Neuromuscular Clinics

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Clinics that provide care for a variety of conditions, including muscular dystrophy and spinal muscular atrophy.

100 Mario Capecchi Drive
Salt Lake City, UT 84113
Phone: 801-662-5616
Organization Name: Primary Children's Hospital
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Address:
100 Mario Capecchi Drive
Salt Lake City, UT 84113
Phone: 801-662-5616
Eligibility: Adults
Services Provided: For the treatment of adults with congenital and developmental orthopaedic conditions, neuromuscular disease, hip disorders, deformity of the feet and lower extremities, and the acute management of fractures and injuries.
Provider Profiles: Alan K. Stotts, MD Pediatric Orthopaedic Surgery
Clair Nguyen, MA
Source: Medical Home Portal
Last Updated: 7/26/2018
100 N Mario Capecchi Drive
Eccles Primary Children's Outpatient Services Bldg, Third Floor
Salt Lake City, UT 84113
Phone: 801-213-3599
Organization Name: Primary Children's Hospital
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Address:
100 N Mario Capecchi Drive
Eccles Primary Children's Outpatient Services Bldg, Third Floor
Salt Lake City, UT 84113
Phone: 801-213-3599
Wheelchair Access: Yes
Eligibility: Referral by PCP required, infants and youth under age of 18
Services Provided: Offering comprehensive diagnostic evaluations and outpatient management for most neurological disorders, the most common being seizures, headache, and neuromuscular. EEG, EMG testing. Conditions evaluated and treated:
Developmental Delay in Infants and Young Children
Epilepsy and Epilepsy Surgery
Headache
Leukodystrophy
Motor Disorders, including Spinal Muscular Atrophy and Collagen VI Myopathies
Multiple Sclerosis
Muscular Dystrophy
Neuromuscular Disorders -- Neuromuscular Clinic M-F 8-5 The Neuromuscular Clinic focuses on peripheral neuropathies, disorders of the nerve-muscle junction, and disorders of muscle.
Spina Bifida
Stroke
Tics and other Movement Disorders
Other Neurological Conditions
Provider Profiles: Russell J Butterfield, MD, PhD
Francis Filloux, MD
Clint Nelson, MD, Pediatric Neurology
Lynn Kerr, Pediatric Neurology
Kim Orton, Epilepsy Care Coordinator

Clinics are held in several locations: Eccles Primary Children's Outpatient Services, Primary Children's Hospital; and some outside hospitals/clinics.

For appointments or referrals, call 801 213-3599 and choose option #1, then ask to speak with the Referral Team. This will give you the most comprehensive and coordinated experience.
Source: Medical Home Portal
Last Updated: 11/11/2019
Organization Name: University of Utah Health
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Address:
175 North Medical Drive
Salt Lake City, UT 84132
Phone: 801-213-3599
Fax: 801-585-2746
Eligibility: Adults Referral required. Utah, and Intermountain region
Services Provided: The Neurology Clinic, of which Muscular Dystrophy Clinic is part, accepts new patients on a referral basis only. Please have your referring physician's office fax the following information to our new patient schedulers: 1) a written referral outlining the neurological symptoms/diagnosis to be evaluated; 2) clinic notes and pertinent lab and radiology related to the diagnosis; and 3) a demographic outline: including the patient's permanent address, home and office telephone number, insurance information, and a social security number. Each case is evaluated by the proper physician.
Source: Medical Home Portal
Last Updated: 5/21/2019
1275 East Fairfax Road
Salt Lake City, UT 84103
Phone: 801-536-3777
Service Categories:
Organization Name: Shriners Hospitals for Children - Salt Lake City
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Address:
1275 East Fairfax Road
Salt Lake City, UT 84103
Phone: 801-536-3777
Service Categories:
Eligibility: Patients seen at this clinic have a diagnosis that results in related neuropathy and myopathy, such as muscular dystrophy. New patients must first be seen in the Outpatient Clinic, for referral to the Neuromuscular Clinic.
Services Provided: New Patient Referrals: 800-314-4283. See [https://www.shrinershospitalsforchildren.org/salt-lake-city/appointments-and-admissions Appointments and Admissions]

The Neuromuscular Clinic is a monthly, multispecialty clinic held on the third Tuesday afternoon of each month. Orthopaedics, developmental pediatrics, neurology, nutrition, PT/OT, wheelchair & seating, orthotics, genetics counseling, social work and care management are each represented to assess and evaluate patients.

Specialty clinics allow for patient families to benefit from the variety of experts, and are an opportunity for families to come together and network with other families dealing with similar challenges.
Source: Medical Home Portal
Last Updated: 2/25/2020
Address:
222 S Riverside Plaza, Suite 1500
Chicago, IL 60606
Phone: 800-572-1717
Email: ResourceCenter@mdausa.org
Services Provided: Support services, resources, transitional services, information resources for all aspects of living with muscular dystrophy/neuromuscular disease . A web-based locator to find local services and summer camps in many states. Located at more than 150 of the top health care institutions across the United States, [https://www.mda.org/care/mda-care-centers MDA Care Centers and Affiliates] serve as the nexus for expert clinical care and medical research.
Source: MHP-Nationwide
Last Updated: 1/6/2020