Neuromuscular Clinics

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Clinics that provide care for a variety of conditions, including muscular dystrophy and spinal muscular atrophy.

Service Legend
Local Service
Statewide Service: Provides online resources, telehealth, or service at a satellite office.
Nationwide Service: Provides online resources, telehealth or services at a regional/national headquarters location.
81 North Mario Capecchi Drive, 3rd Floor
Eccles Primary Children's Outpatient Services Building
Salt Lake City, UT 84113
Phone: 801-213-3599
Organization Name: Intermountain Primary Children's Hospital/ University of Utah Health
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Address:
81 North Mario Capecchi Drive, 3rd Floor
Eccles Primary Children's Outpatient Services Building
Salt Lake City, UT 84113
Phone: 801-213-3599
Fax: 801-587-7539
Wheelchair Access: Yes
Eligibility:

Referral by PCP required, infants and youth under age of 18.

Services Provided:

Offers comprehensive diagnostic evaluations and outpatient management for most neurological disorders, the most common being seizures, headache, and neuromuscular. Provides EEG and EMG testing.

Services Include:

  • Chiari Malformation Program
  • Diagnostic Testing
  • Epilepsy Program
  • Headache Program
  • Leukodystrophy Program
  • Neuromuscular Program
  • Spina Bifida Program
  • Spine Program

Conditions and Treatments:

  • Charot-Marie-Tooth Disease
  • Chiari 1 Malformation
  • Dermatomyosis
  • Epilepsy and Epilepsy Surgery
  • Headaches
  • Kyphosis
  • Lennox-Gastaut Syndrome
  • Leukodystrophy
  • Motor Disorders, including Spinal Muscular Atrophy and Collagen VI
  • Myopathies
  • Multiple Sclerosis
  • Muscular Dystrophy
  • Neuromuscular Disorders
  • Scoliosis
  • Seizures
  • Spinal Compression
  • Spina Bifida
  • Stroke
  • Tethered Cord
  • Tics and other Movement Disorders
Provider Profiles:

Services are also offered at satellite locations in Utah, Idaho, Wyoming, Nevada and Montana.

Russell J Butterfield, MD, PhD
Francis Filloux, MD
Clint Nelson, MD, Pediatric Neurology
Lynn Kerr, Pediatric Neurology
Kim Orton, Epilepsy Care Coordinator

See website or contact for additional provider names and specialties. All providers may not provide all services.

Source: Medical Home Portal
Last Updated: 12/22/2021
175 North Medical Drive East
Salt Lake City, UT 84132
Phone: 801-213-3599
Organization Name: Clinical Neurosciences Center- University of Utah Health
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Address:
175 North Medical Drive East
Salt Lake City, UT 84132
Phone: 801-213-3599
Fax: 801-587-7539
Service Categories:
Eligibility:

Referral required for adults. Serves Utah and Intermountain region.

Services Provided:

Provides treatment for disorders affecting nerves and muscles. We place emphasis on evaluation and timely diagnosis, and the special treatment needs of this unique group of patients.

Services Include:

  • Pediatric Motor Disorders Research Program- provides sub-specialty evaluation and care for children with movement and motor disorders.
  • Muscular Dystrophy Clinic
Source: Medical Home Portal
Last Updated: 12/22/2021
Statewide Provider
1275 East Fairfax Road
Salt Lake City, UT 84103
Phone: 801-536-3777
Statewide Provider
Organization Name: Shriners Children’s Salt Lake City
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Address:
1275 East Fairfax Road
Salt Lake City, UT 84103
Phone: 801-536-3777
Service Categories:
Eligibility:

Patients seen at this clinic have a diagnosis that results in related neuropathy and myopathy, such as muscular dystrophy. New patients must first be seen in the Outpatient Clinic, for referral to the Neuromuscular Clinic.

Services Provided:

New Patient Referrals: 800-314-4283. ]

The Neuromuscular Clinic is a monthly, multispecialty clinic held on the third Tuesday afternoon of each month. Orthopaedics, developmental pediatrics, neurology, nutrition, PT/OT, wheelchair & seating, orthotics, genetics counseling, social work and care management are each represented to assess and evaluate patients.

Specialty clinics allow for patient families to benefit from the variety of experts, and are an opportunity for families to come together and network with other families dealing with similar challenges.

Source: Medical Home Portal
Last Updated: 11/17/2021
100 Mario Capecchi Drive
Salt Lake City, UT 84113
Phone: 801-662-5615
Organization Name: Primary Children's Hospital
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Address:
100 Mario Capecchi Drive
Salt Lake City, UT 84113
Phone: 801-662-5615
Eligibility:

Adults

Services Provided:

For the treatment of adults with congenital and developmental orthopaedic conditions, neuromuscular disease, hip disorders, deformity of the feet and lower extremities, and the acute management of fractures and injuries.

Provider Profiles:

Alan K. Stotts, MD Pediatric Orthopaedic Surgery
Annie Young, LAT, ATC

Source: Medical Home Portal
Last Updated: 2/1/2022
Nationwide Provider
161 North Clark Street Ste 3550
Chicago, IL 60601
Nationwide Provider
Address:
161 North Clark Street Ste 3550
Chicago, IL 60601
Toll Free Phone: 800-572-1717
Email: mda@mdausa.org
Services Provided:

A voluntary health agency that works to combat muscular dystrophy, amyotrophic lateral sclerosis (ALS), and related muscle-debilitating diseases. The organization is committed to finding treatments and cures while providing a comprehensive program to empower families with support to help them thrive and stay independent including summer camps for kids, peer support, equipment resources and more. Related volunteer opportunities available.COVID-19 Update: following all CDC and state guidelines.

  • Voluntary Health Organizations
  • Assistive Technology Expense Assistance
  • Health/Disabilities Related Volunteer Opportunities
  • Therapeutic Camps
  • Health/Disability Related Support Groups
Source: MHP-Nationwide
Last Updated: 4/22/2022