Disability Awareness Programs

Voluntary health organizations committed to empowering and enhancing the lives of individuals with disability/diagnosis-specific conditions and their families through support and public awareness. Programs that offer workshops, discussion groups, activities and other types of training that sensitize participants to people with disabilities, help them experience what it is like to have a disability, and share techniques for positive communication and interaction with people who have disabilities. (AIRS PH-6200.1850)

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UT

Statewide

Address:
UT
Services Provided: Promoting the use of spoken language by children and adults with hearing loss. Advocacy, publications, financial aid, scholarships, numerous programs and services.
Support group.
Source: Medical Home Portal
Last Updated: 4/23/2020
2460 West 26th Avenue, Suite 500-C
Denver, CO 80211
Phone: 720-855-1102
Address:
2460 West 26th Avenue, Suite 500-C
Denver, CO 80211
Phone: 720-855-1102
Email: ADARockyMtn@diabetes.org
Eligibility: No restrictions
Services Provided: Works to prevent and cure diabetes and improve the lives of all people affected by the disease.
Provider Profiles: Region includes Colorado, Montana, Utah and Wyoming.
Source: United Way 2-1-1
Last Updated: 2/20/2020
Address:
465 South 400 East Ste 110
Salt Lake City, UT 84111
Phone: 801-702-4420
Toll Free Phone: 800-242-8721
Fax: 801-532-2101
Wheelchair Access: Complete
Eligibility: Open to everyone.
Services Provided: Advances groundbreaking medical research, spreads lifesaving knowledge, and reaches out to people of all ages about cardiovascular disease and stroke.
Source: United Way 2-1-1
Last Updated: 7/9/2019
780 South Guardsman Way
c/o Pingree Center for Autism Learning
Salt Lake City, UT 84108
Phone: 801-272-1051
Address:
780 South Guardsman Way
c/o Pingree Center for Autism Learning
Salt Lake City, UT 84108
Phone: 801-272-1051
Email: autismcouncilofutah@gmail.com
Eligibility: Open to all. No membership fees.
Services Provided: An independent council working to foster collaboration, communication, and learning among families and agencies, aiming to promote access to resources and responsible information for individuals of all ages who have, or are affected by autism, or related conditions.
Provider Profiles: Internet resources, use search to find local resources.

Supporting International Meeting for Autism Research (IMFAR)
Source: United Way 2-1-1
Last Updated: 10/31/2019
44 N. Mario Capecchi Drive
PO 144610
Salt Lake City, UT 84114-4610
Phone: 801-584-8455
Organization Name: CSHCN Bureau, Utah Department of Health
(Show others in Organization)
Address:
44 N. Mario Capecchi Drive
PO 144610
Salt Lake City, UT 84114-4610
Phone: 801-584-8455
Toll Free Phone: 800-829-8200
Email: ckingsbury@utah.gov
Eligibility: Autism, reside in Utah
Services Provided: Through the Autism Systems Development Program, the CSHCN Bureau provides leadership that brings together many of the agencies and advocates who influence the statewide system of services for children with autism spectrum disorder (ASD) and their families.

The program has four components: Utah Autism Initiative (UAI), Utah Registry of Autism and Developmental Disabilities (URADD), Data System Integration, and ASD Resource Management. The ASDP:
- Refers individuals with ASD to services for evaluation and treatment
- Refers to care coordination programs
- Updates ASD diagnostic providers list
- Updates ASD treatment resources list
- Expands previously conducted ASD services survey to assess service needs and identify
barriers for care across Utah
- Compiles annual report summarizing ASD needs in Utah
Provider Profiles: Colin Kingsbury, Program Manager
M - F 8 - 5
Statewide
Source: Medical Home Portal
Last Updated: 11/5/2019
205 North 400 West
Community Legal Center
Salt Lake City, UT 84103
Phone: 800-662-9080
Address:
205 North 400 West
Community Legal Center
Salt Lake City, UT 84103
Phone: 800-662-9080
TDD: 800-550-4182
Toll Free Phone: 800-662-9080
Fax: 801-363-1437
Wheelchair Access: Complete
Eligibility: Must have a disability, in Utah.
Services Provided: The Disability Law Center (DLC) is a private and nonprofit organization working to enforce and strengthen laws that protect the opportunities, choices and legal rights of Utahns with disabilities. The focus is disability discrimination, and areas related to disability where it provides information. Does not provide assistance with filing for disability benefits, personal injury, family law, guardianship, or evictions.
Source: United Way 2-1-1
Last Updated: 12/4/2019
231 East 400 South Suite 360
Salt Lake City, UT 84111
Phone: 801-685-8214
Address:
231 East 400 South Suite 360
Salt Lake City, UT 84111
Phone: 801-685-8214
Fax: 801-665-1334
Email: dracslc@earthlink.net
Wheelchair Access: Complete
Services Provided: Works to establish equal rights for people with disabilities through enforcement of federal and state laws. DRAC advocates for legislative action and other measures to improve these rights, with an emphasis on fair housing, accessible transportation, and community-based care. DRAC is a case management provider for the New Choices Waiver (NCW) program sponsored by the Utah Department of Health.
Provider Profiles: ADAPT/Utah chapter partners with ADAPT National.
Source: Help Me Grow Utah via United Way 2-1-1
Last Updated: 2/28/2020
Address:
Salt Lake City, UT
Services Provided: Supported by University Health Care, this nonprofit organization provides support and services to individuals, in the Intermountain West, with PKU and related disorders. Allied disorders include homocystinuria, maple syrup urine disease, organic acidemias, tyrosinemia, urea cycle disorders, and a host of other inborn metabolic errors.
Source: Medical Home Portal
Last Updated: 3/23/2020
PO Box 900726
Sandy, UT 84090
Phone: 801-553-9156
Address:
PO Box 900726
Sandy, UT 84090
Phone: 801-553-9156
Email: contact@ldau.org
Wheelchair Access: Complete
Eligibility: Anyone looking for resources for learning disabilities (testing, tutoring, disability lawyers, education and support, rehabilitation services).
Services Provided: The Learning Disabilities Association of Utah supports, informs, and empowers individuals with learning disabilities and the people who work with them. Does not provide direct services; provides referrals and lobbies/advocates on a state level. Resources in Utah include: Private testing, Educational Assessment, Tutoring, Disability Lawyer, Support for Parents, Mental Health, Therapeutic Services, Utah State Services. A page on IEPs and 504s, and on Assistive Technology
Source: United Way 2-1-1
Last Updated: 7/2/2019
Address:
310 East 4500 South, Ste 240
Murray, UT 84107
Phone: 801-281-6618
Toll Free Phone: 877-243-8908
Fax: 801-281-6659
Wheelchair Access: Complete
Eligibility: Patients, survivors, their families, and individuals and organizations affected by all blood cancers.
Services Provided: Funds lifesaving blood cancer research around the world and provides free information and support services. The Utah Chapter serves residents who have been touched by one of the blood cancers: leukemia, lymphoma and myeloma.
Source: United Way 2-1-1
Last Updated: 6/27/2019
Address:
1600 West 2200 South Ste 202
West Valley City, UT 84119
Phone: 877-230-6264
Toll Free Phone: 877-230-6264
Fax: 801-323-9799
Wheelchair Access: Complete
Eligibility: Open to the public, for individuals living with mental illness
Services Provided: NAMI Utah represents the State's voice on mental illness ensuring the dignity and improving the lives of those who live with mental illness and their families through support, education and advocacy.
Credentialed Family Resource Facilitators provide assistance to families and youth in accessing appropriate mental health services within their communities. Thirteen affiliate offices including Salt Lake, Utah County, Southwest, Cache Valley, Davis.
PROGRESSION support group--for youth 15 - 20ish with any type of mental health diagnosis (anxiety, ADHD, depression) taught by a young adult, free, statewide.
CONNECTIONS Program is a free 12-week course that brings together people who share the experience and knowledge of mental illness to empower each other.
NAMI mental health advocate, for courts and elsewhere
Provider Profiles: mental health advocate
Statewide programming
Source: United Way 2-1-1
Last Updated: 11/26/2019
Address:
250 North 1950 West Ste B
Salt Lake City, UT 84116
Phone: 801-463-6632
Crisis Line: 801-463-6632
Toll Free Phone: 888-292-3007
Fax: 801-294-6000
Email: nfbofutah@gmail.com
Wheelchair Access: Complete
Eligibility: Blind, parents of blind children, and newly blind persons.
Services Provided: Provides educational information, literature, community outreach, advocacy and referral services to the blind, parents of blind children, and newly blind persons.
Since 1957, the Federation’s purpose is to help blind people achieve self-confidence, self-respect, and self-determination. Monthly gatherings. Transition age program, Project STRIVE.
Provider Profiles: NFB of Utah has 5 chapters located in St. George, Utah County, Salt Lake, Weber/Davis, and Logan; as well as 3 divisions that work specifically with students, seniors, and parents of blind children.
President Everette Bacon
Source: United Way 2-1-1
Last Updated: 11/13/2019
Address:
3707 North Canyon Road, Ste. 1D
Provo, UT 84604
Phone: 801-226-5111
Toll Free Phone: 800-869-5277
Fax: 801-226-8278
Wheelchair Access: Complete
Eligibility: Patient programs restricted to kidney patients and their families, otherwise, no restrictions.
Services Provided: Works to prevent kidney and urinary tract diseases, improve the health and wellbeing of individuals and families affected by these diseases, and increase the availability of all organs for transplantation.
Camp Kostopulos summer camp, Salt Lake City, for children and teens who have undergone heart, liver, lung, or kidney transplants.
Aspen Grove Family Kidney Kamp at the base of Mount Timpanogos.
Source: Medical Home Portal
Last Updated: 8/27/2018
250 East 500 South
P.O. Box 144200
Salt Lake City, UT 84114-4200
Phone: 801-538-7587
Organization Name: Utah State Board of Education
(Show others in Organization)
Address:
250 East 500 South
P.O. Box 144200
Salt Lake City, UT 84114-4200
Phone: 801-538-7587
Fax: 801-538-7991
Eligibility: Identified students ages 3 - 22 in Utah schools to comply with the requirements outlined in the Individuals with Disabilities Education Act (IDEA) 2004.
Services Provided: Support and services for students with disabilities, ages 3-22; assessment, instructional support, and transition services; links to community organizations and school districts; and information about school rules and reports, events, and services.
Provider Profiles: Utah's Transition Action Guide for Students with Disabilities: http://health.utah.gov/cshcn/pdf/IntSrv/Transition%20Action%20Guide.pdf
Source: Medical Home Portal
Last Updated: 1/8/2020
1709 Princeton Ave
Salt Lake City, UT 84108
Phone: 801-722-5363
Address:
1709 Princeton Ave
Salt Lake City, UT 84108
Phone: 801-722-5363
Email: Utah.taa@gmail.com
Eligibility: Children with Tourette Syndrome and their families
Services Provided: A nonprofit, volunteer-led organization that provides support and resources to individuals and families affected by Tourette Syndrome.
Utah County Support Group Meetings
Salt Lake County Support Group Meetings
Adult Support Group Meetings
Youth Ambassador Program
Education In-Service
TAA Center of Excellence - University of Utah
Provider Profiles: Heather Allred, Chairperson
Source: United Way 2-1-1
Last Updated: 1/27/2020
Address:
1408 South 1100 East
Salt Lake City, UT 84105
Phone: 800-865-5004
Toll Free Phone: 800-FON-AIDS
Fax: 801-486-3978
Email: stan.penfold@utahaids.org
Wheelchair Access: Entry and Bathroom(s)
Eligibility: Case managers will refer clients to statewide locations of HIV testing, resource referrals to physicians, attorneys, dentists, mental health professionals, and medical services; limited crisis intervention; mailings of AIDS-related materials.
Services Provided: Offers assistance and expertise to anyone struggling with the complex issues that surround HIV. Works with community members to form partnerships that mend health, promote compassion, and extend companionship to everyone who has been affected by HIV. Also aims to reduce new occurrences of HIV and Sexually Transmitted Infections in the community through prevention, education, and outreach services.
Source: United Way 2-1-1
Last Updated: 1/9/2020
Organization Name: Utah Department of Health
(Show others in Organization)
Address:
288 North 1460 West
PO Box 142107
Salt Lake City, UT 84114-2107
Phone: 801-538-6894
Fax: 801-538-9495
Wheelchair Access: Complete
Languages Spoken: Spanish
Eligibility: No charge, no health insurance required
Services Provided: Provides comprehensive asthma care by ensuring availability of and access to guidelines-based medical management and pharmacotherapy for all Utahns with asthma, and to link those with poorly controlled asthma to individualized services.
Utah Asthma Home Visiting Program for individuals with asthma living in Salt Lake and Utah Counties.
Prescription Assistance Program for Patients with Asthma http://health.utah.gov/asthma/basics/rxassist.html
Provider Profiles: Nichole Shepard, MPH - Program Manager
Kellie Baxter, Health Program Specialist
Holly Uphold, PhD - Epidemiologist
Janae Letterman, BS CHES - Program Coordinator
Source: Medical Home Portal
Last Updated: 1/8/2020
44 N Mario Capecchi Drive
PO Box 144610
Salt Lake City, UT 84113-4610
Organization Name: Autism Council of Utah; CSHCN, Utah Department of Health
(Show others in Organization)
Address:
44 N Mario Capecchi Drive
PO Box 144610
Salt Lake City, UT 84113-4610
Email: utahautismcoalition@gmail.com
Services Provided: The Utah Autism Initiative (UAI) committee is a state inter-agency advisory panel of experts in the field of ASD-related research and treatment. UAI is formed solely to benefit the citizens of Utah affected by or having an interest in ASD. The UAI maintains no commercial interests whatsoever in any party outside the membership of the UAI.
Provider Profiles: For questions, please contact Colin Kingsbury, Autism Systems Coordinator
with the Bureau of Children with Special Health Care Needs.

Meetings are quarterly.
Source: Medical Home Portal
Last Updated: 5/14/2019
288 North 1460 West
Salt Lake City, UT 84116
Phone: 888-222-2542
Organization Name: Utah Department of Health
(Show others in Organization)
Address:
288 North 1460 West
Salt Lake City, UT 84116
Phone: 888-222-2542
Wheelchair Access: Complete
Eligibility: Ages 18 and older
Services Provided: Increases participation in programs proven to help people with arthritis and other chronic conditions. Programs include Arthritis Foundation Exercise Program, EnhanceFitness, Walk With Ease, Living Well with Chronic Conditions, and Living Well with Diabetes.
Source: United Way 2-1-1
Last Updated: 9/4/2018
230 West 200 South, Suite 1101
PO Box 144610
Salt Lake City, UT 84101
Phone: 801-272-1067
Address:
230 West 200 South, Suite 1101
PO Box 144610
Salt Lake City, UT 84101
Phone: 801-272-1067
Toll Free Phone: 844-838-8275
Fax: 801-272-8907
Email: info@utahfamilyvoices.org
Eligibility: For Utah families with a child or youth with a physical, mental or developmental special need. For Utah families with a child or youth with a physical, mental or developmental special need. Anyone can access the materials on the website. Anyone can access the materials on the website. Anyone can access the materials on the website.
Services Provided: Family Voices provides one-on-one help to achieve family-centered care for all children and youth with special health care needs and/or disabilities. Through their national network, they provide families tools to make informed decisions, advocate for improved public and private policies, build partnerships among professionals and families and serve as a trusted resource on health care.
Immigration toolkit, national Family Voices
Provider Profiles: 1-844-838-8275
The Family to Family network (FtoFN) is a statewide parent support network run by volunteers.
Funded in part by the Maternal and Child Health Bureau.
Source: United Way 2-1-1
Last Updated: 6/5/2019
Organization Name: Utah State Division of Rehabilitation (USOR)
(Show others in Organization)
Address:
Salt Lake City, UT
Eligibility: Utah, disability, all ages
Services Provided: Utah SILC is a nonprofit planning and advocacy council, working with USOR and ILCs to develop the state plan for Independent Living Centers (ILCs). ILCs are non-residential, community-based, cross-disability organizations.
Funding for assistive technology may be available to help with assistive technology, ramps, modifications, etc. for eligible individuals. Money is appropriated every July. Due to the volume of requests, families and individuals may be put on a waiting list until additional funding is allocated.
Provider Profiles: ILCs in Utah: Ability 1st (First) (1), Active Re-Entry (5), Options for Independence (2), Red Rock Center for Independence (RRCI) (1), Roads to Independence (1), Utah Independent Living Center (1)
Source: Medical Home Portal
Last Updated: 11/18/2019

American Fork, UT

895 North 900 East
American Fork, UT 84003
Phone: 801-763-4008
Address:
895 North 900 East
American Fork, UT 84003
Phone: 801-763-4008
Fax: 801-763-4214
Eligibility: Anyone interested in the welfare of individuals and families who deal with mental disabilities and/or developmental disabilities.
Services Provided: 1. Establish and coordinate volunteer activities
2. Furnish information, referral, education, newsletters, conferences
3. Promote people-first concepts
4. Help families with guardianship information forms
Source: Medical Home Portal
Last Updated: 12/19/2019

Brigham City, UT

Organization Name: Options for Independence - Logan
(Show others in Organization)
Address:
118 East 100 North
Brigham City, UT 84302
Phone: 435-723-2171
Fax: 435-723-9618
Wheelchair Access: Complete
Eligibility: Person must have a disability that impairs activities of daily living and expectation that services with be beneficial. Box Elder, Cache, and Rich counties.
Services Provided: Provides services to individuals with disabilities, facilitates their full participation in the community, and raises the understanding of disability issues and access to the community.
Source: United Way 2-1-1
Last Updated: 8/29/2018

Clearfield, UT

Address:
1139 South State Street Suite A1
Clearfield, UT 84015
Phone: 801-825-4535
Fax: 801-825-8281
Wheelchair Access: Complete
Eligibility: Adults, children, and families with traumatic brain injuries and other challenging disabilities
Services Provided: Provides a full range of services: employment services, host home, new choices, resource facilitation, supported employment, supported living.
Provider Profiles: Works with Brain Injury Alliance of Utah
Source: United Way 2-1-1
Last Updated: 6/27/2019

Heber City, UT

Organization Name: Planned Parenthood Association of Utah
(Show others in Organization)
Address:
728 West 100 South Ste 1
P.O. Box 682188
Heber City, UT 84032
Phone: 435-649-5989
Toll Free Phone: 800-230-7526
Fax: 435-654-4067
Services Provided: Provides a full range of professional, personalized, confidential reproductive health care services for women, men, and teens regardless of age or income.
Source: Medical Home Portal
Last Updated: 2/13/2020

Holladay, UT

4900 South Highland Drive Ste B
Mountain America Credit Union Bldg
Holladay, UT 84117
Phone: 801-254-5524
Address:
4900 South Highland Drive Ste B
Mountain America Credit Union Bldg
Holladay, UT 84117
Phone: 801-254-5524
Fax: 801-733-4857
Email: info@komenutah.org
Eligibility: No restrictions, breast cancer
Services Provided: Seeks to improve breast cancer survivorship and prevention through screening, treatment, research, special events, advocacy, and support services. Also provides funding for organizations that aim to fill the gaps in care for women as they relate to breast cancer. Grants are for screening, treatment, treatment support, and education.
Source: United Way 2-1-1
Last Updated: 12/2/2019

Layton, UT

471 Heritage Park Boulevard, Suite 4
Layton, UT 84041
Phone: 801-784-7429
Organization Name: GiGi's Playhouse - Down Syndrome Achievment Centers
(Show others in Organization)
Address:
471 Heritage Park Boulevard, Suite 4
Layton, UT 84041
Phone: 801-784-7429
Email: layton@gigisplayhouse.org
Eligibility: Free
Services Provided: GiGi’s Playhouse Layton provides resources, specialized teaching, and support to individuals with Down syndrome, their families and the community. All of our programs are free to our families and are therapeutic in nature. Each of them are designed to work on specific skill development in several areas including speech and language, social development, and fine and gross motor skills.
Provider Profiles: Over 30 locations across the United States and Mexico and 200 inquiries to start new locations all over the world.
Source: Medical Home Portal
Last Updated: 9/25/2019

Lehi, UT

Address:
Lehi, UT 84043
Phone: 801-566-5949
Wheelchair Access: Complete
Eligibility: Epilepsy patients and their families.
Services Provided: Provides awareness, education, support services, and advocacy for and in behalf of all those dealing with the many challenges of epilepsy/seizure disorders. A yearly summer camp for youth.
Source: United Way 2-1-1
Last Updated: 7/9/2019

Logan, UT

0101 Old Main Hill
Utah State University
Logan, UT 84322-0101
Phone: 435-797-2444
Organization Name: Utah State University
(Show others in Organization)
Address:
0101 Old Main Hill
Utah State University
Logan, UT 84322-0101
Phone: 435-797-2444
Toll Free Phone: 800-259-2966
Services Provided: Provide qualified persons with disabilities equal access to University programs, services and activities as required by the Americans with Disabilities Act and Rehabilitation Act of 1973.
Source: Medical Home Portal
Last Updated: 10/30/2019
6800 Old Main Hill
Logan, UT 84322-6800
Phone: 435-797-1981
Organization Name: Center for Persons with Disabilities
(Show others in Organization)
Address:
6800 Old Main Hill
Logan, UT 84322-6800
Phone: 435-797-1981
Services Provided: Improves the lives of people with disabilities by supporting training for consumers and agency personnel. Three focii: areas where there are gaps in training already offered within the state; coordinated training across agencies; innovative training. Training for persons with disabilities, educators, families, service providers.
Source: Medical Home Portal
Last Updated: 12/19/2019
Address:
106 East 1120 North
Logan, UT 84341
Phone: 435-753-5353
TDD: 435-753-5353
Fax: 435-753-5390
Wheelchair Access: Complete
Eligibility: All people of all ages who experience a physical, sensory, cognitive or mental disability are invited to participate in center activities. Eligibility for some opportunities is based on economic need.
Services Provided: A nonresidential Independent Living Center where people with disabilities can learn skills to gain more control and independence over their lives.
Source: United Way 2-1-1
Last Updated: 6/17/2019
Organization Name: Planned Parenthood Association of Utah
(Show others in Organization)
Address:
550 North Main Street Ste 117
Clock Tower Plaza
Logan, UT 84321
Phone: 800-230-7526
Toll Free Phone: 800-627-9558
Fax: 435-753-1684
Services Provided: Provide a full range of reproductive health care services for women, men, and teens regardless of age or income.
Source: Medical Home Portal
Last Updated: 9/14/2016

Moab, UT

Organization Name: Active Re-entry Independent Living Center - Price
(Show others in Organization)
Address:
182 North 500 West
Moab, UT 84532
Phone: 435-259-0245
Fax: 435-295-0244
Email: jallred@arecil.org
Wheelchair Access: Complete
Eligibility: Person must have a disability that impairs activities of daily living and expectation that services with be beneficial.
Services Provided: A community-based program which assists individuals with disabilities to achieve or maintain self-sufficient and productive lives in their own communities. Four core services: systems and individual advocacy, peer support, independent living skills, and training and information referral.
Provider Profiles: USOR Center for Independent Living (CIL)
Source: United Way 2-1-1
Last Updated: 6/27/2019

Ogden, UT

Organization Name: Planned Parenthood Association of Utah
(Show others in Organization)
Address:
4387 Harrison Boulevard Ste D-8
Ogden, UT 84403
Phone: 801-479-7721
Toll Free Phone: 800-230-7526
Fax: 801-479-7723
Wheelchair Access: Complete
Services Provided: Provides a full range of professional, personalized, confidential reproductive health care services for women, men, and teens regardless of age or income.
Source: Medical Home Portal
Last Updated: 9/14/2016
Address:
3355 Washington Boulevard
Ogden, UT 84401
Phone: 801-612-3215
TDD: 801-612-3215
Toll Free Phone: 866-734-5678
Fax: 801-612-3732
Wheelchair Access: Complete
Eligibility: People with physical, cognitive, visual, or other disabilities; all ages.
Services Provided: Provides services that promote and enhance independent living for all people with disabilities, including advocacy for individuals and for systematic changes; assistance obtaining and maintaining assistive technology equipment; independent living skills training; and information and referral for people with disabilities.
Source: United Way 2-1-1
Last Updated: 5/30/2019
195 North 1950 West
PO Box 1293
Ogden, UT 84402
Phone: 801-538-3946
Organization Name: NOFAS Affiliate
(Show others in Organization)
Address:
195 North 1950 West
PO Box 1293
Ogden, UT 84402
Phone: 801-538-3946
Email: pats@weberhs.org
Eligibility: Families dealing with Fetal Alcohol Spectrum Disorders, or anyone else who might be interested.
Services Provided:

The Utah Fetal Alcohol Coalition is a nonprofit organization working to prevent Fetal Alcohol Spectrum Disorders and provide support to those impacted by this disorder. UFAC members provide education on FASD to the public. A support group is offered to family members in Davis County.

Provider Profiles:

Pat Smith, Ogden contact
Lynn Tanner, Counselor, Salt Lake City

Source: Medical Home Portal
Last Updated: 6/9/2020

Orem, UT

Organization Name: Planned Parenthood Association of Utah
(Show others in Organization)
Address:
1086 North 1200 West
Orem, UT 84057
Phone: 801-226-5246
Toll Free Phone: 800-230-7526
Fax: 801-434-7030
Services Provided: Provide a full range of professional, personalized, confidential reproductive health care services for women, men, and teens regardless of age or income.
Source: Medical Home Portal
Last Updated: 9/14/2016

Price, UT

Organization Name: Active Re-entry Independent Living Center - Price
(Show others in Organization)
Address:
10 South Fairgrounds Road
Price, UT 84501
Phone: 435-637-4950
TDD: 435-637-4950
Fax: 435-789-1031
Wheelchair Access: Complete
Eligibility: Person must have a disability that impairs activities of daily living and expectation that services with be beneficial. Uintah, Daggett, Duchesne counties
Services Provided: Community-based program which assists individuals with disabilities to achieve or maintain self-sufficient and productive lives in their own communities. Four core services: systems and individual advocacy, peer support, independent living skills, and training and information referral.
Provider Profiles: USOR Center for Independent Living (CIL)
Source: United Way 2-1-1
Last Updated: 7/1/2019

Salt Lake City, UT

Address:
230 West 200 South Suite 142
Salt Lake City, UT 84101
Phone: 801-433-2595
Toll Free Phone: 877-477-0764
Fax: 801-521-0872
Email: allies@allieswithfamilies.org
Eligibility: Brothers and sisters (ages 7 to 13) of a child with special needs.
Services Provided: Provides emotional support, training, workshops and resource information to families with children with emotional, behavioral, and mental health disabilities such as depression, ADHD, autism, etc.; wellness education and training.
SIbShops (workshops for siblings ages 7 - 13) throughout Utah
Diagnosis-Specific Packets -- diagnosis packets are available for the following diagnoses:
ADHD
Anxiety Disorder
Asperger's Syndrome
Autism
Bipolar Disorder
Childhood Schizophrenia
Conduct Disorder
Depression
Eating Disorders
General Mental Health
Learning Disability
Obsessive Compulsive Disorder
Oppositional Defiant Disorder
Panic Disorder
Post-Traumatic Disorder
Reactive Attachment Disorder
Schizoaffective Disorder
Substance Abuse
Suicide Prevention
Tourette Syndrome
Provider Profiles: Partners with Utah Family Coalition to provide Family Resource Facilitators.
Southern office: 320 East Center Street, Panguitch, UT 84759
Source: United Way 2-1-1
Last Updated: 5/11/2020
375 East 100 South, 1st Floor
Salt Lake City, UT 84111
Phone: 801-493-4700
Address:
375 East 100 South, 1st Floor
Salt Lake City, UT 84111
Phone: 801-493-4700
Toll Free Phone: 800-227-2345
Fax: 801-483-1558
Wheelchair Access: Complete
Eligibility: Individuals with a cancer diagnosis, their family and friends.
Services Provided: Nationwide, community-based, voluntary health organization dedicated to eliminating cancer as a major health problem by preventing cancer, saving lives, and diminishing suffering from cancer through research, education, advocacy, and service.
Source: United Way 2-1-1
Last Updated: 12/11/2019
Address:
3920 South 1100 East Ste 240
Salt Lake City, UT 84124
Phone: 801-484-4456
Toll Free Phone: 800-586-4872
Fax: 801-484-5461
Email: UTInfo@Lungs.org
Wheelchair Access: Not At All
Eligibility: School counselors, nurses, teachers, facilitators, etc.
Services Provided: Offers practical help to people living with asthma, emphysema, and other lung diseases. Also confronts lung disease at the root level by educating children about the dangers of smoking, pushing for more smoke-free workplaces, and working to reduce air pollution.

Camp Wyatt is a week-long summer camp for kids with asthma ages 7-14.
Provider Profiles: Live Well Breathe Well online education for adults with asthma
Source: United Way 2-1-1
Last Updated: 6/5/2019
4424 South 700 East Ste 180
Salt Lake City, UT 84107
Phone: 844-571-4357
Address:
4424 South 700 East Ste 180
Salt Lake City, UT 84107
Phone: 844-571-4357
Toll Free Phone: 888-391-9389
Fax: 801-536-0991
Email: info.utid@arthritis.org
Eligibility: Individuals, family, and healthcare providers for those affected with arthritis. Utah and Idaho.
Services Provided: Arthritis Foundation funds research and provides services including information on arthritis, doctor referral list, a magazine, support groups, self-help classes, videos and exercise classes. A specialized search tool will give access to local services.
Provider Profiles: Internet Resources
Source: United Way 2-1-1
Last Updated: 1/9/2020
455 East 500 South Ste 308
Salt Lake City, UT 84111
Phone: 801-532-2335
Organization Name: Cystic Fibrosis Foundation
(Show others in Organization)
Address:
455 East 500 South Ste 308
Salt Lake City, UT 84111
Phone: 801-532-2335
Fax: 801-364-0237
Eligibility: Cystic Fibrosis patients, their families and care team
Services Provided: A parent driven and administered educational, support, and advocacy site for families of children with cystic fibrosis followed at the Intermountain CF Center.
Cystic Fibrosis Foundation funds research and supports the development of new drugs to fight Cystic Fibrosis to improve the quality of life for those with this condition to ultimately find a cure.
Source: United Way 2-1-1
Last Updated: 6/11/2019
1574 West 1700 South Ste 1-A
Utah State University
Salt Lake City, UT 84104
Phone: 801-973-0129
Organization Name: Utah State University
(Show others in Organization)
Address:
1574 West 1700 South Ste 1-A
Utah State University
Salt Lake City, UT 84104
Phone: 801-973-0129
Fax: 801-973-6964
Email: disabilitysupport@cpdz.usu.edu
Wheelchair Access: Complete
Languages Spoken: Spanish
Eligibility: For individuals with developmental disabilities, their families, and their communities.
Services Provided: Provide information and referral to local disability supports that are beneficial to individuals with developmental delays. Information and referral assistance with completing paperwork for needed supports. Provide a one to one service navigator to assist/advocate for needed supports.
Source: Medical Home Portal
Last Updated: 10/30/2019
4516 South 700 East Ste 160
Salt Lake City, UT 84107
Phone: 801-883-9669
Address:
4516 South 700 East Ste 160
Salt Lake City, UT 84107
Phone: 801-883-9669
Toll Free Phone: 800-332-1000
Fax: 301-459-1569
Email: ContactUs@efa.org
Languages Spoken: Spanish
Eligibility: Individuals with epilepsy, their families and friends.
Services Provided: Provides information, advocacy, and assistance finding doctors, legal assistance, support groups, and transportation reimbursement. Free educational material in English and Spanish.
Source: United Way 2-1-1
Last Updated: 12/10/2019
230 West 200 South Ste 1101
Salt Lake City, UT 84101
Phone: 801-272-1051
Organization Name: Utah Parent Center
(Show others in Organization)
Address:
230 West 200 South Ste 1101
Salt Lake City, UT 84101
Phone: 801-272-1051
Toll Free Phone: 800-468-1160
Fax: 801-272-8907
Email: stephanie@utahparentcenter.org
Eligibility: Must have a disability or a family member who is disabled.
Services Provided: A grassroots volunteer organization supported by the Utah Parent Center. The networks are composed of family members from across the state that have a relative with a disability. Aims to educate, strengthen, and support families of persons with disabilities.
The Networks provide: local monthly meetings, information and referral, family-to-family support, advocacy for families, and information on how to work with the Division of Services for People with Disabilities.
Provider Profiles: Networks located across Utah
Transition Workshops offered through Family to Family Network (F2F)
Stephanie Roach
Source: United Way 2-1-1
Last Updated: 12/19/2019
6715 South 1300 East Ste 250
Salt Lake City, UT 84121
Phone: 801-524-2020
Address:
6715 South 1300 East Ste 250
Salt Lake City, UT 84121
Phone: 801-524-2020
Toll Free Phone: 800-675-5665
Fax: 801-895-7611
Email: vision@friendsforsight.org
Wheelchair Access: Entry and Bathroom(s)
Eligibility: No eligibility requirements for screening only. Screening programs for preschoolers, teens, and seniors. Financial requirements for other free services. Children and teens must be below 200% of the Federal Poverty Level.
Services Provided: Provides comprehensive vision screenings for all ages at health fairs, events and schools for visual acuity and peripheral vision. Screens children for amblyopia (lazy-eye blindness) and adults for glaucoma. Operates a vision clinic located in the Glendale-Mountain View and Liberty Community Learning Centers, a Salt Lake City School District project and SIGHTFEST events with various local school districts for economically disadvantaged students.
Source: United Way 2-1-1
Last Updated: 6/13/2019
132 South 600 East Ste 100
Salt Lake City, UT 84102
Phone: 801-530-0660
Address:
132 South 600 East Ste 100
Salt Lake City, UT 84102
Phone: 801-530-0660
Toll Free Phone: 800-533-2873
Fax: 801-530-0670
Eligibility: None
Services Provided: The leading global organization focused on type 1 diabetes (T1D) research. Driven by passionate, grassroots volunteers connected to children, adolescents, and adults with this disease, JDRF is the largest charitable supporter of T1D research.
Source: United Way 2-1-1
Last Updated: 1/7/2020
Address:
352 South Denver Street Ste 101
Salt Lake City, UT 84111
Phone: 801-364-0366
Toll Free Phone: 800-657-6398
Email: info@utahlupus.org
Eligibility: No restrictions
Services Provided: Improves the quality of life for all people affected by lupus through programs of research, education, support, and advocacy.
Source: United Way 2-1-1
Last Updated: 1/30/2020
670 East 3900 South Ste 105
Salt Lake City, UT 84107
Phone: 801-327-9464
Address:
670 East 3900 South Ste 105
Salt Lake City, UT 84107
Phone: 801-327-9464
Fax: 801-327-9470
Wheelchair Access: Complete
Eligibility: Expectant mothers
Services Provided: Provides services to help mothers have full-term pregnancies and research the problems that threaten the health of babies.
Source: United Way 2-1-1
Last Updated: 12/12/2019
295 Chipeta Way 2S1010
Division of General Pediatrics, Department of Pediatrics
Salt Lake City, UT 84108
Address:
295 Chipeta Way 2S1010
Division of General Pediatrics, Department of Pediatrics
Salt Lake City, UT 84108
Email: info@medicalhomeportal.org
Eligibility: Physicians and parents who care for children and youth with special health care needs.
Services Provided: The Medical Home Portal is a unique source of reliable information about children and youth with special health care needs (CYSHCN), offering a "one-stop shop" for their families, physicians and Medical Home teams, other professionals and caregivers.
Source: United Way 2-1-1
Last Updated: 11/27/2019
Address:
729 South Arapeen Drive
Salt Lake City, UT 84108
Phone: 801-585-2354
Fax: 801-587-8381
Email: rebecca.starks@hsc.utah.edu
Eligibility: People with Parkinson's disease, family, and caregivers.
Services Provided: Helps run Parkinson Disease support groups in the state, holds educational seminars, and coordinates fund-raising events.
Source: United Way 2-1-1
Last Updated: 12/2/2019
Address:
1440 South Foothill Drive Suite 200
Salt Lake City, UT 84108
Phone: 801-424-0113
Toll Free Phone: 800-344-4867
Fax: 801-424-0122
Email: utah.idaho@nmss.org
Wheelchair Access: Complete
Eligibility: Individuals with MS and their families
Services Provided: Provides a wide variety of programs, fundraisers, activities, and services throughout the area to people with MS, their families, and friends.
Source: United Way 2-1-1
Last Updated: 9/26/2019
Address:
116 North 800 West
Salt Lake City, UT 84116
Phone: 801-484-2205
Fax: 801-484-2665
Wheelchair Access: Complete
Eligibility: Open to the public
Services Provided: Provides educational and support services that enhance the quality of life for all people impacted by HIV/AIDS.
Source: Medical Home Portal
Last Updated: 6/4/2018
Organization Name: Planned Parenthood Association of Utah
(Show others in Organization)
Address:
654 South 900 East
Salt Lake City, UT 84102
Phone: 801-322-5571
Toll Free Phone: 800-230-7526
Fax: 801-322-0065
Eligibility: No restrictions
Services Provided: Provides a full range of professional, personalized, confidential reproductive health care services for women, men, and teens regardless of age or income.
Provider Profiles: A number of locations.
Source: Medical Home Portal
Last Updated: 10/10/2017
Address:
654 South 900 East
Salt Lake City, UT 84102
Phone: 801-532-1586
Fax: 801-532-5748
Services Provided: Provides a full range of professional, personalized, confidential reproductive health care services for women, men, and teens regardless of age or income.
Provider Profiles: Salt Lake Clinic, 654 South 900 East, SLC 84102 801 322 5571
Clinics located in West Valley, Salt Lake, South Jordan, Heber, Ogden, St. George, Logan, and Utah Valley
Source: Medical Home Portal
Last Updated: 7/13/2017
3838 South 700 East Ste 100
Salt Lake City, UT 84106
Phone: 801-281-6861
Address:
3838 South 700 East Ste 100
Salt Lake City, UT 84106
Phone: 801-281-6861
Eligibility: Cancer patients
Services Provided: Provides support to cancer patients and their families during diagnosis, treatment and recovery and to enhance their quality of life throughout these stages of the cancer experience.
Source: United Way 2-1-1
Last Updated: 4/20/2020
Address:
250 North 1950 West Rm 246 Ste B
Salt Lake City, UT 84116
Phone: 801-292-1156
Toll Free Phone: 800-273-4569
Fax: 801-292-6046
Email: info@utahcounciloftheblind.org
Wheelchair Access: Complete
Eligibility: Must be legally blind. Membership required for some programs.
Services Provided: Programs to address the challenges faced by Utah's blind and visually impaired.
Here are some of the services and programs we offer:
Personal Braille Program
Ceramic Arts Class
Teacher/Training in home independent living Program
Adaptive Technology and Assistive Technology Training
Reader Program to read important papers, mail and other items
Travel Program to provide assistance and discounted cab fares for members
Presentation Committee for live speaking engagements and assemblies
Orientation and Mobility provided by Teacher/Trainer Teams
Braille: Grade One, Grade Two
Employment Training for Blind Patrons and Resume Building
Source: United Way 2-1-1
Last Updated: 6/13/2019
155 South 300 West Ste 100
Salt Lake City, UT 84101
Phone: 801-245-7350
Organization Name: Utah State Government
(Show others in Organization)
Address:
155 South 300 West Ste 100
Salt Lake City, UT 84101
Phone: 801-245-7350
TDD: 711
Fax: 801-533-3968
Email: uddc@utah.gov
Wheelchair Access: Complete
Eligibility: Persons with developmental disabilities and their families
Services Provided: Provides advocacy, builds capacity, and encourages systems change to support people with developmental and intellectual disabilities and their families to fully and independently participate in their communities.
Source: United Way 2-1-1
Last Updated: 1/21/2020
Address:
PO Box 675
Salt Lake City, UT 84110
Phone: 801-503-5086
Email: info@udsf.org
Eligibility: Individuals and families with Down syndrome.
Services Provided: Provides support, education, activities, outreach and advocacy for individuals with Down syndrome, their parents and families, and the community.
Provides administrative support and funding to various Community Groups throughout the state of Utah: Cache/Box Elder, D.A.D.S., Davis, Salt Lake/Tooele, Southern Utah, Teen/Adult groups, Utah County, Wasatch/Summit, Weber/Morgan.
Source: United Way 2-1-1
Last Updated: 9/10/2019
Address:
1595 West 500 South
Salt Lake City, UT 84104
Phone: 801-887-9392
TDD: 801-538-7530
Fax: 801-887-9389
Wheelchair Access: Complete
Eligibility: Businesses that want information on employing persons with disabilities
Services Provided: Committee dedicated to assist and encourage the hiring of people with disabilities
Source: Medical Home Portal
Last Updated: 3/29/2018
Address:
772 East 3300 South Ste 210
Salt Lake City, UT 84106
Phone: 877-463-6893
Fax: 801-746-2488
Services Provided: Provides education, advocacy, outreach, and networking for people with bleeding disorders. These services empower individuals with bleeding disorders and their families to lead healthier and more self-sufficient lives.
Source: Medical Home Portal
Last Updated: 2/9/2016
2652 E. Nottingham Way
Salt Lake City, UT 84108
Phone: 801-582-0998
Address:
2652 E. Nottingham Way
Salt Lake City, UT 84108
Phone: 801-582-0998
Services Provided: Provides families and professionals with newsletters; conference information; local event information; local services listings; links to support groups for youth, teens, siblings, grandparents and more; and links to other organizations. For more information, contact:
Lisa Thornton (Legal Issues - President, Utah PWSA, 801-582-0998)
Michelle Holbrook (Education Specialist - Utah PWSA, 801-768-8851).
Source: Medical Home Portal
Last Updated: 3/11/2015
Address:
Salt Lake City, UT
Eligibility: Graduate level training, five states include Utah, Idaho, Montana, Wyoming and North Dakota.
Services Provided: Utah Regional LEND is a training program that covers five states and uses state-of-the-art technology to connect groups of trainees across partner states. Professionals are trained to move beyond discipline boundaries to provide optimal services to child and adolescents with special health care needs. Because families are essential to well-being, this program emphasizes the role of family-centered care in all we do.
Provider Profiles: Five states include Utah, Idaho, Montana, Wyoming and North Dakota.
Source: Medical Home Portal
Last Updated: 4/14/2020

South Jordan, UT

Organization Name: Planned Parenthood Association of Utah
(Show others in Organization)
Address:
1091 West South Jordan Parkway (10600 S) Ste 100
South Jordan, UT 84095
Phone: 801-254-2052
Toll Free Phone: 800-230-7526
Services Provided: Provides a full range of professional, personalized, confidential reproductive health care services for women, men, and teens regardless of age or income.
Source: Medical Home Portal
Last Updated: 9/14/2016

Springville, UT

PO Box 120
Springville, UT 84663-0120
Phone: 801-580-6091
Address:
PO Box 120
Springville, UT 84663-0120
Phone: 801-580-6091
Services Provided: Provides a forum to educate policy makers about the real needs of people with disabilities. Advocates for public policy affecting all people in the State of Utah who have disabilities. Become a member and affect change!
Source: Medical Home Portal
Last Updated: 12/19/2019

St. George, UT

523 Sunland Drive Ste A
St. George, UT 84790
Phone: 435-619-5067
Address:
523 Sunland Drive Ste A
St. George, UT 84790
Phone: 435-619-5067
Toll Free Phone: 800-643-6913
Fax: 435-673-5265
Wheelchair Access: Complete
Eligibility: People 18 years old or older with learning or developmental disabilities.
Services Provided: Advocates for people with developmental, cognitive, intellectual and related disabilities and their families through support, outreach, education and legislation.
Source: United Way 2-1-1
Last Updated: 7/2/2019

Taylorsville, UT

849 West Levoy Drive Suite 210
Taylorsville, UT 84123
Phone: 801-278-6200
Organization Name: Clinical Neurosciences Center, University of Utah Medical Center
(Show others in Organization)
Address:
849 West Levoy Drive Suite 210
Taylorsville, UT 84123
Phone: 801-278-6200
Fax: 801-278-2499
Email: saltlakecity@mdausa.org
Wheelchair Access: Complete
Eligibility: Anyone diagnosed with one of the 43 diseases in MDA's service program.
Services Provided: A voluntary health agency that works to combat over 43 neuromuscular diseases and is committed to finding treatments and cures while supporting a comprehensive program of direct patient services and clinical care.
Summer camps at Camp Kostopulos, ages 12 - 17, ages 8 - 11.
CURE SMA chapter.
Provider Profiles: Clinical care at Clinical Neurosciences Center, University of Utah Medical Center
Source: United Way 2-1-1
Last Updated: 10/1/2019

Tooele, UT

52 North Main Street
Tooele, UT 84074
Phone: 435-843-7353
Address:
52 North Main Street
Tooele, UT 84074
Phone: 435-843-7353
Fax: 435-843-7359
Email: jessicas@uilc.org
Eligibility: Serving Salt Lake, Summit, Tooele counties. Client must have a disability that impairs activities of daily living and an expectation that services will be beneficial. People recovering from injuries can apply as well.
Services Provided: Private, nonprofit, non-residential facility that teaches independent living skills to people with disabilities.
Source: United Way 2-1-1
Last Updated: 12/3/2019

West Valley City, UT

Organization Name: Planned Parenthood Association of Utah
(Show others in Organization)
Address:
1906 West 3600 South
West Valley City, UT 84119
Phone: 801-973-9675
Toll Free Phone: 800-230-7526
Services Provided: Provides a full range of professional, personalized, confidential reproductive health care services for women, men, and teens regardless of age or income.
Source: Medical Home Portal
Last Updated: 9/14/2016

Nationwide

11130 Sunrise Valley Drive Ste 350
Reston, VA 20191
Phone: 703-234-4079
Address:
11130 Sunrise Valley Drive Ste 350
Reston, VA 20191
Phone: 703-234-4079
Fax: 703-435-4390
Email: info@aedweb.org
Eligibility: Open to the public.
Services Provided: Provides research, educational forums, publications, subject matter experts and current information on treatment and prevention of eating disorders.
Source: Nationwide Suggest Providers Queue
Last Updated: 1/7/2020
Address:
3417 Volta Place NW
Washington, DC 20007
Phone: 202-337-5220
TDD: 202-337-5221
Fax: 202-337-8314
Email: info@agbell.org
Eligibility: Individuals who are deaf or hard of hearing.
Services Provided: A resource center on hearing loss and spoken language approaches and related issues. Promotes opportunities and rights of individuals who are deaf or hard of hearing to learn to use, maintain, and improve all aspects of their verbal communication, including their abilities to use residual hearing and process both spoken and written language. Offers scholarship/ financial award opportunities, membership, information, and publications.
Source: MHP-Nationwide
Last Updated: 1/7/2020
501 3rd Street NW Suite 200
Washington, DC 20001
Phone: 202-387-1968
Address:
501 3rd Street NW Suite 200
Washington, DC 20001
Phone: 202-387-1968
Fax: 202-387-2193
Services Provided: AAIDD promotes progressive policies, sound research, effective practices, and universal human rights for people with intellectual and developmental disabilities.
Source: Nationwide Suggest Providers Queue
Last Updated: 8/8/2019
250 Williams Street NW
PO Box 22478 | Oklahoma City | OK 73123
Atlanta, GA 30303
Phone: 800-227-2345
Address:
250 Williams Street NW
PO Box 22478 | Oklahoma City | OK 73123
Atlanta, GA 30303
Phone: 800-227-2345
Toll Free Phone: 800-227-2345
Services Provided: Services include:
-Funding and conducting research
-Sharing expert information
-Supporting patients, including information about finding treatment and financial and transportation support for treatment
-Providing educational information and resources, including prevention information
Source: Nationwide Suggest Providers Queue
Last Updated: 2/21/2020
6868 Distribution Drive, Suite 460
Beltsville, MD 20705
Phone: 301-962-3520
Address:
6868 Distribution Drive, Suite 460
Beltsville, MD 20705
Phone: 301-962-3520
Toll Free Phone: 855-858-2226
Fax: 301-962-3521
Services Provided: As a leader in the national fight against childhood cancer, we speak for the needs of families and survivors, and in doing so, we help shape policy, research, and programs, nationally and internationally, that affect the lives of cancer-stricken families today and tomorrow.

Co-Parenting Workshops
Family Support Centers/Outreach
Information and Referral
Library Services
Parent Support Groups
Support Groups
System Advocacy
Source: Nationwide Suggest Providers Queue
Last Updated: 8/7/2019
2451 Crystal Drive, Suite 900
Arlington, VA 22202
Address:
2451 Crystal Drive, Suite 900
Arlington, VA 22202
Toll Free Phone: 800-342-2383
Services Provided: We lead the fight against the deadly consequences of diabetes and fight for those affected by diabetes. We fund research to prevent, cure and manage diabetes. We deliver services to hundreds of communities. We provide objective and credible information. We give voice to those denied their rights because of diabetes.

Website offers education, legal rights, health insurance, tips for caregivers, etc.
Source: MHP-Nationwide
Last Updated: 1/6/2020
275 N York St, Suite 201
Elmhurst, IL 60126
Phone: 630-617-5079
Address:
275 N York St, Suite 201
Elmhurst, IL 60126
Phone: 630-617-5079
Fax: 630-563-9181
Email: info@american-hearing.org
Services Provided: Research funding and educational information about hearing disorders, including Tinnitus and Meniere's Disease.
Source: Nationwide Suggest Providers Queue
Last Updated: 1/17/2020
11921 Rockville Pike Ste 300
Rockville, MD 20852
Phone: 301-881-3052
Address:
11921 Rockville Pike Ste 300
Rockville, MD 20852
Phone: 301-881-3052
Toll Free Phone: 800-638-8299
Fax: 301-881-3311
Email: aandors@kidneyfund.org
Eligibility: Kidney patients and health care professionals.
Services Provided: Provides health information, education, financial assistance, advocacy and resource referrals for patients and health care professionals. Programs for children include summer enrichment activities and the annual Calendar Kids Art Contest. Financial assistance includes:
Health Insurance Premium Program (HIPP)
Safety Net grants
Disaster relief grants
Grants for children
Prescription drug resources
Medical Expense Assistance
Provider Profiles: Internet Information Resource
Source: Nationwide Suggest Providers Queue
Last Updated: 1/6/2020
55 West Wacker Drive, Suite 1150
Chicago, IL 60601
Phone: 212-315-8700
Address:
55 West Wacker Drive, Suite 1150
Chicago, IL 60601
Phone: 212-315-8700
Toll Free Phone: 800-586-4872
Services Provided: Improving lung health and preventing lung disease through Education, Advocacy and Research. With the generous support of the public, we are "Fighting for Air."
Source: Nationwide Suggest Providers Queue
Last Updated: 8/12/2019
PO Box 3355
Gettysburg, PA 17325
Phone: 717-334-7992
Address:
PO Box 3355
Gettysburg, PA 17325
Phone: 717-334-7992
Toll Free Phone: 800-942-2732
Email: asdc@deafchildren.org
Services Provided: Families and professionals committed to educating, empowering, and supporting parents and families of children who are deaf or hard-of-hearing. Helps find meaningful communication options, particularly through the competent use of sign language, in their home, school, or community.
Source: MHP-Nationwide
Last Updated: 1/7/2020
Address:
950 Pennsylvania Ave NW
Washington, DC 20210
Phone: 800-514-0301
TDD: 800-514-0383
Toll Free Phone: 800-514-0301
Fax: 202-307-1198
Services Provided: Provides Information and Referral literature/materials

ADA Implementation Assistance
Accessibility Related Standards/Legislation Compliance
Assistive Technology Equipment
Group Advocacy
Information and Referral
Issue Advocacy
Labor and Employment Law
Legislative Advocacy
Library Services
Protection and Advocacy for Individuals with Disabilities
Source: Nationwide Suggest Providers Queue
Last Updated: 1/9/2020
1825 K Street NW, Suite 1200
Washington, DC 20006
Phone: 301-565-3842
Address:
1825 K Street NW, Suite 1200
Washington, DC 20006
Phone: 301-565-3842
Toll Free Phone: 800-433-5255
Fax: 301-565-3843
Eligibility: developmental disabilities
Services Provided: A national organization of and for people with developmental disabilities and their families. Website provides information about public policy; insurance products information; publications; discussion groups; employment registry; and links to local chapters and related organizations.
Source: Medical Home Portal
Last Updated: 8/6/2019
1 East 33rd Street, 2nd Floor
New York, NY 10016
Phone: 888-772-9050
Address:
1 East 33rd Street, 2nd Floor
New York, NY 10016
Phone: 888-772-9050
Toll Free Phone: 888-288-4762
Email: familyservices@autismspeaks.org
Eligibility: People with autism, their families and caregivers.
Services Provided: Provides the latest autism science and information; funding research into the causes, prevention, treatments and a cure for autism; awareness of autism spectrum disorders; and advocating for the needs of individuals with autism and their families.
Source: Nationwide Suggest Providers Queue
Last Updated: 8/6/2019
Organization Name: National Autism Association
(Show others in Organization)
Address:
Email: naa@nationalautism.org
Eligibility: Open to all.
Services Provided: An online resource of six national nonprofit autism organizations whose mission is to reduce autism-related wandering incidents and deaths. Provides an online Family Wandering Emergency Plan, Big Red Safety Box program, and Toolkits for caregivers, first-responders and teachers.
Includes "Where to find swimming lessons."
Source: Nationwide Suggest Providers Queue
Last Updated: 3/21/2019
PO Box 66122
Washington, DC 20035
Address:
PO Box 66122
Washington, DC 20035
Email: info@autisticadvocacy.org
Services Provided: A national grassroots disability rights organization for the autistic community, advocating for systems change and ensuring that the voices of autistic people are heard in policy debates and the halls of power. Our staff work to advance civil rights, support self-advocacy in all its forms, and improve public perceptions of autism. We work to empower autistic people across the world to take control of our own lives and the future of our common community, and seek to organize the autistic community to ensure our voices are heard in the national conversation about us. Policy advocacy toolkits, action alerts.
Source: MHP-Nationwide
Last Updated: 9/26/2019
Address:
UT
Email: childgenetics@gmail.com
Services Provided:

Aware of Angels is a nonprofit photography project that advocates for children who have genetic, rare or undiagnosed disorders with a photography and blog project. AOA brings awareness to and shares stories and images of children with genetic disorders and those needing a diagnosis.

Source: MHP-Nationwide
Last Updated: 6/22/2020
Address:
275 Seventh Avenue
New York, NY 10001
Phone: 800-813-4673
Toll Free Phone: 800-813-4673
Fax: 212-712-8495
Eligibility: Cancer patients, survivors and caregivers. Liimited grants for certain expenses related to cancer treatment.
Services Provided: Provides online, telephone and in-person counseling, support groups, educational workshops, publications, financial and co-payment assistance. All services are provided by oncology social workers and world-leading cancer experts.
Source: Nationwide Suggest Providers Queue
Last Updated: 1/6/2020
Organization Name: Cornelia de Lange Syndrome Foundation
(Show others in Organization)
Address:
30 Tower Lane
Avon, CT 06001
Phone: 860-753-2357
Toll Free Phone: 800-223-8355
Fax: 860-676-8337
Services Provided: A family support organization that exists to ensure early and accurate diagnosis of CdLS, promote research into the causes and manifestations of the syndrome, and help people with a diagnosis of CdLS, and others with similar characteristics, make informed decisions throughout their lives. Toll free help lines, Ask the Expert emails, Connect with a Family, and more.
Provider Profiles: M - F 8:30 - 5 ET
Source: MHP-Nationwide
Last Updated: 11/27/2019
1703 N. Beauregard Street
Alexandria, VA 22311
Address:
1703 N. Beauregard Street
Alexandria, VA 22311
Toll Free Phone: 800-733-2258
Services Provided: With the purposes of: establish the right of persons with low vision to make full use of their vision through all available aids, services and technology; provide a mechanism through which low vision people can express their individual needs, interests and preferences; educate the general public, professionals, and low vision people themselves as to the potentialities, capabilities, and needs of low vision people; establish outreach programs to insure that all individuals with low vision have access to necessary services; promote research to prevent blindness, improve maximum utilization of sight, and improve environmental conditions and access for low vision people; support the development of and expansion of pre-service and in-service training programs to improve the quality and quantity of medical and rehabilitative low vision services.

System Advocacy
Source: Nationwide Suggest Providers Queue
Last Updated: 8/12/2019
Address:
733 Third Ave Ste 510
New York, NY 10017
Phone: 800-932-2423
Email: info@ccfa.org
Eligibility: Crohn's and Colitis patients, their families and medical professionals.
Services Provided: Funds research studies at major medical institutions, nurtures investigators at the early stages of their careers, finances underdeveloped areas of research, and provides educational workshops and programs related to Crohn's Disease and colitis. Provides online and telephone access to disease educational materials, support groups, physician referrals and other resources.
Source: Nationwide Suggest Providers Queue
Last Updated: 1/7/2020
8301 Professional Place East, Ste 230
Landover, MD 20785-2356
Phone: 301-459-3700 Crisis Line: 800-332-1000
Address:
8301 Professional Place East, Ste 230
Landover, MD 20785-2356
Phone: 301-459-3700
Crisis Line: 800-332-1000
Toll Free Phone: 800-332-1000
Fax: 301-577-2684
Email: ContactUs@efa.org
Wheelchair Access: Full Wheelchair Access
Eligibility: Individuals with epilepsy, their families and friends.
Services Provided: Provides information, advocacy, and assistance finding doctors, legal assistance, support groups and transportation reimbursement. Learn about epilepsy, types of seizures, triggers, diagnosis, treatment, etc. Offers a seizure diary app self-management tool.

Spanish-language line: 866-748-8008
Provider Profiles: Spanish Speakers Phone number: 866-748-8008
Source: Nationwide Suggest Providers Queue
Last Updated: 1/24/2020
Organization Name: 5p- (five p minus) Society
(Show others in Organization)
Address:
6229 Eckleson Street
Lakewood, CA 90713
Phone: 888-970-0777
Toll Free Phone: 888-970-0777
Fax: 562-920-5240
Eligibility: Parents and health care providers of children with Cri Du Chat syndrome.
Services Provided: Provides information, communication, and support groups to families having a child with 5P- Syndrome and to spread awareness and education to the families and their service providers. This syndrome is a chromosomal deletion disorder that results in intellectual and developmental issues in children.
Source: Nationwide Suggest Providers Queue
Last Updated: 1/6/2020
4301 Connecticut Avenue NW, Suite 404
Washington, DC 20008-2369
Phone: 202-966-5557
Address:
4301 Connecticut Avenue NW, Suite 404
Washington, DC 20008-2369
Phone: 202-966-5557
Fax: 202-966-8553
Services Provided:

Mission: Genetic Alliance engages individuals, families, and communities to transform health.

Active Programs:

  • Advocacy-Led Research: Research tools for individuals and communities
  • Expecting Health: Assistance for all stages of family planning, including preconception and advocacy
  • Stakeholder Engagement: Facilitates communication across multidisciplinary stakeholders.
Provider Profiles:

Genetic Alliance was incorporated on October 31, 1986 as the Alliance of Genetic Support Groups. AGSG changed its name to Genetic Alliance in 2000.

Source: MHP-Nationwide
Last Updated: 6/8/2020
2350 West Higgins Road
Hoffman Estates, IL 60169
Phone: 847-885-6147
Organization Name: Down Syndrome Achievement Centers
(Show others in Organization)
Address:
2350 West Higgins Road
Hoffman Estates, IL 60169
Phone: 847-885-6147
Email: info@gigisplayhouse.org
Eligibility: Individuals with Down syndrome, their families and the community
Services Provided: Through national campaigns, educational programs, and by empowering individuals with Down syndrome, their families and the community, we offer free therapeutic and educational programming to individuals with Down syndrome and their families. At GiGi’s Playhouse families are never alone. From a prenatal diagnosis to career skills, we make a lifetime commitment to remain by their side. Families are empowered with all the tools their child needs to succeed!
Provider Profiles: Over 30 locations across the United States and Mexico and 200 inquiries to start new locations all over the world.
Source: MHP-Nationwide
Last Updated: 9/25/2019
200 Vesey Street, 28th Floor
New York, NY 10281
Phone: 800-533-2873
Address:
200 Vesey Street, 28th Floor
New York, NY 10281
Phone: 800-533-2873
Fax: 212-785-9595
Email: info@jdrf.org
Services Provided: JDRF's (formerly Juvenile Diabetes Research Foundation) primary objective is to fund research into Type 1 diabetes.
Also provides:
•Informational Guides
•Virtual community
•Local chapters
•Fundraising and social events
Source: Nationwide Suggest Providers Queue
Last Updated: 1/3/2020
KDES PAS-6, 800 Florida Ave, NE
Washington, DC 20002-3695
Phone: 202-651-5051
Organization Name: Gallaudet University
(Show others in Organization)
Address:
KDES PAS-6, 800 Florida Ave, NE
Washington, DC 20002-3695
Phone: 202-651-5051
TDD: 202-651-5052
Fax: 202-651-5054
Services Provided: Responds to inquiries about a diverse range of topics related to deaf and hard-of-hearing children from infancy to age 21.
Source: MHP-Nationwide
Last Updated: 1/7/2020
400 Hamilton Ave. Suite 340
Palo Alto, CA 94301
Phone: 650-497-8365
Address:
400 Hamilton Ave. Suite 340
Palo Alto, CA 94301
Phone: 650-497-8365
Services Provided: Dedicated exclusively to the promotion and protection of children's health through fundraising, grantmaking and providing an informed perspective. Packard Children’s Hospital and Stanford School of Medicine supports clinical care, research, and education to improve the health of children and expectant mothers, locally and worldwide. Programs include Improving Systems of Care for Children with Special Health Care Needs and Elevating the Societal Priority of Children, providing wide-ranging, up-to-date data and research by tracking the status of California's children over time through its website, www.kidsdata.org.
Source: MHP-Nationwide
Last Updated: 1/7/2020
1500 Dawson Road
Merry Acres Executive Building
Albany, GA 31707
Phone: 229-518-2680
Address:
1500 Dawson Road
Merry Acres Executive Building
Albany, GA 31707
Phone: 229-518-2680
Toll Free Phone: 888-432-7899
Fax: 229-518-3879
Email: info@mendedhearts.org
Eligibility: Patients and families of children with congenital heart disease.
Services Provided: Mended Little Hearts services include: peer support and education, education resources, hospital outreach, CHD awareness, community health education, online community, and advocacy. Locator for a chapter nearby.
Source: Nationwide Suggest Providers Queue
Last Updated: 9/10/2019
Address:
222 S Riverside Plaza, Suite 1500
Chicago, IL 60606
Phone: 800-572-1717
Email: ResourceCenter@mdausa.org
Services Provided: Support services, resources, transitional services, information resources for all aspects of living with muscular dystrophy/neuromuscular disease . A web-based locator to find local services and summer camps in many states. Located at more than 150 of the top health care institutions across the United States, [https://www.mda.org/care/mda-care-centers MDA Care Centers and Affiliates] serve as the nexus for expert clinical care and medical research.
Source: MHP-Nationwide
Last Updated: 1/6/2020
Address:
Email: contactus@adapt.org
Services Provided: A national grass-roots community that organizes disability rights activists to engage in nonviolent direct action, including civil disobedience, to assure the civil and human rights of people with disabilities to live in freedom. Key issue is affordable, accessible, integrated housing. Access Across America is a proposal to HUD for a national program.
Source: MHP-Nationwide
Last Updated: 2/5/2019
220 North Green Street
Chicago, IL 60607
Phone: 630-557-1330
Address:
220 North Green Street
Chicago, IL 60607
Phone: 630-557-1330
Email: hello@anad.org
Services Provided: Provides online research, educational forums, support groups, professional resources and current information on treatment and prevention of eating disorders. Services include ANAD recovery mentorship, ANAD support groups, ANAD annual conference, and ANAD YouTube recovery channel.
Source: Nationwide Suggest Providers Queue
Last Updated: 1/17/2020
8630 Fenton St, Suite 820
Silver Spring, MD 20910-3819
Phone: 301-587-1788
Address:
8630 Fenton St, Suite 820
Silver Spring, MD 20910-3819
Phone: 301-587-1788
TDD: 301-587-1789
Fax: 301-587-1791
Eligibility: deaf and hard of hearing
Services Provided: Safeguards the civil rights of deaf and hard of hearing Americans. As a national federation of state associations, individual members, and organizational and corporate affiliates, the advocacy work includes accessibility, education, employment, healthcare, mental health, rehabilitation, technology, telecommunications, and transportation. Website features advocacy information and resources.
Provider Profiles: NAD Youth Leadership Camp (YLC) is a four-week intensive educational program for high school students. Camp Taloali, Stayton, Oregon.
Source: Medical Home Portal
Last Updated: 8/6/2019
55 Chapel Street Ste 200
Newton, MA 02458
Phone: 617-924-9997
Address:
55 Chapel Street Ste 200
Newton, MA 02458
Phone: 617-924-9997
Fax: 617-924-9998
Eligibility: Anyone interested in brain tumor research, treatment or funding opportunities.
Services Provided: Finding better treatments, and ultimately a cure, for people living with a brain tumor today and anyone who will be diagnosed tomorrow.
Source: Nationwide Suggest Providers Queue
Last Updated: 1/6/2020
820 1st Street NE, Suite 740
Washington, DC 20002
Phone: 202-408-9514
Address:
820 1st Street NE, Suite 740
Washington, DC 20002
Phone: 202-408-9514
TDD: 202-408-9521
Fax: 202-408-9520
Eligibility: People with disabilities
Services Provided: Guards against abuse, advocating for basic rights, and ensuring accountability in health care, education, employment, housing, transportation, and within the juvenile and criminal justice systems.Works on behalf of the federally mandated Protection and Advocacy P&A Systems and the Client Assistance Programs CAP for individuals with disabilities.

Assistive Technology Equipment
Information and Referral
Library Services
System Advocacy
Source: Nationwide Suggest Providers Queue
Last Updated: 1/7/2020
7 Penn Plaza, Suite 1204
New York, NY 10001
Phone: 212-328-3700
Address:
7 Penn Plaza, Suite 1204
New York, NY 10001
Phone: 212-328-3700
Toll Free Phone: 800-424-2634
Fax: 212-328-3777
Email: handi@hemophilia.org
Wheelchair Access: Not Applicable
Services Provided: Information about preventing the complications of these disorders through education, advocacy and research. Chapters throughout the US.

Services include:
-Information about bleeding disorders, blood types, and blood safety
-Online and in-person educational events and workshops
-Advocacy information
-[Camp Locator] helps families find a camp for a child with a bleeding disorder, siblings, or the family.
Source: Nationwide Suggest Providers Queue
Last Updated: 3/9/2020
Address:
30 East 33rd Street
New York, NY 10016
Phone: 800-622-9010
Toll Free Phone: 800-622-9010
Services Provided: The National Kidney Foundation is the leading organization in the U.S. dedicated to the awareness, prevention and treatment of kidney disease. Information about kidney disease. A peer mentor support program. Self management app for food choices.
Source: MHP-Nationwide
Last Updated: 8/13/2019
Organization Name: Substance Abuse and Mental Health Services Administration (SAMHSA)
(Show others in Organization)
Address:
1 Choke Cherry Road
Rockville, MD 20857
Phone: 800-662-4357
Eligibility: For users of mental health services and their families, the general public, policy makers, providers, and the media.
Services Provided: The Center for Mental Health Services, within SAMHSA, leads Federal efforts to improve prevention and mental health treatment services for all Americans.
Information Center staff members are skilled at listening and responding to questions from the public and professionals. The staff quickly directs callers to Federal, State, and local organizations dedicated to treating and preventing mental illness. The Information Center also has extensive online and print publications, and information on Federal grants, conferences, and other events.
Provider Profiles: Use the locator website to filter your search: adolescent, substance, payment/insurance accepted, emergency, etc.
Source: MHP-Nationwide
Last Updated: 1/17/2020
Address:
8161 Normandale Blvd.
Bloomington, MN 55437
Phone: 952-838-9000
Toll Free Phone: 800-537-2237
Services Provided: Champions for children with disabilities, Parent Advocacy Coalition for Educational Rights, PACER Center expands opportunities and enhances the quality of life of children and young adults with disabilities and their families. PACER is staffed primarily by parents of children with disabilities and works in coalition with 18 disability organizations. A significant Learning Center, Resources, and specifically for Students and Young Adults.
Source: MHP-Nationwide
Last Updated: 1/7/2020
1500 Rosecrans Avenue, Suite 200
Manhattan Beach, CA 90266
Phone: 310-725-0025
Address:
1500 Rosecrans Avenue, Suite 200
Manhattan Beach, CA 90266
Phone: 310-725-0025
Toll Free Phone: 877-573-9971
Fax: 310-725-0029
Email: info@pancan.org
Eligibility: Cancer patients, survivors, and their families
Services Provided: Provides research, patient support, community outreach and government advocacy. Raises money for direct private funding of research. Supports individuals and communities all across the country in working together to raise awareness and funds to develop more effective treatment options for better patient outcomes. We create a sense of hope and community so no one has to face pancreatic cancer alone.
Source: Nationwide Suggest Providers Queue
Last Updated: 1/6/2020
Address:
4600 Devitt Drive
Cincinnati, OH 45246
Phone: 800-818-7388
Toll Free Phone: 800-818-7388
Email: admin@rettsyndrome.org
Services Provided: An organization comprised of parents and friends of those diagnosed with Rett syndrome, providing the latest medical information, aggressively funding the most promising research, offering meaningful support, raising public awareness and advocating for all living with Rett syndrome. Lists resources and clinics by state, national resources, and clinical trials. Resources include: Care Guides, Communication, Adaptive Equipment and Funding, School and Day Programs, Adolescence, Planning for the Future.
Source: MHP-Nationwide
Last Updated: 1/7/2020
Organization Name: The Childhood RND Educational Foundation, Inc
(Show others in Organization)
Address:
PO Box 7762
Wilmington, DE 19803
Services Provided: The Childhood RND Educational Foundation is a 501(c)(3) non-profit organization dedicated to educating health professionals and families who deal with amplified musculoskeletal pain syndromes (AMPS) such as fibromyalgia, complex regional pain syndrome (CRPS), RSD, RND, neuropathic pain and myofascial pain. Services include:
-Educational materials about a variety of pain issues
-[https://stopchildhoodpain.org/faqs/what-hospitals-offer-this-treatment-program/ Directory of pediatric AMPS treatment programs.]
Source: MHP-Nationwide
Last Updated: 2/26/2020
1825 K Street NW, Suite 600
Washington, DC 20006
Phone: 202-776-0406
Address:
1825 K Street NW, Suite 600
Washington, DC 20006
Phone: 202-776-0406
Toll Free Phone: 800-872-5827
Fax: 202-776-0414
Services Provided: UCP and its 64 affiliates have a mission to advance the independence, productivity and full citizenship of people with a broad range of disabilities by providing services and support to more than 176,000 children and adults every day. UCP has worked to ensure the inclusion of individuals with disabilities in every facet of society. UCP will continue to push for the social, legal and technological changes that increase accessibility and independence, allowing people with disabilities to dream their own dreams.
Source: Nationwide Suggest Providers Queue
Last Updated: 8/8/2019