Cornelia de Lange Syndrome Clinics

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Clinics or programs focused on the care of children with Cornelia de Lange Syndrome; includes programs designated by the CdLS Foundation as Centers for Excellence.

Service Legend
Local Service
Statewide Service: Provides online resources, telehealth, or service at a satellite office.
Nationwide Service: Provides online resources, telehealth or services at a regional/national headquarters location.
Statewide Provider
1275 East Fairfax Road
Salt Lake City, UT 84103
Phone: 801-536-3777
Statewide Provider
Organization Name: Shriners Children’s Salt Lake City
(Show others in Organization)
1275 East Fairfax Road
Salt Lake City, UT 84103
Phone: 801-536-3777

For families who have a child with CdLS. New patients must first be seen in the Outpatient Clinic, for referral to the Cornelia de Lange Syndrome Clinic.

Services Provided:

New Patient Referrals: 800-314-4283 See 

The Cornelia de Lange syndrome (CdLS) clinic is held annually in March, and is a valuable resource for families who have a child with this condition. Orthopaedics, developmental pediatrics, neurology, gastroenterology, ENT, genetics counseling, social work, PT/OT, dental and nutrition are represented at this hugely successful clinic is the first of its kind.

Provider Profiles:

Supported by the CdLS Foundation.

Source: Medical Home Portal
Last Updated: 11/17/2021