Resources for Care Coordinators

The resources below include government insurance and benefits programs; state governments; state Title V programs for CYSHCN; early intervention programs; public education agencies; community resources agencies; mental health resources; dental resources; professional organizations; and advocacy and support groups.


Information & Support

For Professionals
Free, confidential tool that helps you find government benefits and assistance.

Utah's CHIP Program
Website for Utah Children's Health Insurance Program (CHIP), a state health insurance program for children under age 19 who do not have health insurance or qualify for Medicaid. Some of the benefits of Utah CHIP include coverage for immunizations and prescriptions.

Children's Health Insurance Program (CHIP)
This is the official U.S. government site for CHIP services; information includes eligibility, enrollment and general information about health insurance for kids.

Utah Division of Medicaid and Health Finance
Utah Medicaid's official website. Once a child is 18 years of age, s/he is eligible for medicaid independent of the family income.

Official U.S. government site for Medicaid services.

Utah Bureau of Children with Special Health Care Needs
Official site of the Utah Department of Health provides descriptions of its services and programs including infant screen, family resources, eligibility, clinics.

Baby Watch Early Intervention Program (UDHHS)
Provides excellent information on Utah's network of services for children (birth to 3 years) with developmental delays or disabilities; Utah Department of Health (Formerly UDOH), Bureau of Child Development.

State Government Links
Hosted by the federal government, this website provides links to official websites in the U.S. states and territories.

State Title V Snapshots
Title V programs for children with special health care needs (CSHCN) with measures and goals. Maternal and Child Health Bureau, Federal-State Partnerships

State Part C Early Intervention Coordinators
Lists state contacts for Early Intervention (Part C) agencies and is an easy way to locate the person in charge of your state’s Early Intervention programs; National Early Childhood Technical Assistance Center (ECTA Center).

Utah State Board of Education Special Education
A listing of Utah schools, with filters for district and special education.

Utah School Districts
Listing of links to school districts in Utah.

Utah 2-1-1
A free information and referral line for health, human and community services. 2-1-1 provides information and referral on topics such as emergency food pantries, rental assistance, public health clinics, child care resources, support groups, legal aid, and a variety of nonprofit and governmental agencies. Call for quick answers. The online directory provides anytime access to the same information. Confidential and free.

Salt Lake County Parks and Recreation Adaptive Programs
Adaptive recreation programs designed for individuals with special needs, however, everyone is welcome to participate in any program or class. This site lists socialization activities, classes, sports, and other adaptive programs in the Salt Lake Valley.

American Academy of Pediatrics Chapter List
The American Academy of Pediatrics (AAP) chapters are organized groups of pediatricians and other health care professionals working to achieve AAP goals in their communities.

Utah Chapter, American Academy of Pediatrics
American Academy of Pediatrics chapter site provides information about meetings, conferences, news, and other chapter activities.

American Academy of Family Physicians Chapter List

For Parents and Patients

Utah Parent Center
A nonprofit organization that provides training, information, referral, and assistance to parents of children and youth with all disabilities including physical, mental, hearing, vision, learning, behavioral, and emotional. Staff consists primarily of parents of children and youth with disabilities.

Find Your Parent Center
Parent Centers provide education and referrals for families with a child who has a disability, as well as the professionals who work with them. There are almost 100 Parent Training and Information Centers (PTIs) and Community Parent Resource Centers (CPRCs) in the US states and Territories; Center for Parent Information & Resources.


CMHI Pediatric Care Coordination Assessment (PDF Document 157 KB)
An example of a family/patient assessment form. Developed by the Center for Medical Home Improvement and Boston Children's Hospital.

Care Coordination Curriculum (Boston Children's)
This page describes and links to an extensive curriculum for training practice-based care coordinators; developed by Richard Antonelli, MD and others at Boston Children's Hospital.

Clinical Care Plan Template (Word Document 57 KB)
Editable care plan template. Developed by Jenna Robinson, Southpoint Pediatrics, West Jordan, Utah.

Utah Pediatric Care Coordination Information Checklist (PDF Document 171 KB)
To be used as an assessment tool and in conjunction with the Utah Pediatric Shared Plan of Care.

Utah Pediatric Shared Plan of Care template (Word Document 72 KB)
To be used with the Care Coordination Information Checklist to coordinate care with all members of the care team, including families.

Pre-visit Assessment Questions - sample (Word Document 68 KB)
Questions asked by Summit Pediatrics in Park City, Utah to patient's family by phone prior to an appointment.

Family-Centered Care Assessment for Families (FCCA-F) (Word Document 242 KB)
A survey to measure the quality of family-centered care that a health care provider gives to a child and family; for pediatricians to give to families. Developed by Family Voices

Transition Providers Request Form (Word Document 61 KB)
A template letter to assess whether adult providers will take young adult patients with special health care needs.

Authors & Reviewers

Initial publication: December 2003; last update/revision: November 2018
Current Authors and Reviewers:
Author: Jennifer Goldman, MD, MRP, FAAP
Authoring history
2015: update: Mindy Tueller, MS, MCHESCA
2003: first version: Gina Pola-MoneyA; Kathy Heffron, RNA
AAuthor; CAContributing Author; SASenior Author; RReviewer