Before a Diagnosis
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Screening Tests and the Diagnostic Process
- What is a screning test
- Prenatal Tests
- Newborn/Infant Screening
- Developmental Surveillance, Screening, and Diagnosis
- Screening Settings
- Resources
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When There are Concerns
- From Your Doctor
- From You
- What Happens Next
- Resources
Identifying and Diagnosing Problems
Resources
Information & Support
For Parents and Patients
Family Voices (FVAO) or Health Information(F2F) Center
Family-to-Family Health Information Centers are nonprofit, family-staffed organizations that assist families of children and
youth with special health care needs (CYSHCN). Locate state-based F2F HICs, providing support, information, resources, and
training.
Family Voices
A national, nonprofit, family-led organization promoting quality health care for all children and youth, particularly those
with special health care needs. Locate your Family-to-Family Health Information Center by state.
Parent Training and Information Centers (PTI)
Provide training and information to parents of infants, toddlers, children, and youth with disabilities and to people who
work with parents to enable them to participate more fully and effectively with professionals in meeting the educational needs
of their children with disabilities. See the link for Download a List of Parent Centers across the USA to find the parent
center in your state; U.S. Department of Education.
Utah Parent Center
A nonprofit organization that provides training, information, referral, and assistance to parents of children and youth with
all disabilities including physical, mental, hearing, vision, learning, behavioral, and emotional. Staff consists primarily
of parents of children and youth with disabilities.
Find Your Parent Center
Parent Centers provide education and referrals for families with a child who has a disability, as well as the professionals
who work with them. There are almost 100 Parent Training and Information Centers (PTIs) and Community Parent Resource Centers
(CPRCs) in the US states and Territories; Center for Parent Information & Resources.
Learn the Signs Act Early (CDC)
Offers many tools, videos, lists, learning materials, and a developmental Milestone Tracker app (ages 2 months to 5 years);
Centers for Disease Control and Prevention.
Services for Patients & Families in Utah (UT)
| Service Categories | # of providers* in: | UT | NW | Other states (5) (show) | | MT | NM | NV | OH | RI |
|---|---|---|---|---|---|---|---|---|---|---|
| Audiology | 28 | 3 | 49 | 5 | 8 | 3 | 26 | |||
| Developmental Assessments | 55 | 13 | 112 | 3 | 34 | |||||
| Early Intervention for Children with Disabilities/Delays | 55 | 3 | 27 | 36 | 31 | 3 | 14 | |||
| Genetic Testing and Counseling | 13 | 6 | 12 | 7 | 13 | 6 | 8 | |||
| Local Support Groups, General | 71 | 3 | 15 | 9 | 49 | 3 | 10 | |||
| Medical Genetics | 6 | 1 | 8 | 2 | 5 | 1 | 4 | |||
| Newborn Screening Services | 3 | 1 | 4 | 1 | 2 | 1 | 2 | |||
| Occupational Therapy | 38 | 1 | 44 | 23 | 27 | 1 | 18 | |||
| Physical Therapy | 50 | 46 | 17 | 11 | 5 | |||||
For services not listed above, browse our Services categories or search our database.
* number of provider listings may vary by how states categorize services, whether providers are listed by organization or individual, how services are organized in the state, and other factors; Nationwide (NW) providers are generally limited to web-based services, provider locator services, and organizations that serve children from across the nation.