7429
Organization Name: Gigi's Playhouse - Down Syndrome Achievment Centers
Address: 471 Heritage Park Boulevard, Suite 4
Layton, UT 84041
Phone: 801-784-7429
Email: layton@gigisplayhouse.org
Eligibility: Free
Services Provided: GiGi’s Playhouse Layton provides resources, specialized teaching, and support to individuals with Down syndrome, their families and the community. All of our programs are free to our families and are therapeutic in nature. Each of them are designed to work on specific skill development in several areas including speech and language, social development, and fine and gross motor skills.
Provider Profiles: Over 30 locations across the United States and Mexico and 200 inquiries to start new locations all over the world.

National, International
Original Source:
Last Updated: 6/14/2018

Lehi, UT

Address: Lehi, UT 84043
Phone: 801-566-5949
Eligibility: Epilepsy patients and their families.
Wheelchair Accessible: Complete
Services Provided: Provides awareness, education, support services, and advocacy for and in behalf of all those dealing with the many challenges of epilepsy/seizure disorders. A yearly summer camp for youth.
Original Source:
Last Updated: 4/25/2018

Logan, UT

0101 Old Main Hill
Utah State University
Logan, UT 84322-0101
Phone: 435-797-2444
Address: 0101 Old Main Hill
Utah State University
Logan, UT 84322-0101
Phone: 435-797-2444
Toll Free Phone: 800-259-2966
Services Provided: Provide qualified persons with disabilities equal access to University programs, services and activities as required by the Americans with Disabilities Act and Rehabilitation Act of 1973.
Provider Profiles:
Original Source:
Last Updated: 10/7/2015

Ogden, UT

Organization Name: Midtown Community Health Centers
Address: 2240 Adams Avenue
Ogden, UT 84403
Phone: 801-393-5355
Fax: 801-394-4609
Eligibility: Open to all
Wheelchair Accessible: Complete
Services Provided: Health care coordination, case management, and prescription assistance for uninsured children, families, and adults including health education and specialty care coordination available at every Midtown Community Health Clinic location from Salt Lake City to Logan. Enrollment Specialist also available by appointment to help with navigation of Medicaid, CHIP, PCN, UPP, and Marketplace plans (ObamaCare).
Original Source:
Last Updated: 11/8/2017

Pleasant Grove, UT

998 West 1930 North
Pleasant Grove, UT 84062
Phone: 801-785-5997
Address: 998 West 1930 North
Pleasant Grove, UT 84062
Phone: 801-785-5997
Services Provided: Promoting the use of spoken language by children and adults with hearing loss. Advocacy, publications, financial aid, scholarships, numerous programs and services.
Support group.
Original Source:
Last Updated: 7/17/2018

Price, UT

Organization Name: Regional Centers for Independent Living
Address: 10 South Fairgrounds Road
Price, UT 84501
Phone: 435-637-4950
TDD: 435-637-4950
Email: active@arecil.org
Eligibility: Dagget, Duchesne, Uintah, Carbon, Emery, Grand and San Juan counties
Services Provided: A community based program which assists individuals with disabilities to achieve or maintain self-sufficient, productive lives and live independently within their own communities. Programs include: help in attaining assistive technology; training for those losing their sight; caregiver and grief support groups; PAWS Animal Therapy Program; SCOODEO - a safety training program for those who have no other means of transportation than an electric scooter; PERKIE Travels - a coordinated cancer treatment transportation system to help get people to the Utah Valley area for their radiation treatment; nursing home diversion and transition programs and other programs.
Provider Profiles: USOR, Active Re-Entry serves the seven counties of Eastern Utah, with satellite offices in Moab and Uintah Basin.
There are five other Centers for Independent LIving (CILs) in Utah.
Original Source:
Last Updated: 6/28/2018
56 East 100 North
Price, UT 84501
Phone: 435-637-6134
Address: 56 East 100 North
Price, UT 84501
Phone: 435-637-6134
Eligibility: Must be on a program through The Division of Services for People with Disabilities.
Wheelchair Accessible: Complete
Services Provided: 1. Northeastern Services support opportunities for people to achieve independence, enhance self-esteem and sustain a full, quality of life.
2. We are hired by Division of Services for People with Disabilities to teach life skills.
3. Life skills such as budgeting finances, cooking, cleaning, laundry, etc.
4. We work with younger children and young adults to help them live out their dreams.
5. The ultimate goal for our consumers is to achieve independence and become an asset to their community.
Original Source:
Last Updated: 8/5/2013

Provo, UT

Address: 1124 West 500 North
Provo, UT 84603
Phone: 801-377-4629
Eligibility: Unrestricted
Services Provided: 1. Presentations about HIV/AIDS.
2. Assistance with meals to persons with HIV/AIDS.
3. Advocacy on behalf of persons with HIV/AIDS.
4. Referral to support groups.
Original Source:
Last Updated: 12/15/2014
60 East 100 South, Suite 101
Provo, UT 84606
Address: 60 East 100 South, Suite 101
Provo, UT 84606
Eligibility: Deaf and hard of hearing
Services Provided: 1. One-to-one counseling (advocating),
2. Education classes
3. Educate the community about deaf and hard of hearing
Original Source:
Last Updated: 2/3/2014

Salt Lake City, UT

230 West 200 South Ste 142
Salt Lake City, UT 84101
Phone: 877-477-0764
Address: 230 West 200 South Ste 142
Salt Lake City, UT 84101
Phone: 877-477-0764
Fax: 801-521-0872
Eligibility: Brothers and sisters (ages 7 to 13) of a child with special needs.
Services Provided: Provides emotional support, training, workshops and resource information to families with children with emotional, behavioral, and mental health disabilities such as depression, ADD, autism, etc.; wellness education and training.
SIbShops (workshops for siblings ages 7 - 13) throughout Utah
Diagnosis-Specific Packets -- diagnosis packets are available for the following diagnoses:
ADHD
Anxiety Disorder
Asperger's Syndrome
Autism
Bipolar Disorder
Childhood Schizophrenia
Conduct Disorder
Depression
Eating Disorders
General Mental Health
Learning Disability
Obsessive Compulsive Disorder
Oppositional Defiant Disorder
Panic Disorder
Post-Traumatic Disorder
Reactive Attachment Disorder
Schizoaffective Disorder
Substance Abuse
Suicide Prevention
Tourette Syndrome
Provider Profiles: Partners with Utah Family Coalition to provide Family Resource Facilitators.
Original Source:
Last Updated: 9/18/2018
Address: 375 East 100 South
Salt Lake City, UT 84111
Phone: 801-493-4700
Toll Free Phone: 800-227-2345
Fax: 801-483-1558
Eligibility: Individuals with a cancer diagnosis, their family and friends.
Wheelchair Accessible: Complete
Services Provided: Nationwide, community-based, voluntary health organization dedicated to eliminating cancer as a major health problem by preventing cancer, saving lives, and diminishing suffering from cancer through research, education, advocacy, and service.
Original Source:
Last Updated: 9/13/2018
4424 South 700 East Ste 180
Salt Lake City, UT 84107
Phone: 888-391-9389
Address: 4424 South 700 East Ste 180
Salt Lake City, UT 84107
Phone: 888-391-9389
Toll Free Phone: 888-391-9389
Fax: 801-536-0991
Eligibility: Individuals, family, and healthcare providers of those affected with arthritis. Utah and Idaho.
Services Provided: Arthritis Foundation funds research and provides services including information on arthritis, doctor referral list, a magazine, support groups, self help classes, videos and exercise classes.
Provider Profiles: Internet Resources
Original Source:
Last Updated: 8/30/2018
124 South 400 East Ste 250
Salt Lake City, UT 84111
Phone: 801-532-2335
Organization Name: Cystic Fibrosis Foundation
Address: 124 South 400 East Ste 250
Salt Lake City, UT 84111
Phone: 801-532-2335
Fax: 801-364-0237
Eligibility: Cystic Fibrosis patients, their families and care team
Services Provided: A parent driven and administered educational, support, and advocacy site for families of children with cystic fibrosis followed at the Intermountain CF Center.
Cystic Fibrosis Foundation funds research and supports the development of new drugs to fight Cystic Fibrosis to improve the quality of life for those with this condition to ultimately find a cure.
Original Source:
Last Updated: 9/5/2018
Address: 1574 West 1700 South Ste 1-A, Utah State University
Salt Lake City, UT 84104
Phone: 801-973-0129
Fax: 801-973-6964
Wheelchair Accessible: Complete
Services Provided: Provide information and referral to local disability supports that are beneficial to individuals with developmental delays.
Original Source:
Last Updated: 3/29/2018
339 East 3900 South Ste 205
Salt Lake City, UT 84107
Phone: 801-685-8214
Address: 339 East 3900 South Ste 205
Salt Lake City, UT 84107
Phone: 801-685-8214
Toll Free Phone: 800-478-9314
Fax: 801-685-8216
Wheelchair Accessible: Complete
Services Provided: Provides information, referral, education, and training related to compliance with Americans with Disabilities Act, Fair Housing Act, and other disability-related rights.
Original Source:
Last Updated: 6/29/2017
10 East South Temple #900
Salt Lake City, UT 84133
Phone: 801-366-4673
Address: 10 East South Temple #900
Salt Lake City, UT 84133
Phone: 801-366-4673
Toll Free Phone: 866-633-4673
Fax: 801-397-0714
Wheelchair Accessible: Complete
Services Provided: Provides support for families who have a substance-abusing family member. The foundation is dedicated to: (1) increasing public awareness about conditions leading to substance abuse, (2) supporting research and education about addictive disease, and (3) providing assessment and clinical services for those affected by the disease.
Provider Profiles: 801 292-2632
Original Source:
Last Updated: 12/19/2016
Organization Name: Utah Parent Center
Address: 230 West 200 South Ste 1101
Salt Lake City, UT 84101
Phone: 801-272-1051
Toll Free Phone: 800-468-1160
Fax: 801-272-8907
Eligibility: Must have a disability or a family member who is disabled.
Services Provided: The Family to Family Network is a grassroots volunteer organization supported by the Utah Parent Center. The networks are composed of family members from across the state that have a relative with a disability. The Mission of the Networks is to educate, strengthen, and support families of persons with disabilities.
The Networks provide: local monthly meetings, information and referral, family-to-family support, advocacy for families, and information on how to work with the Division of Services for People with Disabilities.
Provider Profiles: Networks located across Utah
Transition Workshops offered through Family to Family Network (F2F)
Original Source:
Last Updated: 5/22/2018
396 West Ironwood Drive (2550 South)
Salt Lake City, UT 84115
Phone: 877-493-0120
Address: 396 West Ironwood Drive (2550 South)
Salt Lake City, UT 84115
Phone: 877-493-0120
Toll Free Phone: 877-493-0120
Fax: 801-463-4946
Eligibility: Items must be in sellable condition and light/small enough for one person to lift into truck.
Services Provided: Collects donations of clothing and household items, which are sold to fund services for people with Multiple Sclerosis.
Original Source:
Last Updated: 8/27/2018
Address: Salt Lake City, UT
Services Provided: Supported by University Health Care, this nonprofit organization provides support and services to individuals, in the Intermountain West, with PKU and related disorders. Allied disorders include homocystinuria, maple syrup urine disease, organic acidemias, tyrosinemia, urea cycle disorders, and a host of other inborn metabolic errors.
Original Source:
Last Updated: 11/2/2016
132 South 600 East Ste 100
Salt Lake City, UT 84102
Phone: 801-530-0660
Address: 132 South 600 East Ste 100
Salt Lake City, UT 84102
Phone: 801-530-0660
Fax: 801-530-0670
Eligibility: None
Services Provided: The leading global organization focused on type 1 diabetes (T1D) research. Driven by passionate, grassroots volunteers connected to children, adolescents, and adults with this disease, JDRF is the largest charitable supporter of T1D research.
Original Source:
Last Updated: 9/12/2018
1440 Foothill Drive Ste 200
Salt Lake City, UT 84108
Phone: 801-424-0113
Address: 1440 Foothill Drive Ste 200
Salt Lake City, UT 84108
Phone: 801-424-0113
Toll Free Phone: 800-344-4867
Fax: 801-424-0122
Eligibility: Individuals with MS and their families
Wheelchair Accessible: Complete
Services Provided: Provides a wide variety of programs, fundraisers, activities, and services throughout the area to people with MS, their families, and friends.
Original Source:
Last Updated: 9/5/2018
Address: 116 North 800 West
Salt Lake City, UT 84116
Phone: 801-484-2205
Fax: 801-484-2665
Eligibility: Open to the public
Wheelchair Accessible: Complete
Services Provided: Provides educational and support services that enhance the quality of life for all people impacted by HIV/AIDS.
Original Source:
Last Updated: 6/4/2018
Address: 452 East 3900 South
Salt Lake City, UT 84107
Phone: 801-614-7885
Fax: 435-673-8983
Eligibility: Victim of abuse must be Deaf, Deaf/Blind, or Hard of Hearing (family member can be hearing).
Services Provided: Provides a 24-hour emergency hotline, information, advocacy, counseling and referral for Deaf/Deaf Blind or Hard of Hearing (HH) victims of domestic violence or sexual assault.
Original Source:
Last Updated: 10/10/2018
250 East 500 South
P.O. Box 144200
Salt Lake City, UT 84114-4200
Phone: 801-538-7587
Organization Name: Utah State Board of Education
Address: 250 East 500 South
P.O. Box 144200
Salt Lake City, UT 84114-4200
Phone: 801-538-7587
Fax: 801-538-7991
Eligibility: Identified students ages 3 - 22 in Utah schools to comply with the requirements outlined in the Individuals with Disabilities Education Act (IDEA) 2004.
Services Provided: Support and services for students with disabilities, ages 3-22; assessment, instructional support, and transition services; links to community organizations and school districts; and information about school rules and reports, events, and services.
Provider Profiles: Utah's Transition Action Guide for Students with Disabilities: http://health.utah.gov/cshcn/pdf/IntSrv/Transition%20Action%20Guide.pdf
Original Source:
Last Updated: 9/20/2017
1121 East 3900 South, Suite C-230
Salt Lake City, UT 84124
Phone: 801-281-6861
Address: 1121 East 3900 South, Suite C-230
Salt Lake City, UT 84124
Phone: 801-281-6861
Eligibility: Cancer patients
Services Provided: Provides support to cancer patients and their families during diagnosis, treatment and recovery and to enhance their quality of life throughout these stages of the cancer experience.
Original Source:
Last Updated: 4/4/2018
650 Komas Drive Ste 106B
Salt Lake City, UT 84108
Phone: 801-581-8407
Organization Name: University of Utah
Address: 650 Komas Drive Ste 106B
Salt Lake City, UT 84108
Phone: 801-581-8407
Fax: 801-581-4560
Services Provided: Promotes public health in Utah by maintaining cancer data, which makes the monitoring of trends in incidence and mortality as well as the evaluation of prevention and control measures possible.
Original Source:
Last Updated: 4/21/2014
155 South 300 West Ste 100
Salt Lake City, UT 84101
Phone: 801-533-3965
Organization Name: Utah State Government
Address: 155 South 300 West Ste 100
Salt Lake City, UT 84101
Phone: 801-533-3965
TDD: 711
Fax: 801-533-3968
Eligibility: Persons with developmental disabilities and their families
Wheelchair Accessible: Complete
Services Provided: Promotes consumer and family directed services that increase self-determination in individuals with disabilities and their families.
Original Source:
Last Updated: 8/14/2018
PO Box 675
Salt Lake City, UT 84110
Phone: 801-503-5086
Address: PO Box 675
Salt Lake City, UT 84110
Phone: 801-503-5086
Services Provided: Provides outreach, training, support, education, information, and activities for individuals with Down syndrome, their parents and families, and the community.
Original Source:
Last Updated: 4/24/2018
Address: 1595 West 500 South
Salt Lake City, UT 84104
Phone: 801-887-9392
TDD: 801-538-7530
Fax: 801-887-9389
Eligibility: Businesses that want information on employing persons with disabilities
Wheelchair Accessible: Complete
Services Provided: Committee dedicated to assist and encourage the hiring of people with disabilities
Original Source:
Last Updated: 3/29/2018
Address: 772 East 3300 South Ste 210
Salt Lake City, UT 84106
Phone: 877-463-6893
Fax: 801-746-2488
Services Provided: Provides education, advocacy, outreach, and networking for people with bleeding disorders. These services empower individuals with bleeding disorders and their families to lead healthier and more self-sufficient lives.
Original Source:
Last Updated: 2/9/2016
3445 South Main Street
Salt Lake City, UT 84115-4418
Phone: 801-466-5565
Address: 3445 South Main Street
Salt Lake City, UT 84115-4418
Phone: 801-466-5565
Toll Free Phone: 800-355-2195
Fax: 801-466-2363
Eligibility: Persons 18+ years old, Salt Lake, Summit and Tooele counties
Wheelchair Accessible: Complete
Services Provided: Private, nonprofit, non–residential facility that teaches independent living skills to people with disabilities. Grant funding for assistive technology.
Provider Profiles: Also a Tooele Satellite Office
Original Source:
Last Updated: 6/28/2018
2652 E. Nottingham Way
Salt Lake City, UT 84108
Phone: 801-582-0998
Address: 2652 E. Nottingham Way
Salt Lake City, UT 84108
Phone: 801-582-0998
Services Provided: Provides families and professionals with newsletters; conference information; local event information; local services listings; links to support groups for youth, teens, siblings, grandparents and more; and links to other organizations. For more information, contact:
Lisa Thornton (Legal Issues - President, Utah PWSA, 801-582-0998)
Michelle Holbrook (Education Specialist - Utah PWSA, 801-768-8851).
Original Source:
Last Updated: 3/11/2015

Sandy, UT

PO Box 900726
Sandy, UT 84090
Phone: 801-553-9156
Address: PO Box 900726
Sandy, UT 84090
Phone: 801-553-9156
Eligibility: Anyone looking for resources for learning disabilities (testing, tutoring, disability lawyers, education and support, rehabilitation services).
Wheelchair Accessible: Complete
Services Provided: The Learning Disabilities Association of Utah supports, informs, and empowers individuals with learning disabilities and the people who work with them. Does not provide direct services; provides referrals and lobbies/advocates on a state level.
Original Source:
Last Updated: 3/28/2018

Springville, UT

P.O. Box 120
Springville, UT 84663-0120
Phone: 801-580-6091
Address: P.O. Box 120
Springville, UT 84663-0120
Phone: 801-580-6091
Services Provided: LCPD provides a forum to educate policy makers about the real needs of people with disabilities. The mission of the Legislative Coalition for People with Disabilities is to advocate for public policy affecting all people in the State of Utah who have disabilities. Become a member and affect change!
Original Source:
Last Updated: 4/18/2018

St. George, UT

523 Sunland Drive Ste A
St. George, UT 84790
Phone: 435-619-5067
Address: 523 Sunland Drive Ste A
St. George, UT 84790
Phone: 435-619-5067
Toll Free Phone: 800-643-6913
Fax: 435-673-5265
Eligibility: People 18 years old or older with learning or developmental disabilities.
Wheelchair Accessible: Complete
Services Provided: Advocates for people with developmental, cognitive, intellectual and related disabilities and their families through support, outreach, education and legislation.
Original Source:
Last Updated: 9/13/2018
Call for information
St. George, UT 84770
Phone: 435-674-3533
Address: Call for information
St. George, UT 84770
Phone: 435-674-3533
Services Provided:
Original Source:
Last Updated: 10/25/2013
1036 East Riverside Drive
Doctor's Volunteer Clinic of St George
St. George, UT 84790
Phone: 801-707-6006
Address: 1036 East Riverside Drive
Doctor's Volunteer Clinic of St George
St. George, UT 84790
Phone: 801-707-6006
Eligibility: Anyone over 16 years of age. If under 16 years of age, they need parental consent
Services Provided: Work to educate about HIV prevention, to provide support for persons living with HIV/AIDS and their caregivers, and to increase access to free HIV testing and prevention materials and supplies.


Original Source:
Last Updated: 12/8/2014

Taylorsville, UT

849 West Levoy Drive Ste 210
Taylorsville, UT 84123
Phone: 801-278-6200
Address: 849 West Levoy Drive Ste 210
Taylorsville, UT 84123
Phone: 801-278-6200
Fax: 801-278-2499
Eligibility: Anyone diagnosed with one of the 43 diseases in MDA's service program.
Wheelchair Accessible: Complete
Services Provided: A voluntary health agency that works to combat over 43 neuromuscular diseases and is committed to finding treatments and cures while supporting a comprehensive program of direct patient services and clinical care.
Summer camps at Camp Kostopulos, ages 12 - 17, ages 8 - 11.
Provider Profiles: Clinical care at Clinical Neurosciences Center, University of Utah Medical Center
Original Source:
Last Updated: 9/18/2018
5709 South 1500 West
Taylorsville, UT 84123
Phone: 801-657-5207
Address: 5709 South 1500 West
Taylorsville, UT 84123
Phone: 801-657-5207
Fax: 801-288-9899
Eligibility: None
Wheelchair Accessible: Complete
Services Provided: Advocates for and provides services which aim to improve the general welfare of the deaf and hard of hearing people in Utah.
Original Source:
Last Updated: 9/13/2018

Tooele, UT

52 North Main Street
Tooele, UT 84074
Phone: 435-843-7353
Address: 52 North Main Street
Tooele, UT 84074
Phone: 435-843-7353
Fax: 435-843-7359
Email: jessicas@uilc.org
Eligibility: Serving Salt Lake, Summit & Tooele Counties. Client must have a disability that impairs activities of daily living and an expectation that services will be beneficial. People recovering from injuries can apply as well.
Services Provided: Private, nonprofit, non-residential facility that teaches independent living skills to people with disabilities.
Original Source:
Last Updated: 8/9/2018

Woods Cross, UT

Address: 1301 West 500 South
Woods Cross, UT 84087
Phone: 801-292-1156
Toll Free Phone: 800-273-4569
Fax: 801-292-6046
Email: info@utahcounciloftheblind.org
Eligibility: Must be legally blind. Membership required for some programs.
Wheelchair Accessible: Complete
Services Provided: Programs to address the challenges faced by Utah's blind and visually impaired.
Here are some of the services and programs we offer:
Personal Braille Program
Ceramic Arts Class
Teacher/Training in home independent living Program
Adaptive Technology and Assistive Technology Training
Reader Program to read important papers, mail and other items
Travel Program to provide assistance and discounted cab fares for members
Presentation Committee for live speaking engagements and assemblies
Orientation and Mobility provided by Teacher/Trainer Teams
Braille: Grade One, Grade Two
Employment Training for Blind Patrons and Resume Building
Original Source:
Last Updated: 4/24/2018

Nationwide

11130 Sunrise Valley Drive Ste 350
Reston, VA 20191
Phone: 703-234-4079
Address: 11130 Sunrise Valley Drive Ste 350
Reston, VA 20191
Phone: 703-234-4079
Fax: 703-435-4390
Eligibility: Open to the public.
Services Provided: Provides research, educational forums, publications, subject matter experts and current information on treatment and prevention of eating disorders.
Original Source:
Last Updated: 10/11/2018
Address: 3417 Volta Place NW
Washington, DC 20007
Phone: 202-337-5220
TDD: 202-337-5221
Fax: 202-337-8314
Eligibility: Individuals who are deaf or hard of hearing.
Services Provided: A resource center on hearing loss and spoken language approaches and related issues. Promotes opportunities and rights of individuals who are deaf or hard of hearing to learn to use, maintain, and improve all aspects of their verbal communication, including their abilities to use residual hearing and process both spoken and written language. Offers scholarship/ financial award opportunities, membership, information, and publications.
Original Source:
Last Updated: 7/17/2018
2451 Crystal Drive, Suite 900
Arlington, VA 22202
Address: 2451 Crystal Drive, Suite 900
Arlington, VA 22202
Toll Free Phone: 800-342-2383
Services Provided: We lead the fight against the deadly consequences of diabetes and fight for those affected by diabetes. We fund research to prevent, cure and manage diabetes. We deliver services to hundreds of communities. We provide objective and credible information. We give voice to those denied their rights because of diabetes.

Website offers education, legal rights, health insurance, tips for caregivers, etc.
Original Source:
Last Updated: 7/17/2018
11921 Rockville Pike Ste 300
Rockville, MD 20852
Phone: 800-638-8299
Address: 11921 Rockville Pike Ste 300
Rockville, MD 20852
Phone: 800-638-8299
Toll Free Phone: 866-300-2900
Eligibility: Kidney patients and health care professionals.
Services Provided: Provides health information, education, financial assistance, advocacy and resource referrals for patients and health care professionals. Programs for children include summer enrichment activities and the annual Calendar Kids Art Contest. FInancial assistance includes:
Health Insurance Premium Program (HIPP)
Safety Net grants
Disaster relief grants
Grants for children
Prescription drug resources
Provider Profiles: Internet Information Resource
Original Source:
Last Updated: 9/5/2018
P.O. Box 3355
Gettysburg, PA 17325
Phone: 717-334-7992
Address: P.O. Box 3355
Gettysburg, PA 17325
Phone: 717-334-7992
Services Provided: Families and professionals committed to educating, empowering, and supporting parents and families of children who are deaf or hard-of-hearing. Helps find meaningful communication options, particularly through the competent use of sign language, in their home, school, or community.
Original Source:
Last Updated: 7/17/2018
1 East 33rd Street, 4th Floor
New York, NY 10016
Phone: 888-772-9050
Address: 1 East 33rd Street, 4th Floor
New York, NY 10016
Phone: 888-772-9050
Toll Free Phone: 888-288-4762
Eligibility: People with autism, their families and caregivers.
Services Provided: Provides the latest autism science and information; funding research into the causes, prevention, treatments and a cure for autism; awareness of autism spectrum disorders; and advocating for the needs of individuals with autism and their families.
Original Source:
Last Updated: 9/18/2018
Address: 275 Seventh Avenue
New York, NY 10001
Phone: 212-712-8400
Toll Free Phone: 800-813-4673
Fax: 212-712-8495
Eligibility: Cancer patients, survivors and caregivers. Liimited grants for certain expenses related to cancer treatment.
Services Provided: Provides online, telephone and in-person counseling, support groups, educational workshops, publications, financial and co-payment assistance. All services are provided by oncology social workers and world-leading cancer experts.
Original Source:
Last Updated: 3/7/2018
Organization Name: Cornelia de Lange Syndrome Foundation
Address: 302 West Main Street #100
Avon, CT 06001
Phone: 860-676-8166
Toll Free Phone: 800-753-2357
Services Provided: A family support organization that exists to ensure early and accurate diagnosis of CdLS, promote research into the causes and manifestations of the syndrome, and help people with a diagnosis of CdLS, and others with similar characteristics, make informed decisions throughout their lives. Toll free help lines, Ask the Expert emails, Connect with a Family, and more.
Provider Profiles: M - F 8:30 - 5 ET
Original Source:
Last Updated: 8/14/2018
733 Third Ave Ste 510
New York, NY 10017
Phone: 800-932-2423
Address: 733 Third Ave Ste 510
New York, NY 10017
Phone: 800-932-2423
Eligibility: Crohn's and Colitis patients, their families and medical professionals.
Services Provided: Funds research studies at major medical institutions, nurtures investigators at the early stages of their careers, finances underdeveloped areas of research, and provides educational workshops and programs related to Crohn's Disease and colitis. Provides online and telephone access to disease educational materials, support groups, physician referrals and other resources.
Original Source:
Last Updated: 9/11/2018
8301 Professional Place East Ste 200
Hyattsville, MD 20785-2353
Phone: 866-748-8008
Address: 8301 Professional Place East Ste 200
Hyattsville, MD 20785-2353
Phone: 866-748-8008
Toll Free Phone: 800-332-1000
Fax: 301-459-1569
Email: ContactUs@efa.org
Languages Spoken: Spanish
Eligibility: Individuals with epilepsy, their families and friends.
Services Provided: Provides information, advocacy, and assistance finding doctors, legal assistance, support groups and transportation reimbursement. Learn about epilepsy, types of seizures, triggers, diagnosis, treatment, etc. Offers a seizure diary app self-management tool.
Provider Profiles: Spanish Speakers Phone number: 866-748-8008
Original Source:
Last Updated: 7/17/2018
Organization Name: The 5p- (five p minus) Society
Address: 6229 Eckleson Street
Lakewood, CA 90713
Phone: 888-970-0777
Toll Free Phone: 888-970-0777
Fax: 562-920-5240
Eligibility: Parents and health care providers of children with Cri Du Chat syndrome.
Services Provided: Provides information, communication, and support groups to families having a child with 5P- Syndrome and to spread awareness and education to the families and their service providers. This syndrome is a chromosomal deletion disorder that results in intellectual and developmental issues in children.
Original Source:
Last Updated: 8/29/2018
4301 Connecticut Avenue NW - Suite 404
Washington, DC 20008
Phone: 202-966-5557
Address: 4301 Connecticut Avenue NW - Suite 404
Washington, DC 20008
Phone: 202-966-5557
Fax: 202-966-8553
Services Provided: A partnership of self-help groups and professionals, Genetic Alliance has developed a series of programs designed to increase the visibility of genetics and advocacy, establish strong networks and advance important campaigns, including community-based family history. Current programs include: Advocacy ATLAS, Community Centered Family Health History, Consumer Focused Newborn Screening, and Access to Credible Genetics Resources Network
Original Source:
Last Updated: 12/18/2017
2350 West Higgins Road
Hoffman Estates, IL 60169
Phone: 847-885-6147
Organization Name: Down Syndrome Achievement Centers
Address: 2350 West Higgins Road
Hoffman Estates, IL 60169
Phone: 847-885-6147
Email: info@gigisplayhouse.org
Eligibility: Individuals with Down syndrome, their families and the community
Services Provided: Through national campaigns, educational programs, and by empowering individuals with Down syndrome, their families and the community, we offer free therapeutic and educational programming to individuals with Down syndrome and their families. At GiGi’s Playhouse families are never alone. From a prenatal diagnosis to career skills, we make a lifetime commitment to remain by their side. Families are empowered with all the tools their child needs to succeed!
Original Source:
Last Updated: 7/17/2018
KDES PAS-6, 800 Florida Ave, NE
Washington, DC 20002-3695
Phone: 202-651-5051
Organization Name: Gallaudet University
Address: KDES PAS-6, 800 Florida Ave, NE
Washington, DC 20002-3695
Phone: 202-651-5051
TDD: 202-651-5052
Fax: 202-651-5054
Services Provided: Responds to inquiries about a diverse range of topics related to deaf and hard-of-hearing children from infancy to age 21.
Original Source:
Last Updated: 7/16/2018
400 Hamilton Ave. Suite 340
Palo Alto, CA 94301
Phone: 650-497-8365
Address: 400 Hamilton Ave. Suite 340
Palo Alto, CA 94301
Phone: 650-497-8365
Services Provided: Dedicated exclusively to the promotion and protection of children's health through fundraising, grantmaking and providing an informed perspective. Packard Children’s Hospital and Stanford School of Medicine supports clinical care, research, and education to improve the health of children and expectant mothers, locally and worldwide. Programs include Improving Systems of Care for Children with Special Health Care Needs and Elevating the Societal Priority of Children, providing wide-ranging, up-to-date data and research by tracking the status of California's children over time through its website, www.kidsdata.org.
Original Source:
Last Updated: 2/21/2018
Organization Name: Bateman Horne Center of Excellance
Address: 24 South 1100 East, Suite 205
Salt Lake City, UT 84102
Phone: 801-328-8080
Fax: 1-866-555-1122
Email: support@batemanhornecenter.org
Eligibility: None
Wheelchair Accessible: Complete
Services Provided: Leading the way in the medical advancement and treatment of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and Fibromyalgia. Formerly the Fatigue Consultation Clinic (FCC) and the Organization for Fatigue & Fibromyalgia Education & Research (OFFER), BHC been committed to the education of medical providers for more than 25 years.
Provider Profiles: Lucinda Bateman M.D.
Original Source:
Last Updated: 11/14/2018
Address: 222 S Riverside Plaza, Suite 1500
Chicago, IL 60606
Phone: 800-572-1717
Email: ResourceCenter@mdausa.org
Services Provided: Support services, resources, transitional services, information resources for all aspects of living with muscular dystrophy. A web-based locator to find local services and summer camps in many states.
Original Source:
Last Updated: 8/27/2018
Address: 220 N Green Street
Chicago, IL 60607
Phone: 630-557-1330
Eligibility: Eating disorders
Services Provided: Provides online research, educational forums, support groups, professional resources and current information on treatment and prevention of eating disorders. Services include ANAD recovery mentorship, ANAD support groups, ANAD annual conference, and ANAD YouTube recovery channel.
Original Source:
Last Updated: 8/1/2018
8630 Fenton St, Suite 820
Silver Spring, MD 20910-3819
Phone: 301-587-1788
Address: 8630 Fenton St, Suite 820
Silver Spring, MD 20910-3819
Phone: 301-587-1788
TDD: 301-587-1789
Fax: 301-587-1791
Eligibility: deaf and hard of hearing
Services Provided: Safeguards the civil rights of deaf and hard of hearing Americans. As a national federation of state associations, individual members, and organizational and corporate affiliates, the advocacy work includes accessibility, education, employment, healthcare, mental health, rehabilitation, technology, telecommunications, and transportation. Website features advocacy information and resources.
Provider Profiles: NAD Youth Leadership Camp (YLC) is a four-week intensive educational program for high school students. Camp Taloali, Stayton, Oregon.
Original Source:
Last Updated: 8/1/2018
55 Chapel Street, Ste 200
Newton, MA 02458
Phone: 617-924-9997
Address: 55 Chapel Street, Ste 200
Newton, MA 02458
Phone: 617-924-9997
Fax: 617-924-9998
Eligibility: Anyone interested in brain tumor research, treatment or funding opportunities.
Services Provided: Finding better treatments, and ultimately a cure, for people living with a brain tumor today and anyone who will be diagnosed tomorrow.
Original Source:
Last Updated: 4/5/2018
Address: 30 East 33rd Street
New York, NY 10016
Phone: 800-622-9010
Toll Free Phone: 800-622-9010
Services Provided: The National Kidney Foundation is the leading organization in the U.S. dedicated to the awareness, prevention and treatment of kidney disease. Information about kidney disease. A peer mentor support program. Self management app for food choices.
Original Source:
Last Updated: 7/17/2018
Organization Name: Substance Abuse and Mental Health Services Administration (SAMHSA)
Address: 1 Choke Cherry Road
Rockville, MD 20857
Phone: 800-662-4357
Eligibility: For users of mental health services and their families, the general public, policy makers, providers, and the media.
Services Provided: The Center for Mental Health Services, within SAMHSA, leads Federal efforts to improve prevention and mental health treatment services for all Americans.
Information Center staff members are skilled at listening and responding to questions from the public and professionals. The staff quickly directs callers to Federal, State, and local organizations dedicated to treating and preventing mental illness. The Information Center also has extensive online and print publications, and information on Federal grants, conferences, and other events.
Provider Profiles: Use the locator website to filter your search: adolescent, substance, payment/insurance accepted, emergency, etc.
Original Source:
Last Updated: 8/1/2018
PO Box 521618
Salt Lake City, UT 84152
Phone: 385-645-4626
Address: PO Box 521618
Salt Lake City, UT 84152
Phone: 385-645-4626
Eligibility: Cancer patients
Services Provided: Provides financial assistance grants and online educational materials / workshops for cancer patients. Financial assistance is for non-medical expenses, such as transportation, rent and other living costs. Does not provide medical advice, diagnosis or treatment.
Original Source:
Last Updated: 9/6/2018
Address: 8161 Normandale Blvd.
Bloomington, MN 55437
Phone: 952-838-9000
Toll Free Phone: 800-537-2237
Services Provided: Champions for children with disabilities, Parent Advocacy Coalition for Educational Rights, PACER Center expands opportunities and enhances the quality of life of children and young adults with disabilities and their families. PACER is staffed primarily by parents of children with disabilities and works in coalition with 18 disability organizations. A significant Learning Center, Resources, and specifically for Students and Young Adults.
Original Source:
Last Updated: 8/2/2018
1500 Rosecrans Avenue, Suite 200
Manhattan Beach, CA 90266
Phone: 310-725-0025
Address: 1500 Rosecrans Avenue, Suite 200
Manhattan Beach, CA 90266
Phone: 310-725-0025
Toll Free Phone: 877-573-9971
Fax: 310-725-0029
Eligibility: Cancer patients, survivors, and their families
Services Provided: Provides research, patient support, community outreach and government advocacy. Raises money for direct private funding of research. Supports individuals and communities all across the country in working together to raise awareness and funds to develop more effective treatment options for better patient outcomes. We create a sense of hope and community so no one has to face pancreatic cancer alone.
Original Source:
Last Updated: 3/28/2018
Address: 4600 Devitt Drive
Cincinnati, OH 45246
Phone: 800-818-7388
Toll Free Phone: 800-818-7388
Email: admin@rettsyndrome.org
Services Provided: An organization comprised of parents and friends of those diagnosed with Rett syndrome, providing the latest medical information, aggressively funding the most promising research, offering meaningful support, raising public awareness and advocating for all living with Rett syndrome. Lists resources and clinics by state, national resources, and clinical trials. Resources include: Care Guides, Communication, Adaptive Equipment and Funding, School and Day Programs, Adolescence, Planning for the Future.
Original Source:
Last Updated: 8/23/2018
1825 K Street NW, Suite 1200
Washington, DC 20006
Phone: 301-565-3842
Address: 1825 K Street NW, Suite 1200
Washington, DC 20006
Phone: 301-565-3842
Toll Free Phone: 800-433-5255
Fax: 301-565-3843
Eligibility: developmental disabilities
Services Provided: A national organization of and for people with developmental disabilities and their families. Website provides information about public policy; insurance products information; publications; discussion groups; employment registry; and links to local chapters and related organizations.
Original Source:
Last Updated: 7/17/2018