Neuromuscular Clinics

Clinics that provide care for a variety of conditions, including muscular dystrophy and spinal muscular atrophy.

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UT

Salt Lake City, UT

Organization Name: University of Utah Health
Address: 175 North Medical Drive
Salt Lake City, UT 84132
Phone: 801-213-3599
Fax: 801-585-2746
Eligibility: Adults Referral required. Utah, and Intermountain region
Services Provided: The Neurology Clinic, of which Muscular Dystrophy Clinic is part, accepts new patients on a referral basis only. Please have your referring physician's office fax the following information to our new patient schedulers: 1) a written referral outlining the neurological symptoms/diagnosis to be evaluated; 2) clinic notes and pertinent lab and radiology related to the diagnosis; and 3) a demographic outline: including the patient's permanent address, home and office telephone number, insurance information, and a social security number. Each case is evaluated by the proper physician.
Original Source: MedHome Portal
Last Updated: 5/21/2019
1275 East Fairfax Road
Salt Lake City, UT 84103
Phone: 801-536-3777
Service Categories:
Organization Name: Shriners Hospitals for Children - Salt Lake City
Address: 1275 East Fairfax Road
Salt Lake City, UT 84103
Phone: 801-536-3777
Service Categories:
Eligibility: Patients seen at this clinic have a diagnosis that results in related neuropathy and myopathy, such as muscular dystrophy. New patients must first be seen in the Outpatient Clinic, for referral to the Neuromuscular Clinic.
Services Provided: New Patient Referrals: 800-314-4283. See [https://www.shrinershospitalsforchildren.org/salt-lake-city/appointments-and-admissions Appointments and Admissions]

The Neuromuscular Clinic is a monthly, multispecialty clinic held on the third Tuesday afternoon of each month. Orthopaedics, developmental pediatrics, neurology, nutrition, PT/OT, wheelchair & seating, orthotics, genetics counseling, social work and care management are each represented to assess and evaluate patients.

Specialty clinics allow for patient families to benefit from the variety of experts, and are an opportunity for families to come together and network with other families dealing with similar challenges.
Original Source: MedHome Portal
Last Updated: 6/27/2019
100 Mario Capecchi Drive
Salt Lake City, UT 84113
Phone: 801-662-5616
Organization Name: Primary Children's Hospital
Address: 100 Mario Capecchi Drive
Salt Lake City, UT 84113
Phone: 801-662-5616
Eligibility: Adults
Services Provided: For the treatment of adults with congenital and developmental orthopaedic conditions, neuromuscular disease, hip disorders, deformity of the feet and lower extremities, and the acute management of fractures and injuries.
Provider Profiles: Alan K. Stotts, MD Pediatric Orthopaedic Surgery
Clair Nguyen, MA
Original Source: MedHome Portal
Last Updated: 7/26/2018
100 N Mario Capecchi Drive
Eccles Primary Children's Outpatient Services Bldg, Third Floor
Salt Lake City, UT 84113
Phone: 801-213-3599
Organization Name: Primary Children's Hospital
Address: 100 N Mario Capecchi Drive
Eccles Primary Children's Outpatient Services Bldg, Third Floor
Salt Lake City, UT 84113
Phone: 801-213-3599
Eligibility: Referral by PCP required, infants and youth under age of 18
Wheelchair Accessible: Yes
Services Provided: Offering comprehensive diagnostic evaluations and outpatient management for most neurological disorders, the most common being seizures, headache, and neuromuscular. EEG, EMG testing. Conditions evaluated and treated:
Developmental Delay in Infants and Young Children
Epilepsy and Epilepsy Surgery
Headache
Leukodystrophy
Motor Disorders, including Spinal Muscular Atrophy and Collagen VI Myopathies
Multiple Sclerosis
Muscular Dystrophy
Neuromuscular Disorders -- Neuromuscular Clinic M-F 8-5 The Neuromuscular Clinic focuses on peripheral neuropathies, disorders of the nerve-muscle junction, and disorders of muscle.
Spina Bifida
Stroke
Tics and other Movement Disorders
Other Neurological Conditions
Provider Profiles: Russell J Butterfield, MD, PhD
Francis Filloux, MD
Clint Nelson, MD, Pediatric Neurology
Lynn Kerr, Pediatric Neurology
Kim Orton, Epilepsy Care Coordinator

Clinics are held in several locations: Eccles Primary Children's Outpatient Services, Primary Children's Hospital; and some outside hospitals/clinics.

For appointments or referrals, call 801 213-3599 and choose option #1, then ask to speak with the Referral Team. This will give you the most comprehensive and coordinated experience.
Original Source: MedHome Portal
Last Updated: 5/21/2019
Address: 1275 East Fairfax Road (330 N)
Salt Lake City, UT 84103
Phone: 800-313-3745
Fax: 801-536-3782
Email: referrals@shrinenet.org
Eligibility: Birth to 18 years with orthopedic or reconstructive plastic surgery needs, regardless of ability to pay. A referral expedites services. May self-refer and be seen in Outpatient Clinic. New patients must first be seen in the Outpatient Clinic, for referral to multi-specialty clinics. Once with Shriners, eligible to age 21.
Wheelchair Accessible: Complete
Services Provided: New Patient Referrals: 800-314-4283. See [https://www.shrinershospitalsforchildren.org/salt-lake-city/appointments-and-admissions Appointments and Admissions]

Shriners provides state of the art pediatric orthopaedic care for a wide range of diseases and disorders of the bones, muscles, and joints. Services include inpatient and outpatient surgery, physical, occupational, and speech therapy, custom wheelchairs, prosthetics and orthotics for patients as prescribed by their Shriners' doctor, outpatient clinics, and movement analysis. Child Life Specialists.

Specialty clinics: Neuromuscular Clinic monthly; Clubfoot Clinic twice a week in two locations; Osteogenesis Imperfecta Clinic quarterly; Hand Clinic monthly; Skeletal Dysplasia Clinic three times a year; Cornelia de Lange Syndrome Clinic two times a year; Infantile scoliosis/EDF casting Clinic; Plastics Clinic monthly; Spine Clinic twice a week; car seat clinic twice a month (no referral required).

Play groups combine physical therapy and recreation therapy; summer and winter camps provide fun customized recreation and physical therapy activities; a SNAP camp for healthy eating and fun ways to move their bodies.
Provider Profiles: Care Management, Orthopedics 801 536-3777
Original Source: United Way 2-1-1
Last Updated: 7/8/2019

Nationwide

Address: 222 S Riverside Plaza, Suite 1500
Chicago, IL 60606
Phone: 800-572-1717
Email: ResourceCenter@mdausa.org
Services Provided: Support services, resources, transitional services, information resources for all aspects of living with muscular dystrophy/neuromuscular disease . A web-based locator to find local services and summer camps in many states. Located at more than 150 of the top health care institutions across the United States, [https://www.mda.org/care/mda-care-centers MDA Care Centers and Affiliates] serve as the nexus for expert clinical care and medical research.
Original Source: MHP-Nationwide
Last Updated: 5/22/2019